Gluten Free with Hypothyroidism
nhmom80
Posts: 11 Member
Has anyone gone gluten free with hypothyroidism? If this is something you have tried has it helped? Or was it a waste of time? I am not looking at this as a weight loss thing but an all over better for your health thing.
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Replies
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i have never heard of the 2 things being linked?4
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If you do a quick google search a lot will come up. Of course it is different for everyone so I just wanted to see what other have experienced.TavistockToad wrote: »i have never heard of the 2 things being linked?
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None of the articles that came up are by reputable sources.
Just because you have hypothyroidism doesn't mean you have celiac disease/gluten sensitivity. If you're concerned about gluten, try not eating it and see if you feel better, and/or get tested for celiac disease.
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It is more specifically Hashimoto's thyroiditis being linked with gluten intolerance, not necessarily general hypothyroidism.
That being said, I having a lot of issues and my endo tested me for Celiac using the blood test only method and it was negative but she told me to try to do an elimination diet anyway to see if my issues cleared up. I tried it for a little while and some of my issues seemed to get better but it wasn't enough of a positive for me to continue to do it for the rest of all time. Also, I think it would have been interesting to have a before and after antibodies test but we didn't do that.4 -
If you want to try it, go right ahead. Leaves more gluten for me (I have hypothyroidism and eat quite a bit of wheat and have never noticed a problem.)2
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Kathryn247 wrote: »None of the articles that came up are by reputable sources.
Just because you have hypothyroidism doesn't mean you have celiac disease/gluten sensitivity. If you're concerned about gluten, try not eating it and see if you feel better, and/or get tested for celiac disease.
If you genuinely think you might have Ceoliac disease then do not avoid gluten. Go straight to your doctor. If you stop eating gluten before getting tested it will make diagnosis impossible.
If you don't have ceoliac or a diagnosed sensitivity you are making your life more complicated and more expensive for no health benefits at all. Gluten does you absolutely no harm whatsoever unless you have specific medical conditions and I am not aware of hypothyroidism being one of them.
On the other hand the more people go gluten free the more it drives down product prices for people with ceoliac (like me) and it's not going to hurt you9 -
The only reason that hypothyroidism (specifically Hashimoto's) and gluten are linked is because Celiac Disease and Hashimoto's are both auto-immune disorders. But not necessarily for the same reason (i.e., gluten does not trigger Hashimoto's but does trigger Celiac).2
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It doesn't hurt to go gluten free, but my advice would be to replace the gluten with more whole foods - vegetables, fruits, beans, rice, etc - and less of the "gluten free" substitutes. Unless they're from a decent bakery/restaurant, they don't taste good at all, and are sometimes less nutritious than their gluten counterparts.3
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I have hypothyroidism and I am gluten free - but I am gluten free because I am gluten sensitive, not because I was diagnosed with hypothyroidism. I have not noticed a link at all between these two conditions.
In all honesty, I wouldn’t wish a gluten free lifestyle on anyone. It’s expensive, often times frustrating, and overall difficult to stay on top of day in and day out. Unless you have a sincere medical reason to go gluten free, I don’t recommend it. Without a significant “why” behind the change, it’s a difficult lifestyle to maintain long term.
However, as @smolmaus said... if you do go gluten free, drives the cost down for us who do have a medical reason to be GF... so, I’m not opposed to recommending you go this route for purely selfish reasons!6 -
There is a strong link between hashimotos and celiac disease. If you have one problem, you are much more likely to have the other problem than the healthy population. For example, when I discovered that I had celiac disease, I had my doctor test me for hypothyroidism too. I had it too.
I know of a few people who found that going GF helped slow their autoimmune attack on their thyroid. Their TPO antibodies dropped once they were GF even though they did not test positive as a celiac. Going grain free helped them feel better overall.
My TPO antibodies were not affected by going GF, but they were about normal when my hypothyroidism was diagnosed. I did not notice any real improvement just from going GF, but I started thyroid mess at the same time that I went GF so I can't tell much there.
If you do suspect gluten sensitivity, get tested for celiac before going GF. You must be sick in order to be diagnosed.
Good luck.2 -
I don't know that there's a strong link between hashi's and celiac so much as it's that a whacked out immune system tends to cause a lot of problems and that a person with one autoimmune disease is more likely to be prone to another.
