Don't know what to do now...
Options
Replies
-
RebeccaChemmy wrote: »FatFreeFrolicking wrote: »This is a red flag. If a doctor tells you you are too young for surgery, you definitely need to get another opinion. I would contact the Mayo clinic.I've been told second opinions are a great thing.
second the second opinion.
also- there is no way zumba is going to work for you if you have a leaking problem that allows you not to lift.
I mean- I get it- bracing causes leakage- even with people who have no problems and slap on a belt it's going to happen... but - zumba involves jumping.
no way lifting is harder on you than that is.
I'd be seeing other professionals- if they can't fix the problem with that they are doing- they need to do something else- and that may mean surgery. Push the issue.
I'm in the UK. I assume the Mayo clinic is in America, right? My doctor and physiotherapist say that I shouldn't be having surgery because if I decide to have kids it will completely reverse it, I could end up needing catheters for life, etc. Also, it's very hard to get different doctors here. I'd have to go through the whole waiting times and stuff all over again.
What kind of doctor do you see?
Also, do you take any medications for your incontinence? If your doctor refuses to perform surgery on you, there are other options including medicine, biofeedback, and various pelvic exercises (i.e. kegels).0 -
DjinnMarie wrote: »I'm just going to put this here.
http://breakingmuscle.com/womens-fitness/more-squats-and-fewer-kegels-what-your-pelvic-floor-really-wants
I shall read this when I've done some revision for uni, but thanks for the link.
In the past 10 minutes I've decided I'm not going to stop now. If I'm going to have this problem, I may as well look good and have it, right?FatFreeFrolicking wrote: »What kind of doctor do you see?
Also, do you take any medications for your incontinence? If your doctor refuses to perform surgery on you, there are other options including medicine, biofeedback, and various pelvic exercises (i.e. kegels).
I have seen GPs, paediatricians, gynaecologists, urologists and this physiotherapist. They all say the same thing.
I'm trying out a fourth medication right now which helps with the urgency side of my problem but not so much the stress side of things. I think they keep sending me back to the physiotherapist for the pelvic exercises.0 -
RebeccaChemmy wrote: »DjinnMarie wrote: »I'm just going to put this here.
http://breakingmuscle.com/womens-fitness/more-squats-and-fewer-kegels-what-your-pelvic-floor-really-wants
I shall read this when I've done some revision for uni, but thanks for the link.
In the past 10 minutes I've decided I'm not going to stop now. If I'm going to have this problem, I may as well look good and have it, right?FatFreeFrolicking wrote: »What kind of doctor do you see?
Also, do you take any medications for your incontinence? If your doctor refuses to perform surgery on you, there are other options including medicine, biofeedback, and various pelvic exercises (i.e. kegels).
I have seen GPs, paediatricians, gynaecologists, urologists and this physiotherapist. They all say the same thing.
I'm trying out a fourth medication right now which helps with the urgency side of my problem but not so much the stress side of things. I think they keep sending me back to the physiotherapist for the pelvic exercises.
Honestly, just wear an adult diaper while you lift and do other exercises. No one will know! That might help with the stress that comes with incontinence. If you leak, no worries… the diaper will absorb it so you won't have to worry about your pants getting wet, people seeing, etc.
Continue doing the exercises even when you are not at PT.0 -
RebeccaChemmy wrote: »DjinnMarie wrote: »I'm just going to put this here.
http://breakingmuscle.com/womens-fitness/more-squats-and-fewer-kegels-what-your-pelvic-floor-really-wants
I shall read this when I've done some revision for uni, but thanks for the link.
In the past 10 minutes I've decided I'm not going to stop now. If I'm going to have this problem, I may as well look good and have it, right?FatFreeFrolicking wrote: »What kind of doctor do you see?
Also, do you take any medications for your incontinence? If your doctor refuses to perform surgery on you, there are other options including medicine, biofeedback, and various pelvic exercises (i.e. kegels).
I have seen GPs, paediatricians, gynaecologists, urologists and this physiotherapist. They all say the same thing.
I'm trying out a fourth medication right now which helps with the urgency side of my problem but not so much the stress side of things. I think they keep sending me back to the physiotherapist for the pelvic exercises.
I went through a neuro surgeon, a orthopedic surgeon, 2 pain management doctors and 3 physical therapists before finally getting some relief. Which the 3 rd physical therapist finally gave to me.
Neuro said he couldn't help me. Orthopedic wanted to fuse my pelvis together, 1st pain management doc gave me multiple steroid injections and literally burned my nerves in my right pelvis away. They grew back. My second pain management doctor wanted to give me a nerve stimulator implant in my spinal cord. I did the trial and signed up for the surgery but my husband deployed. My first two PTs told me we need to stabilize my pelvis before strengthening, or I would do damage. It never stabilized. My third said let's try strengthening before stabilizing. Well it's still not stabilized, but strengthening and lifting keeps it in check.
I went from assisted squats with a cane, and walking with a cane, to squatting one and a half times my body weight, pain med free, and comfortable.
0 -
You're a trooper.0
-
FatFreeFrolicking wrote: »Honestly, just wear an adult diaper while you lift and do other exercises. No one will know! That might help with the stress that comes with incontinence. If you leak, no worries… the diaper will absorb it so you won't have to worry about your pants getting wet, people seeing, etc.
Continue doing the exercises even when you are not at PT.
