Wheat intolerance or rosacea?

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  • Elise4270
    Elise4270 Posts: 8,375 Member
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    [quote="amyk0202;37506412"

    ]I have rosacea. My face will look lightly flushed like your picture when it is in it's "neutral" phase--without any breakouts. I don't get frequent breakouts, but I do generally have some level of flushing. I'm not always as good about using my gel as I should be. Mine gets worse, it gets better--I don't know why. It does seem to flare up more when I'm stressed.

    So, you should probably still see a MD about it if it worries you. I just use my metronizadole gel when it's bad & otherwise use a tinted moisturizer to even everything out when I need to. The gel has never felt like it was burning. That would be concerning. [/quote]

    Thank you for your insight. Anything on my face feels like it's burning. I may not have either condition. Having had surgery and a flare up, I can see that it could be rosacea.
  • BinaryPulsar
    BinaryPulsar Posts: 8,927 Member
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    There are actually all different disorders and skin or nerve or blood vessel or food intolerance disorders that get diagnosed as rosacea. There are many different subtypes. With different symptoms and different causes and different triggers and different treatments. Lifestyle treatments are very effective for some people (like the diet changes). There is subtype one that is flushing, redness. Subtype two includes bumps (that aren't acne). There is a subtype that causes growth issues with the nose (this is rare). Ocular rosacea. Neurogenic Rosacea.
  • Elise4270
    Elise4270 Posts: 8,375 Member
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    There are actually all different disorders and skin or nerve or blood vessel or food intolerance disorders that get diagnosed as rosacea. There are many different subtypes. With different symptoms and different causes and different triggers and different treatments. Lifestyle treatments are very effective for some people (like the diet changes). There is subtype one that is flushing, redness. Subtype two includes bumps (that aren't acne). There is a subtype that causes growth issues with the nose (this is rare). Ocular rosacea. Neurogenic Rosacea.

    Thanks. I'll keep my appointment maybe they can help me!
  • Elise4270
    Elise4270 Posts: 8,375 Member
    edited August 2016
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    I don't think I had gluten. This is so annoying! It's like a whelp. Then it'll get dry and flaky.

    Any help?


    20160828_192617_zpsjrwzo0ty.jpg
  • BinaryPulsar
    BinaryPulsar Posts: 8,927 Member
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    My Rheumatologist told me to stop eating gluten because of my malabsorption disorder. But, I was malabsorbing all grains. And starch and fodmaps. So, it could be fodmaps (wheat is a fodmap).
  • Elise4270
    Elise4270 Posts: 8,375 Member
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    My daughter thinks it sound like eczema. Dairy does seem to aggravate it.

    Still desperate for advice and relief..

    TIA
  • BinaryPulsar
    BinaryPulsar Posts: 8,927 Member
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    Eczema and Rosacea can have similar food triggers (like histamine for example), but they have different symptoms. My husband has seb derm, and that sometimes gets confused as rosacea also.
  • shaumom
    shaumom Posts: 1,003 Member
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    Actually, I'd wonder if it's an allergy, honestly. An intolerance doesn't cause a rash, typically. Also, an allergic reaction is treated with steroids, so that improvement on steroids would track. For allergic reactions, IgE reacts to an allergen, then triggers mast cells to release histamine, then the histamine binds with other cells and THOSE cells cause the symptoms. Anti-histamines bind with the last cells in the line and prevent histamine from doing so, and preventing symptoms. But the reaction is actually still going on, with histamine still floating around in the blood. Steroids affect the mast cells and prevent them from releasing histamine in the first place, so they are typically used in conjunction with anti-histamines during an allergic reaction. But they aren't good to take long term, obviously.

    Unfortunately, food allergies are also really, really poorly diagnosed by doctors unless you have a more severe reaction that includes hives, asthma, or anaphylaxis. Doctors are taught in medical school that medical problems are 'almost never food involved.' (this from two different doctors I've seen)

    So if you have a milder allergic reaction that just causes something like this, doctors - even dermatologists - will often misdiagnose, in my experience.

