Type 1 Diabetics

TELR85

I only signed up today and I am THRILLED to find other Type 1s.

I have had diabetes for 16 years now and pumped for the past 11. I have a CGM, but haven't really worn it since my pregnancy. It annoys me and I can't be bothered to add it into regime right now.

Has anyone tried adding Symlin to their regime? I hear it works wonders on getting rid of post-prandial spikes.

alikat517

Welcome to MFP! I think we need to start a type 1 group because it is so encouraging to visit with other type 1's as I don't know many in "real life" lol.
I tried Symlin a couple of times but I had a really hard time getting just the right bolus calculation. I would end up with severe lows and highs (like 30 to 300) but I have heard of others who use it and love it. I tried square wave, dual square wave and decided it was more than I wanted to take on at the time. Right now to combat postprandial highs I'm just trying to limit carbs to <35 grams per meal but easier said than done. Have any of you been to http://www.tudiabetes.org ? It is a great site where you can communicate with other diabetics and it has a whole forum devoted to Symlin.

Spokez70

Welcome to MFP! I think we need to start a type 1 group because it is so encouraging to visit with other type 1's as I don't know many in "real life" lol.

There already is a Type-1 group on MFP

http://www.myfitnesspal.com/groups/home/232-type-1-juvenile-diabetics

My 11 year old daughter was diagnosed with T1 almost 4 years ago.

alikat517

Lol thanks! Sorry, I haven't had a chance to browse through the groups yet but I will definitely check this one out!

becsnz1

Thanks for the advice! I actually haven't been having many lows, which suprised me, but when I started working out in the evenings I lowered my nightime Lantus a few units, based on prior experience. I know you pumpers have the disconnect option, which is maybe the only reason I'd like a pump!

I'm curious though- when people say with the pump they now don't have to eat on a schedule, is that because you were on an older insulin regime, like Regular or something? I started out right away with humalog, and eat or don't eat whenever I want, because it's fast-acting. Is the change to a pump that dramtic if you are already on a flexible routine with fast-acting insulin and carb-counting? I feel like I might be missing something!

No, with the routine you are on, there would not be that much difference really only the fact you can put your basal rate on hold if on a pump and go a bit low. I used to be on a pump, only used it for two years and I had so many hospital admissions with DKA. Though that was probably as a result of being Bulimic at the time which my specialist and no one apart from me knew about. I changed specialists after some time and he suggested I go on Lantus and Novorapid and ever since then my control has continued to improve. Being on a flexible routine is great though it's a tad annoying having to whip out the ole injection if there are carbs in sight haha. But you get used to it. :flowerforyou:

gerlcat

I have been counting the food in my food logs that I HAVE TO EAT for my lows. (New to MFP since Saturday-Type 1,on a Minimed Pump & Dexcom CGM). It stinks having to count the food for lows because: 1.) not the food/carb I would have chosen (juice or peanut butter crackers) 2.) not enjoying the food because I am just swallowing it as fast as I can 3) not really hungry when eating it! I am sure everyone can relate! I had three lows today. Here is a stupid question. If you have to eat in the middle of the night for a low, what day are you counting it on?

CJ_Holmes

Thanks for the advice! I actually haven't been having many lows, which suprised me, but when I started working out in the evenings I lowered my nightime Lantus a few units, based on prior experience. I know you pumpers have the disconnect option, which is maybe the only reason I'd like a pump!

I'm curious though- when people say with the pump they now don't have to eat on a schedule, is that because you were on an older insulin regime, like Regular or something? I started out right away with humalog, and eat or don't eat whenever I want, because it's fast-acting. Is the change to a pump that dramtic if you are already on a flexible routine with fast-acting insulin and carb-counting? I feel like I might be missing something!

