Anyone with the MTHFR mutation

jamie31
jamie31 Posts: 568 Member
edited November 13 in Food and Nutrition
Ok I just found out that I have the MTHFR mutation in both genes. Guess I got the double whammy :(. Anyways, does anyone else have this and how did you change your diet

Replies

  • queenliz99
    queenliz99 Posts: 15,317 Member
    From your medical doctor?
  • RodaRose
    RodaRose Posts: 9,562 Member
    Roughly half the population has it: http://www.news-medical.net/news/2004/05/20/1728.aspx
    If you had the test done by your medical doctor, I hope you were given some recommendations.
  • Machka9
    Machka9 Posts: 25,611 Member
    edited September 2016
    Yes, I've been diagnosed with the MTHFR mutation in both genes ... after developing DVT which hospitalised me for 2 weeks.

    My diet had to change during the year I was on Warfarin because Warfarin doesn't play well with some foods.

    But otherwise nope! I just have to keep active. No sitting for long periods of time ... like ... more than a couple hours.
  • RodaRose
    RodaRose Posts: 9,562 Member
    Some people are advised to take a good brand of Folate -- but it really depends on your doctor.
  • sunnybeaches105
    sunnybeaches105 Posts: 2,831 Member
    http://www.skepticalraptor.com/skepticalraptorblog.php/mthfr-gene-mutations-are-the-root-of-all-health-problems/
  • Machka9
    Machka9 Posts: 25,611 Member
    edited September 2016
    RodaRose wrote: »
    Some people are advised to take a good brand of Folate -- but it really depends on your doctor.

    Yes ... I am one who has to take a large dose of Folate. But also yes ... you'd want to talk to a doctor about that. It isn't just MTHFR, it's the MTHFR + a high homocysteine level which causes the need for the large dose of Folate.

    http://circ.ahajournals.org/content/111/19/e289

    I also find that a magnesium supplement and B12 are beneficial.

    Oh, and absolutely no Nexium.


    As for whether MTHFR causes all sorts of health problems ... highly doubt it. But in my case it has been determine to be a factor in developing blood clots (along with that high homocysteine level). Both a local doctor and a specialist in Melbourne agreed on that.
  • jamie31
    jamie31 Posts: 568 Member
    I was given foods to eat that are high in folate but it's pretty generic. I guess maybe I'm more looking for go to meals since the list looks boring. Lol.

  • jamie31
    jamie31 Posts: 568 Member
    jgnatca wrote: »
    I fear you may be victim of a fleecing operation.

    https://www.sciencebasedmedicine.org/dubious-mthfr-genetic-mutation-testing/

    The testing was done at the hospital and read by the lab there. I also do have diabetes so I know it had caused some issues
  • Machka9
    Machka9 Posts: 25,611 Member
    jamie31 wrote: »
    I was given foods to eat that are high in folate but it's pretty generic. I guess maybe I'm more looking for go to meals since the list looks boring. Lol.

    What foods?
  • jgnatca
    jgnatca Posts: 14,464 Member
    Here is a list of high folate foods. Good news; pastas and grains are fortified with Folate in North America.

    Since this is a matter of getting enough rather than keeping away, treat this food list as "eat more often" rather than "only eat this".

    Since you are also diabetic it sounds like your plate will be half veggies (dark leafy greens more often), a half cup of carbs like rice or pasta, and a protein of some sort (beef, chicken, fish).

    Pretty good eating all around.
  • Machka9
    Machka9 Posts: 25,611 Member
    jgnatca wrote: »
    Here is a list of high folate foods. Good news; pastas and grains are fortified with Folate in North America.

    Since this is a matter of getting enough rather than keeping away, treat this food list as "eat more often" rather than "only eat this".

    Since you are also diabetic it sounds like your plate will be half veggies (dark leafy greens more often), a half cup of carbs like rice or pasta, and a protein of some sort (beef, chicken, fish).

    Pretty good eating all around.

    You didn't post the list. :)

    But as a non-diabetic with MTHFR ... as it happens that sounds like what I eat and I didn't even know there was a "diet".

    Most often ... lots of veggies, brown rice, and chicken. :) Delicious!!

  • jgnatca
    jgnatca Posts: 14,464 Member
    AACK

    https://ods.od.nih.gov/factsheets/Folate-HealthProfessional/

    Here it is.
  • lacandona
    lacandona Posts: 37 Member
    I know this is an older thread but I just got on here and searched for mthfr. It has REAL effects on the people whose homocysteine levels go up. It caused blood clots and related health problems for me, which were literally better within weeks of taking proper vitamins and daily aspirin. I think there's some quackery out there because it's one of those things that can affect different people differently. But it is a real thing, and half of the population is not homozygous, nor is half the population subject to high homocysteine levels.

    That said, look for a vitamin that contains methylated folate. Take your vitamins, lowdose aspirin, and eat healthy and you will probably feel better. I feel much healthier and don't have the crazy appetite that I did before being diagnosed and treated.
  • jamie31
    jamie31 Posts: 568 Member
    Hey! I have been taking folate and do see a difference, I was not advised to take aspirin though, what is the purpose of it in this case?
  • Machka9
    Machka9 Posts: 25,611 Member
    I take folate on the advice of my doctor ... and also on the advice of my doctor, I do not take daily aspirin despite the fact that I have had quite serious DVT and could develop it again.

    My suggestion would be to talk to your doctor first.
  • Airportchick
    Airportchick Posts: 31 Member
    Machka9 wrote: »
    Yes, I've been diagnosed with the MTHFR mutation in both genes ... after developing DVT which hospitalised me for 2 weeks.

    My diet had to change during the year I was on Warfarin because Warfarin doesn't play well with some foods.

    But otherwise nope! I just have to keep active. No sitting for long periods of time ... like ... more than a couple hours.

    I had a DVT in my right leg from calf to pelvis 7 years ago. This July I had DVTs in both legs, my abdomen, and massive clots in my lungs. Spent some time in the ICU. I am a Coumadin lifer.

    I am vegan and my numbers stay consistent. Just eat a steady level of vitamin K. If you have something that has a high amount of vitamin K then add some garlic or ginger to some of your food that day. If you want a drink then eat dark greens sometime that day.
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