Thyroid and weight loss

In the fall got diagnosed with hypothyroidism and seem to only be gaining no matter what I try. Any advice? Im pretty frustrated and miserable.

Replies

  • fdlewenstein
    fdlewenstein Posts: 231 Member
    Medication?
  • gothchiq
    gothchiq Posts: 4,590 Member
    If your thyroid medication is not working, go back to the doctor. Levothyroxine alone does not do it for everyone. You may need a combination med with T3 and T4 in it.
  • paperpudding
    paperpudding Posts: 9,257 Member
    I second getting blood tests checked.

    Once you are medicated adequately, you are in same boat as everyone else for weight loss

    Paperpudding n=1.
    Lost weight to goal in 2013.
    Had thyroid tumour and hemithyroidectomy in 2016.

    Made zero difference to calories required.

    Of course that is with correct thyroxine replacement.
  • 42Amy
    42Amy Posts: 77 Member
    I have struggled with the same problem my whole life. Medication and blood tests come back normal. I find exercising 30 min every day without fail in the morning increases my metabolism throughout the day. I only eat my exercise calories if I am really hungry. You can do this!:)
  • KathLeenMVP
    KathLeenMVP Posts: 26 Member
    I have hypothyroidism, a nonfunctioning thyroid. This past year I put on 30 lbs. Feeling sluggish but I make it through my work days. Leaves little energy for exercise. I did MyFitnessPal 3 years ago. I feel more inspired doing this program. Really looking forward to this round.
  • deannalfisher
    deannalfisher Posts: 5,600 Member
    I have hypothyroidism, a nonfunctioning thyroid. This past year I put on 30 lbs. Feeling sluggish but I make it through my work days. Leaves little energy for exercise. I did MyFitnessPal 3 years ago. I feel more inspired doing this program. Really looking forward to this round.

    When was the last time you had a full thyroid panel done?
  • cheryldumais
    cheryldumais Posts: 1,907 Member
    I have to second @Annpt77. I am also hypothyroid and I lost 108 pounds on mfp. It took 2 years but I am maintaining for the most part. In fact interestingly enough my thyroid meds had to be reduced this year. It can be done and all you need is patience. Personally I lost a bit slower than some but I did lose. Don't expect 2 pounds a week, take your time so you maintain muscle mass and can stick with it for the long haul. Good luck.
  • yirara
    yirara Posts: 9,899 Member
    I lost the weight I wanted to lose while being hypothyroid with hashimotos and not being treated. It wasn't easy due to tiredness, but I still lost the weight.
  • rheddmobile
    rheddmobile Posts: 6,840 Member
    Make sure you are on the right doses of meds - they recently changed the recommendation, now they should be aiming for TSH under 3, whereas before it was under 5, but many doctors are still using the older values. You can lose weight no matter what, but with medication it’s much much easier, especially since it’s easier to be active. Best of luck to you.
  • pslansky
    pslansky Posts: 16 Member
    49 male / down to 315 from 335 in 2-months but up from 260 in past 2-years. Fairly certain it’s from eating too much, and bad food choices; but recently discovered golf ball sized thyroid mass during chest CT for breathing trouble. Two inconclusive biopsies, Endo says thyroid “function normal” but next step is surgery to remove entire thyroid. Also says no big deal, thyroid hormone replacement very common nowadays. Should I be worried?
  • paperpudding
    paperpudding Posts: 9,257 Member
    pslansky wrote: »
    49 male / down to 315 from 335 in 2-months but up from 260 in past 2-years. Fairly certain it’s from eating too much, and bad food choices; but recently discovered golf ball sized thyroid mass during chest CT for breathing trouble. Two inconclusive biopsies, Endo says thyroid “function normal” but next step is surgery to remove entire thyroid. Also says no big deal, thyroid hormone replacement very common nowadays. Should I be worried?

    This is very similar to my situation - not the weight loss amount but the thyroid story.

    except mine was picked up by coincidence because I work at a Dr's surgery and one day Dr M says Hey paperpudding how long have you had that lump? Me: What lump? - because amazingly I hadnt noticed it growing - although in hindsight I could see it in photos from months before, not sure how I didnt notice.

    Ultrasound showed it to be 5 cm wide - so I guess that is about a golf ball diameter.

    anyway, like you, I had tests: fine needle biopsies, dye tracking - all of which were inconclusive and then next ultrasound showed it to have grown nearly a cm.

    So, benign or not, it is going to keep growing and will eventually interfere with swallowing and breathing

    My blood tests showed lower end of normal - specialist said he thought levels would be dropping from the tumour but couldnt say for sure since we had no previous tests to compare to

    Next step was surgery to remove half my thyroid - the tumour was only on one side - and if cancerous to also do follow up treatment.

    Fortunately for me it was not.

    Thyroid replacement is indeed very common - not always from surgery, many times people's levels just fall medically.

    The specialist told me it was best to go on low dose replacement, even though I still had one functioning side.

    That was in 2016 - other than minor adjustments to dose depending on blood test results, no further issues.

    The other thing the specialist told me was that thyroid cancer is very easy to treat and has a very good prognosis.
    Although for me, the tumour turned out to be benign.






  • AnnPT77
    AnnPT77 Posts: 34,087 Member
    @pslansky, if you haven't yet, suggest you read the link I posted near the start of this thread, so informative, and the author himself went through such surgery IIRC.

    https://community.myfitnesspal.com/en/discussion/10767046/hypothyroidism-and-weight-management/

    I personally didn't, but am sending hopes for excellent outcomes for you!
  • paperpudding
    paperpudding Posts: 9,257 Member
    plansky, glad you found my post helpful.

