Pre-diabetic, questions and concerns. Can anyone help?

LadyLilion
LadyLilion Posts: 276 Member
edited November 19 in Health and Weight Loss
Hi all. I hope someone can give me some information.

I have not been diagnosed as diabetic, only “pre-diabetic”, but frankly I’m thinking of changing doctors. My old doctor retired and I really don’t like my current one as she seems only interested in treating things like colds and sprains and not really worrying about general health. In 2016, my a1c was 6. In March 2017, it was 6.5. She put me on Metformin, 500 mg 1 x per day, which I take at night. I haven’t bothered with the taking it with meals since I always forget and I have had no stomach upset at all, so I just take it with other meds. 4 months later, I was back to 6 and she was pleased. However, my fasting blood sugar was over 140! It had been 126 or so the time before that! My husband (a1c of 7) was diagnosed as diabetic and given a meter, so I’ve used his a time or two and my fasting blood sugar is always over 130. For instance, this morning, about an hour after I got up, and with no food, it was 136.

The fasting blood sugar being so high has me quite concerned. Since I don’t have a meter or test strips of my own, I haven’t been taking it regularly so he doesn’t run out. He's only had his meter a couple weeks, so I've only tested a few times. But…he’s the one with diabetes, yet my sugar is always higher than his. Literally every time we’ve tested at the same time, I’m higher.

I guess, I’m wondering if my doctor is a quack. Maybe I should get a second opinion. It’s not that I’m hoping to be fully diabetic – but shouldn’t I be doing something differently if I am? I've been given no real instructions, just a pill. I mention that I've lost weight and I get :|"That's nice."
No input, no diet suggestions, no prescription for testing supplies, no...anything.

Should probably add, I’m 53, 5’10” and currently 288 lbs. March 5, when we got serious about improving our health, I was at 306…so on the way down. No diabetes in my family. I have a VERY sedentary job, which has been a challenge, but I'm working on getting more steps in. I see a dietician once a month and she’s set my MFP calories at 1900 (about to lower that, but 1900 has gotten me right at 1 lb a week loss) and 45% carbs, 25% protein and 30% fat. I usually stay under on carbs…not so good with the others. I take a TON of pills. Lipitor for cholesterol, THREE BP pills – my BP is hard to control, at my thinnest – 228 a few years ago, I was down to 2, but as I gained back what I'd lost, the 3rd pill had to be put back on. I have a heart murmur and arrhythmia too but neither bother me at all. Everyone in my family who is dead has died of heart disease…almost literally everyone. I had a cardiologist, but he released me a couple years ago as I was doing just fine.

You know, I don’t even know what I’m asking here…I just saw that 136 this morning – again – and it kind of freaked me out when I realized that is a high fasting blood sugar even for a diabetic.


Words of wisdom? Suggestions? Information? I searched groups - but there doesn't seem to be one geared at diabetics...
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Replies

  • BlueSkyShoal
    BlueSkyShoal Posts: 325 Member
    First, congrats on losing 18 pounds! That's awesome!

    I don't have much knowledge on the medical front, but it sounds like your doctor is kind of "checked out". I think changing doctors would be a good idea. You shouldn't have to put up with a doctor who makes you feel abandoned.
  • deannalfisher
    deannalfisher Posts: 5,600 Member
    by doctor - are you talking primary care or endocrinologist?
  • LadyLilion
    LadyLilion Posts: 276 Member
    Thanks for responding. Primary Care physician, not specialist. I'd need a referral to see an endocrinologist and I frankly don't think my doctor cares enough to bother. She isn't bad, she's just...cold. I don't expect my primary care doctor to be my buddy...but I'd think they'd care about a little thing like your overall health.
  • debtay123
    debtay123 Posts: 1,327 Member
    Along with checking into the doctor idea- I am in the process of reading the 8 week blood sugar diet by micheal mosley- it has some good information. I am not diabetic either however my mom is pre-diabetic and my whole family has diabetes in many family members- think about getting a copy of this book- or at least go to youtube and look it up- I will not eat exactly but it will help with the tweaks to be made in our diet- also since you do not eat a lot of sugary carbs- you will probably do really well on it.
  • deannalfisher
    deannalfisher Posts: 5,600 Member
    depending on your insurance, you may not need a referral (I know I don't)
  • sderika
    sderika Posts: 19 Member
    edited June 2017
    I am not a doctor, but I would 100% agree that your fasting blood sugar readings are way too high, and consistent with full-blown diabetes. You should get in to see someone ASAP. Bring clear documentation of the blood sugar readings you have taken, as well as some info from the internet such as from the ADA website. It's very clear that with a fasting blood sugar reading over 126, you are considered to be diabetic. You need treatment because high blood sugar is very damaging to the body. Go be your own advocate, and don't accept no for an answer! Good luck!
  • LadyLilion
    LadyLilion Posts: 276 Member
    depending on your insurance, you may not need a referral (I know I don't)