A lot of autoimmune issues are genetic, and whether or not the gene is expressed can be affected by many factors. Your system being stressed by one disease can switch on the expression of another disease.
Saying all that, if you JUST have Hashimoto's, going gluten free in an attempt to do something to help it is questionable, imo. Hashi's is an erratic disease, it doesn't have a linear path. Any claims made about the affects of eliminating gluten and its effect on the disease's progression are likely correlative and not causative due to the fluctuating nature of Hashimoto's progression.3 -
i don't know if I would say a strong link between hypothyroidism and celiac disease (personally when I think strong link, i'm thinking 20-30% of diagnosis, not less than 10%) - it seems to not have been fully explored - I found this study that referenced a linkage:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2111403/
this table from that study looked at a variety of populations:
Prevalence of celiac disease (CD) in autoimmune thyroid disorders.
Author (year of publication) Population screened Prevalence of CD
Collin et al (1994) 83 autoimmune thyroid disease 4.8%
Sategna-Guidetti et al (1998) 152 autoimmune thyroid disease 3.3%
Cuoco et al (1999) 22 Hashimoto’s disease/23 Graves’ disease 4.3%
Valentino et al (1999) 150 autoimmune thyroid disease 3.3%
Berti et al (2000) 172 autoimmune thyroid disease 3.5%
Volta et al (2001) 220 autoimmune thyroid disease 3.2%
Larizza et al (2001) 90 Pediatric autoimmune thyroid disease 7.8%
Meloni et al (2001) 297 autoimmune thyroid disease 4.4%
Mainardi et al (2002) 100 autoimmune thyroid disease 2%
Ch’ng et al (2005) 115 Graves’ disease 4.5%
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this study hypothesized a potential link between gluten-free treatment and hypothyroidism - https://www.ncbi.nlm.nih.gov/pubmed/28030626
The prevalence of thyroid disease is likely increased among individuals with celiac disease (CD). In addition, exposure to gluten-free treatment may be associated with a risk of thyroid disease, but this association remains controversial.
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Hi,
I have Hashimotos and did a bit of research with gluten after I felt like I was getting a stomach ache after too much gluten and it turns out you are right there is a connection, but it's with inflammation and overall automimmune disorders, so here is an article. I believe I have a gluten sensitivity that can interfere with my automimmune (Hashimotos) disorder causing inflammation and stress on my body, so I stopped 2 years ago and feel good; i.e. my tummy doesn't hurt and my system is easier to regulate, less feeling bloated and sick. Please friend me if you would like, also here is an article on inflammation:
https://www.amymyersmd.com/2018/04/3-reasons-give-up-gluten-autoimmune-disease/
Thanks pal!!
Jeannemarie0 -
yes. I have Hashi's. Cut out gluten almost 3 years ago now. I dropped 25 pounds in about 3 months and felt so much better! I started to get my energy back finally. I've tried reintroducing gluten back to my diet a couple times since then and really see the difference (and it's bad).
I say give it a shot! It's all a chemistry experiment anyway. Find out what works for you. Give it a month and re-evaluate.0 -
I was diagnosed with hypothyroid (not hashimoto) long before my celiac diagnosis. I really haven't noticed any difference before and after.0
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Has anyone gone gluten free with hypothyroidism? If this is something you have tried has it helped? Or was it a waste of time? I am not looking at this as a weight loss thing but an all over better for your health thing.
I have reduced the amount of gluten in my diet. Can't commit to gluten free. It has helped a lot. I asked my endocrinologist about it and she said there are some newer studies that point to gluten free being beneficial but, it's all pretty new. She told me to keep at it because my numbers have never been better. I wouldn't be confident enough to say that doing this is definitely why I am doing better, but it's worth a shot!1 -
No.
Two separate mechanisms. Two separate diagnosis. One does not influence the other.7 -
Op, I'm so sorry you have been diagnosed with hypothyroidism. Its so difficult achieving a diagnosis which is probably Hashimoto's the autoimmune form. It took me something like 40 or more years! General medicine do not see the point in knowing if you have thyroid antibodies, yet if you know you can start to track down your personal triggers. My medical system does not see this as a benefit.
