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Distal 18q- my daughter was just diagnosed.

judkinsjenny
judkinsjenny Posts: 220
edited January 4 in Motivation and Support
Not weight related. Hope you don't mind. I don't know how to find forums on certain things so I thought I would try here. I like it here because I feel safe. I feel like I won't be judged to harshly. Anyway, my sweet little daughter was diagnosed with a chromosome deletion syndrome. I have known something was wrong for a long time and she has been in therapy since she was 12 months old. I have insisted something was wrong with her. But no doctor would do much. Even Salt Lake was like "I don't know". So I took her to a pediatrician here in town and he knew right away what it was. Does anyone else' kid have this? And now what?

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