looking for others with crohns disease

Yep, I was diagnosed with Crohn's in late 2010.

I was diagnosed in October with Crohn's.

I have Crohn's. Was diagnosed right before my 16th birthday. (12 years ago!) THANKFULLY... I have been in remission since like 2003-2004ish! My last colonoscopy with last year, summer of 2011. I was SUPER skinny in high school b/c of my Crohn's. I always had the WORST eating habits. Nothing I ate triggered my symptoms since EVERYTHING came right out not long after going in! So I got to eat whatever I wanted. I danced a LOT in high school and was an officer on drill team. (I just made frequent runs to the bathroom!!!!) But the exersice helped to keep the muscle I needed for energy. 12 years later I'm a big fat blob who still has the worst eating habits (trying to change that though!) and I'm super duper lazy when it comes to exercise. I can't blame anything on my disease anymore. I SO wish I would have learned to eat right in high school!

hi i was diagnosed in 1994, went into remission for a few years , but the last couple of years ive had quite a few flare ups, im having one now,just started the dreaded prednisolne, hoping this doesnt hinder with my weightloss goals. would love any advice from people dealing with the flare ups feel so tired and drained at the moment.

I was finally diagnosed with Crohn's Disease at 28 but believe I was about 17 when I had the first symptons. I have battled with it for over 30 years and had several resections. For years I watched my weight to try and maintain 55 kilos. The last 15 years I have struggled to lose weight...93 kilos at my heaviest, and 83 currently. Specialists tend to focus on medications and I have my share of regular and experimental drugs. They tend to leave nutritional and diet aspects to Nutritionists, however, in my experience you need to be your own guide as to what types of food you can tolerate, the quantities, and how a relapse impacts on your intake. Low fibre and minimal dairy products when in relapse works for me. I have a scarred and narrowed ileum so have had some excruciatingly painful periods with vomiting after stupidly indulging in raw vegetables..ie, coleslaw, oven baked beetroot. We live and learn.
Despite 3 to 4 relapses per year i have managed to work fulltime and study and raise a family. I was advised by my first specialist to 'work part-time only and be prepared to be unable to hold down a job in the future'. That was said 30 years ago and I ignored the prognosis thankfully. CD needs to be managed well and I've cursed having it, especially when I've missed out on some key events in my life due to this illness but in the main, we develop the expertise to manage it.
Happy to be added as a friend and to give and receive support.

I have Crohn's. Was diagnosed 17 years ago.

bump to come back after I have some tests.....I have had issues for 15 years so you never know...right now I am being tested for Celiac..I know this is different, but I think some of the issues are the same as you guys...

I have Crohn's...diagnosed 10 years ago @ age 30. Right now i am controlling it pretty well with gluten-free diet. I have been med free since my last surgery (fistula) in 2009. Keeping a food diary really helps me keep track of my triggers. Weight management (gain and loss) are very tricky with this disease. I have learned LOTS about my body as a result. Feel free to friend me if you wish!

Well done you. Working and kids. I Can't get off the drugs. Currently have a flare on drugs. Feel really tired and hate my body. I'm keeping a diary on MFP hoping for some motivation and self understanding. My Prof wants me to do elemental diet and I tried but it was so debilitating I only lasted four days. I will try again when the kids go back to school. I wish they would give me surgery but they won't only drugs. All advice would be gratefully received.

I have Crohns disease as well (36 yrs. old diagnosed when I was 20). I started Humira a couple of months ago and feel like I am finally becoming normal again. However, I did gain about 7 lbs once I started (it could be that I was just a little too low in weight to begin with....I don't know). I just want to lose 5 lbs. be strong, and stop getting sick all the time. I train for snow shoe races, half marathons, cycling centuries, you name it. I love being fit. Now I want to be strong (and have a few less trips to the bathroom )

I am a Crohnie! I have to admit when I read about the disease and it said that people lost a lot of weight because of it, I was a little happy at first! But, what they don't tell you is that if you are already fat, get diagnosed, and get put on Prednisone, you balloon, not lose! I am now 20lbs heavier than my all time heaviest weight, and I have moon face. My knees and lower back hurt from just standing in the kitchen long enough to microwave dinner. I am currently in a flare. I am on Prednisone (tapered up and down for the last 6 months straight now), Humira (this is new, only a month on it), dicyclomine (for intestinal spasms), sucralfate (to protect my stomach from being on the Pred for so long), ondansatron meltable tablets (for nausea), and pain medication for the adbominal pain. I was happy to find you guys! My older sister is on here, and she told me about this thread. I will accept friend requests from any Crohnies!