Exercising with Hypermobility Syndrome?

My ex of 7 years suffers badly from it, I had to give her extensive back rubs every night and lots of weird noises happened. She tried lots of stuff but had much the same problems as you. The only things that she could get on with were swimming and pilates. Probably not what you wanted to hear, but alas it's all I have. For what it's worth, you're not too fat to wear a swimsuit (though the odds of you believing that are slim I know).

I have something similar (Ehlers-Danlos syndrome). It cause joint hypermobility and frequent disloctions. The best thing to do, is weightlifting. By putting muscle around the joint, it becomes more sturdy.

Hi, I also have HMS. I was not properly diagnosed until i was 17. I had been suffering with pain severely since the age of 12 when i was told it was growing pains then at 15 i was told it was ligament damage. I eventually got to see a physio and they diagnosed me with HMS. I am at university and studying Sports and Exercise Science and my GP here now thinks i actually have EDS so i am being referred.

I am very active I have always played sport and lead an active life. I was advised to give up certain sports such as Rugby and i did but i still play Hockey, i do classes such as boxersize, pilates and Yoga (I did check with my last physio that i could do Yoga and they agreed i could because it gave me light relief for a few days). I was a member of a gym for a while at home and this really helped me control the pain however, whilst at uni i stopped going. I have just started again as my HMS has been really uncontrolled recently which affected my exams at uni. I find that as long as i control the exercise i do if it is cycling, Running, Classes, core stability exercises it really helps, this then has a positive effect on my mind as recently my Dr thought i was getting slightly depressed due to the pain, lack of sleep, and embarrassment of falling over often in public.

Personally i feel if you are using pain killers and can identify your self when to stop you can do any exercise in moderation to begin with and increase to an intensity you are happy with. I found it was just a case of trial and error to find what you are happy with, everyone was telling me to swim but recently it was getting too painful to continue.

My Dr at university said to me i must always remember when being given advice and talking to other HMS sufferers that even though we suffer the same condition we are all different so things that work for some people may not work for you. This has helped me so much when trying to find exercise i could continue to do as i felt like i was getting nowhere. I limit what i do in exercises i enjoy but i know are bad for me, I have always looked at it as I don't want to give up a big part of my life so i have to find ways round it, also, i have always felt i would rather continue doing things I love in moderation such as Hockey then regret giving up so young when i am older. I always refuse to give in to the pain and things I refuse to let it dictate my life.

I hope this helps a bit.

Hey! I see this post is from ages ago but I'm so excited to find someone else who has this problem! I get so achingly sore even from walking, it's awful. Did you ever get to a resolution? My physio said Pilates would be good, and then cardio with low impact in moderation. Still though, once it gets sore, it takes ages to go away. Really interested to hear how you're doing now!