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New on here , Looking for support/friends

jakira76
jakira76 Posts: 3
edited September 2024 in Introduce Yourself
I will start P90X on Sunday (May 15). I'm a little scared I won't follow through and therefore I have joined this website. I have Crohn's disease and Ankylossing Spondilytis. I was diagnosed in 2000. I have tried all sorts of medications but the only thing that makes me feel normal is the Predisone. I've been on it for about 3 years now and it's been a mission to get off of it. Every time I lower the dosage, I get sick again. Needless to say that the steriods have sky rocketed my weight. I'm pretty sure I've gained about 50 lbs because of it. I wasn't skinny before that so it didn't help either. My partner and I have been together for 11 years now and it's time to start a family. I am the oldest and always dreamed of becoming a mother. I have spoken with my doctors and they assure me that people with my condition can have a healthy pregnancy and most important a healthy baby. The only setback at this point is my weight. Doctors say I should lose at minimum 40-50 lbs... So here I am. I know I have to get it done. I'm pretty sure I can get it done. I'm a very competitive person by nature. I just need a support system outside of the family. I need some encouragement. That is why I am here. Anybody in the same situation? Maybe we can help each other! : )

Replies

  • gameovergt
    gameovergt Posts: 502
    good luck & welcome!
  • DaisyMoo86
    DaisyMoo86 Posts: 43
    good post :-) good luck with your journey, feel free to add me for help and support x
  • wenders123
    wenders123 Posts: 338 Member
    Hi,

    I have Crohns too - diagnosed originally with UC in 1994, and re-diagnosed as Crohns colitis around 2003. I found that steroids only worked if I took them all the time, which is obviously not a good thing. Have you ever been prescribed Aziathioprine? I take that along with mescalazine, and (touch wood) it has kept me in remission for a long time, with only a very very rare short term flare up. Obviously, like most drugs there are side effects, but so far I have not suffered any. Feel free to friend me if you would like support and motivation. It may help to have somebody that understands the illness :bigsmile:
  • EmmaShorter
    EmmaShorter Posts: 298
    Good luck to you girl! Feel free to add for support!
  • jakira76
    jakira76 Posts: 3
    Thank you so much... I'm am currently on Cimzia and 6MP as well as the steriods. I start to flare after about a week of lowering the steriods to 5 mg... It's been tough but I'm determined to get off of them and start losing weight!
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