Are Dr's telling you that you do not have thyroid problems?
jenniejengin
Posts: 784 Member
I use to take medication for my thyroids being under active. When I moved down south and years have passed, I decided I needed to go get treated, to get back on the meds and the dr's keep saying that I do not have it. I am tired of the dr's. mis-diagnosing my condition. Have any of you suffer with the same situation with your dr's, if so, what did you do? I have more than 2/3 of the symptoms listed below. I am very upset and so ready for treatment. I feel that it is hindering my workouts.
Here is an article that I was reading about hypothyroidism & the symptoms which it can include:
http://www.ask.com/health/channel/hypothyroid_symptoms
Constipation, Weight Gain, Swelling, Dry Skin, Drowsiness, Muscle Weakness, Missed Period, Cold Intolerance, Slow Heart Rate, Menstrual Irregularity, No Menstrual Period, Unintentional Weight Gain, Gap Between Cranial Sutures, Tired, Pain, Depression, Fatigue, Anemia, Headache, Hair Loss, Goiter, General Weakness, Joint Pain, Muscle Pain, Hoarseness, Fluid Retention, Loss of Appetite, Depressed Mood, Swollen Ankle, Dysfunctional Uterine Bleeding, Brittle Nails, Dry Hair, Swollen Feet, Brittle Hair, Swollen Hands, Facial Swelling, Joint Stiffness, Abnormal Heart Rhythms, Pale Complexion, Thick Skin, Change In Bowel Habit, Shortness of Breath On Exertion, Loss of sense of smell. Impaired Sensation, Expressionless Face, Mask-Like Facies, Itching, Severe, Abnormal Sense of Taste, Body Mass Index Over 30, Heart Rate Altered, Difficulty Speaking at Normal Rate.
http://www.ask.com/health/adamcontent/hypothyroidism
Hypothyroidism Health Article
Definition
Hypothyroidism is a condition in which the thyroid gland does not make enough thyroid hormone.
See also:
•Chronic thryoiditis (Hashimoto's disease)
•Subacute thyroiditis
•Silent thyroiditis
•Neonatal hypothyroidism
Alternative Names
Myxedema; Adult hypothyroidism
Causes, incidence, and risk factors
The thyroid gland is located in the front of the neck just below the voice box (larynx). It releases hormones that control metabolism.
The most common cause of hypothyroidism is inflammation of the thyroid gland, which damages the gland's cells. Autoimmune or Hashimoto's thyroiditis, in which the immune system attacks the thyroid gland, is the most common example of this. Some women develop hypothyroidism after pregancy (often referred to as "postpartum throiditis").
Other common causes of hypothyroidism include:
•Congenital (birth) defects
•Radiation treatments to the neck to treat different cancers, which may also damage the thyroid gland
•Radioactive iodine used to treat an overactive thyroid (hyperthyroidism)
•Surgical removal of part or all of the thyroid gland, done to treat other thyroid problems
•Viral thyroiditis, which may case hyperthyroidism and is often followed by temporary or permanent hypothyroidism
Certain drugs can cause hyperthyroidism, including:
•Amiodarone
•Drugs used for hyperthyroidism (overactive thyroid), such as propylthiouracil (PTU) and methimazole
•Lithium
•Radiation to the brain
•Sheehan syndrome, a condition that may occur in a woman who bleeds severely during pregnancy or childbirth and causes destruction of the pituitary gland
Risk factors include:
•Age over 50 years
•Being female
Symptoms
Early symptoms:
•Being more sensitive to cold
•Constipation
•Depression
•Fatigue or feeling slowed down
•Heavier menstrual periods
•Joint or muscle pain
•Paleness or dry skin
•Thin, brittle hair or fingernails
•Weakness
•Weight gain (unintentional)
Late symptoms, if left untreated:
•Decreased taste and smell
•Hoarseness
•Puffy face, hands, and feet
•Slow speech
•Thickening of the skin
•Thinning of eyebrows
Signs and tests
A physical examination may reveal a smaller-than-normal thyroid gland, although sometimes the gland is normal size or even enlarged (goiter). The examination may also reveal:
•Brittle nails
•Coarse facial features
•Pale or dry skin, which may be cool to the touch
•Swelling of the arms and legs
•Thin and brittle hair
A chest x-ray may show an enlarged heart.