Gluten, dairy - as both lactose or casein (the protein), cruciferous vegetables, soy in all forms, as well as other sensitivity reactions are related to Hashimoto's. The problems comes for someone trying to decipher their own personal triggers for antibody production. Not all people with Hashimoto's will have the same food reactions. I doubt very much that any two people could discuss their personal experience of Hashi and agree they share the same reactions there being some 300 damnable symptoms.
If you are diagnosed with Hashimoto's and do not have the medical system which supports food investigation one is left to find a private provider of such testing or use trial and error for one's self.
If someone is considering eliminating gluten, this is a very difficult one. Some may see a difference within a few weeks others it will take at least 6 months to give the body time to recover and then if someone has a mishap and eats something with gluten in it, the process will need to be repeated all over again to get to the same point. Gluten is not only in wheat it is also in other grains which makes elimination very difficult. Fortunately not my problem.
Dairy on the other hand is one of mine. I eliminated all dairy because of proven casein problems. Its by far the most common dairy reaction/allergy. Mine is an intolerance and because I prefer to have the full range of nutritional benefits from dairy, the vit d, the iodine and other minerals I chose to take dietary enzymes to releave the problem.
I will testify I had virtually instant relief from dairy digestive issues and 48 hours later I felt good. (casein is complicated because there are 4 types, bovine dairy is generally type 1 which is the most reactive casein. Goat is type 2 which is most easily digested and can make even diagnosed lactose intolerance ease to the point of not being an issue. there are also types 3 and 4 which are present in all milk but at much lesser levels and generally do not cause problems.) Some countries do have A2 milk on sale from certified herds.
Soy is something I avoid even with digestive enzymes it can really mess with thyroid function. I think this comes mostly from molecule mimicry, where one particle of food penetrates the digestive tract, is recognised as alien by the immune system but is so similar to the thyroid gland tissue that the immune system attacks the thyroid itself.
I also feel much better avoiding cauliflower, Broccoli, cabbage and the like. Its me.
Most fruits and veg are a must for me to avoid because I have progressed to having both Salicylate and histamine intolerance both have sensitivity to chemicals, personal and domestic and food additives as a key feature. These are a real minefield. I once bought a medication only to realise I had an issue with it because of digestive problems and the damnable thing had vanilla in it, I can't even take vanillin the synthetic version the molecules are so close. There are far more intelligent sites about histamine and salicylate intolerance than there were even 5 years ago. The frightening this is becoming diagnosed by the general medical profession because it has not made it into the curriculum sufficiently and does not seem to be available as on going learning for them either.
Common factors relating to Hashi is constipation or the trots. If one can regulate both of these conditions so one goes once or twice a day, this will help to reduce the damage done to the system, the essential microbes will be able to maintain their function helping with so much more than digestion. Here in Britain we are hearing so much more of the role digestive microbes play in so many areas of our lives. Great play is being made of not using antibiotics because they damage the beneficial bacteria as well as the problematic ones.
I'm sorry you have Hashimoto's and consider you may have issues with gluten. An elimination diet is not good over all because it adds to the nutritional loss which needs to be made up by supplements. Again here in the UK there are companies which make their supplements to medical standards and say so.
Thank you if any one has read this far. Thank you. I hope some of what I have written will help you.
My information came from many medical sites, functional doctors as well as main stream. Hashimoto's is the last health problem I'd chose to have. Too often it is seen as simply a cause of weight gain, its the inflammation which underpins Hashimoto's which causes the weight gain, lower the inflammation you lower your antibodies.9 -
.... an all over better for your health thing.
If you aren't feeling really bad, I wouldn't cut gluten - but that's just me. I've not tried cutting gluten completely, got close to it when I felt really bad the past couple of months. I'm back eating it again and feeling OK.
I've read quite a bit on gluten feeding the antibodies, but decided unless I knew I had the condition for that to happen I'd walk away. Glad I did as that led me to find the more plausible reasons why I was feeling so rotten.
Just as the advice given for those wishing to lose weight, my advice would be to investigate that you are eating balanced meals - checking the fat/carb/protein, yes, but also take a detailed look at the vitamins and minerals. We tend to be more susceptible when these are a bit low. I had glossed over the last bit, as it turned out to my detriment. It may be of help to you and give a bit of oomph to your day.
