Chronic Fatigue

Options
2»

Replies

  • prettysenshi
    prettysenshi Posts: 36 Member
    Options
    Sorry for the late response guys, I've been extremely busy trying to get a bunch of stuff done the past couple of weeks. I've been tested for every known thing possible, and the only thing the doctors can come up with is a Vitamin D issue. I was at a level 14, I go back in a couple of days to have it re-tested. Everything else is normal. No other issues. I was given Adderal because they couldn't find a reason, I've had my adrenal glands too and everything is normal. I am overweight, but nothing points to that causing the problem.

    Even after I lost 40+ pounds, I had to continually push myself to work out. I think I'll focus more on my diet until I can get everything figured out. If it's only the vitamin d issue, then it can take 6 months to a year (or longer) for the symptoms to go away and it's only been 4 months.
  • jcpmoore
    jcpmoore Posts: 796 Member
    Options
    scottacular wrote: »
    Out of curiosity, does anyone here ever experience like a sudden rush of blood to the head/very pronounced dizzy spells and feel the need to drink/eat really quickly? Keeps happening to me more and more regularly.
    Yes, I've had that. It's not diabetes. It's not even that scary according to my docs. I spent a year going to various docs (neuros, specialists, you name it I tried it) and no one could come up with a diagnosis other than "you have low blood pressure, get over it." After all that, the my main doc agreed that the only explanation was my low blood pressure. She told me get up slower and eat more salt.

    Sorry I can't give you a better answer, but at least you don't need to worry too much about it. If you can, get your doc to send you to the neuro to do a tilt-table test and such. Yours might come back different from mine (which was normal) and get some more answers.

    HTH
  • Tried30UserNames
    Tried30UserNames Posts: 561 Member
    Options
    I have CFS. I would recommend eating fewer calories and ignoring exercise for now. With CFS, some days you have to choose whether you're going to bathe or prepare a meal. Exercise isn't even on the radar.

    It seems you are suffering from one of the 8 symptoms, what many of us call "exercise intolerance", meaning you get worse if you exercise. If you work with your doctor to start an exercise program, you may find you can tolerate only 1 minute a day to start.

    I exercise when I'm feeling well and I don't when I'm not. For a couple years, I took a 1 mile walk on Saturday mornings with friends that lasted 1-1 1/2 hrs. We stopped and rested a lot. That was the only time each week I left the house and that walk destroyed me for the rest of the week, but I liked getting out with my friends. Now, I can walk 3 miles most days and I work full time, but it still usually takes me an hour. Keep in mind I used to run marathons. It's really important to listen to your body when it comes to activity.

    Somebody mentioned the concept of Spoons. I really like that analogy http://en.wikipedia.org/wiki/Spoon_theory

    To be diagnosed with CFS, you must have at least 4 of the below symptoms.

    From http://www.mayoclinic.org/diseases-conditions/chronic-fatigue-syndrome/basics/symptoms/CON-20022009

    Fatigue
    Loss of memory or concentration
    Sore throat
    Enlarged lymph nodes in your neck or armpits
    Unexplained muscle pain
    Pain that moves from one joint to another without swelling or redness
    Headache of a new type, pattern or severity
    Unrefreshing sleep
    Extreme exhaustion lasting more than 24 hours after physical or mental exercise

    Also, this resource guide might have some helpful info: http://www.cdc.gov/cfs/pdf/cfs-resource-guide.pdf

Categories