Special needs mommy's :)

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  • melindasuefritz
    melindasuefritz Posts: 3,509 Member
    MY STEPSON HAS ADHD-
  • rachso
    rachso Posts: 174 Member
    Awesome idea. I have a 3 year old who they believe in on the autism spectrum. She was given a screening a couple of months ago and was borderline..so she is going to a case study program at Children's hosp to do a more extensive eval. Right now she has a significant delays in speech and fine motor skills. She is moderately delayed in gross motor but is starting to show minor improvements in that area. She also has Celiac diese--but thats more of a digestive issue.
  • westcoastgrl21
    westcoastgrl21 Posts: 172 Member
    I would love to join! I have 2 boys: a typical almost-4 year old, and a 2 year old with special needs. He is thought to have a rare form of Beckwith-Weidemann syndrome (genetic testing is pending). He has severe overgrowth, enlarged kidneys and especially liver, seizures, and a severe immune deficiency for which he receives IVIG infusions weekly. He also has global developmental delay but has been steadily closing that gap and catching up with his peers. He has impaired vision (corrected by glasses of course), and appears to be deaf in his left ear. He is pure love and sunshine and the cuddliest guy on earth :) I would love to meet a group of moms who understands the extra demands and extra joys of special needs kids!
  • Odiliawine
    Odiliawine Posts: 116 Member
    Hello all, Whereas I myself do not have a special needs child I do work at a residential treatment facility for teenagers so I can relate to most of you. I know that these aren't genetically my kids but most days it really feels like I'm mom to 9 girls with behavioral disorders! That being said, I applaud you all for all that you do, I know how terribly difficult insurance companies and schools can be and I know that all of your kids really appreciate all that you do for them- even if they are screaming at you or are non-verbal. Feel free to add me and I'm more than happy to answer any questions about RTF's and adolescents with behavioral issues!

    Good luck to you all!
  • bigcrystal123
    bigcrystal123 Posts: 246 Member
    Hi my name is crystal i have a 4 year old that has autism and a 2 year old with an extra chromosome and a missing chromosome. I will be finding out what is wrong witg him on the 12th
  • gramacanada
    gramacanada Posts: 557 Member
    I'm coming in to join. I'm a special needs Grandma. I parent my granddaughter about half the time.
    She has Phaelan-McDermid Syndrome. Basically a gene deletion in chromosome 22.
    She's 11 but depending on the day and what etc etc (you all know) she's between 3 and 7.
    She has major speech and processing delays. She'll never be independent.
    I have another MFP friend I'll bring her in too.l We need each other!
  • stephv38
    stephv38 Posts: 203 Member
    This is a wonderful thread. Many many kudos to all you mommies.... I am a mom of 4, one of which is adopted. He was born addicted to heroin and meth and took 6 weeks to detox on morphine. He is almost 4 and the behaviors are beginning to present themselves. Attention shortfalls, impulsivity, oppositional, and sensory seeking. He is also very smart, funny and loving.
  • tara_incognito
    tara_incognito Posts: 1 Member
    Hi, I'm Tara. My younger son (almost 4) is autistic. I have an older son (almost 6) who I suspect is also on the spectrum but who hasn't been evaluated yet. I'm so glad y'all are out there!
  • dcarre_34
    dcarre_34 Posts: 4
    I adopted a drug baby who has mild autism and a small deletion of the 16 chromosome so he is developmentally delayed and is kind of socially awkward at times.. He is actually turning 8 tomorrow and so proud of him because he has come along way since I first got him. He is quick to tell me no, you can't have that you're on a diet!

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