Any parents or family of amazing special needs children of any age and any ability?
Replies
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Nicksmom106 wrote: »Cant_think_of_a_username wrote: »Hello Ali,my eldest son is 17 and is affected by dyspraxia and Asperger's - I totally understand how you feel about the future (as well as doing too much for him!). I teach youngsters in the 7-9 year old range and work with some wonderful individuals who see the world differently - finding new ways to unlock their potential is hugely rewarding.
Oh thank you for your dedication as a parent and educator!!! You are amazing and an inspiration!🌼👍 I think hope in our kids is something that never lessons no matter where they fall in life's ability scale😉👍😘
Thank you - I quit my old career and re-trained when I turned 40 which was a big step. My son's poor experience at school made me so angry with the system that I wanted to do something positive to improve the experience for others.I've been a Full-Time Dad to a special needs daughter for the past 5 years. She was born 9 weeks premature from a Urogenital Malformation, had a stroke from the trauma of her birth giving her Cerebral Palsy, and has been developmentally delayed from various complications over the first few years of her life. On top of this, she was a Dec 26th, baby dumping into the school system a year earlier than she should be (prematurity irrelevant), but don my super shirts to fight for her needs daily and get her the support she needs to be her best!
She's now 5 1/2 and settling well into her first year of Kindergarten and I couldn't be happier at seeing her grow and develop.
Glad to hear she is settling well now - my son was premature by the same amount too and was also pushed up a year group due to his early birth. He's a tough little fighter and I couldn't be more proud of him.
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Hi my 6 year old son is deaf and autistic and we just recently found to masses on his brain and go back next week to find out more I do everything I can to make sure he eats as healthy and gets as much of his daily vitamins and protiens when his mother let's me have him on the weekends but I do all I can for him and myself to stay strong each and everyday to everyone
Stay strong and may you be blessed2 -
I do. My youngest is 6 and on the autism spectrum. She also has hypotonia and is speech delayed.2
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I've been a Full-Time Dad to a special needs daughter for the past 5 years. She was born 9 weeks premature from a Urogenital Malformation, had a stroke from the trauma of her birth giving her Cerebral Palsy, and has been developmentally delayed from various complications over the first few years of her life. On top of this, she was a Dec 26th, baby dumping into the school system a year earlier than she should be (prematurity irrelevant), but don my super shirts to fight for her needs daily and get her the support she needs to be her best!
She's now 5 1/2 and settling well into her first year of Kindergarten and I couldn't be happier at seeing her grow and develop.
You are such a wonderful dad!👍😘 and.musician and superhero to your angel!!
It is so difficult to see our babies struggle but such a blessing as they shine!!!
Big hugs!!!
Thanks so much for sharing...this is why I love our tribe!😍. Strong and resilient just like our babies!!!
💞🌼💪😁
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Autism is a spectrum. On the extreme left side of non-functioning on that scale is my brother's daughter. She's 36. Her needs influenced his career decisions. At this time he conducts his business from home while he and his wife provide her with 24-7 care. At some point he and his wife will not be able to care for her. She has 2 healthy brothers, one of whom is married and living nearby. They haven't told me what their plans are.1
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thatguygage2543 wrote: »Hi my 6 year old son is deaf and autistic and we just recently found to masses on his brain and go back next week to find out more I do everything I can to make sure he eats as healthy and gets as much of his daily vitamins and protiens when his mother let's me have him on the weekends but I do all I can for him and myself to stay strong each and everyday to everyone
Stay strong and may you be blessed
Oh wow hon! 💔💞I will pray and send your boy all the positive wishes I can!!! You keep.strong...he needs you and you are really gonna be stresses/worried and in a constant state of fear...I know hon...been there many times...not the same.of course but I do remember having that, " how could.the whole world not stop when my life was in such turmoil! " feeling!
Nicholas now almost 18, underwent 3 major operations for his kidneys and urethra. All before 2.5 yrs....the last was supposed to be 2 to 3 hrs and lasted almost 6 and we'll to say I was a wreck.would be like saying your heart being torn out was a boo boo😢 long story short all worked out and security didn't mind my scene of tears and screaming to my husband Get my baby NOOOOOW!!!!!😭 when they found out why I was losing.my mind at the 4 hour mark which upscaled to a 9 on the Richter scale😏
I think this is going to.rock you no matter what and all I can offer is my friendship and compassion and hope! I will tell you having you be there for him the way you are is absolutely beautiful and my heart will be with you both!
