Do you know anyone with Down's syndrome?

RaqibMarvelous
RaqibMarvelous Posts: 47
edited December 2024 in Chit-Chat
My younger sister, 16 years old, was born with Down's syndrome. She's very smart, but has major behavior issues, as to be expected from someone with Down's syndrome.

It's very heart breaking for me as her brother, she's gone through a lot. She's very obese for her age, she has some Chromosomal disorder that makes her gain weight much quicker than she can lose it, has no self control when she eats, and has diabetes (though, I'm uncertain of which type)

She gets very aggressive at school, and her "special school" has a hands-on program that allows them to restrain and attack any student that is seen as a threat. She's unfortunately lost one of her front-teeth because she was thrown to the ground face-first by a security guard.

Do you know someone who is also suffering from Down's syndrome?

Replies

  • LaMujerMasBonitaDelMundo
    LaMujerMasBonitaDelMundo Posts: 3,634 Member
    I'm so sorry to hear about your sister. That special school is ridiculous, it is supposed to help those kids with mental disabilities & not to treat them worse like an animal. They shouldn't promote violence on attacking students no matter how "threatening" they are. You better off transferring her to a much better special school where she will be treated with respect.
  • I'm so sorry to hear about your sister. That special school is ridiculous, it is supposed to help those kids with mental disabilities & not to treat them worse like an animal. They shouldn't promote violence on attacking students no matter how "threatening" they are. You better off transferring her to a much better special school where she will be treated with respect.

    My parents have been looking into finding a new school for her, but the problem is, they can't find any. The one she currently goes to is 40 minutes away, so I think that says a lot about the availability of her schooling options... I wish there was an alternative for her though.
  • Jani2416
    Jani2416 Posts: 275 Member
    My nextdoor neighbour's daughter has DS, she is the most loveable child I have ever met. I know that she is in a regular school, but in special classes.
  • Melanie_RS
    Melanie_RS Posts: 417 Member
    I'd suggest your parents fight for her to go to a regular public school --- there's no reason she cannot attend and then have a behavior plan for her school day - there are so many options. One that does not include the adults losing control and using aggressive tactics. That's abusive and I would almost guess illegal. Especially on someone with a disability!!! Very sad to hear this :(
  • Cliffslosinit
    Cliffslosinit Posts: 5,044 Member
    Sorry to hear of the abuse on your sister.
    All a child with DS knows is love and that is all they should be exposed to.
    My nephew is in early 30's now.
    He went to a school in Pauls Valley, Okla.
    Worked out great for him.
    He now lives in a group home and works in a bicycle shop.

    Do some research, there are great places and people out there!
  • LaMujerMasBonitaDelMundo
    LaMujerMasBonitaDelMundo Posts: 3,634 Member
    I'm so sorry to hear about your sister. That special school is ridiculous, it is supposed to help those kids with mental disabilities & not to treat them worse like an animal. They shouldn't promote violence on attacking students no matter how "threatening" they are. You better off transferring her to a much better special school where she will be treated with respect.

    My parents have been looking into finding a new school for her, but the problem is, they can't find any. The one she currently goes to is 40 minutes away, so I think that says a lot about the availability of her schooling options... I wish there was an alternative for her though.
    I remember when I was still a student way back in the 80's (yeah I'm too old now), the regular school that I attended has a special school for those students with disbilities. We interact with them 2-3 times a week. Perhaps you inquire some regular schools if they have something like that.

    EDIT: added the quote
  • amivox
    amivox Posts: 441 Member
    Wow, I don't know where you are from, but special education schools are a dime a dozen around here. I can't believe she has to go through that. I don't know anyone with Down's, but my brother had a learning disability, a mental disorder, and is also epileptic so he had to go to a special school. He has bad aggression problems and sometimes had to be restrained, but they never abused him. I would contact the government or something cuz that sh.its crazy.
  • MeadowSong
    MeadowSong Posts: 171 Member
    My uncle had Down's. They were a farm family and he always had work to do. He was probably about the level of a first grader, but back then (he was born in the 20's) they didn't try to teach them anything, so it's hard to say by today's standards. I would think he would have been able to read. His vision was bad--thick glasses and he was a bit clumsy, and plump--like most Down's. But oh, so, loved. Probably half the town was at his funeral. Probably more.

    In today's world, things in many ways are much harder--they DO remain very much children as adults, and must have some level of supervision. And they need time to play and learn throughout their lives. A Down's boy I know now was "graduated" out of the public school when he aged out at 18 and his parents had to find a place for him while they worked. They found a work center where he has a job that he loves, but it's an hour away. So his father is able to work in the same area and they commute together. Hang in there. Love her. Do you pray? God loves Downs folks you know, He looks at the heart. You can find a way. And love your parents. I am always SO encouraged when my children notice and reach out to each other, and especially when I'm having a struggle and they notice. I would imagine your parents are at wit's end, as you seem to be. You can find a way to make things work, but it may not be easy at all. It will be worth it when you get the situation working like it needs to be, and you can relax knowing she's safe when you all have to be gone and enjoy her when you're around.
  • RDalton84
    RDalton84 Posts: 207
    I have a sister with Down's Syndrome and she is 30 and when she was in school she attended the regular public school but was in special classes. Their is legislation that was passes a long time ago guaranteeing all children regardless of disability be allowed to attend public schools. We have a Special Education Co-op that handles all of the special education needs for all of the schools in the county that I live in and they do a fantastic job with the kids. Maybe that is an option for your sister? I always feel so sorry for children with special needs being mistreated because they are already so vulnerable. Good luck with your situation.
  • dhakiyya
    dhakiyya Posts: 481 Member
    I worked in a special school for teenagers for a short while, where they used restraining techniques where necessary and I was even trained in a couple of them. I honestly don't know how on earth she ended up being thrown face down on the ground by a security guard, what I was trained in was nothing like that at all, it was all very gentle and involved special techniques to restrain someone and keep them in one place, none of it was attacking the person or throwing them around.

    I'm not that experienced as I was a substitute teacher there as opposed to permanent, but honestly what you say sounds totally wrong and your family should investigate.

    If you're in the UK, the law requires them to fill out an incident form for any injury to staff or students, and if you're not in the UK I'd be surprised if it was any different where you live.
  • HauteP1nk
    HauteP1nk Posts: 2,139 Member
    I am so sorry to hear about your sister. That is a tough life - for both her and your family.

    My coworker's grandson has down syndrome. I have met him and he was a sweet boy. However, there were lots of changes in his life over the last few years and now he has major violent outbursts. His father recently put him in a home for children with special needs. I am not sure what will happen once he turns 18 next month though...if he will get to stay where he is or be moved to a different home. I know that people with down syndrome don't always deal with change very well.
  • I am so sorry to hear about your sister. That is a tough life - for both her and your family.

    My coworker's grandson has down syndrome. I have met him and he was a sweet boy. However, there were lots of changes in his life over the last few years and now he has major violent outbursts. His father recently put him in a home for children with special needs. I am not sure what will happen once he turns 18 next month though...if he will get to stay where he is or be moved to a different home. I know that people with down syndrome don't always deal with change very well.

    Whenever ANYONE suggested giving my sister away, my mom is the one that got violent. My mom would give up all her limbs before giving my sister away. I really don't think homes for children with special needs should be viable options unless the parents themselves are abusive. Was that the case with the father? If it was just the child, surely there were ways to calm him down?
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