Leaky Gut

I'm guessing a diagnosis of 'leaky gut' comes with a price tag along with the autoimmune diet.

I call bunk too, just eat a normal balanced diet as stated above

mumof5 wrote: »

Actrually ther was no price tag attached. And the diet also has no price tag. Im just willing to give anything a go - cant hurt.

So was this recommended by a doctor? Have you a seen a doctor about your issues?

sorry you've been met with such ingorance. i've spent years researching this, including harvard professor's work and mayo clinic articles and medical papers which tie it all together. its a thing and i have it. I tried for a year with fodmaps, but the only thing that is helping is avoiding my triggers (dairy, grains/yeast, and insoluble fiber), and taking l-glutamine and beef gelatine morning and night. all the supplements in the world wont work if the gut is continuously being aggravated.

NiftyPineapple914 wrote: »

sorry you've been met with such ingorance. i've spent years researching this, including harvard professor's work and mayo clinic articles and medical papers which tie it all together. its a thing and i have it. I tried for a year with fodmaps, but the only thing that is helping is avoiding my triggers (dairy, grains/yeast, and insoluble fiber), and taking l-glutamine and beef gelatine morning and night. all the supplements in the world wont work if the gut is continuously being aggravated.

Would you be willing to share some of your sources? I couldn't find anything that wasn't super sketchy.

Eta I'm a skeptic but I'm also a person who suffers from an undiagnosed and possibly undiagnosable medical condition. I don't think medical science has 100% of things figured out. But I just think that those of us with conditions that aren't explained have to be wary of people looking to take advantage of that desperation.

NiftyPineapple914 wrote: »

http://www.ncbi.nlm.nih.gov/pubmed/19538307
http://www.direct-ms.org/pdf/LeakyGutMS/Fasano intestinal barrier autoimmunity.pdf
http://www.pnas.org/content/108/Supplement_1/4554.full.pdf+html#page=1&view=FitH
http://www.ncbi.nlm.nih.gov/pubmed/?term=Fasano A[Author]&cauthor=true&cauthor_uid=19538307
http://www.ncbi.nlm.nih.gov/pubmed/25083606
http://www.webmd.com/digestive-disorders/features/leaky-gut-syndrome
References at the bottom of this page, too: http://draxe.com/4-steps-to-heal-leaky-gut-and-autoimmune-disease/

Thanks. Will read.

eta: Okay, I've read. Thanks for obliging.

All of the reputable sources here are talking about celiacs, IBS, or other known health conditions. OP didn't say because she didn't answer my questions, but she seems to be talking about leaky gut syndrome, which is different from intestinal permeability due to known disease as far as I'm aware. And, like I said, it's not my claim that we know everything and that there aren't undiscovered or poorly understood medical conditions-- just that we shouldn't be claiming to understand or be able to treat things prematurely.

That last link is SUPER sketchy. Super. Its main source is an alt-med journal, which just supports my point.

But, it doesn't matter what I think. OP I hope this diet, whatever it is, helps you feel better.

NiftyPineapple914 wrote: »

No; leaky gut IS intestinal permeability. The root cause will differ, eg IBS triggers, coeliac, ibd, etc. Leaky gut syndrome is the term given to the broad range of symptoms. The causes vary.

I was looking for where I found the information yesterday-- I can't remember if this was it.

Yet another, "leaky gut syndrome," is described by proponents as a condition in which the intestinal lining becomes irritated and porous so that unwanted food particles, "toxins," bacteria, parasites, and "Candida" enter the bloodstream and result in "a weakened immune system, digestive disorders, and eventually chronic and autoimmune disease." Treatment of this alleged condition can include dietary changes (such as not eating protein and starch at the same meal); "cleansing" with herbal products; "reestablishing good balance" of intestinal bacteria; and supplement concoctions claimed to strengthen and repair the intestinal lining. Note: Some medical scientists use the term "leaky gut" for problems associated with abnormal intestinal permeabilty, but "leaky gut syndrome" is not one of them.

http://www.quackwatch.com/01QuackeryRelatedTopics/fad.html

Sounds like we might just have a difference of terminology. Or rather, the same terminology used to describe two separate ideas.

JPW1990 wrote: »

I think the leaky gut diagnosis is at the stage now where fibro was 10 years ago. It used to be "common knowledge" that fibromyaglia didn't exist, and it was just all in people's heads. Except, it's not, and there are researchers all over the place still trying to pin down the best way to treat it. The side effect of science finding better and more accurate ways to analyze aspects of health is the discovery of causes and symptoms people couldn't isolate before. Unfortunately, the other side effect is skepticism that if it was real, someone would've isolated it sooner.

