Anyone trying to lose weight with a long term illness?

I always knew I wanted to lose weight. I didn't start getting serious about it until I found out I have brain tumors caused form a genetic disorder known as Nerofibromatosis type 1. I also have Fibro so working out can be difficult some days though I do chase after 5 kids LOL! What do you find to be the hardest thing to overcome for yourself?

(for those that have no idea what NF is)
Neurofibromatoses are genetic disorders of the nervous system. Mainly, these disorders affect the growth and development of nerve cell tissue. The disorders are known as neurofibromatosis type 1 (NF1) and neurofibromatosis type 2 (NF2). NF1 is the more common type of neurofibromatosis.

NF1, also called von Recklinghausen NF or peripheral NF, is characterized by multiple café au lait spots (patches of tan or light brown skin) and neurofibromas (soft, fleshy growths) on or under the skin. Enlargement and deformation of bones and curvature of the spine (scoliosis) may also occur. Occasionally, tumors may develop in the brain, on cranial nerves, or on the spinal cord. About 50% of people with NF1 also have learning disabilities.

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NF2, also called Bilateral Acoustic NF (BAN), is much less common than NF1 and is characterized by multiple tumors on the cranial and spinal nerves. Tumors affect both of the auditory nerves and hearing loss beginning in the teens or early twenties is generally the first symptom.

What Causes Neurofibromatosis?

Neurofibromatosis is often inherited (passed on by family members through our genes), but 30% to 50% of people newly diagnosed with the disorder have no family history of the condition, which can arise spontaneously through a mutation (change) in the genes. Once this change has taken place, the mutant gene can be passed on to future generations.

What Are the Symptoms of Neurofibromatosis?

The following symptoms appear in people with NF1:

Several (usually 6 or more) café au lait spots
Multiple freckles in the armpit or groin area.
Tiny growths in the iris (colored area) of the eye. These are called Lisch nodules and usually do not affect eyesight.
Neurofibromas that occur on or under the skin, sometimes even deep within the body. These are benign (harmless) tumors; however, in rare cases, they can turn malignant or cancerous.
Bone deformities including a twisted spine (scoliosis) or bowed legs.
Tumors along the optic nerve, which may cause eyesight problems.
Nerve-related pain
People with NF2 often display the following symptoms:

Loss of hearing
Weakness of the muscles of the face
Dizziness
Poor balance
Uncoordinated walking
Cataracts (cloudy areas on the lens of the eye) that develop at an unusually early age

What Is the Outlook for a Person With NF?

The outlook for a person with neurofibromatosis depends on the type of NF they have. NF1 may reduce life expectancy by up to 15 years, usually because of malignant tumors. Early diagnosis and treatment can reduce mortality rates.

The outlook for people with NF2 depends of the person's age at the diseases onset and on the number and location of tumors. Prompt diagnosis and treatment can improve life expectancy to more than 15 years following diagnosis.

http://www.webmd.com/pain-management/neurofibromatosis?page=2