    Yes they have to give you all the disclaimers - one of which was damage to vocal cords, usually temporary if I recall the risk correctly.
    That side effect did not happen to me.

    can't speak to your anaesthetic risks - as they did not apply to me. I was not overweight and not diabetic.

    But I was about your age (52 in 2016)
    I spent one night in hospital in HDU, next day was told I could stay another night in general ward if I wanted to or could go home if someone was going to be with me.
    I chose to go home.
    had sutures out a week later and commenced thyroxine replacement, along with annual ultrasound checks for next 2 years ( I think that was in case other side started growing one too)

    I took minor pain killers at night for first few days after and had 1 week off work. (actually 4 business days - had the surgery Tues and was back at work following Mon)

    One thing I did find which wasnt mentioned was driving - was bit painful in first week or so - mainly turning your neck to reverse.

  • deannalfisher
    deannalfisher Posts: 5,600 Member
    plansky, glad you found my post helpful.

    Yes they have to give you all the disclaimers - one of which was damage to vocal cords, usually temporary if I recall the risk correctly.
    That side effect did not happen to me.

    can't speak to your anaesthetic risks - as they did not apply to me. I was not overweight and not diabetic.

    But I was about your age (52 in 2016)
    I spent one night in hospital in HDU, next day was told I could stay another night in general ward if I wanted to or could go home if someone was going to be with me.
    I chose to go home.
    had sutures out a week later and commenced thyroxine replacement, along with annual ultrasound checks for next 2 years ( I think that was in case other side started growing one too)

    I took minor pain killers at night for first few days after and had 1 week off work. (actually 4 business days - had the surgery Tues and was back at work following Mon)

    One thing I did find which wasnt mentioned was driving - was bit painful in first week or so - mainly turning your neck to reverse.

    that is about my experience as a 32yr when i had mine removed - however, i wasn't allowed to drive for a week (the surgeon said this is due to anesthesia still technically being in your system and decreased reflexes)
  • paperpudding
    paperpudding Posts: 9,257 Member
    a week post anaesthetic??

    gee, that is very conservative.

    I think the general rule for most surgery here is 24 hours - moot point for thyroid surgery as you are going to be in hospital for at least 24 hours anyway.

    My husband picked me up from hospital but I was driving next day - ie had surgery Tues and was driving on Thursday.
  • deannalfisher
    deannalfisher Posts: 5,600 Member
    a week post anaesthetic??

    gee, that is very conservative.

    I think the general rule for most surgery here is 24 hours - moot point for thyroid surgery as you are going to be in hospital for at least 24 hours anyway.

    My husband picked me up from hospital but I was driving next day - ie had surgery Tues and was driving on Thursday.

    yep - i remember vividly because i had to survive my mother's driving for a week...lol!
  • rheddmobile
    rheddmobile Posts: 6,840 Member
    pslansky wrote: »
    @paperpudding thanks for the response. I should clarify, they also told me that the surgery might only take half the thyroid but sometimes the whole thing has to go, they don’t know until they are in there ... I too can now see the lump once they pointed it out. The doctor could definitely feel it. That was fun, they brought in a student and were like “hey, check this out...”. They asked my permission of course but I’ve never been a training prop before. Anyway, I do feel better to hear from someone else first hand. I almost wanted to get a second doctor’s opinion but it seems so simple it’s not worth the time or money. I can see the lump and like you said, cancer or not it needs to go... I’m just pre-diabetic, overweight, and have had complications from previous back surgeries. I lost partial eyesight during one 10-hour extended back surgery and had a hard time coming out of anesthesia. Thus I’m a little concerned about more surgery. They also give you the disclaimer about how they might damage your vocal cords... not that my singing career is taking off or anything but I was nervous about loss of eyesight in the long list of forms I had to sign last time and then it happened. My wife says I need to stop saying these thing out loud and maybe they won’t happen. I tell her I’m going to win the lottery and never do so I don’t think the Universe is listening to me that closely!! Again, thanks for sharing your story, it was more impactful to hear from someone directly than to just read it on the Mayo Clinic website.

    Ask to speak to your anesthesiologist before surgery and be sure to explain your history to them. They will want to know about the vision and extended time coming out of anesthesia. If you are sedated the night before surgery or otherwise not up to par, make sure your wife is there to advocate for you if you can’t advocate for yourself.
  • rheddmobile
    rheddmobile Posts: 6,840 Member
    a week post anaesthetic??

    gee, that is very conservative.

    I think the general rule for most surgery here is 24 hours - moot point for thyroid surgery as you are going to be in hospital for at least 24 hours anyway.

    My husband picked me up from hospital but I was driving next day - ie had surgery Tues and was driving on Thursday.
    It very much depends on the surgery and type of anesthesia. For my ovarian surgery it was 2 weeks, and I definitely needed the whole time. I didn’t feel normal for almost a month after surgery. Deep anesthesia actually has lingering effects on IQ months after surgery.
  • pslansky
    pslansky Posts: 16 Member
    Wow folks! Everyone is so helpful. I can’t tell you enough how grateful I am for all the responses. I have an Endo appointment tomorrow at 9am for follow-up. #AnnPt77 thanks for the article. Being in an engineering field I thrive on learning. New information and new data points always help me understand and cope with challenges. I read through the article you posted, and definitely need to go through it a few more times to really unpack everything that is in there. I do feel like it helped me prepare to ask my doctor the right questions. #rheddmobile great idea about talking to the anesthesiologist about my past experiences. I’m sure they can make adjustments. My wife will definitely be there, last time she had to stop the nurses from giving me insulin while I was waking up since I was only pre-diabetic and not on insulin. I’m encouraged by everyone’s testimonies and experiences. Thanks again, y’all are awesome!!!