Laboratory tests to determine thyroid function include:
•Serum TSH
•T4 test
Lab tests may also reveal:
•Anemia on a complete blood count (CBC)
•Increased cholesterol levels
•Increased liver enzymes
•Increased prolactin
•Low sodium
Treatment
The purpose of treatment is to replace the thyroid hormone that is lacking. Levothyroxine is the most commonly used medication. Doctors will prescribe the lowest dose that effectively relieves symptoms and brings the TSH level to a normal range. If you have heart disease or you are older, your doctor may start with a very small dose.
Lifelong therapy is required unless you have a condition called transient viral thyroiditis.
You must continue taking your medication even when your symptoms go away. When starting your medication, your doctor may check your hormone levels every 2 - 3 months. After that, your thyroid hormone levels should be monitored at least every year.
Important things to remember when you are taking thyroid hormone are:
•Do NOT stop taking the medication when you feel better. Continue taking the medication exactly as directed by your doctor.
•If you change brands of thyroid medicine, let your doctor know. Your levels may need to be checked.
•Some dietary changes can change the way your body absorbs the thryoid medicine. Talk with your doctor if you are eating a lot of soy products or a high-fiber diet.
•Thryoid medicine works best on an empty stomach and when taken 1 hour before any other medications. Do NOT take thyroid hormone with calcium, iron, multivitamins, alumin hydroxide antacids, colestipol, or other medicines that bind bile acids, or fiber supplements.
After you start taking replacement therapy, tell your doctor if you have any symptoms of increased thyroid activity (hyperthyroidism) such as:
•Rapid weight loss
•Restlessness or shakiness
•Sweating
Myxedema coma is a medical emergency that occurs when the body's level of thyroid hormones becomes extremely low. It is treated with intravenous thyroid hormone replacement and steroid medications. Some patients may need supportive therapy (oxygen, breathing assistance, fluid replacement) and intensive-care nursing.
Expectations (prognosis)
In most cases, thyroid levels return to with proper treatment. However, thyroid hormone replacement must be taken for the rest of your life.
Myxedema coma can result in death.
Complications
Myxedema coma, the most severe form of hypothyroidism, is rare. It may be caused by an infection, illness, exposure to cold, or certain medications in people with untreated hypothyroidism.
Symptoms and signs of myxedema coma include:
•Below normal temperature
•Decreased breathing
•Low blood pressure
•Low blood sugar
•Unresponsiveness
Other complications are:
•Heart disease
•Increased risk of infection
•Infertility
•Miscarriage
People with untreated hypothyroidism are at increased risk for:
•Giving birth to a baby with birth defects
•Heart disease because of higher levels of LDL ("bad") cholesterol
•Heart failure
People treated with too much thyroid hormone are at risk for angina or heart attack, as well as osteoporosis (thinning of the bones).
Calling your health care provider
Call your health care provider if you have symptoms of hypothyroidism (or myxedema).
If you are being treated for hypothyroidism, call your doctor if:
•You develop chest pain or rapid heartbeat
•You have an infection
•Your symptoms get worse or do not improve with treatment
•You develop new symptoms
Prevention
There is no prevention for hypothyroidism.
Screening tests in newborns can detect hypothyroidism that is present from birth (congenital hypothyroidism).
Here is an article that I was reading about hypothyroidism & the symptoms which it can include:
http://www.ask.com/health/channel/hypothyroid_symptoms
Constipation, Weight Gain, Swelling, Dry Skin, Drowsiness, Muscle Weakness, Missed Period, Cold Intolerance, Slow Heart Rate, Menstrual Irregularity, No Menstrual Period, Unintentional Weight Gain, Gap Between Cranial Sutures, Tired, Pain, Depression, Fatigue, Anemia, Headache, Hair Loss, Goiter, General Weakness, Joint Pain, Muscle Pain, Hoarseness, Fluid Retention, Loss of Appetite, Depressed Mood, Swollen Ankle, Dysfunctional Uterine Bleeding, Brittle Nails, Dry Hair, Swollen Feet, Brittle Hair, Swollen Hands, Facial Swelling, Joint Stiffness, Abnormal Heart Rhythms, Pale Complexion, Thick Skin, Change In Bowel Habit, Shortness of Breath On Exertion, Loss of sense of smell. Impaired Sensation, Expressionless Face, Mask-Like Facies, Itching, Severe, Abnormal Sense of Taste, Body Mass Index Over 30, Heart Rate Altered, Difficulty Speaking at Normal Rate.