I already have incontinence pads on 24/7. Wearing a full on nappy would be too much.
Man, it's *kitten* embarrassing buying them though! Thank you to the genius who invented self scan machines at shops!DjinnMarie wrote: »I went through a neuro surgeon, a orthopedic surgeon, 2 pain management doctors and 3 physical therapists before finally getting some relief. Which the 3 rd physical therapist finally gave to me.
Neuro said he couldn't help me. Orthopedic wanted to fuse my pelvis together, 1st pain management doc gave me multiple steroid injections and literally burned my nerves in my right pelvis away. They grew back. My second pain management doctor wanted to give me a nerve stimulator implant in my spinal cord. I did the trial and signed up for the surgery but my husband deployed. My first two PTs told me we need to stabilize my pelvis before strengthening, or I would do damage. It never stabilized. My third said let's try strengthening before stabilizing. Well it's still not stabilized, but strengthening and lifting keeps it in check.
I went from assisted squats with a cane, and walking with a cane, to squatting one and a half times my body weight, pain med free, and comfortable.
This just made me feel really sad for you. No one should have to go through that many people! But I'm glad you feel much better now!
Meh, I'll just keep doing what I'm doing. I'm not dead yet so it's aaaaaaall goooooood. 0 -
It may be worth considering going private. My mum was passed from pillar to post for about three years with no one really committing to a fix (aka something expensive the NHS don't want to cover). Eventually I convinced her to just go private for the issue. The problem was resolved in a month.
Now, I'm not knocking the NHS. Its an amazing privilege to have such a service available. However, sometimes, with something so specialised, its worth going private especially as you are so young. Its worth investing in your quality of life.0 -
My point in sharing all that was.... Get a second opinion, or a third. Doctors aren't omniscient beings. They are fallible.0
-
FatFreeFrolicking wrote: »I've never heard of any "lady problem" that stops someone from being able to lift and run.
I would get a second or third opinion.
^This. I work in medicine and am yet to meet a doctor, or a PT for that matter, that knew anything at all about lifting weights. They don't know about it so they fear it and tell everyone to stop doing it.0 -
Maybe that's not true. A recent blig post of Bret Contreras (easy to find on google) surprised me by reporting that high rep lower weight wasn't all that useless.RebeccaChemmy wrote: »Well, I'm sorry to hear that. Kind of unusual, to me anyway. It seems odd that you can do cardio-type of exercise but can't lift weights. Then again, I don't know your exact issue and certainly am not trying to pry.
Have you had the same doctor and/or the same diagnosis for those 17 years? I agree with a 2nd opinion or perhaps a different approach to handling it. Either way, I hope you are able to feel better soon!
I think she was getting at doing cardio that doesn't put stress on the pelvis, which was why she was keen to get me to do swimming. Maybe I'll have to, but that doesn't mean I'll enjoy it.
I've had different doctors over the years but the same diagnosis.A quality physio would be able to give you precise details on how long an expected course of treatment is, potential impacts to your life, and should be competent enough to discuss how to modify or adjust current activities in order to continue with them, unless they'd be deleterious in effect to an overall sound structure.
Find that physio.
To be fair to her, she couldn't do an examination because it's my lady week. So far the methods she's tried haven't worked but that doesn't mean she's just giving up. She's figuring out new things to try.
And she said with weights I could go lighter with more reps but when the goal is to get stronger that's not really going to help...
0 -
Give yourself a 3 or 4 month break and see how things go. I truly would hold off the lifting until you get yet another opinion and/or try the squatting that has been recommended ( I body squat quite a lot and at 61 I am relieved to read it is going to help keep my waterworks in good working order)
Do try Zumba, I have just finished my first session and it is hilarious, already signed up for the session! You can avoid any jumps that are contra- indicative to your condition.
-
I also do Zumba Toning ( their term not mine) with hand weights, and aquafit.
Not what you want to do, but really funny experiences for you to try.
Cheers, h.0 -
I think you should listen to your PT and consultant. Sure, get another opinion in the private sector if you want. But they've 1) seen you and 2) have the knowledge to treat you, and no one here has.
You can improve your muscle strength and size with high-rep workouts:
* Low-Load High Volume Resistance Exercise Stimulates Muscle Protein Synthesis More Than High-Load Low Volume Resistance Exercise in Young Men (this is at 30% of max load, to failure, in young men)
* Resistance exercise load does not determine training-mediated hypertrophic gains in young men (this is 3 sets of 30% of max load, young men again
)
* Bret Contreras' Jane Fonda Experiment (mentioned above)
Why not see how far you get with the activities your PT has okayed?0
Categories
- All Categories
- 1.4M Health, Wellness and Goals
- 391.6K Introduce Yourself
- 43.5K Getting Started
- 259.7K Health and Weight Loss
- 175.6K Food and Nutrition
- 47.3K Recipes
- 232.3K Fitness and Exercise
- 393 Sleep, Mindfulness and Overall Wellness
- 6.4K Goal: Maintaining Weight
- 8.5K Goal: Gaining Weight and Body Building
- 152.7K Motivation and Support
- 7.8K Challenges
- 1.3K Debate Club
- 96.3K Chit-Chat
- 2.5K Fun and Games
- 3.3K MyFitnessPal Information
- 23 News and Announcements
- 938 Feature Suggestions and Ideas
- 2.3K MyFitnessPal Tech Support Questions