💞👍
As for trying to get him to eat healthy and his vitamins in him tells me God knew what he was doing when he blessed you both with each other!!🌼
Come chat anytime you need mr. And stay 💪 you are more so than you know!😇😁2 -
adrianhelen wrote: »I do. My youngest is 6 and on the autism spectrum. She also has hypotonia and is speech delayed.
Hugs and hellos!!!! Im.so happy to have you here and I don't know much about hypotonia, so I will goggle it but again...right parent for their special angel!!! Hope to chat.more soon!!!!👍😉🌼0 -
Cant_think_of_a_username wrote: »Nicksmom106 wrote: »Cant_think_of_a_username wrote: »Hello Ali,my eldest son is 17 and is affected by dyspraxia and Asperger's - I totally understand how you feel about the future (as well as doing too much for him!). I teach youngsters in the 7-9 year old range and work with some wonderful individuals who see the world differently - finding new ways to unlock their potential is hugely rewarding.
Oh thank you for your dedication as a parent and educator!!! You are amazing and an inspiration!🌼👍 I think hope in our kids is something that never lessons no matter where they fall in life's ability scale😉👍😘
Thank you - I quit my old career and re-trained when I turned 40 which was a big step. My son's poor experience at school made me so angry with the system that I wanted to do something positive to improve the experience for others.I've been a Full-Time Dad to a special needs daughter for the past 5 years. She was born 9 weeks premature from a Urogenital Malformation, had a stroke from the trauma of her birth giving her Cerebral Palsy, and has been developmentally delayed from various complications over the first few years of her life. On top of this, she was a Dec 26th, baby dumping into the school system a year earlier than she should be (prematurity irrelevant), but don my super shirts to fight for her needs daily and get her the support she needs to be her best!
She's now 5 1/2 and settling well into her first year of Kindergarten and I couldn't be happier at seeing her grow and develop.
Glad to hear she is settling well now - my son was premature by the same amount too and was also pushed up a year group due to his early birth. He's a tough little fighter and I couldn't be more proud of him.
You're a wealth of info on sure many of us will take advantage of!!!😁👍😘0 -
So to change speed a bit....how do you find the time to exercise?!😭 lol im.making up all the chores class and work while nick.is in school.i.have almost no extra time for me to work out?!😣out
Tips people I need to steal.all your tips!!!😁
Much appreciated!😘🌼
Ali0 -
I have a home gym and made it a habit. I also have clinical depression so exercise is a big part of my treatment. Once I discovered weight lifting I was hooked. So I follow a powerlifting program 3x per week if I'm cutting or follow a combo of power/hypertrophy 4x per week if I'm maintaining or bulking. Heading into maintenance again now as I just finished a cut and have some wrist issues that will keep me from bulking this winter. Off days I use my elliptical or go for a run while the kiddo is in school or once my husband is home.
She's actually taken after me with the elliptical and hits it for almost an hour each evening or if she's feeling low (pms hits her hard or she's overwhelmed after school) she hops on it and feels a lot better afterwards.
Fortunately, I have time as I am only working part-time at the moment but even full time, I just do it. It helps in so many ways.
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Me
my 5 year old is autistic, we were told non-verbal but after amazing therapists he can get his point across, even if it's not always easy to understand or totally out of context haha. My 4 year old is adopted and is autistic and dmdd, verbally great, but has severe rages. We have 2 more neurologically normal babies so far, 2 years and 4 months, and I have a step son whose 13. It's busy around here haha
We do a lot of walks together, at first I had to use leashes, because they'd elope a lot, but they've gotten really good at the red light green light game lol. So we walk around the neighborhood. Otherwise I work out after bed, but mine go down with sleep meds at 6:30 And get up at 6.2 -
I don't have any special needs kids but still wanted to show my support to the parents / uncles/ family in this thread. Hugs!3
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100_PROOF_ wrote: »I don't have any special needs kids but still wanted to show my support to the parents / uncles/ family in this thread. Hugs!
Every bit of support and acknowledgement helps. Really.
Thank you.3 -
I have a home gym and made it a habit. I also have clinical depression so exercise is a big part of my treatment. Once I discovered weight lifting I was hooked. So I follow a powerlifting program 3x per week if I'm cutting or follow a combo of power/hypertrophy 4x per week if I'm maintaining or bulking. Heading into maintenance again now as I just finished a cut and have some wrist issues that will keep me from bulking this winter. Off days I use my elliptical or go for a run while the kiddo is in school or once my husband is home.