http://www.ask.com/health/adamcontent/hypothyroidism
Hypothyroidism Health Article
Definition
Hypothyroidism is a condition in which the thyroid gland does not make enough thyroid hormone.
See also:
•Chronic thryoiditis (Hashimoto's disease)
•Subacute thyroiditis
•Silent thyroiditis
•Neonatal hypothyroidism
Alternative Names
Myxedema; Adult hypothyroidism
Causes, incidence, and risk factors
The thyroid gland is located in the front of the neck just below the voice box (larynx). It releases hormones that control metabolism.
The most common cause of hypothyroidism is inflammation of the thyroid gland, which damages the gland's cells. Autoimmune or Hashimoto's thyroiditis, in which the immune system attacks the thyroid gland, is the most common example of this. Some women develop hypothyroidism after pregancy (often referred to as "postpartum throiditis").
Other common causes of hypothyroidism include:
•Congenital (birth) defects
•Radiation treatments to the neck to treat different cancers, which may also damage the thyroid gland
•Radioactive iodine used to treat an overactive thyroid (hyperthyroidism)
•Surgical removal of part or all of the thyroid gland, done to treat other thyroid problems
•Viral thyroiditis, which may case hyperthyroidism and is often followed by temporary or permanent hypothyroidism
Certain drugs can cause hyperthyroidism, including:
•Amiodarone
•Drugs used for hyperthyroidism (overactive thyroid), such as propylthiouracil (PTU) and methimazole
•Lithium
•Radiation to the brain
•Sheehan syndrome, a condition that may occur in a woman who bleeds severely during pregnancy or childbirth and causes destruction of the pituitary gland
Risk factors include:
•Age over 50 years
•Being female
Symptoms
Early symptoms:
•Being more sensitive to cold
•Constipation
•Depression
•Fatigue or feeling slowed down
•Heavier menstrual periods
•Joint or muscle pain
•Paleness or dry skin
•Thin, brittle hair or fingernails
•Weakness
•Weight gain (unintentional)
Late symptoms, if left untreated:
•Decreased taste and smell
•Hoarseness
•Puffy face, hands, and feet
•Slow speech
•Thickening of the skin
•Thinning of eyebrows
Signs and tests
A physical examination may reveal a smaller-than-normal thyroid gland, although sometimes the gland is normal size or even enlarged (goiter). The examination may also reveal:
•Brittle nails
•Coarse facial features
•Pale or dry skin, which may be cool to the touch
•Swelling of the arms and legs
•Thin and brittle hair
A chest x-ray may show an enlarged heart.
Laboratory tests to determine thyroid function include:
•Serum TSH
•T4 test
Lab tests may also reveal:
•Anemia on a complete blood count (CBC)
•Increased cholesterol levels
•Increased liver enzymes
•Increased prolactin
•Low sodium
Treatment
The purpose of treatment is to replace the thyroid hormone that is lacking. Levothyroxine is the most commonly used medication. Doctors will prescribe the lowest dose that effectively relieves symptoms and brings the TSH level to a normal range. If you have heart disease or you are older, your doctor may start with a very small dose.
Lifelong therapy is required unless you have a condition called transient viral thyroiditis.
You must continue taking your medication even when your symptoms go away. When starting your medication, your doctor may check your hormone levels every 2 - 3 months. After that, your thyroid hormone levels should be monitored at least every year.
Important things to remember when you are taking thyroid hormone are:
•Do NOT stop taking the medication when you feel better. Continue taking the medication exactly as directed by your doctor.
•If you change brands of thyroid medicine, let your doctor know. Your levels may need to be checked.
•Some dietary changes can change the way your body absorbs the thryoid medicine. Talk with your doctor if you are eating a lot of soy products or a high-fiber diet.
