Anyone else with Fibromyalgia?

2

Replies

  • lotusfromthemud
    lotusfromthemud Posts: 5,335 Member
    Oh, and P.S. . .

    This is a really important issue to discuss with your Dr. IMHO (and my doctor's, BTW) Sleep is the most important part of your well-being. If I have too many nights of not enough sleep. . .I'm in trouble.
  • so, I'm having a major issue right now. I can't sleep. It takes me hours to fall asleep, then when I do, I wake up about 15 minutes later, fall back asleep, wake up, sleep, wake...and that process goes on all night. I'm exhausted, and it's really taking a toll on my psyche. Have any of you had sleeping problems this serious? What did you do to get some sleep? I dread going to bed because I know what torture my night is going to be. :yawn: Sooo tired and cranky!

    Sleep aaahhhh but just a distant thought.... I actually would NEVER go to sleep:yawn: if it weren't for my dr. prescribing Ambien... not the CR... just 10mg of Ambien... I also take a hot bath with "Pain Therapy" bath salts.. found in my local food market in the natural food/supplements. It has eucalyptus, menthal and is not drying... it is heaven... I buy it, three bottles at a time, in case they discontinue it... I was told I can take Valarian about an hour before I take the Ambien which is suppose to help calm the nerves... (havent tried it, but did buy it) Some nights I only need half the ambien... but I have quit fighting the fact that I need it, and gave up the guilt because I need a sleep aid... Check with your dr. Just some things that work for me.
    Hey Way to go with the bike ride...:flowerforyou: I am thinking I will get my bike out, and NOT tell anyone I am going, just to see how far I can get :smile: no pressure, just me...
  • BrendaLee
    BrendaLee Posts: 4,463 Member
    BrendaLee,


    do you use caffeine at all? (if so, it will really help if you don't have any after noon) Or other supplements/meds? I find that I have to avoid even my multi-vitamin too late in the day.

    Do you take any supplements or meds for sleep? I've had good success with both 5-HTP and melatonin for sleep. As part of my fibro protocol, I take 5-HTP twice a day. (I'm not a doctor!!!! Just my experience.)

    I also have a super-sacred-sleep ritual: Every night I take a hot bath, sometimes with lavendar oil and a little coconut oil. Also, I dim all the lights in my house when it gets dark, and I find this seems to help me wind down.

    A million other things. . .are you stressed? Is it close to your TOM? I always have insomnia a few days a month, just hormones. . .

    Hope some of that helps.:flowerforyou:

    I've pretty much given up all caffeine- I do have the occasional green tea and a rare soda, but generally no caffeine anymore.

    My Dr prescribed ativan to help me sleep, but it doesn't do much good. I fall asleep faster when I take it, but the sleeping and waking thing continues no matter what. It's been an ongoing problem for years, then it got a bit better, and now it's back full force. I've tried both 5-HTP and Melatonin to no avail.

    Stress? Oh yes. lol Probably because I can't sleep. What a vicious cycle!
  • BrendaLee
    BrendaLee Posts: 4,463 Member
    so, I'm having a major issue right now. I can't sleep. It takes me hours to fall asleep, then when I do, I wake up about 15 minutes later, fall back asleep, wake up, sleep, wake...and that process goes on all night. I'm exhausted, and it's really taking a toll on my psyche. Have any of you had sleeping problems this serious? What did you do to get some sleep? I dread going to bed because I know what torture my night is going to be. :yawn: Sooo tired and cranky!

    Sleep aaahhhh but just a distant thought.... I actually would NEVER go to sleep:yawn: if it weren't for my dr. prescribing Ambien... not the CR... just 10mg of Ambien... I also take a hot bath with "Pain Therapy" bath salts.. found in my local food market in the natural food/supplements. It has eucalyptus, menthal and is not drying... it is heaven... I buy it, three bottles at a time, in case they discontinue it... I was told I can take Valarian about an hour before I take the Ambien which is suppose to help calm the nerves... (havent tried it, but did buy it) Some nights I only need half the ambien... but I have quit fighting the fact that I need it, and gave up the guilt because I need a sleep aid... Check with your dr. Just some things that work for me.
    Hey Way to go with the bike ride...:flowerforyou: I am thinking I will get my bike out, and NOT tell anyone I am going, just to see how far I can get :smile: no pressure, just me...

