Autoimmune Disease buddies?

Onyx_Eve

I have Sjogren syndrome, which my doctor humorously states is the best autoimmune disease to have if you happen to have one. I still don't get his joke considering I not only suffer from severe dry eyes, but joint paint, muscle pain, inflammation, tiredness and lack of sleep too. Yes, I know it could be worse, but it's definitely not fun.

apollock4722

I have Primary Sjogrens. I have the bodily aches and joint pains along with fatigue and inflammation. I am on mobic which has helped and plaquenil which takes awhile to take effect. I started Xiidra in anticipation of dry eyes to follow. I've started on MFP to drop weight and focus on exercise and healthier eating. Its been a year since I dropped alcohol and gluten from my diet. This was before I knew had Sjogrens. It helped a little so I know diet affects me. Sugar brings out more symptoms.

jennypenny6375

I have Lyme disease. For me, it mimics RA a lot. I've been doing Paleo for about a month. I've gained so much energy on it. And lost a few pounds so far. I'm hoping to find more energy and motivation to continue lifestyle changes that will help with my Lyme flair ups.

Mitzigan94

Mine's Guillain-Barre Syndrome & now diagnosed as transverse myelitis. I learned to live with it how to prevent any relapses. I've been counting calories for 4yrs already doing light workouts ; desk cycle bike, lifting 4lb weights, brisk walking, yoga stretches. I've recently added jogging into my workouts. Auto immune disease isn't a hindrance to reaching your goals. Lets do this!

BlueCanyonKid

Nearly 2 months ago I was diagnosed with PMR; it had crept up on me for months before I couldn't sleep and finally saw my GP and then asked for a referral to a Rheumatologist, who put me on low-dose Prednisone. I'm using a fitness tracker and joined MFB to keep track of getting enough calcium and not getting too much sodium (Prednisone can cause calcium loss, sodium can cause water gain).

I've also adopted a gluten-free diet, difficult for someone who ate many forms of wheat all day long, but I think it's essential. I already need to loose about 30 pounds and don't want to gain more weight on Prednisone, but also, since this is an inflammatory disease, I decided I needed to take inflammatory foods out of my diet. My blood tests didn't show this, but my physician says concurring with the diagnosis description and responding to the medication confirm this diagnosis. And now if I eat wheat, I feel it, in particular I don't sleep as well because of muscle pain. So far I've eliminated wheat and sugar. I keep a food diary and will decide if dairy or meats need to go as well, but I think wheat was a main food problem in my case.

I'll be weaning off of the Prednisone for many more months before I find out if this treatment has been effective or if I have to maintain a level lower than I'm at right now. So I suspect I'll be a regular at MFB and using my Withing's Steel HR tracker for a long time. Other than PMR, my rheumatologist says I'm very healthy - after a large battery of tests, this seems to be the one issue.

Several years ago before this happened I successfully used alternate day fasting (regular eating one day, only about 500 the next, repeat - some people do it with only two fasting days per week) to lose weight. The software for MFB scolds when I eat less than the allotted amount per day. By taking wheat out of my diet it is easier to do the fasting routine, and definitely easier to meet the rest of my MFB daily goals. The source for the fasting is a science program from the UK, hosted by Dr. Michael Mosley, called "Eat, Fast, and Live Longer." It's available as a documentary online, currently the site I find hosting it is called dailymotion dot com. My particular diet routine starts at about the 38 minute point.

CynoO

MS and almost two months fight BP

BexDun

Hi,
I also have Hashi's and (most probably) Coeliac. I've just come back on MFP as my throxine levels were off all winter, so I'm trying to get a handle on levels and weight.
I like food, so it's proving to be quite difficult to shift the weight I gained

BexDun

Actually, I don't know if anyone can help me but I have some questions reg thyroxine levels and exercise.

Would an increase in exercise and muscle gain increase the amount of thyroxine needed?

Sarc_Warrior

I was recently diagnosed with sarcoidosis. Add me if you want.

Claudia50G

Morning, new to myfitnesspal; I have RA and lupus. Exercise is difficult and my mind set is terrible. MD said I also have depression due to fatigue and pain. Need support, please, to get me on track with diet and exercise.