Being T1 Diabetic & Low Blood Sugar

crazywheaten
crazywheaten Posts: 73
edited September 28 in Food and Nutrition
Being a T1 diabetic sucks. Some days, it's not so bad--obviously life could be worse--but this is my cross to bear so when it sucks there's really not much others can say or do to change my mindset. I had such a great day yesterday... had fantastic endo appointment and hit an 11 lb. loss. I was smiling ear to ear. Then, for some unknown reason, my blood sugar dropped today. Down to 42. Those of you who are not diabetic--that's low. Super low. When blood sugar goes that low it becomes near impossible for me to get a simple word like "sky" to form in my brain. I know it's low... I feel like ****... and the craziest thing happens... I become RAVENOUS. I mean I could eat a truckload of food. And NOTHING is going to keep me from it. And so, when that stupid low number hit, I grabbed the one and only dollar bill out of my purse, headed down to the vending machine that I haven't visited for a good 8 weeks or so, and proceeded to look for my old friend SNICKERS. I came back to my desk and inhaled it. And it was GOOD. :love: I can tell my sugars are stabilizing now and am lucky today is a higher calorie day (zig-zag week). I'm not too upset with myself--I didn't just undo all the good I've done thusfar. I guess I just wanted to put in black and white what this stupid disease can do to a diabetic. Honestly, if I had another dollar I can't say I wouldn't stop typing mid-sentence to go grab another Snickers because again--that was GOOOOOOOD. :laugh:

Replies

  • Dippydog
    Dippydog Posts: 154
    I am also T1 diabetic. Have been for 25 years. I am on the pump and when I start to feel like I am going low, I am able to stop the pump from dosing me until I can eat something. That has helped me tremendously. But...I still get low now and then.

    You are soooooooo right. Diabetes sucks mud. It always has and always will.:grumble: :explode: :angry: :mad:

    If you want to be friends....I don't think a person can have too many. Friend me.

    Debra:wink:
  • I am also T1, as are several of my MFP friends. I know it sucks, and it was interesting getting a balance of sugars in relation to exercise, eating right, etc. For a while it was my excuse not to change, now I realize I can't let anything get in the way of being healthy. Good luck in your journey!
  • ritaadkins2002
    ritaadkins2002 Posts: 371 Member
    i am a diebetic; its a hard diease to live with; its already affected my organs (just starting to liver, kidney) but my advice to u; take care of your self now; don't do the mistake i did and waited. hang in there i have faith in u .
  • sylouette98
    sylouette98 Posts: 65 Member
    I can totally identify...I'm a T2 Diabetic (recently taken off my meds by the doctor because of my 70lb weight loss). Holy cow, when that blood sugar bottoms out...bad things start to happen. And you're right...you cannot shove enough food in fast enough. For me the magic window of stable blood sugar is 90-110. Anything lower than 85 and I start slurring my speech and can't form a complete sentence. Above 115-ish and I get dots in my vision...yeah, it's awesome. Thankfully though, I've been pretty lucky with it since being taken off the meds...but I feel your pain!!! Congrats on the weight loss!
  • I'm a huge believer in the usage of cheat meals/days. I have attempted to cut everything out before and it failed miserably. Now every 3 days I get one cheat (be it the majority of the time is like a small bag of chips, also usually Lay's Baked) and I find outside of that I don't get any real cravings now.

    And let's face the facts, a lot of the tastiest foods aren't exactly easy on the kcals, saturated fats and refined sugars. Might as well have one and enjoy life once and awhile (even if it is just to bring up your blood glucose!).
  • I am also T1, as are several of my MFP friends. I know it sucks, and it was interesting getting a balance of sugars in relation to exercise, eating right, etc. For a while it was my excuse not to change, now I realize I can't let anything get in the way of being healthy. Good luck in your journey!

