Wheat intolerance or rosacea?
Elise4270
Posts: 8,375 Member
Obviously I'm having an issue with a facial rash. Burning, stinging, red and if I touch it it aggravates it. Its like whelps, then flakes. Horrible.
A few years ago I asked a family doctor about it. At a quick glance he said it was rosacea and prescribed an antibiotic ointment. It does not help. In fact it burns.
I change my diet, eliminated soy, wheat, some dairy, nitrates and nuts. No face rash unless I had pizza. Or maybe it was coincidence and it really is rosacea.
I had surgery 9 weeks ago, diet went to crap, rash has been an issue the whole 9 weeks with the exception of 10 days on a medrol pack, methyl prednisolone.
So I'm back 2 days gluten/wheat free to try to figure out if this is food or rosacea.
I can't find anything out online. Does rosacea respond to steroids? Internet says no, but...? IRL?
Food intolerances seem like it'd respond to steroids. No luck on internet searches.
Anyone have any experience? In a few weeks I'll have my answer. I just hate waiting, but I do need to get back off the wheat regardless.
A few years ago I asked a family doctor about it. At a quick glance he said it was rosacea and prescribed an antibiotic ointment. It does not help. In fact it burns.
I change my diet, eliminated soy, wheat, some dairy, nitrates and nuts. No face rash unless I had pizza. Or maybe it was coincidence and it really is rosacea.
I had surgery 9 weeks ago, diet went to crap, rash has been an issue the whole 9 weeks with the exception of 10 days on a medrol pack, methyl prednisolone.
So I'm back 2 days gluten/wheat free to try to figure out if this is food or rosacea.
I can't find anything out online. Does rosacea respond to steroids? Internet says no, but...? IRL?
Food intolerances seem like it'd respond to steroids. No luck on internet searches.
Anyone have any experience? In a few weeks I'll have my answer. I just hate waiting, but I do need to get back off the wheat regardless.
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Replies
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I'm trying laser for mine. Got a great Groupon deal.0
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See a dermatologist to be sure and get the best treatment. I have seborrhic dermatitis. No diet changes helped it. Just use steroid cream and green primer.4
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goldthistime wrote: »I'm trying laser for mine. Got a great Groupon deal.
Laser for which condition? And your particular condition- do steroids help or aggravate it?0 -
If it is itching, get a skin biopsy. It might be Dermatitis Herpetiformis. This is Celiac and treated by avoiding all wheat gluten and wheat products.
https://celiac.org/celiac-disease/understanding-celiac-disease-2/dermatitis-herpetiformis/
https://www.csaceliacs.org/treatment_of_dermatitis_herpetiformis.jsp2 -
goldthistime wrote: »I'm trying laser for mine. Got a great Groupon deal.
Laser for which condition? And your particular condition- do steroids help or aggravate it?
I'm getting laser for my rosacea. These are IPL treatments and basically cauterize broken capillaries that cause blood to pool at the skin's surface, if my capillaries are small enough. If they aren't there are two more levels of procedures that they can perform. The third level is a saline treatment and is used on spider veins on the legs (which luckily I don't have). Meaning I'm confident that they can get rid of these one way or another. My mother used to have them on her cheeks and they didn't look bad at all, she never had to wear blush. But mine are just beside my nose, yuck.
ETA: our problems don't sound identical. I DO get dry red patches too, but these are temporary and steroids do help.
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Thanks @goldthistime . I made an appointment with the dermatologist. I fear it's early stage rosacea, but really wish it were food since that'll be so much easier to control.
@RodaRose I'm aware of the DH and don't have it. But I also don't have the characteristic visible blood vessels with rosacea. Seems like the symptoms of both are so similar, that I won't be able to figure this out on my own.
Maybe it's neither and just sensitive skin syndrome.
I am continuing to improve on the gluten free diet. But I'm also more diligent about moisturizing cream and using metrogel (rosacea).3 -
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It doesn't look like the rosacea I know - flushed skin, red pimples clustered together, dry skin. If it went away with removing certain food-types from your diet, I say keep with the elimination. Do go to the dermatologist just to be sure though.3
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Looks like perioral dermatitis. I am getting over the same thing;just finishing my oral antibiotics. I was given some topical skin cream as well and it burned for several applications. I also used lotrimin; do not put a steroid on it because it'll make it better for a bit then get much worse. There are certain foods you should avoid according to my research. I recommend you google it to see if this fits what you have.1
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Have you tried not eating sugar? That seemed to help my rosacea.0
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CatFan1019 wrote: »Have you tried not eating sugar? That seemed to help my rosacea.
I don't eat much sugar. Only fruit. I have cut that back because I realized it could be related.
