Salicylates? ADHD?

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llaurenmarie
llaurenmarie Posts: 1,260 Member
My GP gave me this very old list of foods to avoid in trying to calm down ADHD/Anxiety symptoms.
(I know it's very old because the letterhead is from his other practice 10 years ago)
Anyway, I do trust his methods, I just haven't been to him in years and have ignored my mental health. Now it's begun tampering with all aspects of my life and I'm exhausted of being so scatter-brained/forgetting things and generally over-emotional.

I've since googled for more information, the beauty and curse of the internet. There are now WAY more hygiene products and foods listed as having these salicylate properties.

For now I am just trying to listen and adhere to these paper guidelines as they may be the "main" items to help avoiding.

Anyone believe in this and/or have experience?


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  • llaurenmarie
    llaurenmarie Posts: 1,260 Member
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    Photo should be working now.
  • stanmann571
    stanmann571 Posts: 5,728 Member
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    My GP gave me this very old list of foods to avoid in trying to calm down ADHD/Anxiety symptoms.
    (I know it's very old because the letterhead is from his other practice 10 years ago)
    Anyway, I do trust his methods, I just haven't been to him in years and have ignored my mental health. Now it's begun tampering with all aspects of my life and I'm exhausted of being so scatter-brained/forgetting things and generally over-emotional.

    I've since googled for more information, the beauty and curse of the internet. There are now WAY more hygiene products and foods listed as having these salicylate properties.

    For now I am just trying to listen and adhere to these paper guidelines as they may be the "main" items to help avoiding.

    Anyone believe in this and/or have experience?

    For SOME people, SOME of those lists have SOME benefit.

    Ultimately, if your symptoms have dietary causes(when I was younger, some did) You will need to first clean out the things that might be triggers.

    You'll need to track what you're eating more aggressively than anyone else. You'll also need to keep a mental inventory, possibly with a trusted friend or partner to let you know honestly if you're acting like you've had a trigger food. If you have, make a note of the relapse and the food trigger. Avoid it aggressively.

    If you haven't, or don't think you have. DO a careful inventory of the last 24-48 hours of possible triggers. both lifestyle and dietary. IF you find one. Again, make a note.

    Once you have your diet stabilized and normalized, start building good habits that will help you adapt to and compensate around potential triggers.

  • llaurenmarie
    llaurenmarie Posts: 1,260 Member
    edited May 2017
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    My GP gave me this very old list of foods to avoid in trying to calm down ADHD/Anxiety symptoms.
    (I know it's very old because the letterhead is from his other practice 10 years ago)
    Anyway, I do trust his methods, I just haven't been to him in years and have ignored my mental health. Now it's begun tampering with all aspects of my life and I'm exhausted of being so scatter-brained/forgetting things and generally over-emotional.

    I've since googled for more information, the beauty and curse of the internet. There are now WAY more hygiene products and foods listed as having these salicylate properties.

    For now I am just trying to listen and adhere to these paper guidelines as they may be the "main" items to help avoiding.

    Anyone believe in this and/or have experience?

    For SOME people, SOME of those lists have SOME benefit.

    Ultimately, if your symptoms have dietary causes(when I was younger, some did) You will need to first clean out the things that might be triggers.

    You'll need to track what you're eating more aggressively than anyone else. You'll also need to keep a mental inventory, possibly with a trusted friend or partner to let you know honestly if you're acting like you've had a trigger food. If you have, make a note of the relapse and the food trigger. Avoid it aggressively.

    If you haven't, or don't think you have. DO a careful inventory of the last 24-48 hours of possible triggers. both lifestyle and dietary. IF you find one. Again, make a note.

    Once you have your diet stabilized and normalized, start building good habits that will help you adapt to and compensate around potential triggers.
    Thank you very much for your response. As you can imagine trying to eliminate so many foods is overwhelming enough and makes you more anxious ha. I am sincerely trying. I'm about 24 hours in now and I do feel a bit more calm and centered.

    It's as though there's a double whammy with trying to eat significantly less and also navigate around the guidelines.
  • stanmann571
    stanmann571 Posts: 5,728 Member
    edited May 2017
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    Dump the doctor, and find one that's not a GP to help manage your symptoms. the list is well out of date(it was 20 years old in the 70s, and is of primary benefit in dealing with male children with ADHD under the age of 15. If your picture is you. You don't fit the target audience.

