Living with IBS? Success with IBS?

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For the last 3ish years I've had stomach problems... chalked it up to my body changing after my daughter was born, thought I had developed a lactose intolerance.
Last year my stomach started hurting daily, non-stop, so bad I would cry at my desk at work and come home, lay on the couch and cry. My dr sent me to a nutritionist, that didn't help at all.
The pain lessened to a level I could tolerate so I let it go for a while... it came back even worse, went to the hospital, the meds they gave didn't work...
I went to a GI specialist, she thought it was chrons bc the meds hadn't helped, the level of pain, how long it lasts, etc (way to scare a girl!). Had a colonoscopy done which resulted in the dr determining it was IBS-D.
She tells me to up my fiber...
I'll go days eating one small meal bc of the pain and when the pain lessens, I'll eat more bc 1-im hungry and 2-i know the pains going to come back in a few days. Never ending cycle.

So these doctors aren't really helping me at all. I'm gearing up to try the FODMAP diet to determine my triggers. I've sorted out a few already but clearly there's more if I'm still having pains. im ligitimately afraid to go to the gym if my stomach doesnt feel 100% and thats really only a day or two a month...but I'm really hoping I can hear some success stories of people with IBS. I knew of IBS before but I didn't realize how BAD it could be or how much it could effect your life.
What has worked for you? Do you take daily medication or meds when you have a flare up? What foods do you have to avoid? What are your "safe" foods?
Thank you!
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Replies

  • sakurablush
    sakurablush Posts: 104 Member
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    First off, I really do sympathise with you. I was diagnosed with IBS right in the middle of my A-Levels. It made studying pretty tough going, and having suffered from it for 14 years I know how horrible and uncomfortable it can be.

    I won't go into too much detail over the things I've tried. But I don't take medication (I tried a few, and they all made me feel worse). I had my doctor recommend switching to de-caf. coffee and avoiding spicy food, and I enjoy both too much to give them up (even if I'm drinking more green tea now), as well as wear loose clothing. I also walked a lot when I felt bad, as exercise does help even if it might seem hard to do at the beginning. It's the same with that time of the month - even if moving about might seem the worse thing you could do, it actually helps a lot.

    Past that...I'll share with you the one thing that's helped me. The one thing my doctor bless her never recommended, and the one thing that has taken me 14 years to work out.

    That thing is fasting.

    Seriously - I wish I had thought of this before. I began fasting in May this year, and it was to lose weight rather than because I thought it would help my IBS. In fact, after over ten years I had pretty much resolved myself to feeling bad whenever a flare up happened. This year however (and I usually get really bad in the summer), I had no IBS related flare-ups at all. As fasting gives your digestive system "a rest", your bowels aren't constantly struggling. Like you, I had days I simply couldn't eat. In retrospect it seems pretty obvious that my body was telling me I didn't have to. I don't know if this will be useful to you, but after 14 years of this condition, fasting every other day actually has me feeling like I did back when I was 17.
  • RobynLB83
    RobynLB83 Posts: 626 Member
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    I have IBS. It's the worst! I did a full elimination diet to determine my triggers (eat nothing but plain rice and plain chicken for 2 days or so until all symptoms go away then reintroduce fodmaps foods one per day to determine tolerance). Once you determine what you can eat without symptoms you will gain a lot of peace of mind. It's tedious and disappointing, but it's worth it not to live in constant pain and fear of eating.
  • Stacescotty
    Stacescotty Posts: 29 Member
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    I feel your pain! I used to be sick to my stomach constantly and stuck in a neverending cycle of alternating constipation and diarrhea. Did elimination diet and ultimately cut out meat. Between 2001-2008 the only meat I ate was chicken and had occasional issues, since 2008 been completely vegetarian and have had zero problems..... I know this doesn't help all IBS sufferers but you might try it.
  • angelexperiment
    angelexperiment Posts: 1,917 Member
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    Some things I know help as I have ibs c. If bad enough a stool softener, or enema but do not use alot bc it makes bowel lazy. I use sometime the glycerin suppositories for immediate relief.

    make sure to take a daily probiotic, fish oil supplement, and a enzyme like betaine hcl you may lack enzyme to break down foods so papaya enzyme is good for this.

    learn your trigger foods. Red meat is big trigger for ibs as it takes 2 weeks to digest. and some it is fresh vegetables so cooking them helps til soft. I found yogurt and flaxmeal with fruit helped me regulate. Whey is very hard to digest and you can become loactose intolerant as well. So no whey protein for you. Pea protein is easier to digest.