    Is there a real benefit to seeing an endocrinologist vs. a "regular" doctor early on?
    debtay123 wrote: »
    Along with checking into the doctor idea- I am in the process of reading the 8 week blood sugar diet by micheal mosley- it has some good information. I am not diabetic either however my mom is pre-diabetic and my whole family has diabetes in many family members- think about getting a copy of this book- or at least go to youtube and look it up- I will not eat exactly but it will help with the tweaks to be made in our diet- also since you do not eat a lot of sugary carbs- you will probably do really well on it.

    I'll have to look that up. Thanks!
  • YvetteK2015
    YvetteK2015 Posts: 654 Member
    LadyLilion wrote: »
    Thanks for responding. Primary Care physician, not specialist. I'd need a referral to see an endocrinologist and I frankly don't think my doctor cares enough to bother. She isn't bad, she's just...cold. I don't expect my primary care doctor to be my buddy...but I'd think they'd care about a little thing like your overall health.

    I had a PCP like that once. She was so cold, and shrugged off problems I was having. I left that practice real quick. I learned a long time ago that you need to be an advocate for yourself with your doctors. With a previous doctor, I had so many bad symptoms that this doc just kept saying it was nothing and wouldn't investigate. About 4 months after my first complaint, I was in the ER being told by 3 doctors that I had a huge tumor in my chest.
    Never again will I have a doctor who is dismissive and cold. Ever.
  • deannalfisher
    deannalfisher Posts: 5,600 Member
    an endocrinologist specializes in diseases like diabetes, thyroid conditions - so tends to be (although not always) - more in sync with current research/guidelines for treatment etc
  • LadyLilion
    LadyLilion Posts: 276 Member
    My husband quite likes his doctor who is much more holistic in her approach, for lack of a better term. When he started seeing her she did copious blood tests, including vitamins and such, prescribed him (I believe vitamin D) supplements and he actually has noticed a difference how he feels, energy levels, etc. Of course, she is the one who prescribed his Metformin as well.

    I think I'm going to see if she's taking new patients. My insurance is quite good as I work in state government. I can see pretty much any doctor in this town, though I do need referrals for specialists.

    I'd rather be yelled at about my weight and blood sugar than have it ignored. Heck, I'd rather they burn incense and chant than do nothing at all.
  • deannalfisher
    deannalfisher Posts: 5,600 Member
    I know my PCM right now is enrolled in the whole body program - so they look at whole body health and not just symptoms of illness/injury, my insurance designates practioners who do that
  • lynn_glenmont
    lynn_glenmont Posts: 10,093 Member
    If you don't have confidence in your doctor, you should definitely look into changing.

    But wouldn't you rather not develop diabetes, than have a doctor who will prescribe something for prediabetes or diabetes? Losing weight and getting more exercise can normalize your blood glucose levels, and no doctor can make you do that. I realize you've already started on that, but I guess (just based on this one post, and I realize that's just a tiny snapshot into who you are) I feel like you're misplacing your mental and emotional energy on worrying about whether to change doctors (yeah, just do that) rather than on the things you can do yourself that could make a doctor's willingness to prescribe something or scold you irrelevant.
  • jgnatca
    jgnatca Posts: 14,464 Member
    Here's to put your mind a ease somewhat.
    https://www.diabetesselfmanagement.com/blog/controlling-the-dawn-phenomenon/

    I think the dawn phenomenon is giving you your high fasting numbers.