    Oh I soooo know what you mean about balancing exercise--I have to completely disconnect my pump just to walk my dogs or I end up all low sugar stupid. lol I have a friend who tries to talk me into doing Zumba with her but I am way too afraid--something high-energy/high-aerobic will for sure send me into a coma. I'm convinced. lol but not.
  • mammado11
    mammado11 Posts: 26
    Im also Diabetic, this Aug will be 24yrs. I know what you mean about getting low blood sugar. I'll be doing good all day on calories, then BAM my sugars drop and I start pigging out to get it back up! It sucks!! There are also times when Im not hungry, but I know I have to eat so my sugars don't drop. I have the pump also, I got it back in 2001 and it's helped out alot, especially with all 4 pregnancies! But sometimes it's a pain in the butt, I often find myself running out of spots to insert the infusion set!
  • heathally
    heathally Posts: 128 Member
    Sure you get ravenous, your body is demanding to have your sugar levels brought up. And there are worse choices than snickers...at least the peanuts provide you with some protein :wink:
  • i am a diebetic; its a hard diease to live with; its already affected my organs (just starting to liver, kidney) but my advice to u; take care of your self now; don't do the mistake i did and waited. hang in there i have faith in u .

    Thanks for the support! I am really sorry yours has progressed to that level. I think had I been younger when diagnosed I may have poo-pooed the dr.s when they warned me about what could happen if I didn't take care of myself. I was diagnosed in my early 30's and trying to have a baby so from day 1 I was all over it. There are most definitely times when I want to run my pump over with my car and pretend I'm just like everyone else... but I'm not. You take care of yourself. :flowerforyou:
  • Im also Diabetic, this Aug will be 24yrs. I know what you mean about getting low blood sugar. I'll be doing good all day on calories, then BAM my sugars drop and I start pigging out to get it back up! It sucks!! There are also times when Im not hungry, but I know I have to eat so my sugars don't drop. I have the pump also, I got it back in 2001 and it's helped out alot, especially with all 4 pregnancies! But sometimes it's a pain in the butt, I often find myself running out of spots to insert the infusion set!

    You mean you don't grab a handful of chalky glucose tabs to bring it back up instead of a candy bar? For shame! :laugh: I just told someone it's almost like you're having an out of body experience while you're shoving the food in and then you come to when your sugars start to stabilize and look down to see the crumbs all over and think... what the?... who did that? Awful. What kind of pump are you on? I have the Minimed and love it (never ever thought I'd say those words!).
  • JMM_623_
    JMM_623_ Posts: 68 Member
    Please don't feel alone! I am T1, diagnosed 23 yrs ago and have a pump (for 3 yrs). Your post is right on time for me, as I am SUPER discouraged today with all my lows. I started exercising again after 2 weeks and woke up at 3a at 38 (at too much so had to take some insulin) then at 6a at 35 then again at 12:30 with 64. I thought I was the only person who lacked self-control when it comes to bringing my sugar level up. I eat...and eat...and eat until I feel better. Which totally sets me back for the day. I even have a "diabetes sucks" category! Don't let diabetes keep you from exercising or trying high impact workout. Consult with your endocrinologist, turn off your pump, eat something before hand and jump in there.

    Not that this recipe is for everyone, but I usually test an hour before exercise, turn my pump off and eat something (like a banana or fiberplus bar) that will sustain me through the workout. Sometimes I make it through, sometimes I don't. Other times I come out SKY HIGH. This thing is trial and error, so keep trying & lose your weight :)

    p.s. Feel free to add me.
  • Please don't feel alone! I am T1, diagnosed 23 yrs ago and have a pump (for 3 yrs). Your post is right on time for me, as I am SUPER discouraged today with all my lows. I started exercising again after 2 weeks and woke up at 3a at 38 (at too much so had to take some insulin) then at 6a at 35 then again at 12:30 with 64. I thought I was the only person who lacked self-control when it comes to bringing my sugar level up. I eat...and eat...and eat until I feel better. Which totally sets me back for the day. I even have a "diabetes sucks" category! Don't let diabetes keep you from exercising or trying high impact workout. Consult with your endocrinologist, turn off your pump, eat something before hand and jump in there.

    Not that this recipe is for everyone, but I usually test an hour before exercise, turn my pump off and eat something (like a banana or fiberplus bar) that will sustain me through the workout. Sometimes I make it through, sometimes I don't. Other times I come out SKY HIGH. This thing is trial and error, so keep trying & lose your weight :)

    p.s. Feel free to add me.