    no wild rice, very hard todigest, brown rice hard to digest, white rice is easiest. People with ibs may tend to have celiacs or gluten issues. So bread that is whole meal like ezekial bread is easier to digest or sprouted grain. Some people can only eat white tho but I find avoiding breads and pastas and cofections of cookies and cakes I have less issues

    these are all I know! Well there is more but pm me if you need some bathroom ideas cause I have tried tried everything:) oh and yes a 1 day fast a week is helpful to bowel.
  • pinkiemarie252
    pinkiemarie252 Posts: 222 Member
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    Agree about probiotics, although it doesn't have to be a probiotic pill. You can very easily eat yogurt and ferment your own pickles, kimchi, etc. It will help balance your gut microbes and the beneficial bacteria help you digest food. http://www.aboutibs.org/site/treatment/medications/probiotics-antibiotics Hope you feel better soon :)
  • 4987hamm
    4987hamm Posts: 23 Member
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    Thank you all for your input!
    Dairy, in some forms, is a problem (icecream, cows milk, soft cheese)
    I have noticed wheat is a problem for me. I can eat white bread with no problem as long as I don't have too much.
    I cannot eat corn, that's immediate pain for me after the first bite.
    Chocolate... oh, my dear chocolate... I've realized recently, at least milk chocolate, is an absolute no go.

    I definitely need to add probiotics! I've looked a bit into different brands and things but haven't quite settled on one. I used to take fish oil... I'll add that back into my daily.
    Again, THANK YOU! I'm just st the start of healing myself to have more good days than bad so any advise helps!
  • vlovell24
    vlovell24 Posts: 61 Member
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    Interesting. I was told that I have ibs. My stomach hurt so bad that it went through my back. I couldn't eat without vomiting, was in er twice....guess what. It wasn't ibs, it was pancreatitis due to Flagyl (which they gave me at the hospital). Thankfully, no long term damage done. I take 2 probiotics to counter effect the loads of poison that the hospital gave me. My intestines are much happier now.
  • goldthistime
    goldthistime Posts: 3,214 Member
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    First off, I really do sympathise with you. I was diagnosed with IBS right in the middle of my A-Levels. It made studying pretty tough going, and having suffered from it for 14 years I know how horrible and uncomfortable it can be.

    I won't go into too much detail over the things I've tried. But I don't take medication (I tried a few, and they all made me feel worse). I had my doctor recommend switching to de-caf. coffee and avoiding spicy food, and I enjoy both too much to give them up (even if I'm drinking more green tea now), as well as wear loose clothing. I also walked a lot when I felt bad, as exercise does help even if it might seem hard to do at the beginning. It's the same with that time of the month - even if moving about might seem the worse thing you could do, it actually helps a lot.

    Past that...I'll share with you the one thing that's helped me. The one thing my doctor bless her never recommended, and the one thing that has taken me 14 years to work out.

    That thing is fasting.

    Seriously - I wish I had thought of this before. I began fasting in May this year, and it was to lose weight rather than because I thought it would help my IBS. In fact, after over ten years I had pretty much resolved myself to feeling bad whenever a flare up happened. This year however (and I usually get really bad in the summer), I had no IBS related flare-ups at all. As fasting gives your digestive system "a rest", your bowels aren't constantly struggling. Like you, I had days I simply couldn't eat. In retrospect it seems pretty obvious that my body was telling me I didn't have to. I don't know if this will be useful to you, but after 14 years of this condition, fasting every other day actually has me feeling like I did back when I was 17.

    Interested in fasting. Going to try that. I have been having a small flare up today, and like most of the times this happens, I go to comfort foods. Many poor-me cookies consumed today. Homemade pumpkin oatmeal cookies, but still cookies.

    OP I also had this all start after my first daughter was born, and a good friend of mine had the identical problem.

    Lately I have been trying to battle any problems with kefir. Just forgot today for some reason. I think it helps.
  • goldthistime
    goldthistime Posts: 3,214 Member
    Options
    First off, I really do sympathise with you. I was diagnosed with IBS right in the middle of my A-Levels. It made studying pretty tough going, and having suffered from it for 14 years I know how horrible and uncomfortable it can be.

    I won't go into too much detail over the things I've tried. But I don't take medication (I tried a few, and they all made me feel worse). I had my doctor recommend switching to de-caf. coffee and avoiding spicy food, and I enjoy both too much to give them up (even if I'm drinking more green tea now), as well as wear loose clothing. I also walked a lot when I felt bad, as exercise does help even if it might seem hard to do at the beginning. It's the same with that time of the month - even if moving about might seem the worse thing you could do, it actually helps a lot.

