Hashimoto's? Anyone else share the disease with me?

lauradel9
lauradel9 Posts: 8
edited October 3 in Health and Weight Loss
I'd like to correspond with others on MFP who also have Hashimto's since success and trials are a bit different for us given our obstacles.
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Replies

  • jend114
    jend114 Posts: 1,058 Member
    I have Hashimoto's. Feel free to add me
  • tulip07
    tulip07 Posts: 167 Member
    I do too. Go ahead and add me if you would like. I am new on here and looking for new friends anyway :)
  • Lroppolo
    Lroppolo Posts: 14 Member
    I have Hashi's. Been a sufferer for the last 12 years. Feel free to add me!
  • YogiGirlLucy
    YogiGirlLucy Posts: 290
    Yes, I have Hashi's as well. Feel free to add me, too!

    Lucy :)
  • smcassaro
    smcassaro Posts: 123 Member
    I do! Feel free to add me, I would love to support you & I definately need friends who can relate to how hard it is to lose weight because of this.
  • voluptuous_veggie
    voluptuous_veggie Posts: 476 Member
    I have Hashimotos, along with Fibromyalgia and SLE Lupus. It's daunting, but living a healthy life is still possible!
  • zsesteacher
    zsesteacher Posts: 106 Member
    my daughter has Hashimoto's since she was in 6th grade..this year she graduates so I hope I can get some good information from you ladies... what exactly do you all feel? sometimes I try to understand my daughter but it's hard...she takes synthroid once a day...

    Yvette
  • CarolynB38
    CarolynB38 Posts: 553 Member
    Hi. I have an underactive thyroid but don't know the cause because they don't refer you to an endochrinologist in the UK unless you can afford to pay (either that or I have a crap doctor, lol). I've had it for about 12 years too. I am finding it hard to lose weight but I am getting there slowly. I have found a few things that seem to work for me. You can check out my blog if you're interested and you're welcome to add me if you feel I might be someone you'd like as a friend on MFP :happy:
  • lauradel9
    lauradel9 Posts: 8
    Hi ladies!

    I've been on the anti-inflammatory diet for a month and started Armour around the same time. The weight loss is slow but at least headed in the right direction. My integrative doctor has been amazing and I recommend Integrative medicine to any sufferers of this disease. She has her M.D. from a top Medical school but also believes in Naturopathy.
  • lauradel9
    lauradel9 Posts: 8
    I believe so too and so sorry to hear of all your ailments.
  • meerkat70
    meerkat70 Posts: 4,605 Member
    Hi. I have an underactive thyroid but don't know the cause because they don't refer you to an endochrinologist in the UK unless you can afford to pay (either that or I have a crap doctor, lol). I've had it for about 12 years too. I am finding it hard to lose weight but I am getting there slowly. I have found a few things that seem to work for me. You can check out my blog if you're interested and you're welcome to add me if you feel I might be someone you'd like as a friend on MFP :happy:

    Carolyn, I'd push on that one. My best friend has Hashimotos and fybromyalgia - and she was properly diagnosed. Because Hashimotos isn't just a deficiency of the thyroid, but also involves compromised autoimmunity, it's really important to know if that's what you're dealing with. She was diagnosed in Manchester, about 8 years ago - I can try to find out how she got the diagnosis, if you like?
  • lauradel9
    lauradel9 Posts: 8
    I typically would feel much older than my age (or at least what I felt I should feel since who can really have absolute awareness of that haha.) In addition, I would be cold, sore, irritable, had "foggy brain," loss of libido, energy, etc. I found I needed more alone, restful and quiet time over socializing, but on the other side of the coin, exercise is a must.
  • tambink
    tambink Posts: 349
    I have it as well and please feel free to add me :smile:
  • tulip07
    tulip07 Posts: 167 Member
    I typically would feel much older than my age (or at least what I felt I should feel since who can really have absolute awareness of that haha.) In addition, I would be cold, sore, irritable, had "foggy brain," loss of libido, energy, etc. I found I needed more alone, restful and quiet time over socializing, but on the other side of the coin, exercise is a must.

    Everything what you said. I was diagnosed 1 year ago. I felt all of those and exhausted all the time, to the point where I couldn't bear to take 2 more steps. There were days I'd sleep on the couch because I was too exhausted to go upstairs to my bedroom. I was first put on Synthroid by my endocrinologist, it helped initially but I still never felt like myself. When my doctor then said he had to reduce the dose as I was getting hyper, I figured there was something else going on and felt the need to change my doctor someone who can diagnose the whole person and not just my thyroid.