    If you actually have ADHD, stimulant treatment is the most common and most effective way of managing it.

    Caffeine is a stimulant.

    That may have been a touch harsh, regardless, the Feingold diet is not appropriate for an adult female. You will deal with different triggers and causes.
  • llaurenmarie
    llaurenmarie Posts: 1,260 Member
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    I have an appointment this month with someone who's "not a GP". But this GP has helped me in the past with medicine, "life" just happened and I haven't been focused or able to pay for mental health treatment until now.

    I am just trying to remain open to natural things to help lessen the symptoms, in addition to medicine. It's taken me this long because I never wanted to admit I needed medicine and now it just seems like it's bigger than me.
  • pinuplove
    pinuplove Posts: 12,874 Member
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    No idea on salicylates, but caffeine is actually recommended and recognized as helpful now to help with mild ADHD symptoms. That alone would make me ignore the rest of the list and seek more up-to-date treatment.
  • stanmann571
    stanmann571 Posts: 5,728 Member
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    I have an appointment this month with someone who's "not a GP". But this GP has helped me in the past with medicine, "life" just happened and I haven't been focused or able to pay for mental health treatment until now.

    I am just trying to remain open to natural things to help lessen the symptoms, in addition to medicine. It's taken me this long because I never wanted to admit I needed medicine and now it just seems like it's bigger than me.

    By all means remain open. and examine your diet. I kept Feingold(or a variation) through HS, and found it immensely helpful. I also discovered that after HS/puberty, things that were trigger foods(apple/orange juice) no longer set me off.
  • llaurenmarie
    llaurenmarie Posts: 1,260 Member
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    pinuplove wrote: »
    No idea on salicylates, but caffeine is actually recommended and recognized as helpful now to help with mild ADHD symptoms. That alone would make me ignore the rest of the list and seek more up-to-date treatment.
    I understand how caffeine is helpful to ADHD but it is also counteractive to someone with anxiety.

  • pinuplove
    pinuplove Posts: 12,874 Member
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    pinuplove wrote: »
    No idea on salicylates, but caffeine is actually recommended and recognized as helpful now to help with mild ADHD symptoms. That alone would make me ignore the rest of the list and seek more up-to-date treatment.
    I understand how caffeine is helpful to ADHD but it is also counteractive to someone with anxiety.

    What is the list aimed at? ADHD or anxiety? I've never seen them lumped into one medical condition, although I recognize they can be comorbid.
  • stanmann571
    stanmann571 Posts: 5,728 Member
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    pinuplove wrote: »
    No idea on salicylates, but caffeine is actually recommended and recognized as helpful now to help with mild ADHD symptoms. That alone would make me ignore the rest of the list and seek more up-to-date treatment.

    Feingold is actually fairly good. and the book is worth reading especially if you have an ODD or ADHD or ASD child.

    But it doesn't work for every child, and it generally is less effective after the hormonal changes of puberty.
  • llaurenmarie
    llaurenmarie Posts: 1,260 Member
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    pinuplove wrote: »
    pinuplove wrote: »
    No idea on salicylates, but caffeine is actually recommended and recognized as helpful now to help with mild ADHD symptoms. That alone would make me ignore the rest of the list and seek more up-to-date treatment.
    I understand how caffeine is helpful to ADHD but it is also counteractive to someone with anxiety.

    What is the list aimed at? ADHD or anxiety? I've never seen them lumped into one medical condition, although I recognize they can be comorbid.
    Sorry the list is for ADHD
  • stanmann571
    stanmann571 Posts: 5,728 Member
    Options
    pinuplove wrote: »
    pinuplove wrote: »
    No idea on salicylates, but caffeine is actually recommended and recognized as helpful now to help with mild ADHD symptoms. That alone would make me ignore the rest of the list and seek more up-to-date treatment.
    I understand how caffeine is helpful to ADHD but it is also counteractive to someone with anxiety.

    What is the list aimed at? ADHD or anxiety? I've never seen them lumped into one medical condition, although I recognize they can be comorbid.


    The list shouldn't be separated from Feingold's book, because it explains in greater depth the methodologies and weaknesses of the list and makes it clear that it's not necessarily beneficial or even effective for every patient.
  • pinuplove
    pinuplove Posts: 12,874 Member
    Options
    pinuplove wrote: »
    pinuplove wrote: »
    No idea on salicylates, but caffeine is actually recommended and recognized as helpful now to help with mild ADHD symptoms. That alone would make me ignore the rest of the list and seek more up-to-date treatment.
    I understand how caffeine is helpful to ADHD but it is also counteractive to someone with anxiety.