    Past that...I'll share with you the one thing that's helped me. The one thing my doctor bless her never recommended, and the one thing that has taken me 14 years to work out.

    That thing is fasting.

    Seriously - I wish I had thought of this before. I began fasting in May this year, and it was to lose weight rather than because I thought it would help my IBS. In fact, after over ten years I had pretty much resolved myself to feeling bad whenever a flare up happened. This year however (and I usually get really bad in the summer), I had no IBS related flare-ups at all. As fasting gives your digestive system "a rest", your bowels aren't constantly struggling. Like you, I had days I simply couldn't eat. In retrospect it seems pretty obvious that my body was telling me I didn't have to. I don't know if this will be useful to you, but after 14 years of this condition, fasting every other day actually has me feeling like I did back when I was 17.

    Ooops, just reread your post. I don't have the desire and perhaps not the willpower to fast every other day. I tip my hat to you.

  • goldthistime
    goldthistime Posts: 3,214 Member
    Options
    Thank you all for your input!
    Dairy, in some forms, is a problem (icecream, cows milk, soft cheese)
    I have noticed wheat is a problem for me. I can eat white bread with no problem as long as I don't have too much.
    I cannot eat corn, that's immediate pain for me after the first bite.
    Chocolate... oh, my dear chocolate... I've realized recently, at least milk chocolate, is an absolute no go.

    I definitely need to add probiotics! I've looked a bit into different brands and things but haven't quite settled on one. I used to take fish oil... I'll add that back into my daily.
    Again, THANK YOU! I'm just st the start of healing myself to have more good days than bad so any advise helps!

    Perhaps you have something more specific than IBS. My husband is lactose intolerant and gets stomach pains when he eats ice cream, cows milk and soft cheese. He can eat aged cheese (parmesan and asiago for instance) and cultured butter with no problems.

  • goldthistime
    goldthistime Posts: 3,214 Member
    Options
    Thank you all for your input!
    Dairy, in some forms, is a problem (icecream, cows milk, soft cheese)
    I have noticed wheat is a problem for me. I can eat white bread with no problem as long as I don't have too much.
    I cannot eat corn, that's immediate pain for me after the first bite.
    Chocolate... oh, my dear chocolate... I've realized recently, at least milk chocolate, is an absolute no go.

    I definitely need to add probiotics! I've looked a bit into different brands and things but haven't quite settled on one. I used to take fish oil... I'll add that back into my daily.
    Again, THANK YOU! I'm just st the start of healing myself to have more good days than bad so any advise helps!

    Perhaps you have something more specific than IBS. My husband is lactose intolerant and gets stomach pains when he eats ice cream, cows milk and soft cheese. He can eat aged cheese (parmesan and asiago for instance) and cultured butter with no problems.

    Doing too much scanning today. I see that you have ruled out lactose intolerance already. I'll shut up now.

  • 4987hamm
    4987hamm Posts: 23 Member
    Options
    First off, I really do sympathise with you. I was diagnosed with IBS right in the middle of my A-Levels. It made studying pretty tough going, and having suffered from it for 14 years I know how horrible and uncomfortable it can be.

    I won't go into too much detail over the things I've tried. But I don't take medication (I tried a few, and they all made me feel worse). I had my doctor recommend switching to de-caf. coffee and avoiding spicy food, and I enjoy both too much to give them up (even if I'm drinking more green tea now), as well as wear loose clothing. I also walked a lot when I felt bad, as exercise does help even if it might seem hard to do at the beginning. It's the same with that time of the month - even if moving about might seem the worse thing you could do, it actually helps a lot.

    Past that...I'll share with you the one thing that's helped me. The one thing my doctor bless her never recommended, and the one thing that has taken me 14 years to work out.

    That thing is fasting.

    Seriously - I wish I had thought of this before. I began fasting in May this year, and it was to lose weight rather than because I thought it would help my IBS. In fact, after over ten years I had pretty much resolved myself to feeling bad whenever a flare up happened. This year however (and I usually get really bad in the summer), I had no IBS related flare-ups at all. As fasting gives your digestive system "a rest", your bowels aren't constantly struggling. Like you, I had days I simply couldn't eat. In retrospect it seems pretty obvious that my body was telling me I didn't have to. I don't know if this will be useful to you, but after 14 years of this condition, fasting every other day actually has me feeling like I did back when I was 17.

    Interested in fasting. Going to try that. I have been having a small flare up today, and like most of the times this happens, I go to comfort foods. Many poor-me cookies consumed today. Homemade pumpkin oatmeal cookies, but still cookies.