    If it were me, I would honestly make an allergist appointment. I would also take a look at the pizza you ate, drop every ingredient that was in that pizza from your diet, and see if that helps, too. If the allergist can't find anything, but there is still an issue, you could start looking at possible chemical responses (these are not considered true allergies, but the response is the same aside from the fact that chemicals caused it. But because it's not triggered by a protein, allergists don't study chemical reactions, typically).

    Because as you don't know what you may be reacting to otherwise, it could be ANYTHING in there.

    And I do mean anything, quite literally. could be the more allergenic, well known things like dairy, soy, wheat. Could be the less common allergens like tomatoes or certain herbs. Could be chemicals like nitrates or sulfites (I would guess NOT sulfites, though, as this is so common in the food supply I would imagine that you would react to more foods with it - like, for example, sulfites is used to bleach a lot of white salt.). Or, as allergists have found out recently, some allergies happen only when you get a combination of some foods - so it could be, say, dairy and wheat, or wheat and tomatoes. Seriously, it can be pretty complicated, which is why it is great if you can get tested and doctors are able to help you figure out what might be the problem.
  • Elise4270
    Elise4270 Posts: 8,375 Member
    edited August 2016
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    @shaumom Spectacular insight. Thank you so much!

    I do not tolerate sulfites or nitrates. Usually that's packaged meats and wine. Soy causes intestinal issues. Wheat causes issues, most obvious with beer and pasta.

    I agree 100% that it acts like an allergy. I'm thinking, post surgery, I may be more sensitive to something. But then again, after surgery, I got lazy.

    I'll find an allergist and make an appointment. I had some blood testing through my PCP a few years ago, looking for a wheat allergy. It was neg, but I'd been off it for some time then back on hoping to see it in a blood test. That why I figured it's an intolerance.

    I also have some small round dry patches on my upper arms. The face and arms seem to flare together.

    I took an antihistamine today and all seems to be quieting down.
  • mamafazz
    mamafazz Posts: 92 Member
    edited August 2016
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    OMG I had the same issue! Creams and crap galore didn't help... Eliminated wheat cut back on dairy ... Best skin ever. Stick to that.. Check out the book wheat belly you know the right thing to do all along keep it up, it makes all the difference

    Same experience exactly!!
  • BinaryPulsar
    BinaryPulsar Posts: 8,927 Member
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    Just to add. People can have mast cell disorders. Rosacea and eczema are also types of mast cell disorders (in some cases). It is for me. I have histamine reactions to many foods, immediately, just like an allergic reaction. But, my allergy tests are negative. It's an immune malfunction. Or possibly I also have a problem with DAO (the histamine degrading enzyme in our GI tract). And for example, if I eat fresh chicken I don't have a histamine reaction. If I eat leftover chicken I have a histamine reaction. Bacteria causes me histamine reactions.
  • Elise4270
    Elise4270 Posts: 8,375 Member
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    Just to add. People can have mast cell disorders. Rosacea and eczema are also types of mast cell disorders (in some cases). It is for me. I have histamine reactions to many foods, immediately, just like an allergic reaction. But, my allergy tests are negative. It's an immune malfunction. Or possibly I also have a problem with DAO (the histamine degrading enzyme in our GI tract). And for example, if I eat fresh chicken I don't have a histamine reaction. If I eat leftover chicken I have a histamine reaction. Bacteria causes me histamine reactions.

    Oh boy! Sounds like I may not get a quick simple fix. I do have an issue with tyramine, which sounds similar to the DAO.

    Did you see an allergist to get this all sorted out?
  • BinaryPulsar
    BinaryPulsar Posts: 8,927 Member
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    Yes! Tyramine is related! My allergist was pretty clueless. My allergy tests were negative. But wheat gluten gives me hives. And I have histamine reactions to all kinds of foods. Mine was caused by medical injuries. So, I am recovering (slowly). I go to a Rheumatologist because I have elevated rheumatoid antibody factor. She has been helping me. And I see a neurologist because I have trigeminal nerve pain in my face and eyes. I'm on waiting list to see a GI specialist (year long wait). My Rheumatologist writes celiac disease in my charts. I tracked my diet and symptoms and that helped me most to change my diet. I have a GI disorder.
  • Braincatcher
    Braincatcher Posts: 66 Member
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    Foods trigger my rosacea badly, and tomato sauce/juice is one of my biggest problems. (Alcohol too--if I have a Bloody Mary, I'll look like a traffic light for a week.) Nightshades could be a problem for you, or it could be something else entirely. Google rosacea food triggers, then compare that list with your food diary. Good luck--this can be an arduous process.
  • shaumom
    shaumom Posts: 1,003 Member
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    Elise4270 wrote: »
    @shaumom Spectacular insight. Thank you so much!