    That was great advice--thank you! I think 38 actually was the lowest I've ever been--WOO HOO! hahahaha That is just messed up low! I almost always forget to just turn off the pump when lows like that happen but of course when you're brain isn't functioning how are you gonna remember to do that?!
  • I even have a "diabetes sucks" category!

    BTW... I am stealing that and adding that category to my profile!
  • I am also T1, as are several of my MFP friends. I know it sucks, and it was interesting getting a balance of sugars in relation to exercise, eating right, etc. For a while it was my excuse not to change, now I realize I can't let anything get in the way of being healthy. Good luck in your journey!

    Oh I soooo know what you mean about balancing exercise--I have to completely disconnect my pump just to walk my dogs or I end up all low sugar stupid. lol I have a friend who tries to talk me into doing Zumba with her but I am way too afraid--something high-energy/high-aerobic will for sure send me into a coma. I'm convinced. lol but not.

    I thought the same thing about Zumba, but then I tried it and loved it! Never had a low during, sometimes after but I got some advice from my trainer that really helped me, he told me not to eat an hour before exercise, and it was like a light bulb went off, if i eat an hour before it's enough time for me to digest a snack before a workout, and not too far before that i will be running low. I also learned to adjust how much insulin i take before a workout to accommodate for what i'm about to burn.

    I can totally relate to wanting to eat everything in sight during a severe low! That's why i've gotten rid of all unhealthy snacks so that they are no longer a temptation for me. (yeah, i definitely don't reach for the glucose tablets, i want some real sugar! LOL!)

    I can also relate to another user who mentioned that they don't even feel hungry when they eat, they're just eating to keep from falling low, been there, done that; the good news is your body will get used to a regular routine and will actually feel hungry when it's time to eat! keep up the good work!

    P.S. feel free to add me. Us T1's gotta stick together! it's always encouraging to know that there is someone else out there who can relate to what you're going through :smile:
  • I can totally identify...I'm a T2 Diabetic (recently taken off my meds by the doctor because of my 70lb weight loss). Holy cow, when that blood sugar bottoms out...bad things start to happen. And you're right...you cannot shove enough food in fast enough. For me the magic window of stable blood sugar is 90-110. Anything lower than 85 and I start slurring my speech and can't form a complete sentence. Above 115-ish and I get dots in my vision...yeah, it's awesome. Thankfully though, I've been pretty lucky with it since being taken off the meds...but I feel your pain!!! Congrats on the weight loss!

    Congratulations on your 70# loss--that is amazing! You really have a tight window to stay within to feel healthy. My mom is T2 is says she feels awful if she's below 110. I think she'd have a stroke if she heard I was in the 40's today.... :tongue:
  • elsham
    elsham Posts: 549 Member
    I can relate all too well with the ravenous "shove anything edible in my line of vision down my throat" thing. Nothing passes my mind but SUGAR NEED SUGAR until I can feel my body again. I've been T1 since I was 3 years old, and had my fair share of extreme lows (and crazy insane highs) in the 17 years, and there's nothing worse than that jittery sunken stomach low feeling. Once I woke up in the middle of the night LOW (the meter actually read LOW) and felt myself blacking out while I was in bed and couldn't get up. My phone was next to me and somehow(I still don't know how) I managed to call my mom in the next room and she saved me.

    When you guys work out, do you find that there's a delayed reaction time with the blood sugars? It's been happening often to me lately, where I'll exercise in the morning, be fine during the day, and then come 6ish I'll go low, drink OJ, 2 hours later go low again. Like today, I had a great workout in the morning, covered up to my lunch snack (but not for the peanut butter, just for the bagel) and then at dinner I was 132 and didn't take insulin (I never cover for veggies or whatever). At 6 I felt low, and was 61. Had the yogurt, went up to 97. Usually for 30+ uncovered carbs like that, I'd go even higher an hour after eating them, but around 7:30 I felt low again, was 54. Had the orange and the OJ, fine until 9ish: 52! WTF?! I stopped logging at this point and had real carbs (a bagel) and some more OJ, but now I'm scared to go to sleep for a few hours until I'm sure my blood sugar's up, hence why I'm killing time here. Anyone have any insight?
  • TiniTurtle
    TiniTurtle Posts: 595 Member
    Im also Diabetic, this Aug will be 24yrs. I know what you mean about getting low blood sugar. I'll be doing good all day on calories, then BAM my sugars drop and I start pigging out to get it back up! It sucks!! There are also times when Im not hungry, but I know I have to eat so my sugars don't drop. I have the pump also, I got it back in 2001 and it's helped out alot, especially with all 4 pregnancies! But sometimes it's a pain in the butt, I often find myself running out of spots to insert the infusion set!