•Thryoid medicine works best on an empty stomach and when taken 1 hour before any other medications. Do NOT take thyroid hormone with calcium, iron, multivitamins, alumin hydroxide antacids, colestipol, or other medicines that bind bile acids, or fiber supplements.
After you start taking replacement therapy, tell your doctor if you have any symptoms of increased thyroid activity (hyperthyroidism) such as:
•Rapid weight loss
•Restlessness or shakiness
•Sweating
Myxedema coma is a medical emergency that occurs when the body's level of thyroid hormones becomes extremely low. It is treated with intravenous thyroid hormone replacement and steroid medications. Some patients may need supportive therapy (oxygen, breathing assistance, fluid replacement) and intensive-care nursing.
Expectations (prognosis)
In most cases, thyroid levels return to with proper treatment. However, thyroid hormone replacement must be taken for the rest of your life.
Myxedema coma can result in death.
Complications
Myxedema coma, the most severe form of hypothyroidism, is rare. It may be caused by an infection, illness, exposure to cold, or certain medications in people with untreated hypothyroidism.
Symptoms and signs of myxedema coma include:
•Below normal temperature
•Decreased breathing
•Low blood pressure
•Low blood sugar
•Unresponsiveness
Other complications are:
•Heart disease
•Increased risk of infection
•Infertility
•Miscarriage
People with untreated hypothyroidism are at increased risk for:
•Giving birth to a baby with birth defects
•Heart disease because of higher levels of LDL ("bad") cholesterol
•Heart failure
People treated with too much thyroid hormone are at risk for angina or heart attack, as well as osteoporosis (thinning of the bones).
Calling your health care provider
Call your health care provider if you have symptoms of hypothyroidism (or myxedema).
If you are being treated for hypothyroidism, call your doctor if:
•You develop chest pain or rapid heartbeat
•You have an infection
•Your symptoms get worse or do not improve with treatment
•You develop new symptoms
Prevention
There is no prevention for hypothyroidism.
Screening tests in newborns can detect hypothyroidism that is present from birth (congenital hypothyroidism).
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Replies
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it is a relatively simple test. either your t levels are within range or they are not. how can a doctor not diagnose it if they give you the test?. usually, it isnt diagnosed because they dont test for it.0
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I wouldn't self diagnose. Get a second and third opinion. But if many doctors tell you you don't have it rejoice! That would be wonderful news!0
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This is the part of the article that gets me:
Expectations (prognosis)
In most cases, thyroid levels return to with proper treatment. However, thyroid hormone replacement must be taken for the rest of your life.
With that being said, my levels can be reading normal, but without meds, I will continue to have the symptoms? Am I reading that right?0 -
I had all the symptoms but tested negative after having been on the medication. I opted to take kelp as a supplement to help with some of the symptoms. There are many vitamin and herbal supplements out there. My issue was solved by changing my diet and taking supplements.0
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Dear hypochondriac,
Thyroid issues are VERY easily identified with a blood test. If multiple doctors have told you your thyroid levels are normal, then I would look into other causes of your symptoms.
Love,
some random person from the internet0 -
My heart dr. keeps telling me to go get my thyroid treated and I keep telling him that they keep saying that I do not have it. Once you have it, it do not go away, I was told? I was on meds for many of years up north. I have to get in touch with my doctors up north, to get release of my medical records and then maybe they will treat me.0
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This is the part of the article that gets me:
Expectations (prognosis)
In most cases, thyroid levels return to with proper treatment. However, thyroid hormone replacement must be taken for the rest of your life.
With that being said, my levels can be reading normal, but without meds, I will continue to have the symptoms? Am I reading that right?
people with a thyroid that isnt performing like it should will have to take meds for their lifetime since the thyroid doenst heal itself. if your levels are in range then your thyroid is working as it is supposed to. a lot of those symptoms are not exclusive to thyroid issues. you could have low iron or maybe hypocondryitis0 -
Why bother listening to professionals when google can diagnose everything for you.