    I switched to a highly recommended osteopath (like you said, he is also someone who believes in naturopathy). He switched me to Armour, checked my Vitamin D and adrenal gland functions. Both Vitamin D and Cortisol were also extremely low. So now I take Vitamin D supplements and also a small dose of DHEA. I feel soooo much better now.

    My doc also recommended 'the 17 day diet' to me. I had read about it and seen on the Doctors show before but his recommendation encouraged me to start it immediately and I am doing so well with my weight loss now. So much energy too! My TSH was at 120 (yes, 120 not 12) when I was first diagnosed a year ago, so don't worry, it's possible to get it under control, lose weight and lead a normal life!!
  • CarolynB38
    CarolynB38 Posts: 553 Member
    Hi. I have an underactive thyroid but don't know the cause because they don't refer you to an endochrinologist in the UK unless you can afford to pay (either that or I have a crap doctor, lol). I've had it for about 12 years too. I am finding it hard to lose weight but I am getting there slowly. I have found a few things that seem to work for me. You can check out my blog if you're interested and you're welcome to add me if you feel I might be someone you'd like as a friend on MFP :happy:

    Carolyn, I'd push on that one. My best friend has Hashimotos and fybromyalgia - and she was properly diagnosed. Because Hashimotos isn't just a deficiency of the thyroid, but also involves compromised autoimmunity, it's really important to know if that's what you're dealing with. She was diagnosed in Manchester, about 8 years ago - I can try to find out how she got the diagnosis, if you like?

    Thanks, that would be really helpful. My doctor also thinks I have early stages of RA so that would fit in with autoimmune diseases. The blood test was negative but apparently that's common in the early stages of RA.
  • Leela30
    Leela30 Posts: 177 Member
    Hi Everyone!

    I have an appointment with an endocrinologist on Nov. 4 to test if I have Hashimoto's. My grandmother had the symptoms, and my mother is a walking dictionary of the symptoms but based on basic blood work, her results are "within normal". My sister was born without a thyroid so she has been on synthroid her entire life. Only until this year have I really started to research more about hypothyroidism. But since I'm pretty sure my mother and grandmother have/had it.. I'm thinking Hashimoto.

    I started researching the brittle hair/nails, easy bruising, eczema.. thinking maybe there was a vitamin deficiency and that these things were linked. But reading through the symptoms, I definitely qualify. Especially frustrated with working out at least 5x a week for over year, and eating a deficiency of calories and not losing ANY weight. The only time I have lost over 5lbs in the last 6 years was when I was suffering from one my depressed episodes and just never ate.

    I know my blood work is "within normal" but the more I research the more common it is to be borderline, and that the basic TSH and T4 count don't disprove anything.

    Are/were any of you bordline in your initial basic blood tests, and how did you figure out you were hypothyroidic? How did you go about getting a doctor to look into it.


    Thank you ahead of time for all the help. This condition would explain so much, I'm just hoping I can find a doctor to figure out if this is why or not.
  • erikab2231
    erikab2231 Posts: 3
    count me in. i recently joined here. i've been logging for 11 days & i've only lost half a pound. do you guys use the recommended goals for carbs, protein, fat or do you customize? i know i do better w/ fewer carbs but it is soo hard
  • mags911
    mags911 Posts: 8 Member
    Count me in...you are not alone. :) I have known since I was 20 so 15 1/2 years ago. I take synthroid 175 mcg daily with a double dose every third day but wonder if newer research needs looking into for vitamin and other levels. I have yo-yoed though the years with will power, the birth of my two boys now 8 and 6, and basically life. I am now down to 134 and hope to hit 125 by christmas. (Fingers Crossed!) You can check out my diary if you friend me but be warned that I try to eat healthy (ie all natural, not processed) but am at the babysteps stage, but even so have still lost 16 pounds. :)
  • tegla
    tegla Posts: 132
    Hello!
    What a great topic!! Yes me me me I have Hashimoto's. I've been taking Synthroid for 20 years. I'm 46 and have struggled. I would love to share support and information with you all. I'm tired of being fat, tired, and dried up. Although it feels like running in place. I still have so much to learn, for years I was basically fine, just taking my medicine, and slowly gaining weight. But I wasn't taking care of myself, family first frame of mind.

    As I've gotten older and realizing how crappy I feel, and that there's more to it than not getting enough exercise, I am learning about foods, adrenal glands, etc. It's stressful and frustrating, I just feel like I'm trapped in this sluggish body no matter what I do, Ok I haven't been good about the treadmill. That's my main fault, and I don't eat enough.