    You mean you don't grab a handful of chalky glucose tabs to bring it back up instead of a candy bar? For shame! :laugh: I just told someone it's almost like you're having an out of body experience while you're shoving the food in and then you come to when your sugars start to stabilize and look down to see the crumbs all over and think... what the?... who did that? Awful. What kind of pump are you on? I have the Minimed and love it (never ever thought I'd say those words!).


    bahaha i love that example of how you feel when you're low. i've come to, sitting on the kitchen floor in front of my fridge & having scarfed way more than i needed without meaning to. when you're really low, there isn't the thought process of only eating a certain number of carbs & getting in some protein to keep us higher. hate it.
  • TiniTurtle
    TiniTurtle Posts: 595 Member
    I can relate all too well with the ravenous "shove anything edible in my line of vision down my throat" thing. Nothing passes my mind but SUGAR NEED SUGAR until I can feel my body again. I've been T1 since I was 3 years old, and had my fair share of extreme lows (and crazy insane highs) in the 17 years, and there's nothing worse than that jittery sunken stomach low feeling. Once I woke up in the middle of the night LOW (the meter actually read LOW) and felt myself blacking out while I was in bed and couldn't get up. My phone was next to me and somehow(I still don't know how) I managed to call my mom in the next room and she saved me.

    When you guys work out, do you find that there's a delayed reaction time with the blood sugars? It's been happening often to me lately, where I'll exercise in the morning, be fine during the day, and then come 6ish I'll go low, drink OJ, 2 hours later go low again. Like today, I had a great workout in the morning, covered up to my lunch snack (but not for the peanut butter, just for the bagel) and then at dinner I was 132 and didn't take insulin (I never cover for veggies or whatever). At 6 I felt low, and was 61. Had the yogurt, went up to 97. Usually for 30+ uncovered carbs like that, I'd go even higher an hour after eating them, but around 7:30 I felt low again, was 54. Had the orange and the OJ, fine until 9ish: 52! WTF?! I stopped logging at this point and had real carbs (a bagel) and some more OJ, but now I'm scared to go to sleep for a few hours until I'm sure my blood sugar's up, hence why I'm killing time here. Anyone have any insight?

    if you find insight on the delayed low's, i'd love to be enlightened too! i have that happen. sometimes when i do something new to exercise or off my typical schedule, my body seems to rebel by waiting 4-6 hours to drop randomly, when i'm not expecting it. :o/
  • Jenna470
    Jenna470 Posts: 13
    That is a great way to describe it. I've a Type 1 for 17 years and it does make you feel weird when you get so low. I had one instance where my blood sugar was somewhere around 35 or so and my husband had to call 911 because he had no idea what was wrong with me. He had no idea what was wrong with me but that I was delirious and completely out of it. It's weird that you do feel so helpless and loopy. I hate eating something to bring my blood sugar up immediately and then it seems that you've eaten too much so your sugar goes the opposite end. I guess when you feel so low and just want to bring it up so quickly, then that is what happens.
  • Jenna470
    Jenna470 Posts: 13
    Im also Diabetic, this Aug will be 24yrs. I know what you mean about getting low blood sugar. I'll be doing good all day on calories, then BAM my sugars drop and I start pigging out to get it back up! It sucks!! There are also times when Im not hungry, but I know I have to eat so my sugars don't drop. I have the pump also, I got it back in 2001 and it's helped out alot, especially with all 4 pregnancies! But sometimes it's a pain in the butt, I often find myself running out of spots to insert the infusion set!