No, with the routine you are on, there would not be that much difference really only the fact you can put your basal rate on hold if on a pump and go a bit low. I used to be on a pump, only used it for two years and I had so many hospital admissions with DKA. Though that was probably as a result of being Bulimic at the time which my specialist and no one apart from me knew about. I changed specialists after some time and he suggested I go on Lantus and Novorapid and ever since then my control has continued to improve. Being on a flexible routine is great though it's a tad annoying having to whip out the ole injection if there are carbs in sight haha. But you get used to it. :flowerforyou:

I'm glad you are feeling healthier! It's funny, i always felt like it was conspicuous when I take my insulin, but recently a friend of mine who I've known for a year said 'You're diabetic? I didn't know!" LOL! The pens are pretty disceet, I guess, and I'm fast!

CJ_Holmes

I have been counting the food in my food logs that I HAVE TO EAT for my lows. (New to MFP since Saturday-Type 1,on a Minimed Pump & Dexcom CGM). It stinks having to count the food for lows because: 1.) not the food/carb I would have chosen (juice or peanut butter crackers) 2.) not enjoying the food because I am just swallowing it as fast as I can 3) not really hungry when eating it! I am sure everyone can relate! I had three lows today. Here is a stupid question. If you have to eat in the middle of the night for a low, what day are you counting it on?

It really does stink! I've had friends say "well at least you get to eat sweets then" but as you pointed out, it is not enjoyable! I count the night low on the new day. It's disheartening to start the day with a few hundred calories of sugar already on the report, but at least then you can exercise or cut something else out to take charge. Also, just be compassionate and patient. We have a whole extra set of hurdles here, and sometimes it just doesn't work well.

1BRIGHTCHICK

Glad to see this group available. I just learned of being Type I at the end of July after a scary DKA situation and glucose of 998. I was in the ICU for a week, and every since my release from the hospital my life has forever changed. I am on some high doses of Humalog 3 times a day and Levemir 2 times a day now and exercise 7 days a week, along with counting carbs and calories on MFP. I'm grateful for living to tell my story to many others. I wish everyone well along our journey to good health!

CJ_Holmes

Glad to see this group available. I just learned of being Type I at the end of July after a scary DKA situation and glucose of 998. I was in the ICU for a week, and every since my release from the hospital my life has forever changed. I am on some high doses of Humalog 3 times a day and Levemir 2 times a day now and exercise 7 days a week, along with counting carbs and calories on MFP. I'm grateful for living to tell my story to many others. I wish everyone well along our journey to good health!

Oh, wow, I remember that time! I was DXed the same way! They couldn't believe I walked in on my feet- it is amazing how sick you can get before admitting it. Everything has changed, but you will learn so much, and pretty soon your insulin and needs will be routine. When I was in the hospital, a trainer said to me "You can look at this as a chance to be healthier that anyone else- it can be in your pocket or on your back." It sounds like you are off to a GREAT start! Another great resource for me was diabeticforums.com. I found that the best source of information is long-time diabetics! They have even more time to research and figure things out than doctors, and the people on the forums are really helpful and encouraging, like here. Add me as a friend! I'd love to support eachother.

FurryLittleBunny

Hi! I'm type 1 too. Would love to be your buddy.
Bunny

1BRIGHTCHICK

Glad to see this group available. I just learned of being Type I at the end of July after a scary DKA situation and glucose of 998. I was in the ICU for a week, and every since my release from the hospital my life has forever changed. I am on some high doses of Humalog 3 times a day and Levemir 2 times a day now and exercise 7 days a week, along with counting carbs and calories on MFP. I'm grateful for living to tell my story to many others. I wish everyone well along our journey to good health!

Oh, wow, I remember that time! I was DXed the same way! They couldn't believe I walked in on my feet- it is amazing how sick you can get before admitting it. Everything has changed, but you will learn so much, and pretty soon your insulin and needs will be routine. When I was in the hospital, a trainer said to me "You can look at this as a chance to be healthier that anyone else- it can be in your pocket or on your back." It sounds like you are off to a GREAT start! Another great resource for me was diabeticforums.com. I found that the best source of information is long-time diabetics! They have even more time to research and figure things out than doctors, and the people on the forums are really helpful and encouraging, like here. Add me as a friend! I'd love to support eachother.

Thank you for your words of encouragement and support!! This site is really helping me physically and mentally through this change of life!