    OP I also had this all start after my first daughter was born, and a good friend of mine had the identical problem.

    Lately I have been trying to battle any problems with kefir. Just forgot today for some reason. I think it helps.

    Isn't it crazy how much your body can change after pregnancy?? I never had problems like this before. My family actually didn't believe me that I had problems with dairy (before I realize it was much more than just a lactose intolerance). They believed it was some silly attempt at weightloss like everyone going gluten free in recent years when they don't actually have a problem with gluten.
    I hear you on the comfort foods and cookies! When I have a flare up I tend to snack (and not on the best things) just to get something in my body when I know I can't make it through a meal.
  • goldthistime
    goldthistime Posts: 3,214 Member
    Options
    First off, I really do sympathise with you. I was diagnosed with IBS right in the middle of my A-Levels. It made studying pretty tough going, and having suffered from it for 14 years I know how horrible and uncomfortable it can be.

    I won't go into too much detail over the things I've tried. But I don't take medication (I tried a few, and they all made me feel worse). I had my doctor recommend switching to de-caf. coffee and avoiding spicy food, and I enjoy both too much to give them up (even if I'm drinking more green tea now), as well as wear loose clothing. I also walked a lot when I felt bad, as exercise does help even if it might seem hard to do at the beginning. It's the same with that time of the month - even if moving about might seem the worse thing you could do, it actually helps a lot.

    Past that...I'll share with you the one thing that's helped me. The one thing my doctor bless her never recommended, and the one thing that has taken me 14 years to work out.

    That thing is fasting.

    Seriously - I wish I had thought of this before. I began fasting in May this year, and it was to lose weight rather than because I thought it would help my IBS. In fact, after over ten years I had pretty much resolved myself to feeling bad whenever a flare up happened. This year however (and I usually get really bad in the summer), I had no IBS related flare-ups at all. As fasting gives your digestive system "a rest", your bowels aren't constantly struggling. Like you, I had days I simply couldn't eat. In retrospect it seems pretty obvious that my body was telling me I didn't have to. I don't know if this will be useful to you, but after 14 years of this condition, fasting every other day actually has me feeling like I did back when I was 17.

    Interested in fasting. Going to try that. I have been having a small flare up today, and like most of the times this happens, I go to comfort foods. Many poor-me cookies consumed today. Homemade pumpkin oatmeal cookies, but still cookies.

    OP I also had this all start after my first daughter was born, and a good friend of mine had the identical problem.

    Lately I have been trying to battle any problems with kefir. Just forgot today for some reason. I think it helps.

    Isn't it crazy how much your body can change after pregnancy?? I never had problems like this before. My family actually didn't believe me that I had problems with dairy (before I realize it was much more than just a lactose intolerance). They believed it was some silly attempt at weightloss like everyone going gluten free in recent years when they don't actually have a problem with gluten.
    I hear you on the comfort foods and cookies! When I have a flare up I tend to snack (and not on the best things) just to get something in my body when I know I can't make it through a meal.

    I had an aunt who died of MS. It started after the birth of her daughter. Apparently it is very common for autoimmune diseases (like IBS) to begin after childbirth. Btw, I had what used to be called to toxemia (I think preeclampsia is the term they use now) during pregnancy. Another clue perhaps.

  • AspenDan
    AspenDan Posts: 703 Member
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    When I started eating "clean-ish", and really watching my sugar intake, my ibs type symptoms really just stopped..also when I make poor food choices, they come back..just my 2 cents.
  • kcampbell1969
    kcampbell1969 Posts: 29 Member
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    I too, feel your pain! A few times I've vomited from the pain, and I've come very close to passing out. It's a nightmare, and very stressful when it happens and you're not at home. For me, it can come on very quickly and with no warning, so that doesn't help the panic attacks I also suffer from (and seems to go hand in hand with IBS).

    I can almost guarantee I'm going to have issues if I haven't been drinking enough water. That's the only common denominator for me.
  • redraidergirl2009
    redraidergirl2009 Posts: 2,560 Member
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    For the last 3ish years I've had stomach problems... chalked it up to my body changing after my daughter was born, thought I had developed a lactose intolerance.
    Last year my stomach started hurting daily, non-stop, so bad I would cry at my desk at work and come home, lay on the couch and cry. My dr sent me to a nutritionist, that didn't help at all.
    The pain lessened to a level I could tolerate so I let it go for a while... it came back even worse, went to the hospital, the meds they gave didn't work...
    I went to a GI specialist, she thought it was chrons bc the meds hadn't helped, the level of pain, how long it lasts, etc (way to scare a girl!). Had a colonoscopy done which resulted in the dr determining it was IBS-D.
    She tells me to up my fiber...
    I'll go days eating one small meal bc of the pain and when the pain lessens, I'll eat more bc 1-im hungry and 2-i know the pains going to come back in a few days. Never ending cycle.

