Anyone with Thyroid disease?

I was diagnosed with Graves Disease 12 years ago had the radioactive iodine treatment been up and down with my weight and still get checked every 4 months. However I feel great now I've been on the same dose of synthroid for about 4 yrs now. I used to exercise regularly but in the last couple of years been working insane hours and put on some weight. Now I'm back on track to lose it. If any of you need some help or motivation feel free to friend me. Good luck to everyone out there.

I was diagnosed hypo about 10 years ago. Every time they got my levels good it would slow right back down! I am now on 300 of St throne and seem to be managing well on that. But in the process I put the 50lbs I lost after my daughter was born back on and then added another 40 on top of that I am now turning that around and lost 15lbs before joining mfp and am determined to keep going down. Any one wanting to share motivation and encouragement Please add me!

Hi, I'm hypothyroid and eat clean, soy free, grain free and wheat/gluten free..it helps a lot. It took a long time to figure it out, but once I started eating like that the weight started melting off along with better sleep quality and regular exercise. I lost over 50 pounds now with 20 to go. Dr Mercola really promotes Palea Diets for people with thyroid issues.

Gaining weight actually helped me get diagnosed with Thyroid Cancer. I put on about 60lbs in 2005 seemingly out of nowhere. I decided to see an Endocrinologist to check my thyroid because my family has a history of thyroid issues on my mom's side. Most of them are hypo, but my grandpa and great aunt were hyper--he lost weight and was very antsy and she actually gained weight. Most people think that if you have Graves or Hyperthyroidism that your metabolism will be so fast that you will lose weight and they worry about your heart breaking down, too. But I think some people are so hungry all the time that they gain cause your body is in overdrive.

Anyway, a nodule was found in my thyroid and I had a biopsy in the beginning of 2006 and it was Papillary Thyroid Cancer. I also had Hashimoto's. So even though my TSH was in a fairly normal range when I gained, I still gained a lot and I believe that the numbers don't always tell the whole story. Even when adjusting your meds, some people will keep complaining that they are tired and get told that the numbers are normal. The synthetic hormone I don't think is the same so it should be adjusted based on individuals and how they feel. But yeah, I thought the weight would fall off me after surgery and RAI and there was no such luck even though my medication technically has me on the high or hyper thyroid end of the scale in order to not stimulate possible Cancer cells.

hypothyroid here... If I go over my calories at all or if I don't exercise, I gain. I want to see a new doc because I don't really like the one I am seeing. I would love to have some more friends with the same issues, so feel free to add me. We can do this!!!

I was diagnosed with underactive thyroid when I was 9 years old, so I feel ya. I take levoxythrine daily. I get my levels checked regularly, but I know it's been hard to ever be thin through my life with the disease. As long as you get checked regularly, and also exericise and eat a healthy diet, it should help. I'll support you!

I was diagnosed with hypothyroid when I was 8, and I've always had bad eating habits until I started changing my lifestyle, so I've put on the pounds like nobody's business all my life.
Just recently, my health insurance got cancelled OUT OF NO WHERE. I'm 19, and it was supposed to go until I'm 25, so this is a big problem for me. I didn't get to see my endocrinologist this year, and since I'm losing weight I was actually kind of excited to see her (she's always a ***** to me about losing weight)
I'm on levothyroxin, I don't technically know how it's working for me right now (my thyroid levels have always been up and down) since I haven't been to the doctor in over a year, but I don't feel like it's working as well as it should

Seems like there are a lot of people on here who are Hypo. I myself have Graves' disease and in Oct had a total thyroidectomy. I am still somewhat hyper according to my doc but I feel more like the hypo symptoms. I sometimes get frustrated talking to other people who don't have Graves' because their symptoms are so different. It is nice to hear (I guess) that everyone else who posted here who has Graves' has gone through exactly what I went through. I gained weight once I got medicated on Tapozole, I struggled with my original doctor (who thought it was odd that I started gaining weight on the meds), I struggled with treatment options, and I still struggle with losing the weight I gained.