    I would love to try Ambien, but unfortunately it isn't covered by my drug plan (actually, I'm not even sure it's available in Canada). I'm definitely going to have to discuss other options with my Dr. Must....sleeeeep.... :tongue:
  • gemiwing
    gemiwing Posts: 1,525 Member
    Melatonin works for me- until the eigth day I take it. My body rejects it somehow and I sleep horribly. It's ok because you're only supposed to take it for seven days in a row anyway.

    I play solitare on my ds in the dark. For some reason doing the same thing every night helps me sleep. Something else I do is play a gentle movie that I've seen a million times. Play it just loud enough to hear, then i turn the screen off. I roll over and close my eyes and try to 'watch' the movie in my head. I've found that visualizing the movie helps turn on my dreaming. Weird, I know, but it works for me.
  • BrendaLee
    BrendaLee Posts: 4,463 Member
    Melatonin works for me- until the eigth day I take it. My body rejects it somehow and I sleep horribly. It's ok because you're only supposed to take it for seven days in a row anyway.

    I play solitare on my ds in the dark. For some reason doing the same thing every night helps me sleep. Something else I do is play a gentle movie that I've seen a million times. Play it just loud enough to hear, then i turn the screen off. I roll over and close my eyes and try to 'watch' the movie in my head. I've found that visualizing the movie helps turn on my dreaming. Weird, I know, but it works for me.

    I've read that a night time routine is very helpful in falling asleep. I wish my biggest problem was falling asleep (it's a problem, but not the worst)- I just can't stay asleep for more than a few minutes.
  • gemiwing
    gemiwing Posts: 1,525 Member
    Have you tried a white noise machine? Many people swear by theirs.
  • teachparents
    teachparents Posts: 225 Member
    i have fibro and i find that i can exercise at the gym only as far as i can,, so some days i do an entire workout, some days i have to quit half way through or only 10 minutes into it.

    i have a pool at home an dand the gym and pool exercise programs are awesome for fibromyalgia... the water eases the movements but you still get the exercise

    and when no one is looking at home in my hot tub i do stretches and exercises in there too. the water massages the muscles....
  • BrendaLee
    BrendaLee Posts: 4,463 Member
    Have you tried a white noise machine? Many people swear by theirs.

    I haven't...but I may actually look into that.
  • BrendaLee
    BrendaLee Posts: 4,463 Member
    i have fibro and i find that i can exercise at the gym only as far as i can,, so some days i do an entire workout, some days i have to quit half way through or only 10 minutes into it.

    i have a pool at home an dand the gym and pool exercise programs are awesome for fibromyalgia... the water eases the movements but you still get the exercise

    and when no one is looking at home in my hot tub i do stretches and exercises in there too. the water massages the muscles....

    I just got back from the pool...love it. :smile:
  • lotusfromthemud
    lotusfromthemud Posts: 5,335 Member
    Have you tried a white noise machine? Many people swear by theirs.

    I haven't...but I may actually look into that.

    Oh, I forgot all about that. . .I have one, which helps a lot. (I'm a frequent waker/light sleeper, and it helps me sleep more steady.)
  • You know the trouble sleeping is something that I've had for years, even before being diagnosed with fibro. For a while the pain is what kept me waking up through the night. Since I haven't found a doctor yet, when I have trouble sleeping i take 2 benedryl's and drink a cup of hot camamille tea. It's very soothing. Sometimes I also do some PM yoga. It is on my on demand for cable people. It consists of easy stretches and poses that helps your body wind down at the end of the day.