This is purely my own experience and possibly bad advice for anyone else.
If you are concerned, possibly best to see a Dr or endo, if you can, about it - best know the daemon you are fighting.
Some good info @Fuzzypeg2 -
If you have Hashimotos Thyroiditis, then you would be advised to go gluten free. Gluten aggravates that condition, including causing inflammation in your joints. This info is per doctor's advice.2
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If you have Hashimotos Thyroiditis, then you would be advised to go gluten free. Gluten aggravates that condition, including causing inflammation in your joints. This info is per doctor's advice.
What kind of doctor gave that advice?
Gluten is only inflammatory for people with celiac disease, and even then it doesn't always cause joint problems. My celiac went undiagnosed until it went critical because doctors wouldn't test me for it -- they didn't think I had it because I didn't have joint pain. I got to the point of malabsorption because of that blunder. BTW, I was already on thyroid medicine for Hashimoto's at that time.3 -
I am gluten free and diagnosed with its hashimotos. I was tested for celiac as well but don’t have it. They did find that I have a wheat germ allergy though. Since going gluten-free my joint pain and some digestive issues have improved. Removing the wheat, for me, stopped the strange rashes I kept getting as well
Gluten free and dairy free diet were recommended to me when diagnosed with hashis
Edited to add - going gluten free was not for weight loss for me. I gained my weight eating gluten free. Many gluten free substitutes are actually higher in calories3 -
There is a growing body of research on autoimmunity other than Celiac Disease and the effects of gluten. So far, it's pointing to a strong connection, but more research needs to be done on what happens in every single one of the many autoimmune diseases when we exclude gluten, as well as for other immunity diseases, to determine what role diet would play in treatment plans and determine better diagnostic methods.
I have hypothyroidism, histamine intolerance and Systemic Nickel Allergy along with other allergies. I don't have Celiac Disease (tested every which way including genetic and I can't have it) yet the improvements in my health with going gluten free are nothing short of miraculous.
Gluten is a histamine releaser; that much is known. And high histamine plays havoc with our neurotransmitters and hormones. That is also known.
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I'm hypo, no thyroid and hashimotos, only went gluten free because of celiac.2
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Wheat is unusual because it has three parental strands in its dna. This gives rise to many more proteins than are found in all other living things. Gluten is only one of those potentially problematic proteins. It was the first to be identified as setting up health problems in the way of celiac, there are probably hundreds more proteins in wheat which also cause health issues.
I'm interested in what staraly had to say because wheat as a histamine liberator had not passed by in my reading, yet, I've found pages now I have looked. As I said earlier I'm both histamine and salicylate intolerant, none complimentary bedfellows, hashi as a side salad. Low histamine is not low salicylate and vice versa. When I originally reduced my salicylate intake which also coincidentally impacted my histamine load, I had great relief from my tinnitus but gradually it came back, probably because my inner ears are too damaged.
Salicylate is the way many/most plants, including fruits and veg protect themselves from moulds and mildews. Histamine is more an issue of a state of decomposition, for some even fresh cut meat is toxic, cold cuts are off the menu for more. It can be contamination of prep surfaces and more, cross use of knives etc. Both encompass reactions to everyday household chemicals! Histamine intolerance is closely tied to Mast Cell Activation, our bodies can make more mast cells in the hope of reducing the histamine load but when they break down they amplify the problems. Though improving one's production of the dominant DAO enzyme with b6 and vit C, can be helpful. According to Dr Sarah Myhill, UK, the stated dietary requirements of 30mg or there about's is enough to avoid scurvy the ancient sailors curse, but it is way too low for our human needs because we can't make our own, the ability was lost in evolution. Linus Pauling says we need much, much more.
Every time one reduces the breadth of one's diet the nutritional deficiencies increase. The modern western diet already depleted in so many essential vitamins and minerals, when one adds calorie restriction to the mix the depletions are amplified which can/will impact the mitochondria, Krebs cycle etc., depleting energy levels particularly in Me and Chronic fatigue Syndrome BUT energy depletion is a strong symptom in ALL autoimmune issues, which don't forget, hunt in packs, have one you will probably develop another.
