Leaky gut
ydyms
Posts: 266 Member
I have a leaky gut and suffer terribly from stomach pain and constipation. So now the scale showed a 4 lb gain and I know it's bloat. I feel so frustrated and feel like giving up. Anyone had a similar experience and pulled through?
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Replies
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See a dr , try the FOODMAPS elimination diet , sounds like there may be some foods your tummy does not cope with at all. If you have recently made changes to your every day diet , added in new foods or much larger amounts of a food you ate very little of you may have an intolerance to something you were not aware of .
The reaction could be to anything ! "Healthy "or "junk food" .
I often find peppermint or chamomile tea help to settle things a little while I work out what I ate to set it off.
For me triggers are gluten and wheat products , and excess of the cabbage/broccoli family stress will exaberate it as well.0 -
I used to have similar problems. A better diet helped a lot. Cutting down on coffee and drinking more water most likely the reason, but an overall reduction of everything didn't hurt either.0
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Yes, I just did a food sensitivity test, a blood test that determined which foods/supplements/herbs I reacted to. They are referred to as "intolerances." It's not allergy testing (a much stronger and sometimes dangerous reaction). I was really surprised to what I was actually intolerant. I've eliminated those, going on 3 weeks now, and am very happy to finally (!!!!!) have a peaceful gut.
It's nice to have actual lab results, instead of guessing.
The test I did was called ALCAT, although I'm sure there are other companies.
BTW....how do you know you have leaky gut?
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You know it's bloat, NOT FAT, so there's no reason to be discouraged about the scales. Hope you feel better soon.0
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'Leaky gut' is a complete myth. If your gut leaked you'd be in the hospital with blood poisoning! Sounds like you have a food intolerance. I agree with those that suggested trying an elimination diet to test what triggers it. Might be IBS.0
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Please see a medical doctor about your symptoms. Leaky Gut isn't a recognized ailment and the only people who will tell you otherwise want to sell you 'remedies' for this non-existent 'condition.'
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I have a leaky gut and suffer terribly from stomach pain and constipation. So now the scale showed a 4 lb gain and I know it's bloat. I feel so frustrated and feel like giving up. Anyone had a similar experience and pulled through?
draxe.com/4-steps-to-heal-leaky-gut-and-autoimmune-disease/
@ydyms I was in the same boat for 40 years. Well most anyone who is obese with other health issue is in the same boat I now read. My major issue was arthritis and the pain was so bad two doctors wanted me to start Enbrel injections for pain manage last year.
I seriously plan to live to be 110 and that was not going to happen with my immune system beat down with something like Enbrel for pain. 30 days before I was to start Enbrel injections in disgust I stopped eating any/all forms of grains and well as added sugars to the point my total daily carbs were <50 grams.
30 days later my subjective pain levels of 7-8 dropped to 2-3 pain levels. A year later I still have good pain control by diet only. At the time I did not know most health issues are caused by a leaking gut or can lead to a leaking gut.
After 40 years of yo-yoing weight I finally learned until I got my leaking gut fixed/healed by eating the right foods and leaving off the wrong foods that weight was going to be an issue until death. For over a year now I have added 5 tablespoons of coconut oil to my first cup of coffee. I expect its healing influence was keep to healing my leaking gut.
What worked for me may not work for you. I think taking so much Rx meds trigger or made my IBS/leaky gut issues worse. The IBS was cured within the first six month eating this new way. Now I am very sure had I fixed my leaking gut at age 24 life for the past 40 years would have been easier.
Best of success. Those not in the same boat often struggle to grasp our issues due to leaking guts.
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GaleHawkins wrote: »I have a leaky gut and suffer terribly from stomach pain and constipation. So now the scale showed a 4 lb gain and I know it's bloat. I feel so frustrated and feel like giving up. Anyone had a similar experience and pulled through?
draxe.com/4-steps-to-heal-leaky-gut-and-autoimmune-disease/
@ydyms I was in the same boat for 40 years. Well most anyone who is obese with other health issue is in the same boat I now read. My major issue was arthritis and the pain was so bad two doctors wanted me to start Enbrel injections for pain manage last year.
