Autoimmune Disease buddies?
lilyanneetc
Posts: 8 Member
Hi there! I have rheumatoid arthritis (and celiac's, and Hashimoto's thyroiditis, and I'm 29...) and the general round of "let's exercise a lot!" "Let's eat these things" (which make me feel nauseated on my current RA meds) forums just aren't quite cutting it for me. So I'm wondering if there are other people trying to take control of their diet in hopes of increasing energy or even reducing inflammation, because of inflammatory conditions. I'm just recovering from a really bad flare in my knee, which led to my first cortisone shot and having to take time off of work. I'm still feeling this flare, though, which is why I've started tracking my food again. I hate feeling out of control, and I'm just hoping to find some other people to commiserate with!
(Full disclosure, this is really more about trying to reduce inflammation and increase energy for me, over weight loss. I'm starting on a ketogenic diet this week, which has helped my energy levels a lot in the past.)
(Full disclosure, this is really more about trying to reduce inflammation and increase energy for me, over weight loss. I'm starting on a ketogenic diet this week, which has helped my energy levels a lot in the past.)
7
Replies
-
I have hashi's as well, and keto was great for me in the past. I'm trying to get back there. I wish you luck!1
-
I have an autoimmune disease that affects my kidneys and so have been on Prednisolone going on 8 years!
Being on corticosteriods for so long has really sky rocketed my weight, so I too am just looking for some weight control, to strengthen my bones and increase my energy levels too. Can't really do keto diets due to my kidney issues but enjoying exercising and eating lots of fresh foods.
Good luck with everything!1 -
Wow, 8 years on Prednisone is a long time!0
-
I have crohn's0
-
I deal with auto immune issues as well, specifically Lupus. I started on MFP to help me keep track of what I eat as a way to deal with inflammation as well. You can add me if you'd like. Good luck with your journey!0
-
I have Lupus and Raynaud's. I am currently waiting on labs and the doctor's opinion as to whether ainalso have Hashimoto's, adrenal fatigue or insulin resistance or a combination of those. I'm going my best to go gluten free to see if this help with inflammation and weight loss. I've gained about 50lbs in the last 3 years and haven't been able to get rid of it.1
-
I have Raynaud's and underlying Mixed Connective Tissue Disease. It's not causing many problems at the moment (from what I can tell) but y'all are going to be my inspiration for if anything does kick in.1
-
I've been diagnosed with Graves (since then struggled with hypo for 11 yrs), Pernicious anemia, damaged kidneys, liver, pancreas, and heart, chronic fatigue, incredible daily pain and inflammation. I saved my life and stopped disease in its tracks by getting rid of what caused my body to get confused and attack itself. Food! Most people with autoimmune disease have food allergies. Most common are dairy and gluten. I'm allergic to both. Tests tossed this idea out the window my whole life but after being diagnosed with heart failure at 30 yrs old. I was a walking water balloon and my blood pressure was put of controll. I was given 5 years to live and sent home to die. That's when I started listening to a friend with MS who kept telling me for years that gluten and dairy are undoubtedly my worst enimies. Destperate for my life I quit them. A couple months later all inflamation, swelling, chronic pain, and a pile of other non-typical allergy symptoms disappeared. My thyroid was still out of whack for a couple years and unmaneagable dispite raising my meds dose to the max (my TSH was still 180!). Then a new Dr figured out there was gluten in the fillers of my pills and switched me to name brand. That was 2 months ago. I'm now healthier than I have been since childhood. Heart failure gone. Anemia gone. Organs healed and functioning except the radiated thyroid. Once you kill it, It's gone. I've watched 21 lbs melt off in 2 months as well. The greatest thing has been finding the energy that comes when you stop poisoning yourself. All autoimmune disorder comes from allergy. Find your cause! Your body was made to heal itself. Some damage can't be reversed but so much of it can. Feel free to add me if you would like support and what help I may be able to provide.8
-
I have MS.1
-
I have RA0
-
I also have MS, diagnosed at Mayo Clinic in 1993, I think it was. I don't cut any one particular thing out of my diet and am wondering why so many of you swear by gluten free / dairy free diets. Are you sure that diet is connected with your feeling better? Absolutely positive? I know a gluten free diet is a popular thing now, but I'm just not buying that it will cure all your ills to go gluten free. I also have had psoriasis and, once on Avonex for the MS, the psoriasis became a thing of the past. Now, if I'd gone gluten/dairy free, I'd convince myself that they were the culprits, when I know that would not have been the case. These things are very tricky. My neuro. doesn't advocate any particular diet, just portion control and eat healthy foods, which I do. Wish I was better at the portion control part, but... I can't tell you the last time I was at a fast-food restaurant. I do not abide that garbage!3
-
I have Crohn's Disease. I am eating based on the Autoimmune protocol guidelines to help heal. I also eat low carb plus eat and drink everything hot. I see both Western doctors and a traditional Chinese medicine doctor. Integrating everything has been the best health choice. I still have a long way to go, but my symptoms have improved greatly!0
-
I have psoriatic arthritis. I've tried the autoimmune protocol, going gluten free, dairy free etc but have found nothing that improves things. My consultant says any specific diet won't make a difference, apart from the obvious benefits of losing weight. I've been on prednisolone since September so the lbs have crept on. Hoping to be off it by the end of Feb. Concentrating on getting off the extra weight and trying to up my activity level. It's hard! I managed 6000 steps yesterday but can barely move today because of it.0
-
I was diagnosed with ankylosing spondylosis. I also have many joint and tendon issues as a result. Not to mention loss of space in my hip joints.
