Any other IBS sufferers?

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13

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  • AwMyLoLo
    AwMyLoLo Posts: 1,571 Member
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    First, when you're constipated for a long time, your intestine actually stretches to accomodate the stool. It's a vicious cycle. The more constipated you are, the more constipated you get. What you have to do is be regular or semi-regular for a long time, like weeks or better yet, months. Talk to a GI specialist and get on a laxative regimine so that you pass soft/normal stools regularly. Yeah, you might have a bit of D here and there, but you need to let your intestines get back to their normal shape, and condition your rectal nerves and muscles to signal you when you need to go. After a long time of C, there's always some stool in your rectum, so the nerves think it's "normal" and don't even signal you to go anymore.
    So true. I tried to tell a bunch of people on here months ago about their intestines can STRETCH 2-5 times their normal size. People wonder why some people's stomachs are so big, yet they are not fat. (Reminds me of the ole beer belly gut).

    We have over 16 feet of small intestines inside of us. When it stretches and has to accomodate stools from previous meals, it covers the insides of the small intestines and can prevent the villi from absoring the nutrients out of the food as it passes through the digestive system.

    I had people on here dis-agreeing with me that when people are constipated and they don't go every day, that once they go, all the backed up stools exit in one BM. Ha, don't we wish.

    Colonoscopy only looks at the last 6 feet of our BIG intestine (our colon). What about the 16 feets of small intestines that are digesting the food. This area is an area that people get cramps because their intestine can stretch in one spot, but it gets squeezed smaller in other spots not allowing spools to pass through.

    AwMyLoLo - I've read some of your posts - I hope you get some answers soon.
    I can't remember what else I suggested to him but I assume the colonoscopy was the final straw that would have shown anything physically wrong... They officially diagnose IBS when they have ruled out everything else.
    That doesn't surprise me at all. They can't find anything wrong, let's officially call it IBS.

    I've taken herbal products that help eliminate waste from the digestive system. THEY DO WORK. I went from going once every 1-2 days to 3 times a day and empting my colon. Great feeling when you know you've emptied, compared to that feeling that.. "I know there's more there but not coming out, or even worse, you sit there and constipated and nothing comes out but a pebble. Been there, done that.

    I hate to see people suffer when there's options out there. Negativity always seems to come from people who don't have any bowel problems when I've mentioned this previously.

    I've been taking these products for years. I've had a friend who was an IBS sufferer, and she became more regular after taking the herbs.

    Awareness Experience
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    Thank you for the information. Do you have a link to the products you are talking about?
  • RacheBell
    RacheBell Posts: 111
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    I have IBS, and not the constipation kind. I can't stop going, sometimes up to 5 times a day. My doctor prescribed me a antispasm drug called dicyclomene. I can't live without this stuff. It got to the point where I would have panic attacks on my way to work because I was afraid I might have to go to the bathroom.
  • NoelleBell
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    I too have IBS and just like someone else had mentioned the healthier I eat the worse off I am. I make sure to eat a soluable fiber before eating any fruits or veggies. I have put on about 12lbs in the last 10 months, Trying to get this weight off has been tough due to a diet that healthier = bloated, gassy and crappy. I take dicclomene but only can only take it before bed because it makes me loopy and it doesn't alway work.
  • magglett
    magglett Posts: 2,000
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    Bump ... I suffer terribly from IBS-C and want to read more of this thread's advice.
  • LucieBear
    LucieBear Posts: 117 Member
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    Wow.. here I thought I was the only one with this problem.... thank you everyone and I will look carefully at everyone's advice..
  • shagybear33
    shagybear33 Posts: 272
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    I"ve not yet been diagnosed with IBS-C but I've been suffering for almost a year and half. I've tried everything under the sun and no one can seem to pinpoint what's causing me to back up. I tried the high fibre veggies (Broccoli etc) but ended up in so much pain and bloating. Went Gluten Free for months, teas, high fat diet, etc.. you name it!! So frustrating!! My stomach pain gets so bad that it hurts to have sex as well. Or if my kids want to sit on my lap it just kills me!! If i don't eat (I tried a 2 day liquid diet) and my stomach felt not too bad, but I can't survive on liquids only!!!!

    Currently I am taking Restoralax (Peg 3350) I'm assuming it's the Canadian version of Miralax? I am "going" now, but the strange thing is that my stool is very long and narrow.. WTH???

    I am scheduled for a CT scan next week and see the GI Specialist next month. Hopefully will have some answers.

    Like previous people have posted, I get the swollen belly in which I can gain up to 4 inches on my waistline. I can also gaine up to 5lbs with no prob if I haven't gone to the washroom in a bit.