I seriously plan to live to be 110 and that was not going to happen with my immune system beat down with something like Enbrel for pain. 30 days before I was to start Enbrel injections in disgust I stopped eating any/all forms of grains and well as added sugars to the point my total daily carbs were <50 grams.
30 days later my subjective pain levels of 7-8 dropped to 2-3 pain levels. A year later I still have good pain control by diet only. At the time I did not know most health issues are caused by a leaking gut or can lead to a leaking gut.
After 40 years of yo-yoing weight I finally learned until I got my leaking gut fixed/healed by eating the right foods and leaving off the wrong foods that weight was going to be an issue until death. For over a year now I have added 5 tablespoons of coconut oil to my first cup of coffee. I expect its healing influence was keep to healing my leaking gut.
What worked for me may not work for you. I think taking so much Rx meds trigger or made my IBS/leaky gut issues worse. The IBS was cured within the first six month eating this new way. Now I am very sure had I fixed my leaking gut at age 24 life for the past 40 years would have been easier.
Best of success. Those not in the same boat often struggle to grasp our issues due to leaking guts.
How do you know you have a leaky gut? Is there a test for this?0 -
@queenliz99 I am sure there are some indirect tests at least but after years of eating a SAD (Standard American Diet) the odds improve we have caused a leaking gut. When we are dumping stuff into our blood that is to never leave the gut it can put us on the road to poor health and death. The below is out of the above article link.
Leaky Gut Symptoms and Progression
This leads to inflammation throughout your system and can cause symptoms, such as:
Bloating
Food sensitivities
Thyroid conditions
Fatigue
Joint pain
Headaches
Skin issues like rosacea and acne
Digestive problems
Weight gain
Syndrome X0 -
GaleHawkins wrote: »@queenliz99 I am sure there are some indirect tests at least but after years of eating a SAD (Standard American Diet) the odds improve we have caused a leaking gut. When we are dumping stuff into our blood that is to never leave the gut it can put us on the road to poor health and death. The below is out of the above article link.
Leaky Gut Symptoms and Progression
This leads to inflammation throughout your system and can cause symptoms, such as:
Bloating
Food sensitivities
Thyroid conditions
Fatigue
Joint pain
Headaches
Skin issues like rosacea and acne
Digestive problems
Weight gain
Syndrome X
I was wondering how you know you have a leaky gut? Were you tested? Can I order this test thru my health care provider? and what is the test called?0 -
queenliz99 wrote: »I was wondering how you know you have a leaky gut? Were you tested? Can I order this test thru my health care provider? and what is the test called?
Maybe Wikipedia can help:Leaky gut syndrome is not a recognized medical diagnosis, the claimed symptoms are generic and there is no medically validated test.[2] According to National Health Service England,
There is little evidence to support this theory, and no evidence that so-called 'treatments' for 'leaky gut syndrome', such as nutritional supplements and a gluten-free diet, have any beneficial effect for most of the conditions they are claimed to help.[2]
Quackwatch calls leaky gut a "fad diagnosis". Stephen Barrett writes that its proponents use the alleged condition as an opportunity to promote a number of alternative health remedies including diets, herbal preparations, and dietary supplements.[6]
Skeptics and mainstream scientists generally agree that most marketing of treatments for leaky gut syndrome is, at best, misguided, and at worst, an instance of deliberate health fraud.[2]0 -
queenliz99 wrote: »I was wondering how you know you have a leaky gut? Were you tested? Can I order this test thru my health care provider? and what is the test called?
Maybe Wikipedia can help:Leaky gut syndrome is not a recognized medical diagnosis, the claimed symptoms are generic and there is no medically validated test.[2] According to National Health Service England,
There is little evidence to support this theory, and no evidence that so-called 'treatments' for 'leaky gut syndrome', such as nutritional supplements and a gluten-free diet, have any beneficial effect for most of the conditions they are claimed to help.[2]
Quackwatch calls leaky gut a "fad diagnosis". Stephen Barrett writes that its proponents use the alleged condition as an opportunity to promote a number of alternative health remedies including diets, herbal preparations, and dietary supplements.[6]
Skeptics and mainstream scientists generally agree that most marketing of treatments for leaky gut syndrome is, at best, misguided, and at worst, an instance of deliberate health fraud.[2]
Thank you0 -
queenliz99 wrote: »queenliz99 wrote: »I was wondering how you know you have a leaky gut? Were you tested? Can I order this test thru my health care provider? and what is the test called?