Please, listen to doctor. If you don't trust his judgement, get a second, third, fourth opinion but don't self-diagnose...0 -
My levels are border line low, not quite low enough to require medication according to my Dr. I asked a naturpath at the local health food store (whom I have worked well with in the past along with my GP) about this and she put me on Thytrophen PMG. It is bovine derived and suplements your own thyroid function without shutting it down like synthetic thyroid treatments can. I have been on it for just over a month and am now starting to see wonderful results.
I too had just about all of the symptoms, , the borderline lab results, and a Dr. who tries not to prescribe meds if they aren't 100% necessary. (I really respect her for this and we work well together as she also routinely suggests working with natural substances when it is appropriate, and since she knows that is also what I prefer its a win win. For different patients who won't make lifestyle changes or try natural treatments she will prescribe the meds)
ETA: You may want to try to get ahold of the book "Prescription for Nutritional Healing" it lists dietary changes in there that can be very beneficial for a multitude of ailments, including thyroid issues. Most of the dietary changes for hypothyroid aren't extreme either if I recall correctly...some veggies raw can agravate symptoms so eat them cooked and simple change ups like that, some to avoid and some to concentrate on more etc...0 -
The thyroid actually can self-correct. Mine did after I had half of it removed. After a few months, the other half took over completely and I no longer needed medication.
Are you seeing an endocrinologist? Because sometimes "normal" doctors don't understand which tests to run.0 -
This is the part of the article that gets me:
Expectations (prognosis)
In most cases, thyroid levels return to with proper treatment. However, thyroid hormone replacement must be taken for the rest of your life.
With that being said, my levels can be reading normal, but without meds, I will continue to have the symptoms? Am I reading that right?
people with a thyroid that isnt performing like it should will have to take meds for their lifetime since the thyroid doenst heal itself. if your levels are in range then your thyroid is working as it is supposed to. a lot of those symptoms are not exclusive to thyroid issues. you could have low iron or maybe hypocondryitis
Definitely not hypocondryitis. it was not in my mind when they prescribed me synthroid.0 -
There seems to debate among doctors over the range that is considered "normal". Some people will be at the edge of the "normal" range and have symptoms.
I can't tell from your post if you've seen one doctor or multiple ones. Have you tried an endocrinologist? They'd have more knowledge regarding thyroid disease than a general practitioner.0 -
Dear hypochondriac,
Thyroid issues are VERY easily identified with a blood test. If multiple doctors have told you your thyroid levels are normal, then I would look into other causes of your symptoms.
Love,
some random person from the internet
Hahaha.
Sorry.. *Clears throat* .. Moving along.0 -
The thyroid actually can self-correct. Mine did after I had half of it removed. After a few months, the other half took over completely and I no longer needed medication.
Are you seeing an endocrinologist? Because sometimes "normal" doctors don't understand which tests to run.
No I am not seing one, but I will be looking into it. thanks.0 -
In all seriousness.. Were you taking Synthroid when you had the blood test done? If so, of course it's going to look like your levels are within range.
Edit: Not trying to call you out and say YOU are stupid, but if your doctor missed that "small" detail, I'd palm him in the forehead and get a new doctor.0 -
Dear hypochondriac,
Thyroid issues are VERY easily identified with a blood test. If multiple doctors have told you your thyroid levels are normal, then I would look into other causes of your symptoms.
Love,
some random person from the internet
Only if they use the right blood test. T4, in acceptable range-- been feeling awful for years. No one tested my T3, which was abysmal. Now I'm on meds for that, and I'm feeling somewhat better.
I definitely vote for an endocrinologist.0 -
In all seriousness.. Were you taking Synthroid when you had the blood test done? If so, of course it's going to look like your levels are within range.
and if you were on synthroid, why were you taken off it?0 -
I definitely vote for an endocrinologist.
Hands down, this.0 -
There is actually more than one test they can do. I'm normal under one, but the under the other (the less common test) I'm in the hypo range. Additionally, 'normal' is a range and if you're borderline, you still may not feel right.