    You mean you don't grab a handful of chalky glucose tabs to bring it back up instead of a candy bar? For shame! :laugh: I just told someone it's almost like you're having an out of body experience while you're shoving the food in and then you come to when your sugars start to stabilize and look down to see the crumbs all over and think... what the?... who did that? Awful. What kind of pump are you on? I have the Minimed and love it (never ever thought I'd say those words!).


    bahaha i love that example of how you feel when you're low. i've come to, sitting on the kitchen floor in front of my fridge & having scarfed way more than i needed without meaning to. when you're really low, there isn't the thought process of only eating a certain number of carbs & getting in some protein to keep us higher. hate it.

    Is anyone on the Animas Ping? I'm on that and actually have liked it so far. It's expensive to be on but is competely helpful. Yes I do want to throw it across the room at times but all in all, I am glad to be on it. Ask me that about 2 years ago and I would have a totally different repsonse for you. :)
  • TiniTurtle
    TiniTurtle Posts: 595 Member
    i'm on the minimed pump, but my warranty just ended, so i'm thinking about switching to the animas or omnipod, anyone have good experiences with them? i like my minimed, much better than trying to regulate on injections, but the buttons get stuck sometimes (meaning mailing it back to them & them overnighting me a new one), making the warranty essential.
    my nutritionist/nurse educator, told me that omnipod is coming out with a smaller infusion set this fall... it looks ideal, but the reviews are so mixed!
  • bac0s
    bac0s Posts: 48 Member
    I think having T1 has been the biggest frustration with weight loss. When I'm working out, and wanting to stick to my calorie goals, and then experiencing lows while trying to readjust my basal rates... It *KILLS* me to have to consume those calories!

    And if you think about it, those ravenous lows make sense. Insulin is a growth hormone (which is typically why the more insulin you use the fatter you are and the more you need... it's a vicious cycle) and if your blood sugar drops quickly you're getting a huge hit of growth hormone demanding to be fed...

    I do use the glucose tabs b/c I find I'm a lot less likely to have one of those eat-everything-in-sight reactions when it's glucose tabs vs candy or ice cream or anything tasty. The Walmart Fruit Punch brand ones actually aren't too bad.

    On the oither hand, it's really satisfying to have lost over 60 pounds and see my total daily usage go from 90 to 35 on my insulin pump, and my basal rates go from 50 to 17.5.
  • bac0s
    bac0s Posts: 48 Member
    That was great advice--thank you! I think 38 actually was the lowest I've ever been--WOO HOO! hahahaha That is just messed up low! I almost always forget to just turn off the pump when lows like that happen but of course when you're brain isn't functioning how are you gonna remember to do that?!
    Ack! My worst low ever was when I was pg with my DD. The first trimester of a pg will do insane things to your body, and I had lows in the first trimester with both kids. Fortunately my husband was home that night... I remember getting belligerent and feeling out of it... when I was finally cognizant again, he had made me drink two cans of regular Sprite before checking my BS, which was 23. After two cans of regular soda!! Scary.
  • Jenna470
    Jenna470 Posts: 13
    i'm on the minimed pump, but my warranty just ended, so i'm thinking about switching to the animas or omnipod, anyone have good experiences with them? i like my minimed, much better than trying to regulate on injections, but the buttons get stuck sometimes (meaning mailing it back to them & them overnighting me a new one), making the warranty essential.
    my nutritionist/nurse educator, told me that omnipod is coming out with a smaller infusion set this fall... it looks ideal, but the reviews are so mixed!

    I am on the Animas Ping and really like it. The glucometer is a remote and meter in one. It's really convenient. My endo has the Minimed and loves it. I talked to an Animas rep at a JDRF walk in April and he said that they are going to release a new pump by Dec this year with a glucometer inside the pump so you would only have 1 site. Are you on a CGM? I am curious about them but HATE to have another site.
  • winkerbean
    winkerbean Posts: 39 Member
    i'm on the minimed pump, but my warranty just ended, so i'm thinking about switching to the animas or omnipod, anyone have good experiences with them? i like my minimed, much better than trying to regulate on injections, but the buttons get stuck sometimes (meaning mailing it back to them & them overnighting me a new one), making the warranty essential.
    my nutritionist/nurse educator, told me that omnipod is coming out with a smaller infusion set this fall... it looks ideal, but the reviews are so mixed!

