PCOS Soul Cysters Unite

I am so glad to have found this forum of Soul Cysters.j It's nice to hear that others understand what you're going through. I have never had normal periods, and always thought something was wrong, but it wasn't until I got married, and wanted children before I started to look into it. In late September of last year my Doctor put me on Spironolactone through the beginning of January. I was told then it was for higher testosterone, but at that point I wasn't given a diagnosis for anything. I saw a different Doctor and was then put on Metroxyprogesterone, because I wasn't getting a period, so they wanted to see if that would give me a boost. In March I was sent to yet another Doctor, and they did more testing to find out if I had PCOS. It was determined through an ultrasound that I indeed had it, and that my ovaries were covered in cysts. I took the Metformin in March through the beginning of May, and since I still wasn't ovulating, she put me on Clomid. I was taking ovulation tests every morning, and still not finding one single positive result. I take the Clomid on day 5 of my cycle which I get from the Metroxyprogestrone, and I take the Clomid for 5 days. I recently saw my Doctor on July 13th, and she told me to call her when I get my cycle this time, so she can set up an ultrasound to see if my follicles are getting big enough. She doesn't want to up my dose of the Clomid until at least after 3 months. I'm hopeful that things will start working right soon, because I'm 29, and really wanting to get pregnant with my first child. My husband and I would love at least 3 children, but it could be a long and hard road.

Hi there you took the words right out of my mounth....I'm so frustrated i think i have tried eveything to loose weight and not 1lb will come off. I have tired Zumba, kickboxing with trainer, running, and walking. I just started Jillian Michales 30 day shred on my 9th day and have not lost anything. I will continue the workout in hopes it at least tones me.

A little background PCOS since 1999 after my 2nd child, had my 3rd child in 07 with the aid of Clomid.
Current weight 166 goal weight 145 Eat very healthy, protein and veggies, or salad. No soda or juices just water. Maybe i can drink more water. I have been trying to deal with PCOS the natural way, supplements and vitamins. I have an appt Aug 19 with a new ENDO (old endo was not helpful) to help with PCOS hair loss, and weight struggle. Yes on top of being fat I'm going bald uggghhh I hate PCOS!

All of you women with PCOS feel free to add me I posted about me a few pages back

Wanted to share an article/letter with you that I found. It works for me, too.

http://www.marksdailyapple.com/i-didn’t-just-“manage”-my-condition-i-beat-it-and-wiped-the-floor-with-it/#more-22406

Acnee is my biggest concern as well! I am now on the YAZ bc pill to regulate periods and prevent acnee, but the moment I stop taking the pill I get a lot of pimples and excess hair. Terrible!

I really think the acnee comes from the hormonal imbalance, so not much you can do by cleaning face or buying expensive acnee products. I am also almost 30, so would love some clear skin without having to medicate every day!

I don't have insurance either, and avoided the doctor for many years. When I got married, I finally started going because I wanted to have children. I found out that I indeed had PCOS, and my ovaries were covered in cysts. I wish I would have started going sooner, so when I was ready for kids, I'd be more prepared. I still am not insured, I go to a local clinic that will take me, and they have discount programs for those that need it. I just pay out of pocket for my care for now, but my husband will be getting benefits in December, so I'll be insured soon. Good luck to you!

Bumping to read when I get home.

I haven't been diagnosed with PCOS, but I think I have it. I don't have health insurance, so I don't go to the doctor.

I don't have insurance either, and avoided the doctor for many years. When I got married, I finally started going because I wanted to have children. I found out that I indeed had PCOS, and my ovaries were covered in cysts. I wish I would have started going sooner, so when I was ready for kids, I'd be more prepared. I still am not insured, I go to a local clinic that will take me, and they have discount programs for those that need it. I just pay out of pocket for my care for now, but my husband will be getting benefits in December, so I'll be insured soon. Good luck to you!

I also have PCOS and was diagnoised Januaray 2010 with it. I ahve always had menstrual issues since about 18 and was on bc so i never thought anything of it when i would come off of it and my periods would come for a month and than disappear for months lol...... I am on the long and hard journey now to not only lose weight but make a life style change when it comes to my eatng habits..... and of course this is easier said than done. I am 24 now and in the next couple of years i hope to marry my current boyfriend and have at least one kid and so this weight has to come off so i can have a healthier body and more predictable cycles... I am glad to see other woman who are facing this long uphill battle and look forward to tracking my food diary and having yall around as moral support. AND REMEMBER WE CAN BEAT PCOS IT JUST TAKES DETERMINATION AND WILL POWER!!!!

