Any other special needs parents here?

Magnus919

138shades wrote: »

There is no Asperger's anymore. Its a part of the Autism Spectrum. No one should be diagnosing that anymore.

That's true in the United States, but it's not globally true. And many Americans got their Asperger's Syndrome diagnosis when it was still valid. That diagnosis did not disappear.

Importantly, autistic adults who have been given a diagnosis of "Asperger's Syndrome" often choose to identify very strongly with it. It's important to allow people that are part of a class choose their own identity language.

I am autistic. I do not "have autism", "suffer with autism", and if anyone prefers to say that I'm "on the autism spectrum" to avoid saying "autistic", I like to reassure them that I am very comfortable with and prefer to be called an "autistic person" or "autistic man" or even "autist". Likewise, you'll find a lot of people who were Dx'd with "Asperger's Syndrome" self-identifying as "Aspies". I respect their choice.

Sarc_Warrior

My wife works with individuals with special needs. It's amazing what they can teach us.

mweckler

I just got a diagnosis for my son last night, we have known that there was something a little different about him but Doctors said no he is a normal, healthy boy. Well the evaluations came back that my 5 year old has ADHD, anxiety, and falls on the high functioning Autism Spectrum, or Aspergers if it were still a diagnosis.

synchkat

mweckler wrote: »

I just got a diagnosis for my son last night, we have known that there was something a little different about him but Doctors said no he is a normal, healthy boy. Well the evaluations came back that my 5 year old has ADHD, anxiety, and falls on the high functioning Autism Spectrum, or Aspergers if it were still a diagnosis.

Sounds similar to my son. We are investigating an autism diagnosis. The best thing was getting him diagnosed. He's no dummy he will tell people that now we know about his ADHD he is much better. He is doing better at school, etc too

mweckler

My son is scarily smart, it is just he is lacking in the social aspects. He does not understand personal space, or boundaries. He will get right up to another person, almost in their face, and shout, as he also does not understand volume control. He is my little buddy so I want to learn as much as I can to help and support him.

Arwen1218

Hi! My oldest daughter, 17, had Asperger's, Sensory Perception Disorder, Depression and Anxiety Disorders. Like many of the other parents on her I love my daughter more than anything in this world but struggle everyday to find balance. I have two other girls and I find it difficult to manage my time between them making sure everyone gets mom time. I would love to chat with you and be MFP friends to help you through whatever you need. As parents of special needs children it's important to find support and friendship to keep us balanced.

synchkat

mweckler wrote: »

My son is scarily smart, it is just he is lacking in the social aspects. He does not understand personal space, or boundaries. He will get right up to another person, almost in their face, and shout, as he also does not understand volume control. He is my little buddy so I want to learn as much as I can to help and support him.

Yup...sounds familiar but the volume control...he doesn't like loud things
but he can tell you all sorts of things. His teacher was telling me today he's been spacey but asks questions...he's so smart you know she prefaced it with

Panda_Poptarts

My daughter (6) has vision problems: amblyopia, strabismus (esotropia), and poor depth perception. We're also thinking she has a visual processing disorder, and potentially an auditory processing disorder.

The stress is very real.

RecklessCalamity

You are not alone. I have a special needs child too. Learning, speech and motor skill delays. No diagnosis. Any of you feel free to FR me.

BekahC1980

I have 2 autistic children my son is 13 and my daughter is 11

sshaiwan1

I have 3 children ages 4,3,1 the older two both have autism. I can very hard on me at times..I would eat when I felt stressed due to their conditions and blame myself. I love my children more than anything, but sometimes it do s take a toll on me and I would need food to fill the pain, or stress, or any bad emotion.

mweckler

Do you know if there is an active support group on MFP for parents of special needs children?

BrettPorrasElliott

I'm a mom to an awesome 6 yr old, he is nonverbal autistic. Anyone feel free add me..it does get stressful but I have found a good balance at keeping myself positive and not over worrying.
You have to look at it like this: if we spend all our days over worrying and stressing ourselves out, we are not spending our time wisely. Take one day at a time, and try to enjoy the time we have with them. Easier said than done I KNOW.

mweckler

I created a private group for parents of special needs. I will post the link here if anyone is interested in it.

http://community.myfitnesspal.com/en/group/114224-parents-of-hfa-and-special-needs-children

mom23mangos

I'm mom to a 12 year old with Tourettes + the whole host of fun that usually comes with it ADHD, Anxiety, OCD. Good new is when he has a good medication combination and we are consistent, his tics, anxiety and OCD are very much under control. Still can't get him to a level where his ADHD is not an issue due to weight loss, but I'll take 3 out of 4. But it can be draining and stressful on a family. I can't imagine how difficult it must be for some of you with profoundly disabled children, some with multiple. I truly hope you have a strong support network.