    What is the list aimed at? ADHD or anxiety? I've never seen them lumped into one medical condition, although I recognize they can be comorbid.


    The list shouldn't be separated from Feingold's book, because it explains in greater depth the methodologies and weaknesses of the list and makes it clear that it's not necessarily beneficial or even effective for every patient.

    That makes more sense, thank you.
  • stanmann571
    stanmann571 Posts: 5,728 Member
    Options
    pinuplove wrote: »
    pinuplove wrote: »
    pinuplove wrote: »
    No idea on salicylates, but caffeine is actually recommended and recognized as helpful now to help with mild ADHD symptoms. That alone would make me ignore the rest of the list and seek more up-to-date treatment.
    I understand how caffeine is helpful to ADHD but it is also counteractive to someone with anxiety.

    What is the list aimed at? ADHD or anxiety? I've never seen them lumped into one medical condition, although I recognize they can be comorbid.


    The list shouldn't be separated from Feingold's book, because it explains in greater depth the methodologies and weaknesses of the list and makes it clear that it's not necessarily beneficial or even effective for every patient.

    That makes more sense, thank you.

    I still avoid HFCS and certain red dyes because while they don't send me on the spiral they did when I was younger, they still boost my weird/random factors to the point where I can inadvertently make those who only know me casually very uncomfortable.
  • llaurenmarie
    llaurenmarie Posts: 1,260 Member
    Options
    pinuplove wrote: »
    pinuplove wrote: »
    pinuplove wrote: »
    No idea on salicylates, but caffeine is actually recommended and recognized as helpful now to help with mild ADHD symptoms. That alone would make me ignore the rest of the list and seek more up-to-date treatment.
    I understand how caffeine is helpful to ADHD but it is also counteractive to someone with anxiety.

    What is the list aimed at? ADHD or anxiety? I've never seen them lumped into one medical condition, although I recognize they can be comorbid.


    The list shouldn't be separated from Feingold's book, because it explains in greater depth the methodologies and weaknesses of the list and makes it clear that it's not necessarily beneficial or even effective for every patient.

    That makes more sense, thank you.

    I still avoid HFCS and certain red dyes because while they don't send me on the spiral they did when I was younger, they still boost my weird/random factors to the point where I can inadvertently make those who only know me casually very uncomfortable.

    I know that HFCS just throws me off for the rest of the day.

  • GottaBurnEmAll
    GottaBurnEmAll Posts: 7,722 Member
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    I have an appointment this month with someone who's "not a GP". But this GP has helped me in the past with medicine, "life" just happened and I haven't been focused or able to pay for mental health treatment until now.

    I am just trying to remain open to natural things to help lessen the symptoms, in addition to medicine. It's taken me this long because I never wanted to admit I needed medicine and now it just seems like it's bigger than me.

    By all means remain open. and examine your diet. I kept Feingold(or a variation) through HS, and found it immensely helpful. I also discovered that after HS/puberty, things that were trigger foods(apple/orange juice) no longer set me off.

    We Feingolded my son. It was very helpful. You might want to check out Feingold for more comprehensive information and lists of things to avoid, OP.

    At this point, my son is almost 15 and with the exception of some preservatives, doesn't need to avoid most of the no-no's any more.
  • cmtigger
    cmtigger Posts: 1,450 Member
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    Dump the doctor, and find one that's not a GP to help manage your symptoms. the list is well out of date(it was 20 years old in the 70s, and is of primary benefit in dealing with male children with ADHD under the age of 15. If your picture is you. You don't fit the target audience.

    If you actually have ADHD, stimulant treatment is the most common and most effective way of managing it.

    Caffeine is a stimulant.

    That may have been a touch harsh, regardless, the Feingold diet is not appropriate for an adult female. You will deal with different triggers and causes.

    This. Stimulants have been the main treatment since the 1990's.
  • shaumom
    shaumom Posts: 1,003 Member
    edited May 2017
    Options
    I am coming from the 'having experience,' at least when it comes to mental health and dietary measures that impact it. This applies to myself, and both my children, too, so I'm just going to throw some things out there.