    I do not tolerate sulfites or nitrates. Usually that's packaged meats and wine. Soy causes intestinal issues. Wheat causes issues, most obvious with beer and pasta.

    I agree 100% that it acts like an allergy. I'm thinking, post surgery, I may be more sensitive to something. But then again, after surgery, I got lazy.

    Glad you are feeling better, and glad it could help!

    Oh, the sulfites! I might be able to help with that! I react to sulfites as well. I started getting really, really sensitive and was reacting all over the place, and finally got in with a support group to try and figure out what was going on.

    And the one thing that stood out is that there are more sulfites being added to foods these days, basically. In part because wet milled corn - a type of corn that is processed by first soaking in a 24 hour bath of a sulfite solution - is the corn that is used to make corn starch, corn syrup, dextrose, and a bunch of other corn-related ingredients that are much more common in our food supply than they were a decade ago. Heck, even some cheeses now have cornstarch added to the inside of the plastic package to keep the cheese from sticking.

    There is also a type of dough conditioner that is sometimes added to breads and pizza dough that is sulfite based. It's also being used more frequently now as a preservative for scents, so everything from perfume to body spray can have it now. :-/

    Seriously, when I started looking, I was surprised how much I was running into sulfites. Just usually, it had been small enough I didn't notice, but when it started building up, it was a real problem.

    This one gal has a website where she listed a lot of sulfite containing foods and substances. Not all of them bother everyone (some sulfite sensitive folks seem to have more issues with processing sulfur in general - enzyme issue - but their bad foods are listed on her site as well).

    It was a good list for me originally to avoid for a while, and then slowly add back in to see what was a problem, and what was fine. Really helped me a lot. Hope it might be of use for you too!

    http://holdthesulfites.com

    Good luck!
  • Elise4270
    Elise4270 Posts: 8,375 Member
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    @shaumom Thanks again, I'll check out the site and work on an elimination diet.

    So far, today isn't horrible. I'm hoping the antihistamine is going to get me over the hump.

    @MyLittlPwn13 Tomatoes and nightshades might be an issue too. Tomato's are bad for my GI, never digest- even spaghetti sauce is a no go.

    I really appreciate everyone's insight! Thank you!
  • BinaryPulsar
    BinaryPulsar Posts: 8,927 Member
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    It is usually a good idea with this stuff to rule out lupus. Good idea.
  • Elise4270
    Elise4270 Posts: 8,375 Member
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    My appointment finally came around. I'm 6 days of a steroid pack for an unrelated issue so my face isn't bad. A little dry an mild redness.

    The plan is to try some expensive rosacea cream (300$ before insurance). And if that doesn't help then blood work.

    Lupus was brought up, I just go in dumb and let them decide. I had some bw back in 2014 that was neg on ANA but didn't have issues with this face rash.

    Thanks again to everyone!
  • Sarahb29
    Sarahb29 Posts: 952 Member
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    Elise4270 wrote: »
    I'm trying laser for mine. Got a great Groupon deal.

    Laser for which condition? And your particular condition- do steroids help or aggravate it?

    I'm getting laser for my rosacea. These are IPL treatments and basically cauterize broken capillaries that cause blood to pool at the skin's surface, if my capillaries are small enough. If they aren't there are two more levels of procedures that they can perform. The third level is a saline treatment and is used on spider veins on the legs (which luckily I don't have). Meaning I'm confident that they can get rid of these one way or another. My mother used to have them on her cheeks and they didn't look bad at all, she never had to wear blush. But mine are just beside my nose, yuck.

    ETA: our problems don't sound identical. I DO get dry red patches too, but these are temporary and steroids do help.


    Wait - you can get rid of rosacea?! I thought it wasn't curable and nothing could be done about it! Here I am slathering on make up so I don't look like freaking pikachu everyday. I have very fair skin and burn easily so I've had this since I was 12 or 13 :(