    Good to know I'm not the only one with these symptoms!
  • jessicamichalski
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    Bump..I need to read this later !
  • ALW65
    ALW65 Posts: 643 Member
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    Hmmmm....seems to be a lot of us IBS-C folks around! I wanted to dress in black for a month when they took Zelnorm off the market. I've tried Amitiza but it doesn't work for me...everything gets churned up, but doesn't go anywhere. I'm going to give the Mirilax a go (bad pun) and see if that helps. Fortunately, I have a small stash of Zelnorm for when absolutely nothing else is working, but one day that will be gone :(
  • kmyers93
    kmyers93 Posts: 13
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    I have IBS with constipation too..very severe - I use Miralax once daily and it is a miracle .. just mix one capful in with your coffee, tea, water - whatever. It is completely tasteless and has no residue. I also use a script - Amitiza .. I used to need it 2x a day but because the Miralax works so well, I only take it once a day - but even if I miss a dose, it's okay because the Miralax is so effective. It's available in the same section of the pharmacy as Pepto etc.. well worth it...

    I, too, have IBS.. I'm only 18 but was 'diagnosed' at age 7.. I believe that miralax helps quite a bit! I have to take it daily as well.
  • magglett
    magglett Posts: 2,000
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    Is Miralax available in Canada?
  • shagybear33
    shagybear33 Posts: 272
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    After reading here, I think in Canada we get Restoralax and not Miralax.. Not sure though.
  • fitness63
    fitness63 Posts: 42 Member
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    I have been diagnosed with IBS-Constipation for 10 years. I have seen many doctors. I had an upper and lower GI test. (They are awful). I was on Zelnorm but the FDA took if off the market years ago. I tried the other one but it didn't work. I ate fiber and it didn't help. I ate Vegan as everyone told me I must be lactose intolerant. This worked for a few months but then I didn't go for three weeks and landed in the Hospital. Years later I tried a Gluten Free Diet (difficult and expensive) and I felt relief in days. I had the blood test for antibodies and it came back so high (I had many antibodies because my body was attacking all gluten; not to mention the small intestines won't absorb any vitamins (for me I failed Vitamin D test many times (now take D3 daily)). The next test was genetic testing as you can have one or both of the genes (lucky me, I have both. Thanks Mom and Dad LOL) and was diagnosed with Celiac Disease last year. I stuck to a gluten free diet, went to seminars and within months was back where I started. I recently took myself off the gluten free diet as i had no energy and was angry from not being able to eat with friends and family. At this point I take supplements. Magnesium is a natural laxative. (Dr. OZ). I also have to eat 6 small meals a day and exercise at least every other day doing Hot Yoga. It is important to never skip meals. I am still finding my balance. I have found a week long colon cleanse (GNC) with probiotics to help during the bad times. Don't do colon cleanses more than every 6 months. This is my journey and I hope this helps.
  • lynn12
    lynn12 Posts: 87 Member
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    Wow, thank you for all the info
  • sarglava
    sarglava Posts: 206 Member
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    I haven't been diagnosed IBS by a doctor, but I do have all the symptoms (so I feel maybe I can help.) I don't know if this has been said but I've seen results with adding bacteria to my diet. I buy a culture from Earth Fare for about 100 capsules for something like $11. You take one in the morning with a glass of water. Bacteria are natural flora found in our guts that help digest things. Since taking it I'm more regular and if I miss a day or two I see the effects of missing it.
  • EmmieSu
    EmmieSu Posts: 136
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    My family suffers with IBS, I understand what your talking about. I just read tonight in the paper. Dr Gott has a colon cocktail of equal parts applesauce, bran and prune juice. Take one or two tablespoons daily, to prevent or remedy constipation. Store any extra in the fridge, but prepare it in small batches, only good for 3-4 days. Hope this helps someone.
  • breakingthecycle
    breakingthecycle Posts: 225 Member
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    I am so glad that I found this post. I have the same issues as OP.

    I drink more water now than I ever have. I eat fiber daily. Yet I still suffer from IBS-C. I wont even go into the details of it but its painful. :embarassed:


    I am reading from beginning to end and I hope that I find something to help me within the replies. :-)
  • mattie11
    mattie11 Posts: 13 Member
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    I suffer from IBS-D. I recently took an antibiotic called xaxanthan (I think that is how it is spelled) it is a drug developed for e. coli. so far it has really helped. I still take a probiotic every day. Amazon has a couple of good books on what to eat and not eat also. I didn't really drink water before MFP, I think that has been a huge help as well. good to know i am not the only one out there like this too!
  • xraychick77
    xraychick77 Posts: 1,775 Member
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    i had IBS..it went away totally when i became a vegetarian.