Maybe Wikipedia can help:Leaky gut syndrome is not a recognized medical diagnosis, the claimed symptoms are generic and there is no medically validated test.[2] According to National Health Service England,
There is little evidence to support this theory, and no evidence that so-called 'treatments' for 'leaky gut syndrome', such as nutritional supplements and a gluten-free diet, have any beneficial effect for most of the conditions they are claimed to help.[2]
Quackwatch calls leaky gut a "fad diagnosis". Stephen Barrett writes that its proponents use the alleged condition as an opportunity to promote a number of alternative health remedies including diets, herbal preparations, and dietary supplements.[6]
Skeptics and mainstream scientists generally agree that most marketing of treatments for leaky gut syndrome is, at best, misguided, and at worst, an instance of deliberate health fraud.[2]
Thank you
I'd also be very curious to hear how a diagnosis is made, though. Some people seem very convinced that it actually exists.0 -
queenliz99 wrote: »queenliz99 wrote: »I was wondering how you know you have a leaky gut? Were you tested? Can I order this test thru my health care provider? and what is the test called?
Maybe Wikipedia can help:Leaky gut syndrome is not a recognized medical diagnosis, the claimed symptoms are generic and there is no medically validated test.[2] According to National Health Service England,
There is little evidence to support this theory, and no evidence that so-called 'treatments' for 'leaky gut syndrome', such as nutritional supplements and a gluten-free diet, have any beneficial effect for most of the conditions they are claimed to help.[2]
Quackwatch calls leaky gut a "fad diagnosis". Stephen Barrett writes that its proponents use the alleged condition as an opportunity to promote a number of alternative health remedies including diets, herbal preparations, and dietary supplements.[6]
Skeptics and mainstream scientists generally agree that most marketing of treatments for leaky gut syndrome is, at best, misguided, and at worst, an instance of deliberate health fraud.[2]
Thank you
I'd also be very curious to hear how a diagnosis is made, though. Some people seem very convinced that it actually exists.
As you quoted the medical community has not yet bought into it as even being a real thing. Since it does not require any Rx meds to fix I am not sure the medical industry has any interest in the subject.
mdheal.org/leakygut.htm
This older article by an MD help on this subject. I think MD's prefer the term Intestinal Permeability.:)
medscape.com/viewarticle/837168
BMC Gastroenterology
Intestinal Permeability – A New Target for Disease Prevention and Therapy
Stephan C Bischoff; Giovanni Barbara; Wim Buurman; Theo Ockhuizen; Jörg-Dieter Schulzke; Matteo Serino; Herbert Tilg; Alastair Watson; Jerry M Wells
Disclosures
BMC Gastroenterol. 2014;14(189)
This more current article covers this "new" subject in some detail with photos.
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drink kefir. packed with probiotics..it will fix your gut within weeks.0
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elisa123gal wrote: »drink kefir. packed with probiotics..it will fix your gut within weeks.
I have heard that works well for some people. While a few months ago I started taking some probiotics but my leaky gut/intestinal permeability case seemed to have when away after daily using 5 tablespoons of coconut well before I started probiotics. In my case cutting out all forms of grains may have been more key that cutting out the sugar but I cut out both at the same time so I can not be sure.
Because my joint and muscle pain levels dropped from 7-8 to 2-3 in just 30 days after cutting carbs to under 50 grams a day and still managing my pain by diet only is really all I need to know this new way of eating makes my body and mind happy.
We are all where we are today health wise for many different reasons so different things may fix different people.
The cool thing in my case was I just had to change my way of eating so no meds or doctors were involved to cure my intestinal permeability/leaky gut or whatever name wants to call the condition that can lead to an early death.0 -
elisa123gal wrote: »drink kefir. packed with probiotics..it will fix your gut within weeks.