Also looking for friends for support and motivation on getting back on track.
0 -
I have to say that I do have celiac's, and not long after going gluten free I felt so much better, but that sort of bounce back relief lasted around two years before rheumatoid arthritis started kicking in so it isn't actually a miracle cure even though it controls my celiac's. Gluten free or dairy free or whatever is not necessary for everyone, but it does happen to be useful for a lot of people. Both those things, but especially and specifically wheat, cause inflammation. That isn't a problem for the majority of human beings, but it is way more likely to be a problem for people with inflammatory conditions!
It's also worth mentioning that very few MDs will recommend a gluten free (dairy free, nightshade free, etc) diet, even for people dealing with inflammatory conditions, because the research isn't conclusive. Medical science tends to change incredibly slowly, for example while some cutting edge endocrinologists have been prescribing high fat low carb diets for years, the American diabetic society still recommends lots of whole grains, which means the party line is still low fat high carb even though that way of eating can be actually harmful to diabetics. I've also found doctors of osteopathy to be more open to the idea that diet can strongly impact health, over medical doctors.0 -
I have psoriatic arthritis. I've tried the autoimmune protocol, going gluten free, dairy free etc but have found nothing that improves things. My consultant says any specific diet won't make a difference, apart from the obvious benefits of losing weight. I've been on prednisolone since September so the lbs have crept on. Hoping to be off it by the end of Feb. Concentrating on getting off the extra weight and trying to up my activity level. It's hard! I managed 6000 steps yesterday but can barely move today because of it.
I know you know this, but be careful pushing yourself! I certainly know that feeling of having to crash after pushing myself (my job is more active than many and also involves a lot of late nights, so I push myself more regularly than I should....)
I think eating food which tastes good, makes you feel good, and is nourishing is the most important thing! I've had periods where I was so exhausted even the thought of turning on the stovetop and making eggs was overwhelming, and I ate a whole lot of microwave veggies, ready rice, and those Perdue shortcut chicken things!
0 -
I have RA and other health issues. for me weight lifting has helped with the RA tenderness and pain that i had in the beginning. for me so far I have not needed to take meds for the RA. my hubby couldnt even massage my shoulders before I started weight lifting because it was so sore and tender. now,it doesnt hurt. I have had RA for many years, I am 42 now. If i can stay off meds that will be great.(I was diagnosed with RA around your age op).1
-
I have Celiac Disease0
-
RA0
-
Hya,
I've got polymyalgia rheumatica - pmr. It's an autoimmune that affects the soft tissue round the joints and is very disabling until you take prednisolone which 'cures' it. The trick is to taper off the pred while your body, hopefully, decides that's enough PMR for the moment. So on pred for at least a couple of years.
Main reason I use MFP is to prevent the raging pred munchies taking control (pred already wants to give you diabetes and high blood pressure) and also carefully monitor my vitamin and mineral intake to counteract the osteoporosis that pred also wants you to have. Ooh and keep an eye on when and what I eat to avoid peptic ulcers (again a gift of pred).
I'm considering maintaining my present weight an achievement at present as I have to consume soya milk, dairy products and omega 3 oil etc each day which nicks much of my allowance. I actually raised my allowance a bit as I found it very demotivating to always be over by several hundred calories. Now I can spot the cheating stuff and cut it out1
Categories
- All Categories
- 1.4M Health, Wellness and Goals
- 392.9K Introduce Yourself
- 43.7K Getting Started
- 260.1K Health and Weight Loss
- 175.8K Food and Nutrition
- 47.4K Recipes
- 232.5K Fitness and Exercise
- 415 Sleep, Mindfulness and Overall Wellness
- 6.5K Goal: Maintaining Weight
- 8.5K Goal: Gaining Weight and Body Building
- 152.9K Motivation and Support
- 7.9K Challenges
- 1.3K Debate Club
- 96.3K Chit-Chat
- 2.5K Fun and Games
- 3.6K MyFitnessPal Information
- 23 News and Announcements
- 1.1K Feature Suggestions and Ideas
- 2.5K MyFitnessPal Tech Support Questions