IBS (irritable bowel syndrome) sufferers

Options
2»

Replies

  • jdawson002
    jdawson002 Posts: 167 Member
    Options
    jdawson002 wrote: »
    IBS-D sufferer here too!

    I don't really get the pain and discomfort associated with IBS very often, it affects me with "urgency"....when I feel the need to go I really have to find somewhere and go!!

    Strangely I don't find that any particular foods make my IBS worse however I do have the condition pretty much under control now with daily medication...Codeine Phosphate to bung me up and Sertraline as a anti-anxiety to stop me stressing about being "cut short"! I've only been exercising a few months but already my confidence has grown and instead of IBS being in the front of my mind, I have now put it to the back and don't let it interfere.

    If anyone else has the same conditions as me, I suggest they look into CBT....it really does help.

    How has cbt helped?

    Its just about teaching your brain how to view thing differently.

    I used to have an intense fear of being far away from a loo in case I had the onset of urgency. This panic often caused the IBS to flair up so ended up in an horrendous circle of the IBS and anxiety. The CBT makes you think about things differently.....my profile pic is me walking down the local beach, I would never have dreamt of that a year or so ago!
  • lemonychild
    lemonychild Posts: 654 Member
    Options
    Ya all should look into GAPS diet. Works for gut problems
  • JenniferNoll
    JenniferNoll Posts: 367 Member
    Options
    I have crohn's disease. I just had to learn my trigger foods and stay away from them. I cannot eat anything cooked on a smoker, no alcohol, no fried foods at all, no romaine lettuce, no citrus fruits, no raw celery or carrots, and I have to cook my veggies until they are soft. I'm preparing for weight loss surgery, and I've managed to lose 5 pounds in 15 days. Unfortunately, I know that I will be unable to sustain that weight loss, which is why I've decided to go with gastric sleeve surgery.
  • Raptor2763
    Raptor2763 Posts: 387 Member
    Options
    Please - what's a fodmap or GAPS diet? I've had IBS for a while and have tried any number of remedies. None worked
  • Phoenix4me18
    Phoenix4me18 Posts: 133 Member
    Options
    I have IBS-D, no FODMAP. I have spent a lot of time trying to refine what my triggers are. For a long time I thought it was pretty much all raw vegetables. However, a couple years ago I went through an elimination diet which removed all junk from my diet. I discovered it wasn't the vegetables causing the issue it was a combination of stress and all the other stuff I was eating. Now, I eat a diet filled with veggies and try to limit things like: super sugary foods, foods heavy with butter, fried things, any super greasy food and too much caffeine. I also found that I have a mild egg sensitivity (only whole eggs) and am allergic to peanuts (all with reactions in the gut). I find if I can avoid most of that stuff (which, lets face it - I am trying to lose weight, so, really shouldn't be eating any of that anyway!) and am able to manage my stress I wind up dealing with very few flare ups. Basically, the cleaner I eat the better I am able to manage my IBS. When I do have a flare up it is an immediate dose of Immodium AD and some hot peppermint tea. Good to have so many people here discussion this. I think so many of us suffer in silence. People who don't struggle with IBS truly don't understand.
  • katybowling
    katybowling Posts: 9 Member
    Options
    I have accute flexular syndrome which is a form of IBS, I take 2 sachets of Laxido daily aswell as partial lowfodmap. I have a wheat intollorance but I have been advise to eat wheat little and often to get rid of the intollorance so I'm doing this with very little side effects, if you can eat wheat please don't cut it out when on low fodmap a wheat intollorance is not a pleasant thing to have!

    I eat a lot of feta cheese as for me and life without cheese isn't worth living although I have a small amount without issues unless it's melted and then the world ends! I've never drank much milk but I have just worked greek yoghurt into my diet which seems like a success.

