Anyone with Hypothyroidism or Hashimoto's Thyroiditis?

foranagirl

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Javajunkie67

The only thing that continues to work for me is lower/ moderate carbs. I stayed under 100 for several months and lost weight after I got stuck. I did try recently to increase them, but no dice- the weight stuck to me and I always felt tired, like I needed a nap. The 100 seems to work best for me with a high day (almost 200 grams) every 6-7 days. I do try to keep the carbs as heathy as I can.

Good luck everyone!

jlhcorley

I was diagnosed with Hashimoto's this June, but I am not on meds. My thyroid is still working, supposedly. My endocrinologist said if she put me on synthroid at this point, I'd become hyperthyroid. I'm trying very hard to lose weight, but even with a personal trainer it's not coming off as fast as it did 5 years ago.

julesboots

Diagnosed with hashimoto's about 10 years ago. My tsh hovered 5-7, and it's been less than 1 for the last 8 years. Strangely, I felt absolutely no difference between a tsh of 5 and 1. Also, basal temperature has remained at 97.0. It really doesn't interfere with my life, and I don't think about it other than to take and refill the levothyroxine.

Eve23

Yes but I currently do not do medication. Both of my parents, and all my sisters have hashimotos at varying points right now. But you can still lose weight here.

One of the biggest things about hashimotos is that your thyroid can change and be hyper or hypo. It can cause storms which are miserable. So it is important to be aware of what your body it doing and how you react to them.

linz1125

When I was 19 I was diagnosed with hashi motos hypothyroid. I was not able to regulate it, so I had it surgically removed after much fighting with my doctor (I wanted it out, he thought it should stay in). I finally said screw you I'm taking it out, and I'm glad I did! It ended up being 4x it's normal size and cancerous. Luckily since it was removed I didn't have to go through chemo/radiation. Every situation is different. If you don't feel your dosage/treatment is right, don't rely on what the doc is saying. Ask for your numbers every blood test and log how you are feeling - if it's not enough, too much, etc. that way you know your numbers and take charge of your treatment.

Thyroids can be tricky - but stay on top of your numbers and stay involved in your treatment.

Lovestoscrapbook

The best advice I can give from my experience with hypo and Hashimoto's is to be your own advocate and aggressive with insisting on blood work and treatment. My doctor put me off for nearly a year, blaming it on "new mom syndrome" to explain away the symptoms when in fact I could have been diagnosed with a simple blood test. And then it took another year before they could get my medication levels figured out.

Good luck!

KBrenOH

I was diagnosed last year with some type of thyroid issue but I have no idea what; I really need to have her write it down for me so I can remember. Right now I'm on 75mcg of some type of medicine but I'm not at a place where I can go grab the bottle to read the name of it (I think it's the generic for Synthroid). Before, I was on 50, then she lowered it to 25, and my levels were off so she raised it back to 50, and now.. they're off again so she has me at the 75. I do notice I still get tired though, but I don't sleep very good so I kind of attribute the tiredness to that and I also notice I get cold a lot easier, but I thought that was because I didn't have as much cushion so to speak to keep me warm.

I get re-checked every 3 months.

Eve23

When I was 19 I was diagnosed with hashi motos hypothyroid. I was not able to regulate it, so I had it surgically removed after much fighting with my doctor (I wanted it out, he thought it should stay in). I finally said screw you I'm taking it out, and I'm glad I did! It ended up being 4x it's normal size and cancerous. Luckily since it was removed I didn't have to go through chemo/radiation. Every situation is different. If you don't feel your dosage/treatment is right, don't rely on what the doc is saying. Ask for your numbers every blood test and log how you are feeling - if it's not enough, too much, etc. that way you know your numbers and take charge of your treatment.

Thyroids can be tricky - but stay on top of your numbers and stay involved in your treatment.

This is part of the reason I have not looked for treatment. I would like it to be taken out as it swells and causes me pain any time I have just a slight bit of soy. Summers are horrible as it tends to act up in the heat. The doctors here say that because it is an autoimmune issue they will not remove it.

PS2CR

Diagnosed with Hashimoto's three years ago after having a year or two of weird symptoms including depressive episodes, sluggishness, and weight gain. Had pregnancy symptoms and even breakthrough bleeding 10 years after menopause, and about 6 months later heart attack symptoms finally sent me to the ER. (The thyroid controls all hormonal function in your body, negatively affecting brain and even heart function if left untreated.) After several rounds of tests, the cardiologist finally discovered the Hashimoto's through bloodwork results.

A couple well-meaning 'friends' tried to suggest I brought this on myself by stressing over life events, but in hindsight, it's more likely I was stressing due to the undiagnosed hypothyroidism (which will often cause anxiety and depression as the hormonal disturbance messes with the chemical balances in the brain). Even if stress could bring on hypothyroidism, Hashimoto's is an auto-immune disease with a hereditary element, distinguishing it from the more generalized hypothyroid diagnosis. I was told that I should advise my sisters also to have bloodwork checked regularly for signs of this disease. If you have Hashimoto's the body's immune system is attacking the thyroid as a foreign agent, and the disease will progress (regardless of self-monitoring for stress) until the thyroid is destroyed. No cure, but thyroid replacement hormones can manage the disease.