Get your records and get a second opinion, preferably with an endocrinologist. Good luck.0 -
Def go see an Endocrinologist. My SIL had her levels checked by her primary doctor and was told they were normal. She happened to end up in the hospital with a hyenial hernia and stomach ulcers and they had an Endo come in and she def had thyroid problems. They told her that even though the tests my look normal to a regular doctor they may actually be off.0
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There are many people who claim to have hypothyroid symptoms with a normal TSH. Go to stopthethyroidmadness.com or check out Mary Shomon's About.com section on thyroid. She's written many books on the subject and is very aware of thyroid problems. Often times, it requires a full thyroid workup to get you the answers you need. Don't be afraid to ask for this from your doctor which includes TSH, T3, T4, and TBO, along with a test for cholesterol (fasting required). Do not give up until you have those numbers. If those numbers all come back clear, you can then trust them because they'll give you a better overall picture of your thyroid health.
I had been diagnosed as having subclinical thyroiditis caused by viral thyroiditis originally at age 19. When I went back to my doctor to treat it after not treating it for a few years (age 23), I was surprised to know I had more than just an acute thyroid issue but full on Hashimoto's thyroiditis. I had no other symptoms but being cold, fatigue and dry skin, which I still have. After treatment of two years and a significant weight loss, my TSH is still not in the correct range.0 -
Def go see an Endocrinologist. My SIL had her levels checked by her primary doctor and was told they were normal. She happened to end up in the hospital with a hyenial hernia and stomach ulcers and they had an Endo come in and she def had thyroid problems. They told her that even though the tests my look normal to a regular doctor they may actually be off.
Thank you so much.0 -
There is actually more than one test they can do.
Correct. There are many, many tests involving thyroid function.. Not just limited to Thyroid-stimulating hormone (TSH), Free and Total T4, Free and Total T3.
Most doctors do the basic Thyroid panel and stop there. This is why we emphasize the endocrinologist.. They dig deeper.0 -
Dear hypochondriac,
Thyroid issues are VERY easily identified with a blood test. If multiple doctors have told you your thyroid levels are normal, then I would look into other causes of your symptoms.
Love,
some random person from the internet
Only if they use the right blood test. T4, in acceptable range-- been feeling awful for years. No one tested my T3, which was abysmal. Now I'm on meds for that, and I'm feeling somewhat better.
I definitely vote for an endocrinologist.
And, not to mention, the "normal" ranges are big enough to drive a Mack truck through.0 -
I was on meds over 15 years ago, when they first diagnosed me with it. I have not been on meds over 13 years. I will look into all of your advice. thanks for the info.0
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To those who think that it is as simple as reading a blood test... IT ISN'T.
The threshold for "normal" has been recently changed within the past few years, and not all doctors are actually aware of this. I also vote for an endocrinologist, who is more likely on top of recent updates and treatment options.0 -
I was on thyroid medicine for two years, then my insurance got cancelled and I couldn't afford the appointments or meds anymore.
Three years later, I got insurance. I went back to the doctor for a follow up due to another issue and voiced my opinion on the thyroid issue and she had a TSH level ran. I was dumbfounded when it came back normal.
I went to the OB/GYN for a check up a few weeks later and she wanted to run it again. My levels came back at almost an 8. Which is bad. I got the results sent to my primary care physician and she started me on meds immediately.
She didn't understand why they came back normal. Then I read an article on testing and it clicked. I had been in the ER two days before my initial thyroid test with pleurisy. They ran a CT scan with contrast dye. That will throw a thyroid test off. Radiation treatments are an extreme treatment for thyroid issues. That is why my test initially came back normal. I called the doctor and apologized for not mentioning the CT scan and she apologized for not checking my ER records.0 -
I really do not understand why people would take someone's post and try to make a mockery of it. I am far from being a hypochondriac. But for all of you who choose to be insensitive to someones problem, by all means, feel free to do so, I will not feed into it.0
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I had mine checked by my primary doc a year ago and it came back on the low end so she prescribed me synthroid. I had a bad reaction to a different medication and she told me to stop taking both. Went to an endocrine doc who ran a more extensive test and results came back on the hypo end again. Nothing was done about it since I was diagnosed with PCOS and pre-diabetes which I guess seemed more important to treat at the time. Then months later I was rechecked again by my primary doc and she told me my thyroid was fine. I had so many other issues going on last year that I gave up on it. Once you are hypo there is no turning around... so I just don't get it.0
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Very very interesting about the CT scan!!0
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