I was actually thinking about that this morning while I was reading. I've got a fibro diagnosis so I get that. I really really do. Although honestly I'm still not convinced that's what I have, but that's another story.

The problem is that you've got a bunch of people trying to treat this thing without having enough evidence a.) that it even exists b.) what causes it and c.) how it CAN be treated. It sucks for patients who are waiting for science to catch up, if that's what we're looking at here. But it's not ethical for doctors to be diagnosing/offering treatment when the jury isn't even out yet, imo.

And again, not talking about intestinal permeability as the result of other known medical issues for which there are treatments.

There's a TON of woo out there, some of it harmful or expensive, aimed at people with medical conditions of all kinds. It's kind of a hot-button issue for me. Not trying to be a jerk, I swear.

JPW1990 wrote: »

ILiftHeavyAcrylics wrote: »

JPW1990 wrote: »

I think the leaky gut diagnosis is at the stage now where fibro was 10 years ago. It used to be "common knowledge" that fibromyaglia didn't exist, and it was just all in people's heads. Except, it's not, and there are researchers all over the place still trying to pin down the best way to treat it. The side effect of science finding better and more accurate ways to analyze aspects of health is the discovery of causes and symptoms people couldn't isolate before. Unfortunately, the other side effect is skepticism that if it was real, someone would've isolated it sooner.

I was actually thinking about that this morning while I was reading. I've got a fibro diagnosis so I get that. I really really do. Although honestly I'm still not convinced that's what I have, but that's another story.

The problem is that you've got a bunch of people trying to treat this thing without having enough evidence a.) that it even exists b.) what causes it and c.) how it CAN be treated. It sucks for patients who are waiting for science to catch up, if that's what we're looking at here. But it's not ethical for doctors to be diagnosing/offering treatment when the jury isn't even out yet, imo.

And again, not talking about intestinal permeability as the result of other known medical issues for which there are treatments.

There's a TON of woo out there, some of it harmful or expensive, aimed at people with medical conditions of all kinds. It's kind of a hot-button issue for me. Not trying to be a jerk, I swear.

I think there's room for treatment without declaring something an ultimate answer, of symptoms, if nothing else. Mayo Clinic approach vs Dr. Oz, for lack of a better comparison. Waiting around for an answer sucks, especially when you know it will probably be years before you have one. I'm currently stuck in that boat - there's not a whole lot of research on my condition, and what little there is focuses on a different variation than what I have, so the best answer I can ever get is "maybe."

On that at least we agree. I think at this point there likely is no answer for me, years away or otherwise.

I'm a little torn on the other part atm. But every doctor I've seen has told me the same thing. It's obvious there's a problem. Steroids would probably help. But without a diagnosis they can't treat.

ILiftHeavyAcrylics wrote: »

I'm a little torn on the other part atm. But every doctor I've seen has told me the same thing. It's obvious there's a problem. Steroids would probably help. But without a diagnosis they can't treat.

...this is gonna be out of the blue, but I thought I'd just link to something you could check out that could COMPLETELY unrelated. >_< It's a rare disorder called a Mast Cell Activation Disorder that experts are coming to believe is likely much less rare, and a lot more 'rarely diagnosed,' because there is so much ignorance about it. And sorry for the long link - it's hard to find now. You may be able to search for it by name: A concise, practical guide to diagnostic assessment for mast cell activation disease in the WJH (world journal of hematology).
(http://webcache.googleusercontent.com/search?q=cache:LdxvLORbuX4J:www.wjgnet.com/esps/DownLoadFile.aspx%3FType%3DMember%26FilePath%3DUserFiles%255CScientist%255C00058453%255CWJH-3-1.pdf+&cd=1&hl=en&ct=clnk&gl=us )

Many, many of the symptoms are the same as fibro. I can pretty much guarantee no doctor would think to test you for it unless you suffer from anaphylaxis or hives and rashes (which many of us with this do not). And likely not even then.

there are some support groups on Facebook (look for mcad, mcas, mast cell disorder, or mastocytosis - a related disorder) that can help answer questions, and find doctors who know enough about it to do the tests.

Like I said, this is out of the blue, and might be nothing related at all, but I was literally in the same boat, with a diagnosis that didn't quite seem to fit, and I only finally got diagnosed when I ran across information in a setting like this, and finally got tested.

Wishing you luck!