She's actually taken after me with the elliptical and hits it for almost an hour each evening or if she's feeling low (pms hits her hard or she's overwhelmed after school) she hops on it and feels a lot better afterwards.
Fortunately, I have time as I am only working part-time at the moment but even full time, I just do it. It helps in so many ways.
Great advice!!! I am so freaking proud to call you a friend girl!👍🌼
I love that she works out with mom!!! Nick loves to have momma around because we literally crack each other up💞😄 but he has his trampoline and legs of steel and I swimming etc. He does cardio and weight training at school even yoga....😮
I do have a treadmill but it's in our shed and covered in boxes...sigh... And same with our elliptical machine...I suppose it's time to move those boxe😏 lol! Thanks for the pep talk!!😄👍
Ps if I hit the 1 billion dollar lottery tonight we are so getting together somewhere fun and stressfree!! All of us🙋🙋🙋🙋👫👫👭👫(and I'll buy us all our own gyms!!! Lol )…and get someone to move those darn boxes😏😌
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JeromeBarry1 wrote: »Autism is a spectrum. On the extreme left side of non-functioning on that scale is my brother's daughter. She's 36. Her needs influenced his career decisions. At this time he conducts his business from home while he and his wife provide her with 24-7 care. At some point he and his wife will not be able to care for her. She has 2 healthy brothers, one of whom is married and living nearby. They haven't told me what their plans are.
That's great she has sibs! It can be so consuming almost like you have a small.child for years and years and years....while most of us grow tired and older instead of maintaining like our children....this is a job that usually gets easier physically at least...but not for lots of us.💗 labor of love is still labor👍
I'm sure knowing you are also there is a great.relief as.well!
Thanks for.sharing....I'm overwhelmed in a wonderful way...I feel such kinship to you all thanks for helping me everyone!!! Means.more than you know!💕0 -
100_PROOF_ wrote: »I don't have any special needs kids but still wanted to show my support to the parents / uncles/ family in this thread. Hugs!
Thank you!!!!!!!!👍😉 means alot!!!
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alyangel123 wrote: »Me my 5 year old is autistic, we were told non-verbal but after amazing therapists he can get his point across, even if it's not always easy to understand or totally out of context haha. My 4 year old is adopted and is autistic and dmdd, verbally great, but has severe rages. We have 2 more neurologically normal babies so far, 2 years and 4 months, and I have a step son whose 13. It's busy around here haha
We do a lot of walks together, at first I had to use leashes, because they'd elope a lot, but they've gotten really good at the red light green light game lol. So we walk around the neighborhood. Otherwise I work out after bed, but mine go down with sleep meds at 6:30 And get up at 6.
You have your hands full!!!👍. But I love that game...it used to be 123 freeze..go go.go.go!..lol only now he would literally keep going and I would not be able to catch him hahaha!!! buggers fast lol
Hugs to you and yours!!! So glad you came by!
🌼👍
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Nicksmom106 wrote: »thatguygage2543 wrote: »Hi my 6 year old son is deaf and autistic and we just recently found to masses on his brain and go back next week to find out more I do everything I can to make sure he eats as healthy and gets as much of his daily vitamins and protiens when his mother let's me have him on the weekends but I do all I can for him and myself to stay strong each and everyday to everyone
Stay strong and may you be blessed
Oh wow hon! 💔💞I will pray and send your boy all the positive wishes I can!!! You keep.strong...he needs you and you are really gonna be stresses/worried and in a constant state of fear...I know hon...been there many times...not the same.of course but I do remember having that, " how could.the whole world not stop when my life was in such turmoil! " feeling!
Nicholas now almost 18, underwent 3 major operations for his kidneys and urethra. All before 2.5 yrs....the last was supposed to be 2 to 3 hrs and lasted almost 6 and we'll to say I was a wreck.would be like saying your heart being torn out was a boo boo😢 long story short all worked out and security didn't mind my scene of tears and screaming to my husband Get my baby NOOOOOW!!!!!😭 when they found out why I was losing.my mind at the 4 hour mark which upscaled to a 9 on the Richter scale😏
I think this is going to.rock you no matter what and all I can offer is my friendship and compassion and hope! I will tell you having you be there for him the way you are is absolutely beautiful and my heart will be with you both!