    Cider and beer are non starters for me but I am fine on spirits and the odd wine (thankfully)
  • singingflutelady
    singingflutelady Posts: 8,736 Member
    Options
    Hamsibian wrote: »
    I have Crohn's Disease, and I am on the autoimmune paleo protocol to see which foods trigger my symptoms. I have never felt better, but this weekend I ate way too many carbs. I paid for it last night. I just hope my intestines calm down by the time I have my colonoscopy on Friday for more accurate results.

    The answer is everything trigger=food lol. But seriously for me I am low fiber, low residue so restricted veggies and fruit, no while wheat just white carbs, no nuts, seeds, legumes, red meat, garlic, lactose, alcohol and probably other stuff I am forgetting. I have Crohn's too. Let me know how aip works. @Hamsibian
  • singingflutelady
    singingflutelady Posts: 8,736 Member
    Options
    I used to be so fearful of travelling, especially when going to another country.

    I have a type of colitis that isn't ulcerative but it is very persistent (it became steroid dependent and now I'm on an immunosuppressant, otherwise I can't eat much more than white bread and margarine). I'm the only one my doctor has seen with symptoms that are this aggressive with such a supposed mild form of IBD. While I have food triggers, food restrictions don't seem to work :neutral: I wish they did!

    @whimic38 which one? Microscopic? I have severe Crohn's colitis but it was once classified as indeterminate colitis because my colon looked soo bad they couldn't tell if it was Crohn's or UC. I developed fistulas so that made my diagnosis Crohn's. What immunosuppressants are you on? I'm on azathioprine (imuran) and infliximab (Remicade)
  • jopalis
    jopalis Posts: 238 Member
    Options
    Hello I'm looking for new friends to join me on my new journey of success for ibs? Any one trying to get in shape, fix their nutrition and or struggle with ibs symptoms and finding foods that you can eat? I follow the fodmap diet as well and would love for others with ibs to watch my journey and how I get over my symptoms. We all know we have good days and bad days but I'm having way more good then bad and I'll help you find your balance as well add me as a friend and I can help you

    I have had IBS on and off for years. My SIL just told me about balancing my calcium. I take the generic of 600 +D3 and minerals twice a day. I also take some Benefiber type stuff ...about 1 tsp once a day. I get the diarrhea type IBS. These things seem to help me. I also had my gallbladder out years ago and I hear that is in the mix as well. I do better when not eating fatty foods.
  • yelliezx
    yelliezx Posts: 633 Member
    Options
    Hey! I have IBD (Ulcerative Colitis) and would love to connect! I don't have many dietary restrictions, although I can't drink milk anymore; which I used to love. I also can't have overly spicy foods. With those exceptions I can have any dairy though (including ice cream, yay!) I got married this year and flared pretty bad right after we got back from our honeymoon in the Dominican. I believe this was due to large portion sizes and difference in diet. I was thinking about the low FODMAPS diet but I don't think I could do it unless I really had to. Feel free to add me! Especially people who struggle with the same kinds of issues that I do.
  • BinaryPulsar
    BinaryPulsar Posts: 8,927 Member
    edited August 2016
    Options
    Raptor2763 wrote: »
    Please - what's a fodmap or GAPS diet? I've had IBS for a while and have tried any number of remedies. None worked