    Keep working with your dietitian. Before I lost significant weight (over eighty pounds) I was on cholesterol, blood pressure, and diabetes (Metformin) medications. I'm not on any pills now. Losing the weight with the assistance of a dietitian can make a world of difference.

    Squawk to whoever you need to for your own glucometer. Like you, I started taking control as soon as I got the prediabetes diagnosis. It pays to take this seriously, and you are taking all the right steps.
  • LadyLilion
    LadyLilion Posts: 276 Member
    earlnabby wrote: »
    LadyLilion wrote: »
    It had been 126 or so the time before that! My husband (a1c of 7) was diagnosed as diabetic and given a meter, so I’ve used his a time or two and my fasting blood sugar is always over 130. For instance, this morning, about an hour after I got up, and with no food, it was 136.

    The fasting blood sugar being so high has me quite concerned. Since I don’t have a meter or test strips of my own, I haven’t been taking it regularly so he doesn’t run out. He's only had his meter a couple weeks, so I've only tested a few times. But…he’s the one with diabetes, yet my sugar is always higher than his. Literally every time we’ve tested at the same time, I’m higher.

    I want to address this separately. High fasting BG numbers in the morning can often be caused by something called "Dawn Syndrome". Basically, your body releases glucose into your system to prepare you to wake up and start your day. Not everyone has it, but is is very common. My morning numbers average around 120 but my pre-lunch numbers are closer to 100 and pre-dinner are around 95. This is why the A1C is the better number for seeing how well you are managing your BG.

    Walmart has an inexpensive meter you can get with no prescription. Relion brand. The meter is $18 and you can get 100 test strips for $18. I use it for my additional readings and use my insurance-paid one for my morning fasting readings.

    Thank you, I'll consider that. I appreciate the information as well. I'll try getting a meter of my own and try at later times of the day. My readings are throwing off my husband's average anyway.
    If you don't have confidence in your doctor, you should definitely look into changing.

    But wouldn't you rather not develop diabetes, than have a doctor who will prescribe something for prediabetes or diabetes? Losing weight and getting more exercise can normalize your blood glucose levels, and no doctor can make you do that. I realize you've already started on that, but I guess (just based on this one post, and I realize that's just a tiny snapshot into who you are) I feel like you're misplacing your mental and emotional energy on worrying about whether to change doctors (yeah, just do that) rather than on the things you can do yourself that could make a doctor's willingness to prescribe something or scold you irrelevant.

    Well if no one TELLS me what to do, I don't know...now do I? That's the issue. I already have a Rx and really, I'd rather NOT have someone just throw drugs at me. I don't want to be "scolded". I just want a doctor who will tell me what to do here. What I get is, "Oh your a1c is high. Have a pill and come back in 4 months." I have a concern and I can't even get in to see this woman for weeks generally. So yes, I'm definitely changing doctors.

    I guess I was more wondering if this is just par for the course. I don't have any diabetic friends. My husband was literally diagnosed weeks ago, so he's new to this. If it's possible to actually reverse this and NOT become diabetic, that's the best possible outcome. But I don't get any feedback from my doctor. So I'm asking here.

  • sparky00721
    sparky00721 Posts: 113 Member
    earlnabby wrote: »

    I want to address this separately. High fasting BG numbers in the morning can often be caused by something called "Dawn Syndrome". Basically, your body releases glucose into your system to prepare you to wake up and start your day. Not everyone has it, but is is very common. My morning numbers average around 120 but my pre-lunch numbers are closer to 100 and pre-dinner are around 95. This is why the A1C is the better number for seeing how well you are managing your BG.


    I was recently diagnosed as diabetic, with a very high recent HbA1c number (10.4) and am now on Metformin, though at twice your dose. I had been noted in 2013 as pre-diabetic with an A1c number of 6, but was not prescribed anything other than a "lose some weight, tubby" - advice which I promptly ignored for years.

    You should bring all your information forward to the appropriate health care provider, but for what it is worth, based on my panicked recent attempts at self-education and my doctor's advice as per Canadian protocols (not sure if those protocols may be different in the States), my understanding is the same as earlnabby's - the HbA1c results are the really important one for Type 2 diabetics (complete other situation for Type 1 diabetics).

