Losing weight whilst battling illness?

I have similar to lupus it's an auto immune disease I take steroids which are murder when trying to lose weight. Tried weight watchers but got no where, this app is brilliant only week 1 but I've lost 3lb, which I'm very happy with

I have an auto immune disease (IgA Nephropathy) and a kidney transplant last August. I'm on steroids (prednisone) and immune suppressants. I also go in tomorrow for a major hernia repair. I've 25 lbs so far. It is difficult with prednisone because it makes you feel so hungry. Literally I have to just measure everything out and not let myself eat any more despite feeling hungry.

You can add me as a friend. I have a rare disease called Alport Syndrome, and I'm almost 15 years out from my kidney transplant. In addition, I've been diagnosed with bipolar disorder, migraines, parathyroid growths, ibs, and I'm talking to a surgeon on Monday about gallbladder removal.

I have a friend with MS. He manages the symptoms with meditation, so instead of staying in bed all day watching tv when his symptoms flare up, he wakes up three hours early and spend a few hours alone, passing attention to his breathing and clearing his mind and body of stress. He designed himself a diet of whole, healthy foods that help him feel better. He takes no medication, except the kind that helps with meditation, but you'll have to go to Colorado for that.

I wish I had followed his example years ago. I used to be a little resentful that I would always have to take medications, but my path is different, as is yours. I've cleaned up my diet and stopped overeating because I don't want to be in pain anymore. I'm giving up ice cream because I want to feel better (and it's working). I'm becoming mindful enough to recognize the times when I need to set-top and pay attention to myself. When I notice racing thoughts, I concentrate on my breathing, and make room for newer, more positive thoughts. I've started a yoga practice because I want to feel better. My body aches even more when I don't use it. I'm gentler with myself, and I'm gentler with other people.

It's hard. Life is hard. It's a practice, not a spectator sport. I always said my mind was too scattered for meditation and my body was too weak, but when you start small and just choose to do it, ten seconds will turn into "holy cow! This is awesome!"

I don't see myself ever meditating the hours a day, but a couple months ago, I wouldn't have seen myself even attempting any of this. You can do it!

Hi, yes it's prednisone I take.. They are also trying me on a maintaining drug called mycophenolate mofetil, to suppress my immune system.. It is very difficult to try and lose weight as I feel "steroid hungry" all the time! Thankfully (or not) my husband is needing to lose weight too, so we are trying together.. I am more than happy to become friends with you all, please add me xx

Good for you guys! For all of us battling serious illnesses this shows that you can do it. Im down over 50 lbs to close to my ideal weight now. Took me 9 months. Im in a wheelchair to move but can stand sometimes but not walk. Ms is tough on me but i cut out junk food, most carbs and alcohol and eat much less. I feel much better and thats the most important. Dave

Not quite as serious as some but I am dealing with interstitial cystitis, chronic kidney stones/infections, PTSD, OCD, anxiety, and depression. I am lucky that I have... less severe... versions of IC and my mental illnesses. The IC is the hardest part because it is only partially controlled currently through pain meds, diet, and PT.

I am a bit worried because IC is often found in conjunction with lots of other issues such as fibro, RA, CF, and others... and lately I have been having a lot of issues that could fall under fibro and CF. So a bit scared that my list is going to get longer.

I have panhypopituitarism (adrenal insufficiency, adult growth hormone deficiency, etc.) and take hydrocortisone and a lot of other meds daily. I have lost 19 pounds since last July. I have a lot more weight to lose to reach my goal. I am happy to see the successes of others on this thread! I have set my goals to have a 2 pound loss per week, but I haven't seen a consistent loss. I am sure that increasing my dosage of growth hormone and a recent illness that required increased daily hydrocortisone intake hasn't helped.

I was measuring my food before and have begun to weigh my food. I have also started to increase my physical activity, which greatly increases my energy level! I seem to manage the steroid hunger by eating protein with fruits or vegetables and drink water throughout the day.

Feel free to add me!

Oh, plus i take Plexus which has helped me go from 1good day every 3 months to 4 good days a WEEK. it's a life changer.

Add me as a friend on here. Spoonies unite!