Special needs mommy's :)

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Replies

  • kebrina1983
    kebrina1983 Posts: 54 Member
    Hi, my name is Kebrina and I have a 7yo boy who has PDD NOS. Please add me..
  • AthenaErr
    AthenaErr Posts: 278 Member
    My wee girl is 2 and has GDD. We are in the long anxious process of trying to find out what is up. Would be nice to have friends who know what that is like.
  • lmelangley
    lmelangley Posts: 1,039 Member
    Not a mom, but just wanted to say thanks and good job to all of you who are so attentive and sensitive to your children's needs. I suffered from crippling anxiety from as early as I can remember, OCD set in in 4th grade, was depressed and suicidal in high school, and ended up needing emergency psychiatric care for a complete breakdown in college. My parents--who, don't get me wrong, love me very much--did not want to believe that their "perfect" daughter needed help and brushed it off for as long as they could. In their minds, I was too smart for there to be anything really wrong with me mentally. I'm 26 now and was only recently diagnosed with ADHD and my doctor is trying to diagnose the exact anxiety disorder but it's taking a while.

    So again, all of you who acknowledge problems and stay on top of them deserve a pat on the back. I know it can't be easy, but your kids will be better off in the long run. Sorry for derailing the thread. :happy:


    Not a derail, at all. My heart goes out to you. As a parent, it's sometimes hard to face our children's challenges. I'm so happy you're finally getting the help you need.
  • tantalee
    tantalee Posts: 130 Member
    hello!
    my name is Tanta and son has a terminal disease characterized by the lack of neuronal migration during the pregnancy. He has severe epilepsy that is without any control, doesnt see, doesnt move, doesnt hear well and doesnt breath well. The doctors said he was going to die in the first year of life but he already pass 3 years and always have a smile on his face.
    Im trying to get healthy and in shape so i can give him a brother before he dies.
  • mdcjmom
    mdcjmom Posts: 597 Member
    I am Tanya, a mother of two boys 15 and 14 who are both aspergers feel free to add me. I also have two daughters 13 and 11 that are completely healthy short of the preteen attitude!
  • Julie2402
    Julie2402 Posts: 126
    Hi, i would like to join, i have a 13 year old daughter who has high functioning austism. She is a beautiful girl who has taught me so much.x
  • mygrl4meee
    mygrl4meee Posts: 943 Member
    My son is 12 and on the autism spectrum but I always like to mention some people don't believe that due to not knowing his early years. He has a lot of obsessive behaviors that change up. Right now he is on a kick to clean the bathroom and went has far to make himself a mask with his shirt because of the smell of scrubbing bubbles. Oh my can't believe I wrote that. We are seeking couseling which was the hardest thing I had to do in a while.

    mygrl4meee just a thought, from someone who has severe environmental allergies, (fragrances incl) is it possible that you son could also be bothered by the scent of the scubbing bubbles because he is sensitive to the petrochemicals used in the production of products?
  • freyaandcorysmum
    freyaandcorysmum Posts: 70
    Hi all, my youngest daughter has RAS...very rare. wud love to find some other mummies to relate to x
  • mygrl4meee
    mygrl4meee Posts: 943 Member
    The chemicals probably did get too him. We don't normally use a lot of chemicals but our shower was needing some tlc and he started trying to clean the bathroom and wants it to be his job and spraying it like crazy. I hope he gets tired of cleaning it.
  • Mootpoint
    Mootpoint Posts: 14 Member
    Hello!
    I have a son with Asperger's (with elements of ADD and anxiety disorder) and dyspraxia, a daughter who is Growth Hormone Deficient, asthmatic and hypoglycaemic; my youngest is severely asthmatic and my eldest son who was diagnosed as clinically hyperactive but is now borderline hyperactive.

    Seems there a quite a few of us here. :-)
  • Sarahannlacy
    Sarahannlacy Posts: 8 Member
    I am a mom to 5 beautiful girls my 8 year old daughter was diagnosed at 5 with bipolar/ adhd/ anxiety and sensery intergration proplems.. I have a 4 year old who was born 3 months premature and as she is getting older i am seeing signs of adhd with her.i think this is a wonderful group to start and look forward to helping support all of you... life is much diffrent for us with special needs kids between doctors appointmenst, ot, therapist and psychiatrist and then taking care to make sure my other 4, 3 which are older then my 8 year old get the attention they need i wonder were i get the energyork out and sometimes i dont emotionally have that energy to do it.
  • LainMac
    LainMac Posts: 412 Member
    Mom to 4 and IEP Warrior! (Seriously, I annoy the heck out of SPED people and usually get most of what my kids need)

    I have a nearly 18, bio, morphed from PDD-NOS to Aspegers High Schooler.

    Three sibs who we adopted 8 years ago. The two oldest have language processing issues and the youngest is ADHD. They are 15, 13, and 11 now.

    Right now, we have more "issues" with the youngest two attention seeking maladaptive behaviours than we do about anything else. Maladaptive behaviors is a fancy way of saying that are doing the strangest, wrongest drive you crazy stuff.
  • LainMac
    LainMac Posts: 412 Member
    I started a Group

    Super Special Moms

    As a closed group, could be a bit more open about our issues and we would have to worry about trolls less.