    In addition to the advice you mention, my understanding is that regular exercise (both cardio and resistance) are really important components of beneficial lifestyle changes in addition to weight loss for diabetics; regular exercise is important for reasons independent of whatever contribution it may make to weight loss.

    Congratulations on the weight loss (awesome) and on getting your a1c number down to 6, which in Canada is considered to be managed for diabetics!
  • sparky00721
    sparky00721 Posts: 113 Member
    earlnabby wrote: »
    5 months of losing 1 lb a week, eating moderate carb, and exercising, my A1C was down to 5.6. Three months later it was 5.3 and I was having low blood sugar moments so I was taken off the glipizide. I have managed my diabetes with moderate carbs and exercise ever since. my A1C has stayed between 5.0 and 5.2 for 2 years.

    That is an awesome story to hear; thanks for sharing. I have announced all-out war against my recent diagnosis of Type 2 diabetes with the goal of reducing my a1c readings enough that I might over time wean off recently-prescribed Metformin (plus precautionary medication relating to cholesterol and blood pressure).

    It is encouraging to read success stories such as yours.

  • Daddy78230
    Daddy78230 Posts: 125 Member
    LadyLilion wrote: »

    Words of wisdom? Suggestions? Information? I searched groups - but there doesn't seem to be one geared at diabetics...

    Here's an active MFP group with good info: http://community.myfitnesspal.com/en/group/1772-type-2-diabetes-support-group

    I use Bayer Contour Next Monitor and strips. You can find a meter for $5.00 on Amazon and 100 strips between $20.00- $25.00.
  • LadyLilion
    LadyLilion Posts: 276 Member
    earlnabby wrote: »
    5 months of losing 1 lb a week, eating moderate carb, and exercising, my A1C was down to 5.6. Three months later it was 5.3 and I was having low blood sugar moments so I was taken off the glipizide. I have managed my diabetes with moderate carbs and exercise ever since. my A1C has stayed between 5.0 and 5.2 for 2 years.

    That is an awesome story to hear; thanks for sharing. I have announced all-out war against my recent diagnosis of Type 2 diabetes with the goal of reducing my a1c readings enough that I might over time wean off recently-prescribed Metformin (plus precautionary medication relating to cholesterol and blood pressure).

    It is encouraging to read success stories such as yours.


    I agree. @earlnabby it's great to hear that. My husband's father was diagnosed 3 years ago and has managed with Metformin and diet just fine. Boy...to be able to get rid of the drugs would be great. Probably not likely that I'd lose all of mine, even at perfect weight, given my family cardio history...but even a couple pills would be awesome.

    My job is so incredibly sedentary it's ridiculous. I have my Fitbit set at 7500 steps and find that hard to manage on busy days. I've had days I literally left my chair 3 x to pee and get something to eat and drink. Since March I've been trying to get a mile+ walk in at noon every day and I get up early and hit the elliptical more often than not. I know it's not enough, but it's more than I've done in years.
  • eissacf25
    eissacf25 Posts: 151 Member
    jgnatca wrote: »
    Here's to put your mind a ease somewhat.
    https://www.diabetesselfmanagement.com/blog/controlling-the-dawn-phenomenon/

    I think the dawn phenomenon is giving you your high fasting numbers.

    Keep working with your dietitian. Before I lost significant weight (over eighty pounds) I was on cholesterol, blood pressure, and diabetes (Metformin) medications. I'm not on any pills now. Losing the weight with the assistance of a dietitian can make a world of difference.

    Squawk to whoever you need to for your own glucometer. Like you, I started taking control as soon as I got the prediabetes diagnosis. It pays to take this seriously, and you are taking all the right steps.


    I agree with this, I have the same issue. My fastings are usually anywhere from 113-130, yet my last A1C in April was 5.8 - which is the high end of normal / low end of pre-diabetic. Either way, I need to fix it (hopefully by losing weight) but the fasting isn't always a good indicator of your overall blood sugar health. Also, if you don't feel comfortable with your doctor, switch! Trust your gut - I've done that twice now and finally found a great one. Good luck! :)
  • nvmomketo
    nvmomketo Posts: 12,019 Member
    A lower carb diet may help you with your numbers within days or weeks of starting. It may be something to consider. Dr Bernstein's Diabetes Solution is a fantastic book for any diabetic about reducing your insulin needs and reducing BG. Really good plan.