    I understand the pushing through the pain because its what I've been doing for years now. Sometimes my symptoms are nice and don't all bombard me at one time. Sometime I have bad IBS and little pain, then I have a lot of pain and fatigue but no IBS. Again, its a vicious cycle. As far as weight lifting goes, I agree that getting a trainer who knows what fibro is is probably a great thing. Also, know when to say ENOUGH!!! And stretch all through out the day, i find that that really helps me on my lifting days.
  • [/quote]

    I would love to try Ambien, but unfortunately it isn't covered by my drug plan (actually, I'm not even sure it's available in Canada). I'm definitely going to have to discuss other options with my Dr. Must....sleeeeep.... :tongue:
    [/quote]
    You might ask about Ambien CR it now has a generic form and it is the one that is suppose to help keep you to sleep. For me, I found it was not strong enough to get me to sleep, but I have other friends that swear by it. They say its the only thing that keeps them from waking up during the night. Me I don't go to sleep well, and then I am a very light sleeper... years of having four babies in the house, and then teenagers... now it is more just my body tuning system I think, but for me the Ambien gets me to sleep. I hate to sleep more than five hours, because then I hurt so bad, I can't get out of bed... for me less is more... I just live tired :yawn:
    If you can find the bath salts... they are extremely relaxing and soothing it might be what you need.
  • anglbebe
    anglbebe Posts: 89 Member
    Hi Everyone,
    I'm glad I'm not the only one with the Fibro. It has really been tough dealing with it. I remember before I was diagnosed. I would feel like crap because everything hurt. I gained up to 285 pounds because it hurt to walk. My family used to just say I was whiny. I wasn't I was in pain. I worked almost 60 hours a week taking care of elderly and I just hurt all the time. Shoot to bend over I would get dizzy and nausea. What finally made me look into it was I was working in a nursing home and I was lifting a relatively small (85 lbs.) woman to her chair with another aide and I felt her slipping. I said to the aide I gotta get her down quick I'm gonna lose her. She was not happy because we hadn't really moved her too far. But it was either that or injure the resident, I finished helping the aide and I went to the nurse. Explained what was going on. She had someone help me finish my shift. And I called the doc the next day. I remember feeling like such a weakling, like I was helpless. even now that I have lost 67 lbs. I feel like I am getting weaker. I have been working out with the same weight amount for a few years now, and all of a sudden I can't lift what I used to. It feels like the same weights I had been lifting fine 2 weeks ago, I cant even barely pick up. Its frustrating.

    sheesh where did that come from. Sorry I didn't mean to type so much.
  • Just know you are not alone. First step is to get a doctor that understand Fibro is an illness and start treating some of the symptoms so you can function. Once you start living again it helps... will the pain, weakness, bone sucking tiredness go away..... who knows, the medical field still doesn't know what even causes fibro or why, but at least there is help out there now.
    take it one day at a time, some days that is all you can do :0)
  • BrendaLee
    BrendaLee Posts: 4,463 Member
    Hi Everyone,
    I'm glad I'm not the only one with the Fibro. It has really been tough dealing with it. I remember before I was diagnosed. I would feel like crap because everything hurt. I gained up to 285 pounds because it hurt to walk. My family used to just say I was whiny. I wasn't I was in pain. I worked almost 60 hours a week taking care of elderly and I just hurt all the time. Shoot to bend over I would get dizzy and nausea. What finally made me look into it was I was working in a nursing home and I was lifting a relatively small (85 lbs.) woman to her chair with another aide and I felt her slipping. I said to the aide I gotta get her down quick I'm gonna lose her. She was not happy because we hadn't really moved her too far. But it was either that or injure the resident, I finished helping the aide and I went to the nurse. Explained what was going on. She had someone help me finish my shift. And I called the doc the next day. I remember feeling like such a weakling, like I was helpless. even now that I have lost 67 lbs. I feel like I am getting weaker. I have been working out with the same weight amount for a few years now, and all of a sudden I can't lift what I used to. It feels like the same weights I had been lifting fine 2 weeks ago, I cant even barely pick up. Its frustrating.

    sheesh where did that come from. Sorry I didn't mean to type so much.

    I remember that they used to say fibro isn't progressive, yet here I was getting worse every year- now they know it IS progressive. I've become a lot weaker just over the past few years...and I've always prided myself on being strong. No one understands either, but really how could they? My one sister has diabetes, and thinks she has it (life in general) worse than I do. My other sister has a bad back, and thinks she has it the worst...if only they knew what WE hide under our smiles.

