We are pleased to announce that on March 4, 2025, an updated Rich Text Editor will be introduced in the MyFitnessPal Community. To learn more about the upcoming changes, please click here. We look forward to sharing this new feature with you!

UK - e-petition to help fund research into cousin's illness

sarahrichards81
sarahrichards81 Posts: 79
edited January 6 in Chit-Chat
Dear All

Please don't feel any obligation but if you have a moment please consider signing the below e-petition for Government funding for research into FOP.

FOP turns otherwise healthy people into human statues - a healthy mind locked inside a frozen body. One of the rarest genetic conditions, affecting roughly one in two million, there is very little commercial interest in a cure.

My lovely younger cousin has this condition and it would mean a lot to my family if we could get a bit of momentum behind this petition.

http://epetitions.direct.gov.uk/petitions/43081

Thanks for looking

Sarah
This discussion has been closed.

Categories