Chronic Fatigue Syndrome

My doctor told me I had CFS when I had glandular fever in 2010, however I just thought it went away after you recuperated... Apparently you don't haha! I just thought I was lazy and slept a lot. I normally go to bed at 10/10:30 and wake up at 8, which is approximately 10 hours worth of sleep. I get ready for school, stay till 4, then go home again. most days I nap when I come home because I feel dead on my feet. Other days, I have to work till 10pm and when I come home I sleep straight away, then nap as soon as I come home the next day. I'm lucky because I have to walk to school (15 mins) which is how I get my exercise, but I have to admit exams are hard when you sleep for the majority of the 24 hours you have in a day...

I thought I had this. Then last Winter came along, and it got cold, and suddenly I had energy for miles even though I was incredibly obese and out of shape.

So in my case, it's allergy related, with maybe some heat intolerance issues (not sure if that is even a real condition, I just know that when it's hot, I'm drained!).

Just posting this in case any of you guys have environmental triggers. I'm also extremely sensitive to things like cleaning products and perfumes.

I have been diagnosed with CFS or M.E for the last 7 years. Would love some friends in the same boat? Please feel free to add best wishes Mikaela xxx

I was diagnosed with CFS 19yrs ago ~ I went from being a single mom working 2 jobs (senior citizen home & daycare) to not being able to work at all. They listed Mono then CFS and said I would just have to adjust to it. I found that there are highs & lows with it ~ the highs ~ I worked the lows I got real sick with it which led to being diagnosed with IBS, GERD, Asthma and Fibromayalgia. I was sent to a psych dr to "help me accept the fact I would never work again" I WALKED OUT!!

After all these years of highs (fully functional ~ wife,mom,work) and lows (able to do VERY little) I have found that when I eat healthy and try and stay active.....I do better. I have done alot of research White flour and processed carbs make fibro/CFS worse and I change my sttings to be 30% carbs; 30% fat; 40% protein tnad "aim" for that each day as suggested by the researchers. It has truely helped!!

Catch 22 ~ we need to stay active however if we overdo it we will not be in any shape to be active for a while afterwards. Gives a whole new meaning to after exersize soreness!! LOL I have found my glitche that works for me "water" I work out in the water it takes the shock out off of the muscles ~ I tread water, water jog, calestenics in water, some laps swimming but it wears me out fast. Walking has helped too but I have to do little walks to build up endurance to the mile or 5K.

Eating healthy ~ water work outs have helped me feel better, and lose 28lbs so far since the end of May. (I also found over the years of weight being up & down~ I was in less pain and fatigue when I was carrying less weight around) Now that being said ~ I still have days (2 this past week) that I am not able to function.....this however frustrating that it is, is getting better so I look at what I CAN DO and not what I CAN'T!!

I am going to start a group for "CFS / Fibromayalgia Winners" ~ I want it to be positive support for each other we have enough of the suffering.....we are going to be winners together!! How about it? Who's in??? After I start it I'll come back and post where it is....be patient with me this starting a group is a new adventure for me!! :happy:

Hi all- I was diagnosed 15 years ago with fibromyalgia. My doc has realized that was probably a misdiagnosis that should have been cfs. My main symptom is the fatigue and lack of concentration. The pain comes and goes and appear to be attributed to something different. I know how hard it is to be active without overdoing it. I joined a group awhile back-Dieting with cfs/fibromyalgia. it's a bit inactive, but I'm sure some new blood would get things moving.

http://www.myfitnesspal.com/groups/home/2605-dieting-with-cfs-fybromyalgia

Hi people, I realise this is a very old thread but I was wondering if any of you with CFS or anyone new to this thread has any advice/wants to be friends on here.

A little over a year ago I was a highly competitive mtber and long distance runner. I have always gone through periods of fatigue with my tendency to overdo things. Normally when I backed off I came right. Last year, I started getting really sick mid-way through race season. I was fatigued, dizzy/light-headed, nauseous etc. I got to the point where I couldn't stand for more than 15minutes. After battling with the doctors to explain that I wasn't overtrained, I wasn't just depressed etc. Finally 1 doc took me seriously and referred me to a specialist and I was diagnosed with chronic fatigue syndrome. I have not been able to exercise or function consistently for over a year. I have got to a point where I have learnt to 'manage' it. I am getting by but only just and I miss my exercise! I have gained a significant amount of weight in that year and getting really frustrated that I can't really use exercise to help me lose it.

Would be really keen to hear others experiences, suggestions, ways to cope etc.

I was officially diagnosed in 2007 with what my rheumy declared a "textbook case of severe Fibromyalgia Syndrome." My worst symptoms, are, to me, the fatigue that never really goes away, plus the neurological deficits...I can relate to the poster who stated they know what they want to say but can't find the words. I have memory loss issues for recent events, yet I can remember people and events from 40 years ago quite clearly. Also, for some reason, my handwriting ranges from fine to what looks like a 6 year old's. I drop things constantly and have balance issues. I take a few falls a year. A couple of yrs ago my foot just seemed to slip out from under me in a Walgreens. Contents of my purse strewn all over the floor. And here's this fat woman trying to get up and you think anyone would help? I've turned invisible since I've gotten older and especially since I've gained the weight. Hello? I am a person! I believe that we are not just bodies with souls. We are first and foremost, souls with bodies...yet I transgress...as usual.....

