Autoimmune Disease buddies?

Diagnosed July 2016 Relapsing Remitting MS Untreated for a decade. Trying to fight. Did a round of IV, then Copaxone. Prednisone..Didn't help, now on 240mg Tecfidera.. Need a new Neuro. I haven't walked in over 2 years and I'm 42. Need to drop this weight and return to my deva self.

I have Raynaud's. I had a really hard time losing weight at first. I've tried many things but have gotten the most improvement not eating processed carbs, dairy, and too much protein. I can definitely tell when I do. I think the inflammation is what caused my struggle with scale in the beginning.

I'm LCHF which isn't for everyone but works for me. It took trial and error to get here. I still periodically have symptoms of course but now they are more manageable since I lost 65 lbs and cut a lot of my food triggers.

Wishing everyone success with symptom-free days!

ToeTapN wrote: »

I have been managing RA with a gluten free lower carb higher fat diet for years now. I would love to be in touch and hear how you are all managing.

I have RA among other things. I cant do keto or LCHF as I have another health issue and I have to eat low fat.what helped my RA was lifting weights, so far I have not needed meds,YET. But I was always having pain and tenderness and this helped with that. Im now less tender and sore.sometimes I can just take something over the counter for pain and that helps.

I have RA also, have found it very difficult to truly exercise. I had lost 88 lbs before my first mayor flare and once put on the meds with the pain and stiffness gained most of it back. I'm back on the right track now, but I worry I'll end up with another major flare up do to pushing myself. Any advice would be great. Ty

I have Sjogren syndrome, which my doctor humorously states is the best autoimmune disease to have if you happen to have one. I still don't get his joke considering I not only suffer from severe dry eyes, but joint paint, muscle pain, inflammation, tiredness and lack of sleep too. Yes, I know it could be worse, but it's definitely not fun.

I have Lyme disease. For me, it mimics RA a lot. I've been doing Paleo for about a month. I've gained so much energy on it. And lost a few pounds so far. I'm hoping to find more energy and motivation to continue lifestyle changes that will help with my Lyme flair ups.

Nearly 2 months ago I was diagnosed with PMR; it had crept up on me for months before I couldn't sleep and finally saw my GP and then asked for a referral to a Rheumatologist, who put me on low-dose Prednisone. I'm using a fitness tracker and joined MFB to keep track of getting enough calcium and not getting too much sodium (Prednisone can cause calcium loss, sodium can cause water gain).

I've also adopted a gluten-free diet, difficult for someone who ate many forms of wheat all day long, but I think it's essential. I already need to loose about 30 pounds and don't want to gain more weight on Prednisone, but also, since this is an inflammatory disease, I decided I needed to take inflammatory foods out of my diet. My blood tests didn't show this, but my physician says concurring with the diagnosis description and responding to the medication confirm this diagnosis. And now if I eat wheat, I feel it, in particular I don't sleep as well because of muscle pain. So far I've eliminated wheat and sugar. I keep a food diary and will decide if dairy or meats need to go as well, but I think wheat was a main food problem in my case.

I'll be weaning off of the Prednisone for many more months before I find out if this treatment has been effective or if I have to maintain a level lower than I'm at right now. So I suspect I'll be a regular at MFB and using my Withing's Steel HR tracker for a long time. Other than PMR, my rheumatologist says I'm very healthy - after a large battery of tests, this seems to be the one issue.

Several years ago before this happened I successfully used alternate day fasting (regular eating one day, only about 500 the next, repeat - some people do it with only two fasting days per week) to lose weight. The software for MFB scolds when I eat less than the allotted amount per day. By taking wheat out of my diet it is easier to do the fasting routine, and definitely easier to meet the rest of my MFB daily goals. The source for the fasting is a science program from the UK, hosted by Dr. Michael Mosley, called "Eat, Fast, and Live Longer." It's available as a documentary online, currently the site I find hosting it is called dailymotion dot com. My particular diet routine starts at about the 38 minute point.

Hi,
I also have Hashi's and (most probably) Coeliac. I've just come back on MFP as my throxine levels were off all winter, so I'm trying to get a handle on levels and weight.
I like food, so it's proving to be quite difficult to shift the weight I gained

I was recently diagnosed with sarcoidosis. Add me if you want.