Thyroid, Diabetes, Lupus groups?

SimplySweetSally
SimplySweetSally Posts: 6 Member
edited November 2024 in Getting Started
I am new to this site and trying to figure out things. I did what I thought was a group search but some of the first results were for groups that haven't been active in sometimes as much as two years.
I have a lot of weight to lose and this time I really have to. I want to feel better physically, mentally, and emotionally.
If you know of any thyroid, diabetes, and/or lupus groups that I can maybe join it would be really great.
Similarly, I am looking for more friends on here as well.
~Thanks
Sally

Replies

  • T1DCarnivoreRunner
    T1DCarnivoreRunner Posts: 11,502 Member
    Groups overall have not been as active since a software change for MFP forums, which was done a bit less than 1 year ago.

    Even yet, many groups were not as active prior to that.

    Regardless, here are groups that I know about:

    Thyroid: http://community.myfitnesspal.com/en/group/753-hypothyroidism-and-hyperthyroidism

    Type 1 diabetes: http://community.myfitnesspal.com/en/group/232-type-1-juvenile-diabetics

    Others will be able to tell you about a group for type 2 diabetes, but it sounds like (maybe I'm wrong) you are talking about auto-immune issues, which would be type 1.
  • SimplySweetSally
    SimplySweetSally Posts: 6 Member
    I have type 2 now according to the doctor but he believes it may actually be type 1 I guess. It is confusing to me.

    Thank you for the links!
  • T1DCarnivoreRunner
    T1DCarnivoreRunner Posts: 11,502 Member
    edited September 2015
    SimplySweetSally wrote: »
    I have type 2 now according to the doctor but he believes it may actually be type 1 I guess. It is confusing to me.

    Thank you for the links!

    That is confusing because it is either one or the other. It doesn't change. It can be misdiagnosed, but whatever you have is what you have whether you know it or not. It used to be that a diagnosis for a type was made based upon symptoms and age. For nearly a decade, we have had anti-body tests available and a c-peptide test to identify what it is.

    I suggest seeing an endocrinologist because if you have type 1 and are in a long-term "honeymoon stage" (the time it takes between the auto-immune response and complete loss of pancreatic beta cells), then you need to be ready and prepared for the next step.

    Type 1 is often misdiagnosed as type 2 when the auto-immune response happens in adults. Those cases are often referred to as type 1.5 or LADA. It is still type 1, but somebody decided to make new terms to describe a later-in-life onset and longer honeymoon period that comes with it.

    Anyway, if you don't even know what type you have and your doctor isn't sure, then it is time to see a new dr... preferably an endocrinologist.
  • SimplySweetSally
    SimplySweetSally Posts: 6 Member
    I may need a new endo but not sure. I have only been seeing this one for about 9 mos. Before that my pcp was monitoring, put me on metformin and such. I should have had a specialist a long time ago but the money wasn't there. My a1c ranges from about a low 6.4 to the highest ever being 6.9 and tends to be around 6.6.
    I know there is a different antibody test for type 1 vs type 2 but we haven't run it yet. I have a really really high deductible and until I can meet it this stuff is expensive.
  • SimplySweetSally
    SimplySweetSally Posts: 6 Member
    I should add the thyroid was also monitored by my pcp and my endo wants to do extra testing for that as well. Lupus has been suspected by a specialist I had some years ago and also is something a few of my siblings has so no it is not a confirmed diagnosis but rather a guess.
  • T1DCarnivoreRunner
    T1DCarnivoreRunner Posts: 11,502 Member
    SimplySweetSally wrote: »
    I may need a new endo but not sure. I have only been seeing this one for about 9 mos. Before that my pcp was monitoring, put me on metformin and such. I should have had a specialist a long time ago but the money wasn't there. My a1c ranges from about a low 6.4 to the highest ever being 6.9 and tends to be around 6.6.
    I know there is a different antibody test for type 1 vs type 2 but we haven't run it yet. I have a really really high deductible and until I can meet it this stuff is expensive.

    OK, It sounds like the endo just doesn't have enough to work with if you can't afford the tests to find out and your symptoms are leading to a potential of type 1 (type 1.5 / LADA)... potential... the way to tell will be to either wait and see what happens or get some tests done.

    There is no antibody test for type 2, though, because it is not actually an autoimmune disease. Type 1 is an autoimmune disease, and type 2 is a metabolic disease. If the anti-body test comes back negative, then it generally means you have type 2. In rare cases, it could mean you have something like MODY, and that is where the c-peptide test is used. Type 1's will be positive for antibodies and have low c-peptide. Type 2's will be negative for antibodies and typically have normal or high c-peptide levels. MODY will be negative for antibodies and have low c-peptide.
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