💞👍
As for trying to get him to eat healthy and his vitamins in him tells me God knew what he was doing when he blessed you both with each other!!🌼
Come chat anytime you need mr. And stay 💪 you are more so than you know!😇😁
Thanks for the inspiration and kindness keeping my head up the best as I can and pushing forward in life every day1 -
Nicksmom106 wrote: »So to change speed a bit....how do you find the time to exercise?!😭 lol im.making up all the chores class and work while nick.is in school.i.have almost no extra time for me to work out?!😣out
Tips people I need to steal.all your tips!!!😁
Much appreciated!😘🌼
Ali
For me, I have a schedule that I adhere to. In the a.m. after breakfast I swing days... M,W,F are strength training for at least 30 min and T,TH,S are cardio in the a.m. Then after hubby gets home, I walk my backyard for 30min to an hour. There are days that get crazy, we have co-ops, field trips, or events and other days where I'm just behind lol. But, I go with the flow and do what I can.1 -
thatguygage2543 wrote: »Nicksmom106 wrote: »thatguygage2543 wrote: »Hi my 6 year old son is deaf and autistic and we just recently found to masses on his brain and go back next week to find out more I do everything I can to make sure he eats as healthy and gets as much of his daily vitamins and protiens when his mother let's me have him on the weekends but I do all I can for him and myself to stay strong each and everyday to everyone
Stay strong and may you be blessed
Oh wow hon! 💔💞I will pray and send your boy all the positive wishes I can!!! You keep.strong...he needs you and you are really gonna be stresses/worried and in a constant state of fear...I know hon...been there many times...not the same.of course but I do remember having that, " how could.the whole world not stop when my life was in such turmoil! " feeling!
Nicholas now almost 18, underwent 3 major operations for his kidneys and urethra. All before 2.5 yrs....the last was supposed to be 2 to 3 hrs and lasted almost 6 and we'll to say I was a wreck.would be like saying your heart being torn out was a boo boo😢 long story short all worked out and security didn't mind my scene of tears and screaming to my husband Get my baby NOOOOOW!!!!!😭 when they found out why I was losing.my mind at the 4 hour mark which upscaled to a 9 on the Richter scale😏
I think this is going to.rock you no matter what and all I can offer is my friendship and compassion and hope! I will tell you having you be there for him the way you are is absolutely beautiful and my heart will be with you both!
💞👍
As for trying to get him to eat healthy and his vitamins in him tells me God knew what he was doing when he blessed you both with each other!!🌼
Come chat anytime you need mr. And stay 💪 you are more so than you know!😇😁
Thanks for the inspiration and kindness keeping my head up the best as I can and pushing forward in life every day
You're amazing and i am proud and honored to call you friend!0 -
I've been a Full-Time Dad to a special needs daughter for the past 5 years. She was born 9 weeks premature from a Urogenital Malformation, had a stroke from the trauma of her birth giving her Cerebral Palsy, and has been developmentally delayed from various complications over the first few years of her life. On top of this, she was a Dec 26th, baby dumping into the school system a year earlier than she should be (prematurity irrelevant), but don my super shirts to fight for her needs daily and get her the support she needs to be her best!
She's now 5 1/2 and settling well into her first year of Kindergarten and I couldn't be happier at seeing her grow and develop.
You are doing a great job, your daughter will continue to do well I'm sure. Good on you, yes the fighting will go in to get her needs met it's comes with the teriirtory of being a parent of a special needs child. Good luck1 -
dejavuohlala wrote: »I've been a Full-Time Dad to a special needs daughter for the past 5 years. She was born 9 weeks premature from a Urogenital Malformation, had a stroke from the trauma of her birth giving her Cerebral Palsy, and has been developmentally delayed from various complications over the first few years of her life. On top of this, she was a Dec 26th, baby dumping into the school system a year earlier than she should be (prematurity irrelevant), but don my super shirts to fight for her needs daily and get her the support she needs to be her best!
She's now 5 1/2 and settling well into her first year of Kindergarten and I couldn't be happier at seeing her grow and develop.
You are doing a great job, your daughter will continue to do well I'm sure. Good on you, yes the fighting will go in to get her needs met it's comes with the teriirtory of being a parent of a special needs child. Good luck
Truer words never spoken! We all have one thing common not matter diagnoses, age etc...we need to be warriors and every year your armor and weaponry and skills will grow! That's why we need healthy bodies, which help our minds, which keeps us sharp and ready to fight and get what our kiddos need!💪 hugs amazing warriors!😘0 -
I don't have kids, but I've worked with special needs children. Major props to you parents/guardians raising them!!1
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