    Fibro has made me very sad as of late...because I know it's getting worse, and there's no cure or understanding of the disease on the horizon. I'm feeling pretty alone these days. My car broke down recently, and I ended up selling it thinking I could rely on my family to get me where I needed to go- there's 12 of us, after all, but I end up not even making doctor's appointments anymore because I know I won't have a way to get there. Yesterday my daughter and I walked to and from the grocery store. All in all it was a 2 hour trip, and I was half dead when I got home. They tell me to take the bus when I need to go up town or to appointments, because they think I'm just too lazy to stand around and wait for a bus, but it's hard when you have to wait 45 minutes in between busses and walk to and from bus stops when really all you want to do is LIE DOWN....and that's kinda frowned upon in public.

    I used to have big hopes that I'd lose the weight and the fibro would be so much better...I don't exactly have that hope anymore, but I figure it's gotta be easier to weigh 150 with fibro then to weigh 300 with fibro. If nothing else, doctors may take me more seriously and not automatically assume everything is because of my weight.

    Ahhhh....anyone else wanna rant today? :)

  • I used to have big hopes that I'd lose the weight and the fibro would be so much better...I don't exactly have that hope anymore, but I figure it's gotta be easier to weigh 150 with fibro then to weigh 300 with fibro. If nothing else, doctors may take me more seriously and not automatically assume everything is because of my weight.

    Ahhhh....anyone else wanna rant today? :)
    Welllllll....:tongue: dear fribro sister... I think you said it very well!! One day at a time... nothing more... and if that is just to much.... one minute at a time... Yes fibro at 150 is better than 300 if no other reason than what you just said... walking... try walking with a 10 bag of sugar from each bus stop and then toss that bag of sugar away.... I promise you will feel much lighter.... welll that is what the pressure of the weight is on your body with the extra weight.... does that help?:smile: I hope so... my scale and I had a very bad morning today.... :sad:
  • anglbebe
    anglbebe Posts: 89 Member
    Hi Everyone,
    I'm glad I'm not the only one with the Fibro. It has really been tough dealing with it. I remember before I was diagnosed. I would feel like crap because everything hurt. I gained up to 285 pounds because it hurt to walk. My family used to just say I was whiny. I wasn't I was in pain. I worked almost 60 hours a week taking care of elderly and I just hurt all the time. Shoot to bend over I would get dizzy and nausea. What finally made me look into it was I was working in a nursing home and I was lifting a relatively small (85 lbs.) woman to her chair with another aide and I felt her slipping. I said to the aide I gotta get her down quick I'm gonna lose her. She was not happy because we hadn't really moved her too far. But it was either that or injure the resident, I finished helping the aide and I went to the nurse. Explained what was going on. She had someone help me finish my shift. And I called the doc the next day. I remember feeling like such a weakling, like I was helpless. even now that I have lost 67 lbs. I feel like I am getting weaker. I have been working out with the same weight amount for a few years now, and all of a sudden I can't lift what I used to. It feels like the same weights I had been lifting fine 2 weeks ago, I cant even barely pick up. Its frustrating.

    sheesh where did that come from. Sorry I didn't mean to type so much.

    I remember that they used to say fibro isn't progressive, yet here I was getting worse every year- now they know it IS progressive. I've become a lot weaker just over the past few years...and I've always prided myself on being strong. No one understands either, but really how could they? My one sister has diabetes, and thinks she has it (life in general) worse than I do. My other sister has a bad back, and thinks she has it the worst...if only they knew what WE hide under our smiles.

    Fibro has made me very sad as of late...because I know it's getting worse, and there's no cure or understanding of the disease on the horizon. I'm feeling pretty alone these days. My car broke down recently, and I ended up selling it thinking I could rely on my family to get me where I needed to go- there's 12 of us, after all, but I end up not even making doctor's appointments anymore because I know I won't have a way to get there. Yesterday my daughter and I walked to and from the grocery store. All in all it was a 2 hour trip, and I was half dead when I got home. They tell me to take the bus when I need to go up town or to appointments, because they think I'm just too lazy to stand around and wait for a bus, but it's hard when you have to wait 45 minutes in between busses and walk to and from bus stops when really all you want to do is LIE DOWN....and that's kinda frowned upon in public.