    Dawn phenomenon can be a pain but metformin often helps with that. A change in diet (lowering carbs) can help many too, as can weight loss. Exercise too.

    I went LCHF and now the only high numbers I get are fasting BG, but even those are not too high, just higher than what I want, like a 5.6. High BG can be reversible and controlled in many if not most diabetics.
  • earlnabby
    earlnabby Posts: 8,171 Member
    earlnabby wrote: »
    5 months of losing 1 lb a week, eating moderate carb, and exercising, my A1C was down to 5.6. Three months later it was 5.3 and I was having low blood sugar moments so I was taken off the glipizide. I have managed my diabetes with moderate carbs and exercise ever since. my A1C has stayed between 5.0 and 5.2 for 2 years.

    That is an awesome story to hear; thanks for sharing. I have announced all-out war against my recent diagnosis of Type 2 diabetes with the goal of reducing my a1c readings enough that I might over time wean off recently-prescribed Metformin (plus precautionary medication relating to cholesterol and blood pressure).

    It is encouraging to read success stories such as yours.

    That is exactly what I did. All out war with the goal of getting off the meds ASAP.
  • VioiletAgnes
    VioiletAgnes Posts: 18 Member
    I have a young primary care doctor that graduated just over a year ago. He recommended the ADAPT program which is a pre-diabetes lifestyle (diet) education program for a year. I have already lost 10 lbs....and down now to 269. My doc recommended sleep apnea test.....which came back positive; I ended up 11 seconds without breathing and oxygen level as low as 81 which should be 95. I will be fitted for cpap by the end of the month. Now is time for YOU to SHOP around for another doctor; check with friends or med clinic staff for a better doctor. YOU need to ADVOCATE for your healthcare....and don't accept 2nd class doc....you deserve better!
  • JeromeBarry1
    JeromeBarry1 Posts: 10,179 Member
    Word of wisdom: My father-in-law had a hemorrhagic stroke yesterday. The neurologist speculated that it was due to a spike in his already high blood pressure. His kidney function is poor, which is an eventuality of his diabetes. I've known this man more than 37 years and I know he has never cared to do or learn anything about his health. Stay fat. Stay sick. And be on track to die after a long and wretched decline.

    My point is, you and I have the power to avoid that. Lose weight eating as a person who is slim and healthy. Lose the weight and exit the pre-diabetic state. Lose the weight and get your blood pressure down. Lose the weight and extend the years of your healthy life.
  • LadyLilion
    LadyLilion Posts: 276 Member
    Sorry to hear about your Father in law.
  • lynn_glenmont
    lynn_glenmont Posts: 10,093 Member
    edited June 2017
    LadyLilion wrote: »
    earlnabby wrote: »
    LadyLilion wrote: »
    It had been 126 or so the time before that! My husband (a1c of 7) was diagnosed as diabetic and given a meter, so I’ve used his a time or two and my fasting blood sugar is always over 130. For instance, this morning, about an hour after I got up, and with no food, it was 136.

    The fasting blood sugar being so high has me quite concerned. Since I don’t have a meter or test strips of my own, I haven’t been taking it regularly so he doesn’t run out. He's only had his meter a couple weeks, so I've only tested a few times. But…he’s the one with diabetes, yet my sugar is always higher than his. Literally every time we’ve tested at the same time, I’m higher.

    I want to address this separately. High fasting BG numbers in the morning can often be caused by something called "Dawn Syndrome". Basically, your body releases glucose into your system to prepare you to wake up and start your day. Not everyone has it, but is is very common. My morning numbers average around 120 but my pre-lunch numbers are closer to 100 and pre-dinner are around 95. This is why the A1C is the better number for seeing how well you are managing your BG.

    Walmart has an inexpensive meter you can get with no prescription. Relion brand. The meter is $18 and you can get 100 test strips for $18. I use it for my additional readings and use my insurance-paid one for my morning fasting readings.