It started after surgery. So idk if it's related.
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Looks like perioral dermatitis. I am getting over the same thing;just finishing my oral antibiotics. I was given some topical skin cream as well and it burned for several applications. I also used lotrimin; do not put a steroid on it because it'll make it better for a bit then get much worse. There are certain foods you should avoid according to my research. I recommend you google it to see if this fits what you have.
Looks like a no go.0 -
Dermatologist misdiagnosed me with rosacea (even though I had clear, pale, healthy skin). It was bizarre. But, I didn't know, so I trusted her because she is a doctor. She prescribed a topical vasoconstrictor. But, I actually had a very slight neurological injury. It stopped blood flow to the nerves in my face for 48 hours. I developed a severe rebound pain disorder. I lost my job. Was barely able to eat and sleep. I was completely debilitated for over 6 months. It's been a year. I have recovered a lot, but still dealing with it. I actually had a malabsorption disorder from antibiotics and the skin reactions were from food. I had to stop eating grains. Also starches and fodmaps (should be temporary). That's just my experience. You can get an opinion from a derm. They only look at skin. They don't know anything about the facial nerves or internal health issues. So you might need blood tests and a different doctor. If you do have rosacea you shouldn't use steroids it makes it worse. You can join a rosacea forum like Rosacea Group Forum to read real life experiences with treatment options. Drugs.com has reviews as well, and up to date fda info, doctors use it as their resource on meds as well.1
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OMG I had the same issue! Creams and crap galore didn't help... Eliminated wheat cut back on dairy ... Best skin ever. Stick to that.. Check out the book wheat belly you know the right thing to do all along keep it up, it makes all the difference3
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I made an appt with a dermatologist for something else, and she first pointed out that I had a small case of rosecea.
It does not itch or annoy me. I have "rosie" cheeks. People who do not know better, point them out to me like it is a good thing.
For one colleague, I told him to look up rosecea (He is stupid and rude so he deserved it.)
Some folks are just weird and annoying and can't help themselves.2 -
I made an appt with a dermatologist for something else, and she first pointed out that I had a small case of rosecea.
It does not itch or annoy me. I have "rosie" cheeks. People who do not know better, point them out to me like it is a good thing.
For one colleague, I told him to look up rosecea (He is stupid and rude so he deserved it.)
Some folks are just weird and annoying and can't help themselves.
Yup, stupid can't help it! Haha!
I spent all day outside and my face isn't more irritated, in fact it seems like it's still getting better. So, think I'm going with food allergies. Unless its rosacea that just happens to be clearing up1 -
I hope it does clear up for you.2
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I have rosacea. My face will look lightly flushed like your picture when it is in it's "neutral" phase--without any breakouts. I don't get frequent breakouts, but I do generally have some level of flushing. I'm not always as good about using my gel as I should be. Mine gets worse, it gets better--I don't know why. It does seem to flare up more when I'm stressed.
So, you should probably still see a MD about it if it worries you. I just use my metronizadole gel when it's bad & otherwise use a tinted moisturizer to even everything out when I need to. The gel has never felt like it was burning. That would be concerning.2 -
Oh yeah, I use finacea (that's 15% azelaic acid) to prevent blemishes. It's also used to treat rosacea. And I use a serum by Paula's Choice called Resist Ultra-light Super Antioxidant Concentrate Serum (it's for normal to oily skin). It has antioxidants such as niacinamide, resveratrol, quercetin, and hyaluronic acid and glycerin. It's helpful for skin problems like Rosacea or acne and repairs the moisture barrier of the skin.
If you get flushing from histamine in food some natural antihistamines are the antioxidants: Quercetin and Vitamin C.
A lot of people say taking MSM helped them.
For me niacinamide reduced the flushing and nerve pain from the rebound disorder. My neurologist said I might have Neurogenic Rosacea. But, predominantly I have an unknown nerve pain disorder in the trigeminal nerves in my face.2 -
[quote="amyk0202;37506412"
]I have rosacea. My face will look lightly flushed like your picture when it is in it's "neutral" phase--without any breakouts. I don't get frequent breakouts, but I do generally have some level of flushing. I'm not always as good about using my gel as I should be. Mine gets worse, it gets better--I don't know why. It does seem to flare up more when I'm stressed.