    I used to have big hopes that I'd lose the weight and the fibro would be so much better...I don't exactly have that hope anymore, but I figure it's gotta be easier to weigh 150 with fibro then to weigh 300 with fibro. If nothing else, doctors may take me more seriously and not automatically assume everything is because of my weight.

    Ahhhh....anyone else wanna rant today? :)

    Ahh a like mind. I am glad I found you guys here. I had a feeling it was my fibro why I was getting weaker. Kinda disheartening to know it isn't gonna get any better. I I know what you mean by walking everywhere. I don't have a car either. And everyone is so busy so I walk everywhere. I have to go to the career center here in MA every day it's a 45 minute walk away. and people always ask me, Why dont you just take the bus there. Well no busses go by my house. and I walk to the bus terminal and guess what is 2 blocks away. So whats the point. DUH! I dunno. But I just do what I gotta do and fell like crap. Oh well.
  • thumper44
    thumper44 Posts: 1,464 Member
    Sorry to hear, I've heard this causes alot of pain.

    FYI, Something to read and possibly search into if you are interested.
    Warning, some of this information might be to ummmm gross for certain people.

    This is a support forum I found on the internet that had some ariticles, facts.
    http://www.fibromyalgia-support.org/fibromyalgia-facts.html

    Doctors don't know causes for many diseases out there.
    You could go see a naturopathic practiioner.

    http://www.medhelp.org/posts/Fibromyalgia---CFS/How-many-of-you-have-been-tested-for-parasites/show/658619

    http://health.learninginfo.org/causes-fibromyalgia.htm
  • anglbebe
    anglbebe Posts: 89 Member
    Sorry to hear, I've heard this causes alot of pain.

    FYI, Something to read and possibly search into if you are interested.
    Warning, some of this information might be to ummmm gross for certain people.

    This is a support forum I found on the internet that had some ariticles, facts.
    http://www.fibromyalgia-support.org/fibromyalgia-facts.html

    Doctors don't know causes for many diseases out there.
    You could go see a naturopathic practiioner.

    http://www.medhelp.org/posts/Fibromyalgia---CFS/How-many-of-you-have-been-tested-for-parasites/show/658619

    http://health.learninginfo.org/causes-fibromyalgia.htm

    Thanks for the warning. That was pretty umm.. gross. But informative at the same time. I will look into that further after I stop itching. :laugh: Why is it when someone mentions bugs you itch?
  • BrendaLee
    BrendaLee Posts: 4,463 Member
    How's everyone doing? Still hanging in there? :)

    I had a bad visit with my doctor yesterday, and I've been feeling quite discouraged ever since. First, after 2 weeks of being good with my calories and exercise, I was up 3/4 of a pound- which isn't a lot, but not being down is, as you know, discouraging.

    Then, when I got to talk to my doctor, I asked her about trying something new for pain since the Tylenol 3 is killing my stomach, and she said there was literally NOTHING else she could give me other than Tylenol 3. Nothing else? She said there was nothing equivalent to or slightly stronger than T3's, and the next step would be something like Dilaudid or Morphine which she was not about to prescribe to me. I went on for 10 minutes describing the severity of my pain, and she outright refused to give me anything else. I even asked her about Lyrica (which is not covered by my drug plan), and she said, "Well that's more for neurological pain." I mentioned that it had been approved for fibro pain, and she reluctantly agreed that it had been, but I could see that was not something she was going to consider prescribing for me either. Then I mentioned Tramadol (also not covered), and she hummed and hawed about that as well. I just don't get it. She absolutely does not take my pain seriously. Here in New Brunswick we don't really have the option of just seeing another doctor, so I'm pretty much stuck with her.