ABSOLUTELY! I have had abdominal pain since I was 5years old. I had an upper GI scope x 2, followed paleo diet x years and eliminated coffee, wine, etc...
What helped? Stopping coffee, and drinking kefir and being grain free. But I ditched coffee and grain prior and it only helped a bit. The kefir was like magic.
If interested in kefir and health, go to pubmed and search abstracts/papers on it. A lot of evidence as adjunctive treatment for SIBO, IBS and functional abdominal pain.
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MarziPanda95 wrote: »'Leaky gut' is a complete myth. If your gut leaked you'd be in the hospital with blood poisoning! Sounds like you have a food intolerance. I agree with those that suggested trying an elimination diet to test what triggers it. Might be IBS.snickerscharlie wrote: »Please see a medical doctor about your symptoms. Leaky Gut isn't a recognized ailment and the only people who will tell you otherwise want to sell you 'remedies' for this non-existent 'condition.'Maybe Wikipedia can help:
Leaky gut syndrome is not a recognized medical diagnosis, the claimed symptoms are generic and there is no medically validated test.[2] According to National Health Service England,
There is little evidence to support this theory, and no evidence that so-called 'treatments' for 'leaky gut syndrome', such as nutritional supplements and a gluten-free diet, have any beneficial effect for most of the conditions they are claimed to help.[2]
Quackwatch calls leaky gut a "fad diagnosis". Stephen Barrett writes that its proponents use the alleged condition as an opportunity to promote a number of alternative health remedies including diets, herbal preparations, and dietary supplements.[6]
Skeptics and mainstream scientists generally agree that most marketing of treatments for leaky gut syndrome is, at best, misguided, and at worst, an instance of deliberate health fraud.[2]
This is a quite rude. Please do some real research - not wikipedia "research." Pubmed is a reliable source for peer-reviewed medical articles
Variations in the level of intestinal permeability (leaky gut) are:
(1) a reason that if you are taking oral vancomycin you MUST be tested regularly for the level of vancomycin in your bloodstream - vancomycin, taken orally, does not reach the bloodstream at all. If you have higher than normal permeability it does, sometimes in levels that are high enough to produce life altering side effects. (My daughter was on vancomycin for a year as part of a study out of Massachusetts General, (a tad more reputable source for medical information than Wikipedia). The study required her to have blood tests every 12 weeks because the underlying disease often involves a higher than normal permeability (i.e. leaky gut).) Had she had significant levels of vancomycin in her bloodstream (as some develop because of leaky gut), she would have been dismissed from the study.
(2) one of the main hypotheses for the known connection between my daughter's first chronic disease and the liver disease that the research study was targeting.
Those are the two I am most familiar with because they are the ones that affect me directly - both of which have been conveyed to me by numerous of the specialists (gastrointestinal and hepatology) across the country with whom we have been in contact in connection with the rare liver disease she has.
I have no idea whether the OP has leaky gut - but to dismiss the concept as fantasy when it is a medically recognized fact, with growing importance as we learn more about the gut microbiome - is offensive.
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queenliz99 wrote: »I was wondering how you know you have a leaky gut? Were you tested? Can I order this test thru my health care provider? and what is the test called?
Leaky gut, from a medical perspective (to my knowledge), is not recognized as a separate treatable syndrome. Abnormal permeabiliyt is a theory for many GI-linked diseases, and an increasingly explored hypothesis for the gut-brain connection the microbiome research is focused on.
The matter that impacts current treatment is when a leaky gut causes medications that are intended to stay in the gut to enter the bloodstream - some of which have side effects, some of which might outweigh the benefit of the medicine. So if you needed to take one of those medications - vancomycin is the one I am most familiar with - you need to be tested for blood serum concentration to ensure it has not leaked from the gut into the bloodstream. That would give you an indication leaky gut, but it is not something that you would be independently tested for. I am not aware of any independent tests.
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GaleHawkins wrote: »queenliz99 wrote: »queenliz99 wrote: »I was wondering how you know you have a leaky gut? Were you tested? Can I order this test thru my health care provider? and what is the test called?