So, you should probably still see a MD about it if it worries you. I just use my metronizadole gel when it's bad & otherwise use a tinted moisturizer to even everything out when I need to. The gel has never felt like it was burning. That would be concerning. [/quote]
Thank you for your insight. Anything on my face feels like it's burning. I may not have either condition. Having had surgery and a flare up, I can see that it could be rosacea.0 -
There are actually all different disorders and skin or nerve or blood vessel or food intolerance disorders that get diagnosed as rosacea. There are many different subtypes. With different symptoms and different causes and different triggers and different treatments. Lifestyle treatments are very effective for some people (like the diet changes). There is subtype one that is flushing, redness. Subtype two includes bumps (that aren't acne). There is a subtype that causes growth issues with the nose (this is rare). Ocular rosacea. Neurogenic Rosacea.1
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BinaryPulsar wrote: »There are actually all different disorders and skin or nerve or blood vessel or food intolerance disorders that get diagnosed as rosacea. There are many different subtypes. With different symptoms and different causes and different triggers and different treatments. Lifestyle treatments are very effective for some people (like the diet changes). There is subtype one that is flushing, redness. Subtype two includes bumps (that aren't acne). There is a subtype that causes growth issues with the nose (this is rare). Ocular rosacea. Neurogenic Rosacea.
Thanks. I'll keep my appointment maybe they can help me!1 -
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My Rheumatologist told me to stop eating gluten because of my malabsorption disorder. But, I was malabsorbing all grains. And starch and fodmaps. So, it could be fodmaps (wheat is a fodmap).1
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My daughter thinks it sound like eczema. Dairy does seem to aggravate it.
Still desperate for advice and relief..
TIA0 -
Eczema and Rosacea can have similar food triggers (like histamine for example), but they have different symptoms. My husband has seb derm, and that sometimes gets confused as rosacea also.1
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Actually, I'd wonder if it's an allergy, honestly. An intolerance doesn't cause a rash, typically. Also, an allergic reaction is treated with steroids, so that improvement on steroids would track. For allergic reactions, IgE reacts to an allergen, then triggers mast cells to release histamine, then the histamine binds with other cells and THOSE cells cause the symptoms. Anti-histamines bind with the last cells in the line and prevent histamine from doing so, and preventing symptoms. But the reaction is actually still going on, with histamine still floating around in the blood. Steroids affect the mast cells and prevent them from releasing histamine in the first place, so they are typically used in conjunction with anti-histamines during an allergic reaction. But they aren't good to take long term, obviously.
Unfortunately, food allergies are also really, really poorly diagnosed by doctors unless you have a more severe reaction that includes hives, asthma, or anaphylaxis. Doctors are taught in medical school that medical problems are 'almost never food involved.' (this from two different doctors I've seen)
So if you have a milder allergic reaction that just causes something like this, doctors - even dermatologists - will often misdiagnose, in my experience.
If it were me, I would honestly make an allergist appointment. I would also take a look at the pizza you ate, drop every ingredient that was in that pizza from your diet, and see if that helps, too. If the allergist can't find anything, but there is still an issue, you could start looking at possible chemical responses (these are not considered true allergies, but the response is the same aside from the fact that chemicals caused it. But because it's not triggered by a protein, allergists don't study chemical reactions, typically).
Because as you don't know what you may be reacting to otherwise, it could be ANYTHING in there.
And I do mean anything, quite literally. could be the more allergenic, well known things like dairy, soy, wheat. Could be the less common allergens like tomatoes or certain herbs. Could be chemicals like nitrates or sulfites (I would guess NOT sulfites, though, as this is so common in the food supply I would imagine that you would react to more foods with it - like, for example, sulfites is used to bleach a lot of white salt.). Or, as allergists have found out recently, some allergies happen only when you get a combination of some foods - so it could be, say, dairy and wheat, or wheat and tomatoes. Seriously, it can be pretty complicated, which is why it is great if you can get tested and doctors are able to help you figure out what might be the problem.3 -
@shaumom Spectacular insight. Thank you so much!
I do not tolerate sulfites or nitrates. Usually that's packaged meats and wine. Soy causes intestinal issues. Wheat causes issues, most obvious with beer and pasta.
I agree 100% that it acts like an allergy. I'm thinking, post surgery, I may be more sensitive to something. But then again, after surgery, I got lazy.
I'll find an allergist and make an appointment. I had some blood testing through my PCP a few years ago, looking for a wheat allergy. It was neg, but I'd been off it for some time then back on hoping to see it in a blood test. That why I figured it's an intolerance.
I also have some small round dry patches on my upper arms. The face and arms seem to flare together.
I took an antihistamine today and all seems to be quieting down.0 -
bumpbreakcar wrote: »OMG I had the same issue! Creams and crap galore didn't help... Eliminated wheat cut back on dairy ... Best skin ever. Stick to that.. Check out the book wheat belly you know the right thing to do all along keep it up, it makes all the difference
Same experience exactly!!
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