    Thank you, I'll consider that. I appreciate the information as well. I'll try getting a meter of my own and try at later times of the day. My readings are throwing off my husband's average anyway.
    If you don't have confidence in your doctor, you should definitely look into changing.

    But wouldn't you rather not develop diabetes, than have a doctor who will prescribe something for prediabetes or diabetes? Losing weight and getting more exercise can normalize your blood glucose levels, and no doctor can make you do that. I realize you've already started on that, but I guess (just based on this one post, and I realize that's just a tiny snapshot into who you are) I feel like you're misplacing your mental and emotional energy on worrying about whether to change doctors (yeah, just do that) rather than on the things you can do yourself that could make a doctor's willingness to prescribe something or scold you irrelevant.

    Well if no one TELLS me what to do, I don't know...now do I? That's the issue. I already have a Rx and really, I'd rather NOT have someone just throw drugs at me. I don't want to be "scolded". I just want a doctor who will tell me what to do here. What I get is, "Oh your a1c is high. Have a pill and come back in 4 months." I have a concern and I can't even get in to see this woman for weeks generally. So yes, I'm definitely changing doctors.

    I guess I was more wondering if this is just par for the course. I don't have any diabetic friends. My husband was literally diagnosed weeks ago, so he's new to this. If it's possible to actually reverse this and NOT become diabetic, that's the best possible outcome. But I don't get any feedback from my doctor. So I'm asking here.

    (Please try reading this in the gentlest voice you can imagine. Kermit the Frog? B/c your response to my first post seemed like you were having an intense emotional reaction to it.)

    So, I did offer advice, which was that the best thing you could do to try to turn your pre-diabetes around (and you can do this without a doctor, old or new) is to exercise and lose weight. (It's in the part of my post that you didn't bold and didn't respond to, so I'm not sure if you read past it.) @amusedmonkey also suggested weight loss as a powerful tool in addressing a number of your conditions, but I didn't see if you responded to her.

    I started on MFP because I was scared by a blood glucose reading at the high end of the pre-diabetic range. I tracked my calories, lost 15% of my body weight, started walking more (and eventually added other exercise, but initially it was just increasing my walking), and at my next doctor's appointment my A1C was completely normal. My cholesterol numbers and blood pressure also improved.

    If you want to do more than that, you can try managing your carb intake as though you were diabetic. I didn't find that necessary, but that's not to say it might not help you. I've also seen study reports that suggest increasing your omega-3 intake can help (common sources: fatty fish, flaxseed and flax oil, canola oil, grass-fed beef, eggs from truly free-range chickens, or from chickens whose feed is supplemented with flax and other high omega-3 foods).

    I agree with @earlnabby that the A1C reading is more important than momentary glucose readings, and it's great that you've got yours headed back down.

    I'm looking back at your OP, and you were concerned your doctor didn't give you "diet suggestions" -- do you mean like certain foods you should eat more of or avoid, or do you mean like an overall plan to lose weight, like keto or LCHF or paleo or IF? Because you don't need to follow some specific plan. Whatever you're doing is working fine. Eighteen pounds in three months is great progress.

    I realize your doctor is not responsive, but until you make the jump to a new doctor, you might want to double-check on how you're taking the metformin. Your post indicates that you believe the instruction to take with meals is just to avoid stomach upset, but **one way** it works by decreasing insulin resistance, so the glucose gets out of blood and into your cells. I have no training in pharmacology, so I don't know whether it matters or not, but it certainly seems possible that it's meant to be taken with meals so you have the metformin at the same time that the glucose is hitting your bloodstream. I could be wrong -- it could build up in your system over time, and taking it once a day could be perfectly effective, but if it were me, I would want to know for sure.

    ETA **one way**
  • michael1976_ca
    michael1976_ca Posts: 3,488 Member
    you should be able to get your husband and your self in to see dietician and diabetic nurse. groups courses and all the fun stuff. you need a doctor who cares that's important. you both can fight it. with clean eating switching food groups up. witch is where a dietician can help. the nurse she can help with meds and exercise. you want to get it nipped in the butt before either of you get put on insulin because poking your self daily sucks
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