    I don't completely understand what GAPS diet is. I think it might be a variation on the low fodmap diet. I think GAPS is also sometimes called The Special Carbohydrate Diet. I just stick with understanding fodmaps, which is backed by scientists and GI specialists. Monash University has the best and most up-to-date information about fodmaps. They also have an app which makes it much easier because you can consult that when trying to figure things out (even at a restaurant, grocery store, social activity). Fodmaps is an acronym for short chain carbohydrates and sugar alcohols that are naturally occurring in food (many healthy foods). They are malabsorbed and ferment in the gut. For most people this is fine and even healthy for them by feeding probiotic bacteria. But, for others it can become problematic. Fodmaps stands for: fructose (when in excess of glucose), fructans, galacto-oligosaccharides (GOS), lactose and polyols (eg. sorbitol and mannitol). The diet is supposed to be temporary. That by limiting fodmaps you begin to get better and you can slowly re-add small portions. Going low fodmap too long isn't considered healthy. But, it really depends on the person. Some people need to be careful longer because they have a condition that isn't getting better or is taking longer to improve. Foods are labeled green light, yellow light, red light. So, you can eat the safe serving sizes of green light and yellow light foods in moderation. Probably eliminate red light foods until able to start adding them in moderation. I also have to avoid grains for the same reason. And starch, especially resistant starch like rice and potatoes (a lot of grains are resistant for some people). Resistant means not digested in the small intestines, so they ferment in the colon. Which is healthy for some people and very problematic for others.
  • jenfitnessmama
    jenfitnessmama Posts: 138 Member
    Options
    I've had IBS-D since high school (I'm now 29) and try to eat as clean as possible and it seems to help. Would love to be friends!
  • snerggly
    snerggly Posts: 112 Member
    Options
    After suffering with IBS for 20 years, mine is gone since quit eating, nuts ( very rarely ), all dairy, all meat and minimal oils. I do eat a lot of plant fiber, beans and whole grains. NO issues since.
  • Blazertrek60
    Blazertrek60 Posts: 18 Member
    Options
    I was first diagnosed with IBS in 2001 and when my Doctor could not help me with the pain my mom who was heavy into holistic healing (she is end stage dementia now) she advised me to try the Blood-Type diet. It worked and 6 months later my symptoms and pain were gone and I had lost allot of weight and felt great. Over that past 15 years I have gone up and down on the scale (mostly up) and dealt with flare ups of IBS but it has never been as bad as it was initially. In April I discovered the My Fitness App and have been on it at 1500 calories per day for 135 days now, working out every day as well. So far I have lost 38.4 lbs. However a little over 3 weeks ago I started having some rather severe (for me) IBS symptoms that I had not had in a long time. I had allowed myself to eat skinny popcorn and granola frequently since starting on this regimen and that has always been difficult for me to digest. So I got off that and have started to feel much better. I did speak with a dietician who owns a local health food store and he says that the blood type diet is a myth. I was asking him about it because I was thinking that I needed to get back on it to heal my bowels. However I am feeling better and I have to wonder how much a part "stress" plays in this as I am going through a stressful period at work (budget) and have recently come off of anxiety drug usage (Xanax and Lexapro). Has anyone else tried the Blood type diet? Is stress a big factor in IBS?
    Thanks!
  • figureitout87
    figureitout87 Posts: 126 Member
    Options
    Stress plays a huge part into it for me. I can literally stress myself into a flare up, and I'm working hard to try and not get worked up (which sometimes stresses me out more). I've contemplated trying out anxiety medication, but I want to see if I can manage without as I haven't previously considered myself a very anxious person.
  • FredKing1
    FredKing1 Posts: 98 Member
    Options
    I have Crohn's in large and small intestines and have had some intestines removed after an obstruction. I take pricey meds to control symptoms and to prevent further ulceration. I've not given diet serious study. Thanks for the info. I'm disappointed my gastroenterologist hasn't initiated this conversation.
  • BinaryPulsar
    BinaryPulsar Posts: 8,927 Member
    Options
    Oh yeah. I forgot to say in my info about the low fodmap diet that you need to make sure you are getting enough soluble fiber. Soluble fiber is much easier on our GI tract and feeds good bacteria. Insoluble fiber is harder on our GI tracts. So, try to choose fruits and veggies that have a higher soluble to insoluble fiber ratio. And cooking the veggies helps a ton to make them more digestible and bioavailable! Also eating fermented foods if you can tolerate them. Such as good quality kefir and raw sauerkraut. Fermented veggies like sauerkraut are also easier to digest than just raw cabbage.
  • melissavallieres660
    Options
    Hello.
    Been diagnosed a year back after suffering for 2 years. It was either that or gluten intolerance. Still struggling to know what I can or cannot eat. Sor far, I'm lactose intolerance and I'm sensible (although not intolerant according to my doc) to gluten. Any advice? I'm having more bad days than good days too.
    thanks and add me if you want to.