Maybe Wikipedia can help:Leaky gut syndrome is not a recognized medical diagnosis, the claimed symptoms are generic and there is no medically validated test.[2] According to National Health Service England,
There is little evidence to support this theory, and no evidence that so-called 'treatments' for 'leaky gut syndrome', such as nutritional supplements and a gluten-free diet, have any beneficial effect for most of the conditions they are claimed to help.[2]
Quackwatch calls leaky gut a "fad diagnosis". Stephen Barrett writes that its proponents use the alleged condition as an opportunity to promote a number of alternative health remedies including diets, herbal preparations, and dietary supplements.[6]
Skeptics and mainstream scientists generally agree that most marketing of treatments for leaky gut syndrome is, at best, misguided, and at worst, an instance of deliberate health fraud.[2]
Thank you
I'd also be very curious to hear how a diagnosis is made, though. Some people seem very convinced that it actually exists.
As you quoted the medical community has not yet bought into it as even being a real thing. Since it does not require any Rx meds to fix I am not sure the medical industry has any interest in the subject.
mdheal.org/leakygut.htm
This older article by an MD help on this subject. I think MD's prefer the term Intestinal Permeability.:)
medscape.com/viewarticle/837168
BMC Gastroenterology
Intestinal Permeability – A New Target for Disease Prevention and Therapy
Stephan C Bischoff; Giovanni Barbara; Wim Buurman; Theo Ockhuizen; Jörg-Dieter Schulzke; Matteo Serino; Herbert Tilg; Alastair Watson; Jerry M Wells
Disclosures
BMC Gastroenterol. 2014;14(189)
This more current article covers this "new" subject in some detail with photos.
the medical community and big pharma aren't the same thing...0 -
Gut permeability is a very complex thing. It can come about because the digestive system is disrupted by the use of antibiotics not always for an extended period, repeated "regular", doses can do it too by eliminating the most useful segment of our digestive flora. Generally it is expected the body will recover without any intervention. A diet containing too much added sugar, certain medications such as pain relief and contraception can also predispose the digestive system or even a combination of all the above. Basically it comes about because the balance of our digestive flora is tilted towards the less helpful yeasts which can set up inflammation within tissues. From personal experience I know this disruption can predispose the "sensitive" to pain in joints, dietary and chemical sensitivities and more which radically restrict the quality of life. There are expensive tests which will indicate ones which are out of control and direct a person to the best way for them to rectify their specific issues.
Avoiding added sugar and foods containing yeast as well as alcohol (most contain yeast) and fruits such as grapes, fresh and dried which attract yeast to their skins from the environment and pineapple which is very high in natural sugar, could help. Constipation is often a consequence of yeasts being out of balance too. Increasing fiber and fluids may help. Using ground psyllium husks from the health food store, 15 g (max dose) in a tumbler of liquid at night has helped me. (it lines the intestines and eased elimination will probably take a few days to clear, its kinder, more gentle working best over night than most other products on the market)
Many people find relief from any of the carb reduction lifestyles. FODMAPS if you can work your way through which of the combinations are pertinent to yourself are helpful. The guidance of a practitioner in all of this is in my view essential. Its a question of discovering what is right for you and its quicker with help and so much more is known now ad against even 20 years ago. Not everyone has gluten problems, nor dairy but it is worthwhile having tests to identify your issue. Lactose is often put up as a reason to give up dairy but casein a protein in milk is more probably the true issue it is far more common. Many more health issues are now being added to the list of problems which stem from disrupted digestion, more and more is being discovered to be problematic with the common western diet.
One poster above mentioned the curative properties of coconut oil it like olive oil and cider vinegar have curative properties often overlooked by "Big Pharma". At one stage coconut oil was disparaged by the purveyors of more modern oils such as sunflower, flax and soy. Butter was also disparaged and is now being rehabilitated.
Being healthy can be complicated no two people are the same. I recommend seeking help to discover what works best for you is personal to you other combinations work better for someone else. Try things and work out what is best for you.0 -
I have a leaky gut and suffer terribly from stomach pain and constipation. So now the scale showed a 4 lb gain and I know it's bloat. I feel so frustrated and feel like giving up. Anyone had a similar experience and pulled through?