As far as the fatigue...my doc's only advice is to force yourself to move or you will just stop altogether. I admit though, when I get FMS flareups, I literally cannot get out of bed. I can sleep, without the help of medication, for over 24 hours.Then I wake up feeling as exhausted as when I fell asleep. I've been on Provigal which is a med for narcolepsy and it's too darned expensive and my insurance won't pay for it, plus it just makes me wired and tired. The only med that has helped me with the FMS is Lyrica. When I don't take it my entire body aches like I have the flu. I described it to my doctors as feeling as if I had been hit by a bus...well maybe a compact car...but you get the idea. Still, I cannot enjoy myself sitting in a movie theater. It's torture to me. Long car trips are torture to me.

Many people do not understand how badly having FMS or CFS can affect your life. I have heard from a few people that I don't "look sick" or that "it can't be that bad, buck up". What I am trying to do, after years of merely surviving and not enjoying life all that much is I made the decision that while the medical community has relieved many of the FMS symptoms, they have not succeeded in making me feel like a normal human being. Until they come up with a definitive cause, a diagnostic lab test and a cure, I have no new star to hook my chain to, so the best I can do is to try and get healthier. I can't do step aerobics for an hour, but I push myself by walking either outside or on the treadmill. I can't do it every day, so I set my goals to do it 2-3 times per week. I won't lie. Some days it feels like torture and I sit here for hours and tell myself to just get my fat @ss up and walk for 15 lousy minutes. Some days are better. It only takes me an hour to drag myself to the treadmill. But it IS getting better, slowly but surely. I gained all this weight because of meds and an addiction to Coffeemate French Vanilla creamer. I was drinking tons of coffee for the energy but I couldn't stomach the coffee without the creamer. I generally only eat dinner. That's it. So I could not understand why I was so fat. When I started tracking my caloric intake on here I was blown away by the amount of calories I was drinking. TONS of sugar mostly. So I only allow myself a couple of cups of java a day now (instead of 6-8), still live on 5 hour energy, losing weight at 1-2 lbs a week so far, and I am hoping this is going to alleviate a lot of the physical symptoms. At least being thin again will take all the pressure from my knees which both need to be replaced within the net decade.

Sorry for the long diatribe. While I am not happy any one else suffers with CFS or FMS it's better to not feel so alone at times.

Hello all! If you're interested, there is a group for CFS/ME/Fibro sufferers: http://www.myfitnesspal.com/forums/show/2622-dieting-with-cfs-fybromyalgia

Losing weight and trying to stay active is really difficult, but I think as long as you know your limitations and stay within them, you're still progressing. I've been officially diagnosed with CFS/ME for 2 years now, but I've had the symptoms for 5 years now. Overdoing it is my weakness...I try to do a lot more than my body can handle, and it backfires on me and causes relapses and flare-ups. I don't really have any suggestions or tips, but there are more people in the group that might have some for you.

Praying for all of you!

I myself do not have Chronic Fatigue Syndrome or Fibromyalgia but I am a chiropractor and if you were my patient I might recommend (in addition to a healthy diet, the right kind of exercise and chiropractic treatments) a supplement called Lauricidin which can be purchased on-line at www.lauricidin.com for about $40 for a 30 day supply more or less depending on how much you take. Lauricidin is Lauric Acid, a fatty acid (derived from coconut but also found in mothers milk) bonded to a glycerin molecule creating a new molecule called Monolaurin. This fatty acid, Lauric Acid, has the ability to bond with bi-lipid membrane of numerous invading bacteria, viruses and fungus, disrupting that membrane and making it easier for the body's defenses to destroy it. I have had very positive feedback on Lauricidin helping to control thrush, herpes,cold sores and my mom who just started taking it says she just feels a lot better. Chronic Fatigue and Fibromyalgia are two those mystery diagnosis that confuses everyone but might be caused by a virus. Give it a try. Try it for 3 months and see how you feel. It will not hurt you. It will add about 30 calories/teaspoon to your calorie count. I take it to keep from catching every cold or flu that walks into my office and so far have stayed cold and flu free for two years (knock on wood). I give it to my cat who has Feline immune deficiency syndrome and he's fat and happy. Go to www.pubmed and put Monolaurin into the search engine and read the numerous articles published. When I first heard of Lauricidin I thought they were just a little proud of themselves but after looking around pubmed I thought it would be worth a try and have been very pleased with the results.
So like I said, it might be worth a try - it is not toxic - if you benefit keep taking it.
It comes in a waxy pellet form. Take these pellets with a meal ( a real meal you have to have digestion up and running to absorb it) take it with cold or room temperature water or a cool beverage. Do not chew it do not take it with something warm for you will discover that fat and glycerin is basically soap and it will taste like soap and you will never chew it again.

Hand soap kills bacteria on your hands the same way, disrupting the membrane of the bacteria .

And never underestimate the power of a healthy diet and exercise.


PS: I have not a stockholder in Lauricidin and it is NOT a multi level marketing company.