Does anyone know of a group for people with Graves' disease specifically? Also, any thoughts on what to do when you struggle with being hungry again? This past week has reminded me of the times I was freshly diagnosed and still feeling hungry. I did a little better today, but overall I have blown my calorie goals every day over the past 5-7 days.

I was just diagnosed hypothyroid in November, after gaining over 10 pounds in a month and feeling like crap, losing tons of hair, tired all the time, horrible body aches, etc. My doctor put me on Synthroid and after a month my levels were fine but I still felt awful so I asked to switch to Armour. Walgreens actually substitutes Acella NP thyroid instead, but I love it! It works a million times better than synthroid. My TSH is actually a little higher on it but my symptoms are gone.

Once I felt better it was much easier to exercise everyday and now the weight is finally falling off. I almost have all the weight lost that I gained due to my thyroid, now I have 25 more pounds of baby weight to lose (baby is almost 6 months) and another 10 on top of that would be good. I can't wait to feel normal again!

My 19 year old was just to a wallgreens clinic and the dr there said she thinks my daughter has hyper thyroid. Can she really tell that by looking at her neck? She told me to get it checked by her pcp . From what I'm hearing here it makes sense she's put a lot of weight on too.

Well I hope she's wrong . My 19 year old already has a lot on her plate to deal with. Thx for the info.

Fertility can be due to other things in addition to low TSH. Definately ask your doctor what other problems can cause both symptoms.

Hi I was diagnosed with Hypothyroidism after my first son was born, and have tried 3 different medications to get it stable and am now back on Synthroid. I went to an endocrinologist because it was so low (my blood work showed that it was 28, and normal is 2-4) and the endocrinologist diagnosed me with Hashimotos AND PolyCystic Ovarian disease which means my metabolism is pretty much negative and I gain weight from just looking at food.

I completely understand the frustrations of doing what you're supposed to, and not getting the results you're supposed to. I've never read it, but someone out there wrote a book called "The thyroid diet" and it has things that we're supposed to avoid and things we're supposed to eat an abundance of. My mom bought me a copy and I forgot to take it with me when we moved and things like that get forgotten when you're moving overseas.

My biggest problem is energy. I have none. I have 2 kids ages 3 and 1, I am a stay at home mom, I am an internet student, i don't feel like I am to busy and there is no way I should feel this tired. Its not even just tired, its just a pure state of exhaustion. The only way I can describe it is the first few months of being pregnant when all I wanted to do was sleep because my body was building another human being and it was physically exhausted. I feel that way all the time now. I can't live on energy drinks, its not healthy for me or my budget. Exercising is supposed to give me energy but it takes the little energy that I have, but I do it because its the only way that I can lose weight and it seems that I have to do 4 times the work out to get the results I used to, I know that our metabolism slows down as we age, but I'm only 26, I don't know how much slower this can get.

Thanks for letting me vent. My husband doesn't understand. When he has a PT test, he just has to drink water before each meal so he eats less and eat more fruit and he'll drop 10 pounds in a week, its disgusting.

Average doctors don't seem to know enough about thyroid disease other than the numbers. Even some endocrinologists. They have a set range of numbers that everyone is supposed to fit in and when you don't feel better then they don't know what's wrong with you. Must be.. weight gain must be menopause, achey bones must be arthritis, fatigue must be you are not getting enough sleep, etc, etc...in other words, your getting older (my personal favorite answer)! .I've heard it all. I had surgery and partial thyroidectomy for a nodule which was luckily benign and since then have been riding the roller coaster for that dream concoction of meds....did okay at first but started having similar symptoms I had before diagnosis.
Finally had to ask my MD to put me on a higher dose of Synthroid to see how I felt and good thing she said yes. Otherwise, I'd have gone to another MD...and since then, so far, so good. Higher dose for me is working...
Yes there are diets out there for thyroid control and optimizing it's action, I am not a very good patient and hate to take meds, however, the list of foods to avoid was too long and I just couldn't do it all...you have to make that choice for yourself.
Good luck, I hope you find your answers....

i have hypothyroidism. i was diagosed maybe 5 years ago? i haven't gone through treatment though. i am not the kind of person who can take 4 different pills at different times every day =\