Ovarian cyst

I had a couple of cysts they were very painful and I remember struggling to walk as well. I don't know how big they get as I had to have surgery to remove them. It wasn't a very fun process but in the end everything worked out very well. I have a few friends that also have had cysts and did not have to have surgery, in one case they shrunk considerably and she hasn't had any issues since.
Both of us have PCOS.
I hope that you get some answers quickly and find the right course of action and are back to feeling yourself really quickly!

I have had many of them ... apparently only one at a time, but one right after the other after the other after the other ...

The first one I noticed was one which ruptured. WOW was that painful! The pain was in my appendix area and they thought it might be appendix, so I was rushed into hospital ... all sorts of tests, finally determined it was a ruptured cyst, and they had to go in to clean it all out. That was when I was 17.

They put me on "the pill" and I was on the pill for much of the next 25 years. Turns out I was lucky that didn't kill me. I've been off them now for almost a decade.

But every time I went off for a few months or a year or something ... and of course, every time I have an ultrasound in the last decade ... another cyst.

My most recent one was a hemorrhagic ovarian cysts, meaning that it contains blood and is extra painful. But it went away after several months.

I had a smallish one that they were in two minds about whether or not to remove. It was a dermoid cyst so very slow growing. I did have it taken out in the end by keyhole surgery and it was pretty straightforward. I was back home the same day. Try not to worry xx

I could be wrong but I think CA125 measures a specific protein level in your blood so it could be something similar to that but measuring a different protein, only guessing tho! I had a similar experience to you, my cyst grew to 6inch diameter and was removed via open surgery. I wish you all the best and hope your treatment goes well for you!

RuNaRoUnDaFiEld wrote: »

All the blood test results are great!

The cyst is 10.4cm in size, a large grapefruit sized.

MRI scan in the next few weeks to see how to deal with it. Not worried now.

That's a good sized one! Over the past decade or so, mine have usually been between about 1 and 3 cm ... small enough that they just leave them to resolve on their own.

They may decide to remove it, but those sorts of surgeries aren't terribly invasive.

RuNaRoUnDaFiEld wrote: »

They said it might take a total hysterectomy depending on its blood supply route.

Really?!?

I think I might ask for a second opinion on that.

Anyway, if there is a "blood route" and based on the pain you're in, I'd guess that it could be a hemorrhagic ovarian cyst.

So glad test results came back clear!

Sorry that you have to have surgery but I'm glad it can be resolved. Hope your recovery is easy and the you feel back to normal really quickly.

An ovarian cyst requires a hysterectomy why? If it's necessary, it's necessary, but your uterus helps support all of your other internal organs. Removing the uterus causes a whole host of other complications. If it were me, I would be darned sure there's an actual reason for it, other than it's a little easier for the surgeon. I'm sorry you're in pain and I hope they are able to resolve this quickly for you. (I've had 2 laparoscopic procedures and 1 open for ovarian cysts, so I feel you.) Best of luck.

RuNaRoUnDaFiEld wrote: »

Because it is 14cm around and must come out whole, there is also many fibroid s and some endometriosis so I am being opened up from the belly button downwards.
A panel of doctors decided the course of action.

I can't wait for the surgery, I'm huge and in so much pain. Least once it's done I'll get better day by day.

You will get better day by day. What I'm understanding then, is you have multiple gyno issues, not just the cyst. I had my open procedure so they could remove the whole thing, as well. I didn't have other issues, though so that was the only thing they had to take out. Well, and part of each ovary. I had a lot of smaller cysts too. Best of luck. You'll feel so much better within no time. Personally, I found the surgical pain easier to deal with than the pain from the cyst, so I felt better as soon as I recovered from the anesthesia.

Hi! Glad they've got to the bottom of it! I had a very similar operation a few years ago, my ovary had grown to 15cm and was removed the same way. Just take your recovery slowly, those abdominal muscles will take time to heal, they will have had a lot of pulling and prodding during the op! Best of luck, Rosie