    So these doctors aren't really helping me at all. I'm gearing up to try the FODMAP diet to determine my triggers. I've sorted out a few already but clearly there's more if I'm still having pains. im ligitimately afraid to go to the gym if my stomach doesnt feel 100% and thats really only a day or two a month...but I'm really hoping I can hear some success stories of people with IBS. I knew of IBS before but I didn't realize how BAD it could be or how much it could effect your life.
    What has worked for you? Do you take daily medication or meds when you have a flare up? What foods do you have to avoid? What are your "safe" foods?
    Thank you!

    I did the lowfodmap diet. Wheat, beans and onions are my biggest triggers so I avoid them or I can eat a very small amount so I stick to gluten free breads and grains. I do not need to take medicine often as long as I stick to my eating correctly. I have not had a major attack in 2-3 months.
  • rlr5072
    rlr5072 Posts: 22 Member
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    If it helps any, please know that you are definitely not alone! Sometimes I would feel so miserable and cursed, but in the ten years I've had IBS, my symptoms have greatly improved. Part of this is learning how to deal with my symptoms, but I really feel like it's gotten better with age, oddly. When I was younger, my biggest curse was frequent bathroom "episodes" (as I fondly call them), but now my main issue is bloating after meals (which is annoying, but so much preferable). I have an episode maybe once or twice a month now, which is much better.

    I agree with others who have given the advice to determine your triggers. For me, it's fast food, rich/creamy types of food or eating a lot, which has made it so much easier to eliminate more unhealthy foods from my diet. However, if I want to have these foods and know it will trigger me with certainty, I take prescription Dicyclomine prior to eating. If I don't feel like it will be that large of an issue, taking papaya enzyme by GNC (also before meals) is something I'll do. The papaya was recommended to me by a friend whose symptoms stopped after being pregnant (funny how things work, huh?) and it has been a LIFE SAVER. I used to be so ill after meals and would take it with everything I ate, but things are much better and now I rarely take it (though always have it with me!). I also used to take a chewable fiber supplement, which helped, but I don't feel I need it anymore.

    If I'm having issues, I like to eat graham crackers or pretzels - just to get something in my stomach to settle it. I haven't tried a lowfodmap diet yet, as I don't eat a lot of meat and the foods I love and eat frequently seem to be offenders. If I were more ill, I likely would, but bloating isn't enough of a reason for me to change my diet at the moment. Not sure if you're like me, but wearing loose clothes around the stomach to eat, along with making sure you eat slowly is a must. I can't get right up and get moving right after eating either, and need to give myself time to digest, or risk an episode.

    Apologies for the book, but I hope even some of this helps. My sister was also diagnosed 3 years ago and it helps so much more to know someone else going through it. The shame and embarrassment can be just as painful as the symptoms. I hate to wish IBS on her, but having someone who gets it and is close to me has made a huge difference in my outlook. If you'd ever like to reach out, please feel free to add me! Sending good vibes your way.
  • vespiquenn
    vespiquenn Posts: 1,455 Member
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    As someone that suffers from it, it sucks. I was just having a discussion last night about how the symptoms have been subsiding while keeping up my walking regime (8-10 miles a day). I used to have issues daily or every other day. Now I'm down to once a week or two.

    I second the probiotic though. I'm also sensitive to lactose, so I grab light yogurt instead of regular. It doesn't upset my stomach but still gets me the probiotics I need. I would recommend sticking to some light exercise and probiotics, and see if it helps ease the pain. It has taken about 6 months for mine to start letting up.

    This also comes from a person that loves food too much to eliminate. The only thing I was forced to was hamburger and red meat, replaced it with turkey. Otherwise I try to keep a normal diet.
  • BethAnnieT
    BethAnnieT Posts: 263 Member
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    Does anyone have a recommendation for probiotic? Having stomach/digestive problems makes me so nervous to try anything new... afraid I'll make it worse.
  • goldthistime
    goldthistime Posts: 3,214 Member
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    BethAnnieT wrote: »
    Does anyone have a recommendation for probiotic? Having stomach/digestive problems makes me so nervous to try anything new... afraid I'll make it worse.

    I'm also fearful of them. I tried Align and, well, it didn't go well. Spent the day in the bathroom. I drink kefir.