Looking for gluten free friends

Hi... I don't have celiac sprue but I do have a reaction to wheat and similar grains (congestion and mild asthmatic reaction when I eat over a certain amount) and I do eat a gluten-free diet.

I have been gluten free for 2 1 / 2 years now. I will be going back on to gluten for 6 weeks so I can have the blood test, I am not looking forward to it.
I am dreading the side afects I will have. Have you had this test Skygirll

I am gluten free, can't tolerate wheat. No official testing done I just feel better without it.
I had severe food allergies as a child including to wheat and milk so even though I officially should have "outgrown" that I have a problem with those.
Feel free to add me.

I'm gluten free because I have Crohn's disease. I also have insulin resistance and a GF diet is supposed to help.

Was tested for Celiac but it was negative.

Celiac checking in! I'm also lactose intolerant too

Hi, I have been mainly gluten free for the last 2 years. I will occasionally have gluten but always have some type of reaction. I'm not diagnosed as having celiac but that's because I didn't bother with testing. I eat gluten I have headaches, muscle pains and spasms, mood swings, severe anxiety, fatigue, skin problems, and stomach problems. Sometimes I get all of those symptoms and sometimes just one. I don't really need a test to tell me to stay away from it at this point lol.

Im gluten (and dairy) free as well! My son and I have celiac... Its hard when all the quick gluten free stuff have sooo many more calories than regular food so glad to find so me support

I have celiac sprue and if I eat the tiniest bit of gluten, like in chocolate where there is nothing said of gluten in the labels, i throw up and literally pass out and am miserable for hours, my symptoms are very severe i do not eat anything with traces of gluten. feel free to add me!

Are you positive you're celiac?? Your symptoms sound a lot like my children's. FPIES is very rare and most Dr's don't even know about it so it's mostly misdiagnosed.

I am mostly gluten free. I am eating an Amy's gluten free burrito right now, yummy.

I don't have celiac but I don't eat wheat, rice or potato because they are trigger foods for me. My two favorite gluten free foods are Farinata and chick pea flour crepes(I use Alton Brown's crepe recipe and substitute chickpea flour ). If you haven't tried them I really recommend them.

Why are you looking for gluten free friends? Do you plan on eating these people at some point?

I'm looking for someone to help with a gluten-free diet. I got diagnosed with celiac disease and so far I haven't been able to figure anything out. Years of agony which I can't seem to fix.

And thank you WW_Jude, I will check out celiac.com

I eat essentially Paleo (grain, sugar and dairy free), and strictly low FODMAPS, which, for anyone interested, is this (from Stanford Hospital Digestive Health and Nutrition Center):

The Low FODMAP Diet

(FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols)
FODMAPs are carbohydrates (sugars) that are found in foods. Not all carbohydrates
are considered FODMAPs.

The FODMAPs in the diet are:
 Fructose (fruits, honey, high fructose corn syrup (HFCS), etc)
 Lactose (dairy)
 Fructans (wheat, onion, garlic, etc)(fructans are also known as inulin)
 Galactans (beans, lentils, legumes such as soy, etc)
 Polyols (sweeteners containing sorbitol, mannitol, xylitol, maltitol, stone fruits
such as avocado, apricots, cherries, nectarines, peaches, plums, etc)

FODMAPs are osmotic (means they pull water into the intestinal tract), may not be
digested or absorbed well and could be fermented upon by bacteria in the intestinal
tract when eaten in excess.

Symptoms of gas, bloating, cramping and/or diarrhea may occur in those who could be
sensitive to the effects of FODMAPs. A low FODMAP diet may help reduce symptoms,
which will limit foods high in fructose, lactose, fructans, galactans and polyols.

More here: http://stanfordhospital.org/digestivehealth/nutrition/DH-Low-FODMAP-Diet-Handout.pdf

Yes! NO ONIONS OR GARLIC! NO APPLES, PEACHES OR PEARS! But I was gluten-free for years and still had horrible symptoms. Grain-free, same thing. I felt like I'd eliminated everything at one time or another, and nothing was working. THIS has changed my life and made me a MUCH happier gal.

Add me!

I have celiac sprue and if I eat the tiniest bit of gluten, like in chocolate where there is nothing said of gluten in the labels, i throw up and literally pass out and am miserable for hours, my symptoms are very severe i do not eat anything with traces of gluten. feel free to add me!

Are you positive you're celiac?? Your symptoms sound a lot like my children's. FPIES is very rare and most Dr's don't even know about it so it's mostly misdiagnosed.

emeraldeyes, I can't imagine what your kids went through before being diagnosed! I've never heard of FPIES before but just looked it up. I don't think vomit is a common symptom of celiac, since I believe our reaction occurs in the intestines but I guess it's possible. (I know if I get severe pain my body will do anything to rid itself of the offender!) Why does food have to be the enemy? sigh.

It was so hard we actually had two different dr's, on two separate ER visits, tell us that "it's impossible to be allergic to rice" this is while my 5 month old baby was in a coma while still somehow projectile vomiting. They said it was probably just a bug... Ugh, not a fan of dr's.
I ended up spending god knows how long researching on my own until I came across another mother with a child with FPIES. I remember breaking down crying because it explained everything we had been struggling with, most of which dr's had been blowing off as colic, or refux, or gas, etc etc etc.

I'm embarking on a low FODMAP diet due to quite severe IBS and gastroparesis - finding it quite hard to make the transition as it seems everything has hidden gluten/milk/soy, but if it makes eating less painful, then it'll be worth it in the end. Feel free to add me!