UK - e-petition to help fund research into cousin's illness

sarahrichards81
Posts: 79 Member
Dear All
Please don't feel any obligation but if you have a moment please consider signing the below e-petition for Government funding for research into FOP.
FOP turns otherwise healthy people into human statues - a healthy mind locked inside a frozen body. One of the rarest genetic conditions, affecting roughly one in two million, there is very little commercial interest in a cure.
My lovely younger cousin has this condition and it would mean a lot to my family if we could get a bit of momentum behind this petition.
http://epetitions.direct.gov.uk/petitions/43081
Thanks for looking
Sarah
Please don't feel any obligation but if you have a moment please consider signing the below e-petition for Government funding for research into FOP.
FOP turns otherwise healthy people into human statues - a healthy mind locked inside a frozen body. One of the rarest genetic conditions, affecting roughly one in two million, there is very little commercial interest in a cure.
My lovely younger cousin has this condition and it would mean a lot to my family if we could get a bit of momentum behind this petition.
http://epetitions.direct.gov.uk/petitions/43081
Thanks for looking
Sarah
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