Gluten intolerant?

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Replies

  • jwcanfield
    jwcanfield Posts: 192 Member
    elphie754 wrote: »
    SarcasmIsMyLoveLanguage wrote: »
    Best way to find out is to eliminate gluten from your diet for a few weeks and see if you notice a difference in your symptoms

    Only problem with this is there is a huge placebo effect.

    Well, if a placebo works to get rid of a migraine, perfect! Better than pills!
  • Martha6010
    Martha6010 Posts: 82 Member
    Hi. Im gluten intolerant I get hives achy body gas tummyaches. I avoid gluten and all is good. Looking for friends with gluten intolerance for support & food ideas.
  • MissusMoon
    MissusMoon Posts: 1,900 Member
    I'm curious if anyone who is simply "gluten intolerant" has been diagnosed by a medical doctor. Not a homeopath, naturepath or chiropractor?
  • JoshuaMcAllister
    JoshuaMcAllister Posts: 500 Member
    MissusMoon wrote: »
    I'm curious if anyone who is simply "gluten intolerant" has been diagnosed by a medical doctor. Not a homeopath, naturepath or chiropractor?

    Why are you curious? How does this effect you in any way?
  • Elise4270
    Elise4270 Posts: 8,375 Member
    edited May 2016
    I'm gluten intolerant too (No soy or milk. No nitrates/sulfites or nuts either). My doc suggested an elimination diet to isolate the cause. No test is necessary, self diagnosis is the way to go because the treatment is the same.

    I found in the transition I relied on packaged products. But as I became more aware of the poor nutrition, I replaced it with better choices. But if you want a burger, it's nice to have the GF option!

    Dont worry about the naysayers. Good luck!
  • Sabine_Stroehm
    Sabine_Stroehm Posts: 19,263 Member
    edited May 2016
    MissusMoon wrote: »
    I'm curious if anyone who is simply "gluten intolerant" has been diagnosed by a medical doctor. Not a homeopath, naturepath or chiropractor?

    eh, nvm. Not worth it.
  • Martha6010
    Martha6010 Posts: 82 Member
    I know I'm gluten intolorant. I stopped eating dairy and still broke out in hives then stopped eating gluten wheat barley and havent broke out in hives since. Self treated no more gluten for me. No more hives or tummyaches. Hives were so bad I couldnt shave my legs and I'd scratch so much that I'd bleed. I think I inherited it from my sister she was diagnosed by doctor.
  • rhsdancer5
    rhsdancer5 Posts: 96 Member
    edited May 2016
    Hello! I was diagnosed as gluten intolerant. My symptoms include and vary from stomach aches, "bathroom issues" (the best way I could put that lol), dark circles under my eyes, etc. I got tested from blood samples on a huge list of foods for intolerance as well. After that I completely stopped eating any gluten at all. It was very hard to say the least. I was in middle school and it sucked. I did however loose 20lbs, my dark eye circles went away, I felt amazing physically, and felt healthy. I have not kept up with abstaining from gluten though because it was so difficult for me to eat that way all the time. There are a lot more food options now then there was and I choose the gluten free when I can! I would love to transition back in to gluten free eating, because it is what is good for my body. If you have any questions feel free to ask me!:)
  • pagey231
    pagey231 Posts: 11 Member
    Found out I am gluten intolerant ,, No placebo ,,Feel much better ..bloating ,,concentrating etc .... ..now I dont crave sugar :-)
  • Martha6010
    Martha6010 Posts: 82 Member
    http://healthyeating.sfgate.com/gluten-intolerance-inherited-7679.html
  • JoshuaMcAllister
    JoshuaMcAllister Posts: 500 Member
    edited May 2016
    alyssa0061 wrote: »
    Martha6010 wrote: »
    I know I'm gluten intolorant. I stopped eating dairy and still broke out in hives then stopped eating gluten wheat barley and havent broke out in hives since. Self treated no more gluten for me. No more hives or tummyaches. Hives were so bad I couldnt shave my legs and I'd scratch so much that I'd bleed. I think I inherited it from my sister she was diagnosed by doctor.

    You can't inherit anything from your sister

    It is hereditary and will have been passed through the gene pool to both her and her sister. I hope she actually means, that she was made aware of it through her sisters diagnosis and not directly inherited it from her.

    ps. how nice of you to just jump on the thread to point out her mistake rather than contribute to the discussion.
  • prettyash777
    prettyash777 Posts: 4 Member
    I just discovered im gluten intolerant. Im just glad there are more gluten free options available now. Also, most foods that are gluten free has it marked.
  • fittocycle
    fittocycle Posts: 827 Member
    I gave up gluten due to migraines. The migraines went away and I've also discovered that if I eat gluten now, I have a stomach ache and generally feel very tired. I also have hypothyroidism which I understand somehow goes hand in hand with gluten intolerance issues.
  • Leslierussell4134
    Leslierussell4134 Posts: 376 Member
    edited July 2018
    Pinkylee77 wrote: »
    true Celiac disease is best diagnosed by a biopsy of the small bowel. The blood work will can tell if you have some of the markers or an elevated titer. Depending on how high those levels are then the doc will decide if you need the biopsy. A co-worked had some elevated levels but not high enough for Celiac but high enough for the doc to recommend a gluten free diet.

    Yes agreed. My mother in law was diagnosed around age 50 and first tested negative for the genetic marker. Upon endoscopy, the damage was undeniably celiac, irreversible damage after losing about 60lbs quickly. It was a hard diagnosis to swallow. She suffered so much intestinal surface area and bone density.
    My husband got tested last week, should be getting the results tomorrow, and get retested every 5ish years. Our insurance covers if there is a first degree relative with celiac.
  • hipari
    hipari Posts: 1,367 Member
    I have IBS, which makes me intolerant to the starches of gluten-containing cereals (wheat, barley and rye). My previous workplace healthcare had done incomplete notes on whether they actually took the celiac disease blood test or not, so my current healthcare wanted to do the test again. The blood test tests for antibodies, so I had to eat those gluten-containing cereals for an entire summer after successfully eliminating them from my diet because I knew they were unsuitable anyway. That was not a fun summer, but at least I know for sure there’s no celiac disease, and that my symptoms are caused by those cereals. (Yes, I’m aware that the endoscopy is a better option, but healthcare pros wanted to do the blood test first as that could give a resounding ”no” with a far less invasive procedure, which is exactly what the blood test did.)

    There’s somehow a big range of different ways gluten and cereals affect people. In my friend group there is a celiac, a gluten intolerant, a person who’s literally allergic to wheat proteins, and my starch intolerance.

  • nvmomketo
    nvmomketo Posts: 12,019 Member
    Pinkylee77 wrote: »
    true Celiac disease is best diagnosed by a biopsy of the small bowel. The blood work will can tell if you have some of the markers or an elevated titer. Depending on how high those levels are then the doc will decide if you need the biopsy. A co-worked had some elevated levels but not high enough for Celiac but high enough for the doc to recommend a gluten free diet.

    I disagree with this. I know it's an old zombie thread but it isn't quite right, IMO.

    Celiac blood tests only test for celiac disease. If it is positive, then you have celiac disease even if a biopsy misses the damage.

    It's like a pregnancy test, there is no false positive,

    If a celiac test is almost positive, and you have symptoms, I would assume celiac too. The tests are for the autoantibodies, and if they are elevated then gluten is causing it.

    There is one old test, the antigliadin antibodies, which was not very sensitive (many false negatives) but it was thought to possibly show non celiac gluten intolerance as well as celiac disease.

    TBH, I suspect NCGI could be a firm of celiac that is not as extreme or just expressed in other ways.just my opinion though.

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