If you do not have a diagnosis, talk to your dr and explain your symptoms . Or ask a reference to a specialist (gastroenterologist I would guess). If you have a diagnosis, follow the dr's advice. Do not try to self diagnose over the internet, the amount of nonsense you will end up reading has no limit. And even if the truth is somewhere among the ton of nonsense, how will you recognise it?0 -
May I just also note, as an aside? If you have a degenerative autoimmune condition and your doctor wants to prescribe a biologic?
Take it.
The risks are minimal.
The rewards are great.
Signed,
Grateful Humira User0 -
PeachyCarol wrote: »May I just also note, as an aside? If you have a degenerative autoimmune condition and your doctor wants to prescribe a biologic?
Take it.
The risks are minimal.
The rewards are great.
Signed,
Grateful Humira User
I second this! I would be a hot mess without it.0 -
I have a leaky gut and suffer terribly from stomach pain and constipation. So now the scale showed a 4 lb gain and I know it's bloat. I feel so frustrated and feel like giving up. Anyone had a similar experience and pulled through?
If you do not have a diagnosis, talk to your dr and explain your symptoms . Or ask a reference to a specialist (gastroenterologist I would guess). If you have a diagnosis, follow the dr's advice. Do not try to self diagnose over the internet, the amount of nonsense you will end up reading has no limit. And even if the truth is somewhere among the ton of nonsense, how will you recognise it?
@aggelikik when one is talking about self treating congestive heart failure or an aneurysm I see the point of your warning. To assume a person can not go grocery shopping to fix health issues like any food induced gut disease without a doctor being involved may be assuming a bit much.
Many of us with health issues have been made worse by the advice of the medical community.
The doctors said I should go on Enbrel for my pain. Google showed me scientific research on its side effects. Google lead me to sources talking about autoimmune health conditions being made worse by grains and sugars in many cases. The doctors said I could not cut my pain by going grocery shopping and was stressed that I would not start the Enbrel injections. These two doctors are well trained to write Rx's but not trained in how to act in the best interest of the patients that do not need a Rx to regain their health in the short run and the long run.
Cold turkey I stopped eating all grains and most all foods containing sugar over a year ago to prevent the need to take Enbrel that I a sure would have been deadly in my then state of health. I cut out all processed foods by default because they seem to all contain grains and/or sugars.
30 days later my pain was down from levels of 7-8 to 2-3 and still is a year later only eating mainly plant based foods but do eat some wild salmon and bacon from time to time. If it has grains and/or sugar I do not eat it and no longer have a physiological craving for such foods.
To date I have not found many diseases that are not at some stage food induced directly or indirectly.
If one changes their Way of Eating and they feel better with time and if obese their weight starts to lower without 'dieting', their blood lipid tests move from the red zone to the green zone, etc I see that as a good thing and lowers the healthcare cost placed on those paying the taxes.
Most people I expect that can use a computer can make a list of Pros and Cons on most any healthcare issue and wade through the BS out there with some degree of success. I give you that there are some who never go with their own judgement be it about education, marriage, health related issues, etc.
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Your autoimmune condition is not just about pain. Your autoimmune condition is about progressive damage.
People take biologics to help curb further damage AND deal with pain.
Time is not kind to those with degenerative conditions, Gale.
You think what you're doing is working for you, and that is fine, but please stop posting incomplete medical information. It's not helpful to those reading these threads.0 -
PeachyCarol wrote: »May I just also note, as an aside? If you have a degenerative autoimmune condition and your doctor wants to prescribe a biologic?
Take it.
The risks are minimal.
The rewards are great.
Signed,
Grateful Humira User
@PeachyCarol I agree the short term rewards can be great. It was the short/long range risks of this class of Rx drugs that got my attention and stopped me in my tracks. Then there was my wife saying NO to Enbrel who is a practicing pharmacist.