    Please join.
  • LilmamaPipes
    LilmamaPipes Posts: 21
    Feel free to add me as well. I am a proud mommy to a 9 yr old little girl who has a mood disorder on top of what her pediatrician says is super adhd. My 7 yr old son just finished up speech therapy and we are hoping his last surgery due to a non functioning soft palate.
  • mabear74
    mabear74 Posts: 248
    I just tried to find the group, and it's not showing for me......how do I get to it?
  • LainMac
    LainMac Posts: 412 Member
    Durn it. I'll have to invite you all individually. Will do so later. Kid emergency now.
  • mabear74
    mabear74 Posts: 248
    Ok thanks! Hope it isn't too serious of a kiddo emergency!
  • CosmicBella
    CosmicBella Posts: 195 Member
    I am the mother of an 8 year old boy with Autism and a 7 year old girl with Dyslexia. :)
  • keeponkickin
    keeponkickin Posts: 1,520 Member
    Anyone is welcome to add me. I have 4 children and #3, second son, just turned 11 and has Down syndrome. Very high functioning. I would love to have buddies that walk the same path as I do.
  • SnarkyMam0610
    SnarkyMam0610 Posts: 39 Member
    That would be awesome! My son will be turning 6 in June and he was diagnosed with Aspergers in September and I also have a 2 yr old with autistic traits.
  • beckybernardo
    beckybernardo Posts: 93 Member
    Hi My son was diagnosed with Marfans Syndrome at the age of 9 and he is 19 now. We will be taking him to the mayo clinic on tuesday to find out if his heart can take back surgery and heart surgery and which one to do first
  • Rays_Wife
    Rays_Wife Posts: 1,173 Member
    Hello,

    Nice to see this group of parents here. I would like to join your group! I have two special needs children. My 11 year old son has Tourette Syndrome with comorbid disorders of OCD, ADHD and Executive Function Disorder. My 4 year old daughter has a metabolic disorder called Phenylketonuria (PKU for short) which means her body cannot metabolize the amino acid Phenylalanine found in all sources of protein. As a result, she must be on a strict low-protein diet for life supplemented by her medical formula. If she eats too much protein, the Phe will build up in her bloodstream and brain and cause mental retardation and seizures. So my life is full of IEP's, doctors appts. and meetings with teachers and school administration, lol!!! It would be nice to chat with other moms who understand.

    (edited to add my 4 year old also was born with a heart condition called Transposition of the Great Arteries and had to have heart surgery at 1 week of age. She was in the hospital the first month of her life, and was then classified as developmentally delayed until age 3. She went through a lot of OT and PT)
  • diddyh
    diddyh Posts: 131 Member
    I have a 14 year old son with high functioning autism. He also has a processing disorder.

    Please invite me to the group. :)
  • SnarkyMam0610
    SnarkyMam0610 Posts: 39 Member
    I started a Group

    Super Special Moms

    As a closed group, could be a bit more open about our issues and we would have to worry about trolls less.

    Please join.

    Please add me when you can. Thanks
  • samf36
    samf36 Posts: 369 Member
    Please add me I have a son with hemophilia and vonWillebrand disease .
  • cowgirlashlee
    cowgirlashlee Posts: 301 Member
    I'm not a mommy, but I have experience working with special needs children, and I admire all of you wonderful parents that are raising these unique children :) I work with a young boy that is high-functioning autistic and has ADHD currently. He's in 1st grade and flourishing quite well. In the past, I've worked with a little boy with down syndrome that was on a feeding tube, unable to chew solid foods (we got up to feeding him pureed meals before they left the area), and I've worked with another boy that has down syndrome on horseback riding. It's been great therapy for him. If God grants me a special needs child, I will embrace it with open arms. Good luck to all of you super special mommies out there!
  • vgambino
    vgambino Posts: 28
    I started a Group

    Super Special Moms

    As a closed group, could be a bit more open about our issues and we would have to worry about trolls less.

    Please join.

    Please add me when you can. Thanks

    I would love to be a part of this group too. Add me if you can
  • marylovehellokitty
    marylovehellokitty Posts: 146 Member
    Have a 9 year old with autism.
  • fypspirit
    fypspirit Posts: 109 Member
    Hi I am Karen I'm a mother of 4 with my eldest having Downs Syndrome he is 25 now, I also have another son who is about to turn 13 and 2 daughters ages 18 and 14. He is such a wonderful son who has a great group of friends, it seems no matter where we go someone knows him and acknowledges him. We have a local Karate school here where we live and they have let him come in and work with the MMA fighters they train and he even gets to go along on road trips and help set up the ring and everything. He is mentally now probably at later teen yrs but is always on the go doing things and enjoying life. This was a great link to start thanks for thinking of it.
  • jesusislove1526
    jesusislove1526 Posts: 442 Member
    Hi, my name is Glenda, and I have 6 stepchildren that have special needs. The two that are still living at home are a 16 year old daughter that has ADHD, ODD, depression, and is mildly cognitively delayed, and a 14 year old son that has autistic tendencies, ADHD, aggression, and is moderately cognitively delayed. The other 4, ranging from 15-20 years old, have special needs ranging from ADHD, to anxiety, to moderate cognitive delays. I would love to join the group.
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