Now if I were to eliminate dairy, which I facilitated with digestive enzymes, dairy is hyper allergenic because of the casein (protein) and lactose (sugar), its also considered to be High oestrogen which is also bad for thyroid along with eggs also high oestrogen, so best eliminated, along with avoiding cruciferous veg and soy as advised by thyroid health specialists. Now wheat and other grains, I would probably be left eating simple lettuce leaves, possibly garden peas. Better still why don't we just stop eating and take all our nutrition through supplements.
Lets get real, lets not panic, lets concentrate on what works for each of us as individuals. There are 300 if not more symptoms of autoimmune disorders why should we expect everyone's experience to be the same. Just because western medicine likes putting chemical plasters over each and every problem avoiding the underlying probably mitochondrial causes and rectifying those. Our bodies are interrelated systems not isolated functions they should be complimentary and not expected to operate in isolation.
Just for the record, the knowledge of Histamine intolerance and Salicylate intolerance have not made it to my Dorset medical practice nor the local Endocrinology department, to them its beyond what they are expected to know. What is worse they think they know better than the Regional Immunology Service. When replicated nationally such damnable ignorance it causing damage to many. They do not advocate using digestive microbes when on antibiotics, nor do they suggest eliminations for autoimmunity.
Please do not add to the harm your body is already under by adding unnecessary eliminations, just because....... you are told, its good, try it if it does nothing go back to normal.3 -
My wife used CICO for nearly two years and didn't have much luck. She gave up gluten and dairy (to try to improve her Fibromyalgia symptoms) and dropped 25 lbs in two months with the same calorie load. It was ridiculous how fast the weight came off of her.
I honestly think it's more of a secondary result of giving up the gluten/dairy. If you don't have gluten, dairy (I also went gluten and dairy free with her), it pretty much eliminates 99% of processed foods, which are loaded with preservatives, phthalates (common in dairy and bread in restaurants -- phthalates are a proven endocrine disruptor), xenoestrogens and other things that all dramatically impact (especially female, it seems) hormones.
If you give up gluten and simply replace it with gluten-free processed products, I honestly don't think you'll experience much difference. Many of those products have the same chemicals/preservatives (which I think is a much bigger deal than the gluten itself) as their gluten counterparts.7 -
I've been doing more research since my earlier post. Reference Histamine Intolerance. I hope this may be of interest to Staraly
Whole wheat does not liberate histamine, only the glutein, so if a whole grain product is used one should not have a histamine issue.
Avoidance of histamine has been my first choice for self preservation. Products like DAOsin are recomended to reduce histamine levels, as are products containing quercitine. I've been suplimenting heavily with magnesium, because magnesium defficiency can be a precourser. I've come across something which may be effective, clays, which are said to work with histamine, as I assume activated charcoal does with flatulance. The clays have very fine pockets to absorpb and bind the excess histamine. I'd previously come across Bentonite Clay and now Zeolite, both it seems can be taken internally. I'm still chewing this one over, may be too radical for me. Much as I like the idea of reducing my histamine levels, I'm still going to give these products more consideration.1 -
There is a growing body of research on autoimmunity other than Celiac Disease and the effects of gluten. So far, it's pointing to a strong connection, but more research needs to be done on what happens in every single one of the many autoimmune diseases when we exclude gluten, as well as for other immunity diseases, to determine what role diet would play in treatment plans and determine better diagnostic methods.
I have hypothyroidism, histamine intolerance and Systemic Nickel Allergy along with other allergies. I don't have Celiac Disease (tested every which way including genetic and I can't have it) yet the improvements in my health with going gluten free are nothing short of miraculous.
Gluten is a histamine releaser; that much is known. And high histamine plays havoc with our neurotransmitters and hormones. That is also known.
the current body of research (I posted a summary on the first page) is no where close to providing a strong connection - the research is giving only up to 7% commonality between celiac and hypo in the study groups4 -
If you have Hashimotos Thyroiditis, then you would be advised to go gluten free. Gluten aggravates that condition, including causing inflammation in your joints. This info is per doctor's advice.
Not necessarily. Maybe your doctor says that, but it's not universal. And it's especially not universal if you don't have any indicators for eliminating gluten, such as having celiac.2
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