I take 125mcg Synthroid as well as 5mcg Cytomel (synthetic T3) which my doc added at my request to boost energy levels. It really did make a difference.

RunMyOregonBunsOff

I have hypo and just got put on Cytomel as well as my Synthroid. I am starting to feel better already and I'm so hoping that this will keep me normal!

linz1125

When I was 19 I was diagnosed with hashi motos hypothyroid. I was not able to regulate it, so I had it surgically removed after much fighting with my doctor (I wanted it out, he thought it should stay in). I finally said screw you I'm taking it out, and I'm glad I did! It ended up being 4x it's normal size and cancerous. Luckily since it was removed I didn't have to go through chemo/radiation. Every situation is different. If you don't feel your dosage/treatment is right, don't rely on what the doc is saying. Ask for your numbers every blood test and log how you are feeling - if it's not enough, too much, etc. that way you know your numbers and take charge of your treatment.

Thyroids can be tricky - but stay on top of your numbers and stay involved in your treatment.

This is part of the reason I have not looked for treatment. I would like it to be taken out as it swells and causes me pain any time I have just a slight bit of soy. Summers are horrible as it tends to act up in the heat. The doctors here say that because it is an autoimmune issue they will not remove it.

So sorry just seeing this.

Does it swell up and restrict breathing? If so, they may be able to take it out then. I had to tell my doctors this so they would finally take it out.
Soy is notorious for effecting the thyroid...I try to stay away from it.

DanceForever904

i have had hypothyroidism for almost 4 years now and gained a bunch of weight cause of it but now ive lost 72 pounds in about 14 months. you can do it!!!

freedomlady

I was diagnosed with hashimoto's 20 years ago. No biggie. Ive been on thyroid meds since and I feel great. It is an easy fix once they figure how much meds to give you. Then I get my blood tested once a year to see if the same dose is working. My mom also has it. same thing... they just gave her a pill to take every day and wha-la! all fixed. I think Hashimotos is the same as Hypothyroid. they just don't always use the term hashimotos.

My sister has the opposite. Hyperthyroid. That is not good, or at least not for her. They used radiation to kill off some of her thyroid to make her hypothyroid, then gave her the same medication I take. Poor girl, it has been a lot harder on her than my hypothyroid. So I feel lucky to have something so easily fixable.

PS2CR

I was diagnosed with hashimoto's 20 years ago. No biggie. Ive been on thyroid meds since and I feel great. It is an easy fix once they figure how much meds to give you. Then I get my blood tested once a year to see if the same dose is working. My mom also has it. same thing... they just gave her a pill to take every day and wha-la! all fixed. I think Hashimotos is the same as Hypothyroid. they just don't always use the term hashimotos.

My sister has the opposite. Hyperthyroid. That is not good, or at least not for her. They used radiation to kill off some of her thyroid to make her hypothyroid, then gave her the same medication I take. Poor girl, it has been a lot harder on her than my hypothyroid. So I feel lucky to have something so easily fixable.

"Hashimoto's disease is a disease, and hypothyroidism is a condition. Hypothyroidism is most commonly caused by Hashimoto's disease, but the two terms are not interchangeable. Here is more information to help understand the difference..."

(See excellent 2-page discussion at this link: http://thyroid.about.com/cs/hypothyroidism/a/hashivshypo.htm )

EricaLynn813

wow I also have hypothyroidism and I have never heard of Hashimoto but from what I have read I have a lot of those symptoms which makes me wonder if I honestly have fibromalgia. I go back to the Dr. next month and I am going to be sure and ask about this thank you all for posting.

Restybaby2012

I was dx with thyroid trouble years ago and put on massive doses of synthroid. As long as I take it (400mcg) every day and keep it tested I do ok. What has happened ....even with being treated is I have an EXTREME intolerance to heat of any kind. Now when I say intolerance to heat..........Im not kidding. I live in south central Wisconsin where the winters can get 20 below with wind chills making it 30-40 below. We get lots of wind and lots if snow. Our winters are just as stoopid and FUBARD as our summer has been (EXTREME prolonged heat) ....but I digress. I havent had the heat on in my apartment for 2 years---literally. During the winter months I keep the bedroom window open and a fan on. My poor fiance' says even the polar bears wont come play cuz its too cold. The summer months are hell on me because of this intolerance. Ive seen every specialist there is for this and no one can explain it.

10 years ago I went on a walking diet kick and lost over 100 pounds in a heart beat.HA!! They cant explain that either. However..........after fracturing my neck and having both knees replaced AND a failed back surgery, the weight came back. Im hoping now to slowly get the weight off by choosing a better lifestyle rather than dieting. THATs been a problem for me all along---dieting.

Anyway.......it is possible to lose weight with thyroid issues but it is harder. My issue is the "other things" thyroid problems caused for me.

I wish you great success with treatment

underthecherrytree

Me! I was diagnosed 3 years ago. My mother and grandma also have it.

anwilson_83

any of you that have hashimotos,have you heard of gluten making it worse?

2youngatheart

:flowerforyou: bumpinkg...wish you well