    1. From the standpoint of diet potentially impact mental health - OMG, yes. Diet can have a HUGE impact on mental health, but is largely ignored by the medical profession (according to a couple of my doctors, most of them are taught currently in school that 'food is almost never a cause of physical problems,' and so will almost never recommend elimination diets unless you have something that requires it obviously, like diabetes). So the fact that your doctor is promoting food as something that can have an impact? Good on him.

    The list being out of date...eh, that's not so good. But at least the doc is willing to think about it, you know?

    2. When it comes to food impacting mental health, sometimes it's because you HAVE a condition that makes you react to food.

    For example: People with mild food allergies frequently suffer from memory trouble, brain fog, and/or fatigue (and sometimes mild gut issues), even if their allergy is not severe enough to cause hives/itching. Most doctors - and sadly even some allergists - will not suspect you have allergies UNLESS you have hives. But the allergy prick tests are often not as accurate for foods you don't have a skin reaction to, either.

    And if you get a blood test for allergies, many allergists will often recommend 'not worrying' about any foods that you don't have a 'high level' reaction to. However, for myself and many allergic folks I speak to, we have felt SO MUCH BETTER going off of the lower level allergy foods. Like, unbelievably better. Had good memory and focus for what felt like the first time in YEARS. I would seriously recommend considering it, honestly.

    Another example: celiac disease. This is a gut disorder, requires a dietary change as treatment (but don't do the change until AFTER getting tested, as the test looks for accumulated and active damage biomarkers to eating gluten). Many doctors are aware of gut symptoms to look for: stomach pain, bloating, bowel trouble. Some look for skinny people or short people. However, over a third of folks don't have this and have OTHER symptoms that are actually a result of nutrient deficiencies. And most doctors don't know what those are, or don't think about them - but mental symptoms are on that list, 'cause the brain needs enough nutrients to keep working, like anything else.

    Another issue with this - many doctors will test for just a couple nutrients and assume that if THEY are fine, the rest would be too. But with celiac disease, which nutrients are low depends on where the damage IS, so some nutrients can sometimes be low, but are never tested or difficult to test for so you never find out and never consider getting tested for the disease.

    - and food intolerances, too. Doctors know, pretty much NOTHING about food intolerances. Not kidding around: nothing. GI doctors know about lactose intolerance, because that involves an enzyme in the gut. Same with fructose malabsorption/intolerance. Doctors only LAST YEAR proved that gluten intolerance existed, but it's not an enzyme but rather the body reacting with an immune response to gluten, in a way that is NOT celiac disease nor an allergic response. that's the extent of what they know so far - literally don't even know how it works yet.

    Every other type of intolerance, we don't even know what's happening. ALL the tests on it are speculative on what they are GUESSING is happening (which is why many doctors don't accept intolerance tests as valid). The thing is - intolerances are kind of a 'lost' problem in human health. Decades ago, if you have a reaction to food, an allergist helped you with it. But when IgE was discovered, allergists started ONLY treating patients who had an IgE response. Except a LOT of people have reactions to foods and chemicals that do not involve IgE...and no specialty ever popped up to pick them up, to study it, to take care of the people the allergists avoided now. So there is very, very little research on the topic, unfortunately, and elimination diets about the only thing that you can use to see if there is a problem. :-(

    - and oddly, some diseases are impacted by food, as well, like lyme disease, or parasitical infections like giardiasis that respond to diet changes.

    So basically...there's a lot of physical changes that can be affected by diet. And I have seen SUCH a huge difference for so many people, I'm honestly to the point that I think doctors should recommend their patients try an elimination diet for a few weeks, on principle, just to see how they feel on it. Because for me...I was sick for 20 years before one, freaking diet change altered my whole life. Hope other people never have to go through that, you know?

    3. re: salicylates. If you wish to avoid them, this is a good site to check out that's kept pretty updated: http://salicylatesensitivity.com.

  • strshllw84
    strshllw84 Posts: 256 Member
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    Dump the doctor, and find one that's not a GP to help manage your symptoms. the list is well out of date(it was 20 years old in the 70s, and is of primary benefit in dealing with male children with ADHD under the age of 15. If your picture is you. You don't fit the target audience.

    If you actually have ADHD, stimulant treatment is the most common and most effective way of managing it.

    Caffeine is a stimulant.

    That may have been a touch harsh, regardless, the Feingold diet is not appropriate for an adult female. You will deal with different triggers and causes.

    I also have ADD and caffeine actually helps, and most doctors would say so.
    On a side note, high protein diet also can help with ADHD