I am looking for new support with my journey with PCOS, I would like to add more cysters that are looking for extra support and are going through the same thing. Please feel free to add me, some of the ppl on my friends list do not have pcos and do not under stand....

bump for later.

I was diagnosed with PCOS & endometriosis officially at the age of 16, when I had "explatory surgery" because I'd been having lots of pain and nausea and such for a year and a half. I'd never had a period. They put me on bc to induce periods and control symptoms. About a year later, my dr. wanted to remove and freeze my eggs so I could have a chance at getting pregnant later. He told me I'd never be able to conceive on my own anyway. I decided against it. Even at 16, I knew that was not the way to go for me. I never had a period on my own, without the help of BC. Things were fairly status quo until I was 24 and became pregnant, unexpectedly, while taking the pill(religiously!). The good news was my bf and I had started planning our wedding, so it wasn't a bad thing necessarily... Just a shock! We'd always thought we'd cross the infertility bridge when we came to it. We'd do treatments, adopt, whatever. Turns out, we didn't need to! I gave birth to a healthy baby girl, and 8 months later, became pg with my son.

I couldn't believe how lucky I was!

Just over a year after my son was born, I suffered a stroke. I had an allergic reaction to a medication. Luckily, I made an amazing recovery and am back to nearly 100%, even after being totally paralyzed for nearly 2 weeks. I was 28.

One day shy of a year after I had my stroke, I had a partial hysterectomy. My symptoms were out of control. I was in terrible pain 3 weeks out of the month. I had a partial because they didn't want to send me into early menopause as I cannot take any hormones anymore so there is nothing they could do to stifle the side effects from menopause. Obviously, I have 2 small children and my Dr. said I would not want to deal with those in addition to my stroke stuff, while raising my 2 kiddos!

Anyway, I'm now 30 and have never felt better. I didn't have any side effects from the hysterectomy and HIGHLY recommend it, if you can! Mine was robotic surgery and was back up to par within a week.

It never occured to me that my current struggle with acne was related to the PCOS. I never had any problems with it when I was a teen, so I'm less than enthused about it now!!! It's awful. Maybe I'll discuss it with my dr. next visit. I've been using proactive, to no avail... :-(

Hopefully this story helps someone. And hopefully you can alll help me with my goal of losing 35lbs! :-)

I was diagnosed with PCOS at age 26. I am now 46, so I've been suffering for 20 years. I have good days and bad....here lately, more bad than good. I had a laparoscopy in 1991, which confirmed my diagnosis. Ever since, I've been on a birth control pill. This past April, my OB/GYN changed my pill to a Progesterone Only pill, due to my age, she didn't want me taking estrogen. Since then, I have gained almost 10 pounds, and have whiskers growing out of my chin. (Sigh....) I'm not sure what to do now. I have a call in to my doctor, to see if she will refer me to an endocrinologist. I've also joined MFP, to begin logging my meals, curb what I eat, and start an exercise plan. I know that diet and exercise is an important part of living with PCOS, and I want to make these positive changes....now....what can I do about my whiskery chin? I am starting to resemble my Chihuahuas.....

Hey everybody! *waves* I was diagnosed 8 years ago with PCOS. I weighed 310 #'s at that time. I was put on Metformin and Yasmin an lost down to 170 pounds in about a year, with no changes in exercise or eating habits. I had to change gynos, and the one that I have now is constantly changing my metformin. She wants me to come in every 3 months for bloodwork to check my liver function, because apparently Metformin can severely damage your liver. Obviously I don't want to damage my liver, but this has been going on for 3 years, and I'm back up to 266 #'s. I don't feel like I can make any progress. I'll take my 3 metformin a day for three months, loose weight, then go in for bloodwork (which has NEVER shown me to be having liver problems) and she'll change me to 2 a day, or 1 a day and up the weight goes again. SOOOO FRUSTRATING. She also changed my BC, and the reason I was given was that I had low estrogen. Not really sure how she came to that conclusion, all I know is I've had wicked mood swings ever since the change. Anyway, waiting on my future hubby's insurance to cover me (getting married Thursday!!!) and then going to start trying to get some better answers. I've gotten more useful information from the threads on MFP about PCOS than I ever have from my dr. Hope everyboday has a great week. Feel free to friend me!
(Sorry for the rant, this subject gets me wound up )

was diagnosed with PCOS at 16, it has given me a hell of a time, still unable to get regular periods (and when i do they are pretty painful), have only just got my acne under control (thank god), my doctor attributes my weight to PCOS, i don't fully blame it but i would attribute it to part of the problem as to why i have never been able to get 'skinny', even when i was in high school and played hockey twice a week, went to the the gym 5 days a week and had multiple sports practices i was over weight. it is a pain in the *kitten* really.