In my case when I got the pain management that one may get with Humira/Enbrel like drugs by just stopping eating all grains and most all sugars within just 30 days and a year later is is still working well for pain management, curing leaky gut/IBS, cutting weight and improving my blood lipid test scores without increasing my risk of dying from the drug side effects makes me pro on grocery shopping vs going to the pharmacy. The $3,000.00 monthly cost for Enbrel is a lot for someone to pay for the drug as well.
If one can think destroying one's natural immune system is positive for their long term health then this class of drug may be acceptable. I can not even stay at home and prevent being around sick people which is required if taking this class of drugs.
rxlist.com/humira-drug/patient-images-side-effects.htm
"Some people using adalimumab have developed a rare fast-growing type of lymphoma (cancer). This condition affects the liver, spleen, and bone marrow, and it can be fatal. This has occurred mainly in teenagers and young adults using adalimumab or similar medicines to treat Crohn's disease or ulcerative colitis......
Adalimumab can lower blood cells that help your body fight infections and help your blood to clot. Your blood may need to be tested often. Avoid being near people who are sick or have infections. Avoid activities that may increase your risk of bleeding injury. Serious and sometimes fatal infections may occur during treatment with adalimumab. Tell your doctor at once if you develop signs of infection.
Do not receive a "live" vaccine while you are being treated with adalimumab."
0 -
GaleHawkins wrote: »PeachyCarol wrote: »May I just also note, as an aside? If you have a degenerative autoimmune condition and your doctor wants to prescribe a biologic?
Take it.
The risks are minimal.
The rewards are great.
Signed,
Grateful Humira User
@PeachyCarol I agree the short term rewards can be great. It was the short/long range risks of this class of Rx drugs that got my attention and stopped me in my tracks. Then there was my wife saying NO to Enbrel who is a practicing pharmacist.
In my case when I got the pain management that one may get with Humira/Enbrel like drugs by just stopping eating all grains and most all sugars within just 30 days and a year later is is still working well for pain management, curing leaky gut/IBS, cutting weight and improving my blood lipid test scores without increasing my risk of dying from the drug side effects makes me pro on grocery shopping vs going to the pharmacy. The $3,000.00 monthly cost for Enbrel is a lot for someone to pay for the drug as well.
If one can think destroying one's natural immune system is positive for their long term health then this class of drug may be acceptable. I can not even stay at home and prevent being around sick people which is required if taking this class of drugs.
rxlist.com/humira-drug/patient-images-side-effects.htm
"Some people using adalimumab have developed a rare fast-growing type of lymphoma (cancer). This condition affects the liver, spleen, and bone marrow, and it can be fatal. This has occurred mainly in teenagers and young adults using adalimumab or similar medicines to treat Crohn's disease or ulcerative colitis......
Adalimumab can lower blood cells that help your body fight infections and help your blood to clot. Your blood may need to be tested often. Avoid being near people who are sick or have infections. Avoid activities that may increase your risk of bleeding injury. Serious and sometimes fatal infections may occur during treatment with adalimumab. Tell your doctor at once if you develop signs of infection.
Do not receive a "live" vaccine while you are being treated with adalimumab."
Please stop. You are fear mongering.0 -
Gale, the risk of cancer is a small fraction of 1%. A fraction of a fraction.
I also don't call not receiving live vaccines for things a burden.
As far as not going out into the world, or my whole immune system being shot? You misunderstand the drug and so does your wife.
I go out into the world. I function. Last year, when my kids got sick, so did I. And, my immune system fought it off. It took me just 2 days longer than them to recover. Then again, I'm older so who knows if it was the Humira or just me being older? I've always taken a long time to recover. It mildly suppresses your immune system, it does not destroy it entirely.
Now shall we talk about the benefits of Humira? Before starting it, I walked with a cane. I walked 1/4 a mile with that cane when I first started exercising.
Now I can run 5k and routinely walk 5.5 miles just about daily. I also strength train and water jog.
I'll take that quality of life over a very small risk any day.0 -
Oh, I should add that 5.5 miles is at about 4 miles an hour. That's purposeful exercise. I usually get more distance than that in with a generally active lifestyle. My Fitbit tells me I get in, on average 17K steps daily.0
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