anyone else with NF1?

Bookworm_Chris

I am still fairly new (been here about a month) to MFP, and was wondering if anyone else has NF1 (or even NF2 for that matter). I have had the problem since birth, but wasn't officially diagnosed til about my teen years. So far, most of the issues have been just with the common cafe au lait markings, and plexiform neurofibromas. However, I did have a lot of health problems, and was recently diagnosed with fibromylagia. Its not known if it is related or not, but its something I struggle with. Because even when I reach my goal weight, I still dont' know if I will feel comfortable in my own skin. At some point, I would like to speak to a specialist or plastic surgeon who deals with this kind of thing to get some of the more bothersome ones removed. Anyway, just wanted to put it out there that if anyone else is dealing with this (even if not personally, has a family member with it) there is someone else here who understands, and is willing to offer support.