    Needless to say, I'm discouraged. I think I'm going to try to find a fibro support group here. I'm sure I'm not the first person with fibro to have to deal with an unsympathetic doctor.
  • BrendaLee
    BrendaLee Posts: 4,463 Member
    Any new fibromites out there looking for a place to vent? I'd like to hear some others' rants so I don't feel like the only one who wants to whine! :tongue:
  • thumper44
    thumper44 Posts: 1,464 Member
    Brenda,

    Do you not have a walkin medical clinic that you can go see another doctor that way?

    There's other pills over the counter that work for pain.
    My OH get's them from the US everytime she goes there, but I think she said they have started selling in canada.
    Looked at a previous bottle.. "walgreens, All day pain relief" Little blue pills.
    Naproxen Sodium.

    Not sure if you had checked out my links in previous message, but there is a support group out there.
    http://www.fibromyalgia-support.org/

    Besides Medical doctors, perhaps it's time you visit a Naturopathic doctor.

    Fredricton Naturopathic Clinic
    http://www.naturedocs.ca/

    New Brunswick Association of Naturopathic Doctors
    http://www.nband.ca/

    Good luck:flowerforyou:
  • lotusfromthemud
    lotusfromthemud Posts: 5,335 Member
    Brenda, maybe you can't just go and see another doctor, but you're perfectly in your rights to ask for a referral to a specialist in fibromyalgia or a rheumatologist. Many specialists believe that fibro pain IS neurological pain, so your doctor quite frankly doesn't know what she's talking about there.

    I hate to say it, but I agree with your Dr. regarding stronger painkillers, they are addictive, and since the pain of fibro is life-long. . .they will stop working and you'll need to up the dosage, and then the cycle repeats. They do a lot of damage to your body long term, and I have a friend who had to go to rehab due to them. Also, you have to understand that since painkillers are addictive, a lot of people exaggerate their pain in order to get them. I am NOT saying you are doing this, but Dr.s have a sort of knee-jerk reaction to these requests, because they are liable for your safety.

    Question: outside of medication, what other pain management steps are you taking?

    That being said, you could also ask to be referred to a naturopath (or seek one out yourself) many charge a sliding scale, and their rates might be within your means.

    In the meantime, keep your head up, and don't think that you don't have options. A very valuable bit of advice I got was "never say 'I can't' when it comes to your medical care." You have rights as a patient to be heard.:flowerforyou:
  • BrendaLee
    BrendaLee Posts: 4,463 Member
    Brenda,

    Do you not have a walkin medical clinic that you can go see another doctor that way?

    There's other pills over the counter that work for pain.
    My OH get's them from the US everytime she goes there, but I think she said they have started selling in canada.
    Looked at a previous bottle.. "walgreens, All day pain relief" Little blue pills.
    Naproxen Sodium.

    Not sure if you had checked out my links in previous message, but there is a support group out there.
    http://www.fibromyalgia-support.org/

    Besides Medical doctors, perhaps it's time you visit a Naturopathic doctor.

    Fredricton Naturopathic Clinic
    http://www.naturedocs.ca/

    New Brunswick Association of Naturopathic Doctors
    http://www.nband.ca/

    Good luck:flowerforyou:

    I would really love to see a naturopath, but I just don't have the funds to do it. I've been trying different natural remedies through the years, but haven't had good results with them. When I hear of a new thing that's supposed to work for fibro or depression, I try it. I can't afford massage, accupuncture or a chiropractor...all of which I would love to try.
  • BrendaLee
    BrendaLee Posts: 4,463 Member
    Brenda, maybe you can't just go and see another doctor, but you're perfectly in your rights to ask for a referral to a specialist in fibromyalgia or a rheumatologist. Many specialists believe that fibro pain IS neurological pain, so your doctor quite frankly doesn't know what she's talking about there.

    I hate to say it, but I agree with your Dr. regarding stronger painkillers, they are addictive, and since the pain of fibro is life-long. . .they will stop working and you'll need to up the dosage, and then the cycle repeats. They do a lot of damage to your body long term, and I have a friend who had to go to rehab due to them. Also, you have to understand that since painkillers are addictive, a lot of people exaggerate their pain in order to get them. I am NOT saying you are doing this, but Dr.s have a sort of knee-jerk reaction to these requests, because they are liable for your safety.