    i didnt become a vegetarian for this reason. it was ethical..but i found it to be a great bonus..along with lower cholesterol and lower caloric intake over all.
  • Celiz1963
    Celiz1963 Posts: 1
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    I have all kinds of digestive issues. I'm gluten intolerant, as well as lactose intolerant. I tried almond milk/soy milk and threw it up..I don't eat (can't tolerate) red meat, can't eat rice of any kind, nor potatoes. Yet, I am overweight (or considered obese by the chart) I also have ibs...it's a royal pain. I will go 6-8x in one day, and then everything stops...for like 3 - 5 days. If I want to be going again, then all I have to do is eat the wrong thing, and I'm back. I can't handle very much fiber, makes my stomach hurt horrible. I have eaten so many salads, I think I'm going to turn into a rabbit! I have a craving for anything really sweet, and have found that caffeine does aggravate. What in the world do I eat??? :sad:
  • amysambora
    amysambora Posts: 219
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    I suffered from IBS since I was 19 and I am now finally 100% cured! I'm in Australia, and a leading nutritionist here has done a lot of research into a group of fermentable sugars known as FODMAPS that can be poorly absorbed by the small intestines, creating IBS-like symptoms in many people. I think the information is starting to spread overseas now, but I would recommend anyone suffering from chronic bloating, diarrhea or constipation to speak to a nutritionist about a possible food intolerance - here in Australia an intolerance to fructose or lactose can be diagnosed by a breath test, but many people find it useful just to eliminate all FODMAPS from their diet and then slowly reintroduce foods from each group to test their tolerance levels. I pretty much have to avoid everything on the list to stay IBS-free.

    Here's some information:

    FODMAPs are found in the foods we eat. FODMAPs is an acronym (abbreviation) referring to Fermentable Oligosaccharides, Disaccharides, Monosaccharides and Polyols*. These are complex names for a collection of molecules found in food, that can be poorly absorbed by some people. When the molecules are poorly absorbed in the small intestine of the digestive tract, these molecules then continue along their journey along the digestive tract, arriving at the large intestine, where they act as a food source to the bacteria that live there normally. The bacteria then digest/ferment these FODMAPs and can cause symptoms of Irritable Bowel Syndrome (IBS). Symptoms of Irritable Bowel Syndrome include abdominal bloating and distension, excess wind (flatulence), abdominal pain, nausea, changes in bowel habits (diarrhoea, constipation, or a combination of both), and other gastro-intestinal symptoms.

    FODMAPs are found in the foods we eat. FODMAPs is an acronym for

    Fermentable
    Oligosaccharides (eg. Fructans and Galactans)
    Disaccharides (eg. Lactose)
    Monosaccharides (eg. excess Fructose)
    and
    Polyols (eg. Sorbitol, Mannitol, Maltitol, Xylitol and Isomalt)

    Common High FODMAP Foods

    Fruits:

    Apples
    Apricots
    Cherries
    Mango
    Pears
    Nectarines
    Peaches
    Pears
    Plums and prunes
    Watermelon
    High concentration of fructose from canned fruit, dried fruit or fruit juice

    Grains
    Level of FODMAPs is increased when these foods are eaten in large amounts:

    Rye
    Wheat

    Lactose-Containing Foods

    Custard
    Ice cream
    Margarine
    Milk (cow, goat, sheep)
    Soft cheese, including cottage cheese and ricotta
    Yogurt

    Legumes

    Baked beans
    Chickpeas
    Lentils
    Kidney beans

    Sweeteners

    Fructose
    High fructose corn syrup
    Isomalt
    Maltitol
    Mannitol
    Sorbitol
    Xylitol

    Vegetables

    Artichokes
    Asparagus
    Avocado
    Beets
    Broccoli
    Brussel sprouts
    Cabbage
    Cauliflower
    Garlic (with large consumption)
    Fennel
    Leeks
    Mushrooms
    Okra
    Onions
    Peas
    Radiccio lettuce
    Scallions (white parts)
    Shallots
    Sugar snap peas
    Snow peas

    Common Low FODMAP Foods
    .

    Fruits

    Banana
    Blueberry
    Grapefruit
    Grapes
    Honeydew melon
    Kiwi
    Lemon
    Lime
    Mandarine oranges
    Orange
    Raspberry
    Strawberry

    Sweeteners

    Artificial sweeteners that do not end in -ol
    Glucose
    Maple syrup
    Sugar (sucrose)

    Lactose Alternatives

    Butter
    Hard cheese, brie and camembert
    Lactose-free products, such as lactose-free ice cream and yogurt
    Gelato
    Rice milk
    Sorbet

    Vegetables

    Bok choy
    Carrots
    Celery
    Corn
    Eggplant
    Green beans
    Lettuce
    Parsnip
    Scallions (green parts only)
    Tomato

    Grains

    Gluten-free products
    Spelt products


    Please feel free to message me or add me as a friend if you have any questions or would like to know more. My IBS symptoms have literally disappeared since following this diet, and many people here in Australia are discovering it now too!
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