    I am on the Animas Ping and really like it. The glucometer is a remote and meter in one. It's really convenient. My endo has the Minimed and loves it. I talked to an Animas rep at a JDRF walk in April and he said that they are going to release a new pump by Dec this year with a glucometer inside the pump so you would only have 1 site. Are you on a CGM? I am curious about them but HATE to have another site.

    I'm on an Animas Ping right now and am at the point where I could get a new one through insurance (poor thing is all beat up!). I had heard about the Animas Vibe and was curious about the positioning. From looking at the website it looks like the CGM and infusion set would be in one site on you, but then I had also been told by people who had seen it at tradeshows that the pump would just be able to read the data sent to it via the CGM site and would still require the CGM site/infusion set site.

    Hmm. I need to call them I think? :)
  • amccrazgrl
    amccrazgrl Posts: 315 Member
    Ya the Big D can suck a lot. I try to keep a positive look on it though. I swear if I wasn't type 1 I'd be 300lbs. I wouldn't have cared about my weight/health and all that.

    It sounds like you need to adjust you basal and maybe even insulin to carb ratio. I was having morning lows so all I need to do was adjust my 10pm-10am basal.

    I have been pumping 6 years first with Cozmore and now Animas Ping. I have had nothing but success. I keep thinking about the CGMS but the idea of another "set" and receiver doesn't thrill me.

    FYI: Don't forget cardio(aerobic) makes you BS DROP while Strength(anaerobic) makes yours BS RISE
    (incase you didn't know that)

    PS: I took get pissed about having to eat extra calories for a low. I been trying to keep to a 10oz apple juice that is only 140 calories but its 34carbs/sugar. When I'm low I tend to look at sugar content over carbs.
  • atomiclauren
    atomiclauren Posts: 689 Member
    ^Ugh yeah - even if I fight the urge to eat a lot during a low the calorie add on still sucks. I try to keep small juice boxes on hand (they're 15g sugar and 60 calories) or if I'm feeling hard core I'll down a few packets of sugar (4 = 16g sugar and 60 calories).
  • winkerbean
    winkerbean Posts: 39 Member
    Good idea about the apple juice boxes. I've been treating lows with granola bars and those sit at 190 calories.
  • suzieb1971
    suzieb1971 Posts: 312 Member
    im a type one diabetic too, and have been for 25 years. since i started my diet and fitness regime, my blood sugars have been going insane! i have woken up through the night a few times surrounded by paramedics, and a totally freaked out husband.

    your numbers mean nothing to me. you said 42 is low? with my system, i am supposed to be between 4 and 7, so anything below 4 is low. sometimes as low as 1, and sometimes my glucose monitor even just says ''LO'' which is never good!

    but ive managed to stablilise them better now. no more scary night time hypos, because for one thing, i have changed my long acting insulin, which has made a mega difference. i just make sure i check my sugar regularly, and try to sort myself accordingly.
    also, i have lowered my insulin dose and have calmed down a bit on the exercise. i really was going hell for leather!

    i used to just treat a hypo with a sugary drink, but sometimes that just doesnt work, and i have only just found out that i need something to eat as well, so i have some wholemeal bread with some marmalade on, but i do still start off with the drink, if its quite a low one. i have the drink, then the bread and marmalade, or some fruit, which is quite full of natural sugar. a banana is a good thing to use, or grapes.
  • adross3
    adross3 Posts: 606 Member
    I am neither Diabetic or Hypo. But, my blood sugar drops also. I only drop to very low 70's. At least that is were I have monitored it. I don't monitor all the time, so I don't really know if I actually drop lower. Always carry glucose tabs. They are the quickest way to boost your blood sugar. I think that you know that. Food then will balance you out.

    I have learned to eat a protein/ccarb/fat diet. All of my meals are this way. Sometimes there is a slight variation. I was told to do this by several doctors. This way my BG should be maintained.

    Ex: 24g Protein : 17g Carbs : 4g Fat

    This combo works well. A BG or tab or two is 20/40 cals a snickers is 280 cals.

    Protein for long term
    CCarbs for immediate and short term
    Fat for immediate
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