    Question: outside of medication, what other pain management steps are you taking?

    That being said, you could also ask to be referred to a naturopath (or seek one out yourself) many charge a sliding scale, and their rates might be within your means.

    In the meantime, keep your head up, and don't think that you don't have options. A very valuable bit of advice I got was "never say 'I can't' when it comes to your medical care." You have rights as a patient to be heard.:flowerforyou:

    I know pain medications are addictive, but when you have no quality of life to begin with...you get to the point where you're just hoping for any sort of relief. The only way I know to help manage my pain is to exercise and stretch- which I do, and it has helped with the body pain, but I have severe, life-altering pain in my neck and head on a daily basis. The pain keeps me awake, and you know how important sleep is in relieving fibro symptoms. I don't know...I'm tired. :tongue:
  • lotusfromthemud
    lotusfromthemud Posts: 5,335 Member
    Just an idea, but try this:

    http://fm-cfs.ca/weeklypainchart.pdf

    It's a pain diary you keep. Maybe if you show your doctor where the pain is, what type of pain it is, etc. . .then he/she might take your pain more seriously. Also, there's an article on the same website that links to a study about fibro and neurological pain. I'm still confused as to why she wouldn't consider prescribing Lyrica for you.

    Still, I would ask/demand to be referred to a specialist in chronic pain. The pain chart is from a useful website that is full of information, and may have a list of specialists. It also has a list of FM/CFS support groups. Not sure if one is in your area, but it might be a good resource for you.

    :flowerforyou:
  • Hi

    I am so pleasantly surprised to find this thread. I have battled fibro for about 10 years now. It is mild most of the time. But it interferes in my life in so many ways -- and you are so right no one else understands the pain because it can almost be like a phantom pain.

    Mine is mostly in my joints in my arms & legs. Especially shoulders & knees. I notice it most in the spring & fall, when I am stressed, when I am not sleeping well (which we know is a vicious cycle cause you dont sleep well because of fibro then you are sore then you are tired then you cant sleep well .... ) I know you know....:sad:

    Mostly I take a multivitamin & do low impact exercises. I love to swim. Pain reliever when needed & I take both tylenol & ibuprofen. Losing weight does help. My doc is very good when I need help.

    My daughter-n-law is a massage therapist & sometime that helps - she is amazing.

    I also struggle with severe clinical depression & hypothyroidism. Didnt someone say this is a griping thread??? I try not to feel sorry for myself but there are days I feel at least 20 years older than I really am.

    I know there are people who suffer more than I do & I have had days that have been worse than today. I give myself permission to say 'no' & to have 'a bad day' if that's what I need. And I dont apologize for it.

    I appreciate so much the chance to share. It takes courage to talk about these things. Thanks so much for reminding me I'm am not alone & that there are others who understand:flowerforyou:
  • Hello,
    This week has been a good week with my fibro. Although I'm still having the bad pains in my knees. My sleeping patterns have been okay this last week, I'm praying they stay that way for awhile because I'm too tired of the restless nights. I'm currently looking for a way to get my insurance to pay for massage therapy and I'm looking for a studio that offers Bikram yoga. Other than that I'm okay. No bad bouts of depression in awhile which is a blessing. I'll admit sometimes I get really down on myself and my self-confidence takes quite a beating but I'm working on it.

    You guys are in my prayers!!!
  • lotusfromthemud
    lotusfromthemud Posts: 5,335 Member
    AAAAAAiiiiiigh!

    Anyone have any advice (medical or supplement wise) for not catching EVERYTHING? I'm so frustrated, because since mid-August, I have had two colds and what now appears to be the flu. And, I'm just hoping it isn't "the" flu going around. I feel like lately I've been sick more often than I've been well. My workouts are suffering, and so is my outlook on life. . .I'm bordering on depressed.

    I just seem to have no resistance to fight anything I'm exposed to. I would say that's my number one symptom right now.

    Any ideas or sympathy accepted.:tongue:
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