    Anyway, I'd love to be added to anyone's friend list. I'm not exactly new, but I could use some friends as well.

    Nice to meet you all and thanks again for the topic.
  • cpldjski
    cpldjski Posts: 64 Member
    I have it as well. I was diagnosed about a year ago. Anyone who would like to add me feel free. I am new and always looking for more friends and motivation.
  • yeaforme
    yeaforme Posts: 48
    I have Hashimotos!
  • gethealthygetfit
    gethealthygetfit Posts: 70
    I have it also. I am not on medication and I am wonder if there are other people who aren't on medication yet and are able to lose weight. I haven't lost anything since April :( Feel free to add me. Anyone. :smile:
  • charm_quark
    charm_quark Posts: 315 Member
    I have it too.
    I've been diagnosed three years ago. I'm on medication since then. Almost every year the doctor increase my dose.
    I can't loose almost any weight although I eat less calories but never under 1200. The last 6 months I've lost only 8 lbs.
    Feel free to add me.
  • Shannon_Nicole83
    Shannon_Nicole83 Posts: 181 Member
    I was diagnosed last year during the first trimester of my pregnancy. I had blood work done for my OB and my levels were high so she sent me to a specialist. More bloodwork....and now a daily dose of synthroid. I had no idea there was anything wrong, all the symptoms I was showing I blamed on the pregnancy (exhausted, hungry all the time, weight gain). I was able to have a normal pregnancy and keep my weight gain to a reasonable amount. I have lost all the weight I gained while pregnant and am now working on the rest. I can't tell if the medication is helping now that I'm not pregnant anymore but I feel good. I had bloodwork done a few days ago, will see the doc on the 18th.
  • Just1forMe
    Just1forMe Posts: 624 Member
    I have it also. I am not on medication and I am wonder if there are other people who aren't on medication yet and are able to lose weight. I haven't lost anything since April :( Feel free to add me. Anyone. :smile:


    I have it as well and am not on medication because I have no insurance at this time and don't wish to saddled with a pre-existing condition. My mother and both sisters have it as well...
    I have lost 72 lbs but it has taken me almost 3 years. I go for months doing everything right and not losing. It totally stinks and gets very frustrating, but you just have to keep going. With Hashimoto's, if you stop tracking your food or exercising, you can gain 20 lbs at the drop of a hat.
  • tannity2
    tannity2 Posts: 50 Member
    I have Hashi's, too. Just joined MFP five days ago. Seems to be making a difference already. Feel free to add me, too!
  • tannity2
    tannity2 Posts: 50 Member
    I have it as well and am not on medication because I have no insurance at this time and don't wish to saddled with a pre-existing condition. My mother and both sisters have it as well...
    I have lost 72 lbs but it has taken me almost 3 years. I go for months doing everything right and not losing. It totally stinks and gets very frustrating, but you just have to keep going. With Hashimoto's, if you stop tracking your food or exercising, you can gain 20 lbs at the drop of a hat.

    Congratulations on taking off 72 lbs!!!!
  • kimad
    kimad Posts: 3,010 Member
    I have an underactive thyroid and have for some 11-12 years. I take synthroid daily and when I stopped earlier this year my levels went severely out of wack. Becuase I was always so well controlled, it never dawned on me to see an endocrinologist - so thank you for mentioning that!

    I am ALWAYS cold, I have no libido, but I can truly say I have never had a hard time losing weight either.... if I put my mind to it and did it, I can... but I can put it back on like noone's business lol...

    Good luck everyone.
  • dukeS1ms
    dukeS1ms Posts: 13 Member
    I was diagnosed with Hashimoto's about 4 months ago. i'm also looking for info and experiences on how people deal with this condition. Feel free to add me.
  • ahavoc
    ahavoc Posts: 464 Member
    I've had Hashimoto's for 24 years. Went misdiagnosed for 6, then got the right doctor. I work out 6 days a week, I log everything I eat, and the weight is coming off. Don't use your Hashi's as an excuse! Exercise is the key!

    Also, once you start on your medication your thyroid is basically shut off and it kind of shrivels up. Stopping your medicine is very dangerous as it will take a while before your thyroid will start to work. The thyroid maintains so much! Your metabolism, your heart, your reproductive system, skin, nails, hair growth, everything that is controlled by a hormone and more! Find a way to go around the whole insurance issue and get looked at. The generic medicine is CHEAP! (levothyroxine)

    Don't treat yourself like a sick person. Get going, move your body, stop eating crap and eat right. You can do this!
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