Thyroid meds dose reduction in weight maintenance
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cmriverside wrote: »cmriverside wrote: »cmriverside wrote: »I did a little research, and apparently dosage is related to age and weight. If we go by the recommended guidelines, I should have been lowered ten years ago. Still doesn't explain why the dose went down now as opposed to in say 2010 - which was three years after I lost my 70 pounds. I'm not arguing or upset that she lowered the dose, I think it's probably past time to do it by several years is all - and it kind of irritates me that they wanted to give me anti-anxiety meds as a first line of defense instead of lowering my thyroid meds. Last year my TSH was 0.9. That is really low - I would think they would have lowered the dose last year.
My gripe is with medical professionals. Why do I have to do all the research to find out this stuff? Isn't this your JOB? Seems like a pretty common medical issue - and it has definite guidelines.
Okay. Rant over for now. We'll see my numbers this year...oh, wait. Another gripe
WHY do I have to log onto the internet to get my results? Send me my labs! Get off my lawn.
Okay, now I'm really done. Thank you for reading...if you did.
0.9 isn't low - Optimal range for TSH is 0.2-2.0. Even so this is a population range, so you may "feel" sub par and still be within range. This has more to do with what you have been used to.
All hormones are free cycling, so largely dependent on weight (mass). Think of adding a cup of sugar to a glass vs. a pitcher of water. If you lose a significant amount of weight you will need to adjust any hormone supplement accordingly as you don't need as much to function.
Thanks for commenting, CSARdriver.
My concern or question is twofold: 1. Why now, after 6-7 years at the same dosage/weight and activity level, would the dose change? and 2. How carefully will I have to stay within calories now? I know the second part is going to be wait-and-see, I guess. I suppose this thread will be me reporting how it goes. I'm pretty sure I've been getting "assistance" from the levo with my ability to eat way more than is typical.
1. That I cannot answer with the information available - apologies if I overlooked something. Was this driven by your physician? Why did they implement this change? Was there a shift in your thyroid panel that triggered this?
2. Should be normal. Hormones don't impact hunger or metabolism nearly as much as they do appetite and satiety triggers. That and a shift from 88 to 75 mcg is undetectable. Keep in mind hormones are powerful actors, hence why the dosage is in micrograms. That pill contains <1% active ingredient and mostly filler.
FYI - I had a total thyroidectomy in 2000 and have been on Synthroid 175/200 alt daily for 18 years. I was the principle investigator working on Synthroid for several years, so have a lot of personal experience in the manufacturing and pharmacovigilance of the branded drug.
So last year:- TSH, Value = 1.7 (Ref range 0.4 -5.000 u[IU]/mL)"
- T4, FREE, Thyroxine (Free), Value = 0.8 (Ref range 0.6 - 1.2 ng/dl)
This year:- TSH, Value = 0.197 (Ref range 0.400 - 5.000 u[IU]/ml)
- T4 , FREE, Thyroxine (Free) Value = 0.9 (Ref range 0.6 - 1.2 ng/dl)
So, yeah, the TSH went from 1.7 to 0.197
I'm just glad I'm not as ravenous as I was. That was annoying. Thanks for commenting.
The impact hormones have on behavior are amazing. Essentially it bubbles up from a cellular level "Holy crap something is different?! EAT!!!" Your body is thinking it needs energy reserves - fat stores. We have yet to adapt to living with an abundance of food. There's a critical difference in hunger and appetite. Note that hormones do not influence hunger at all - appetite on the other hand is dramatic.
There are so many variables in play in this - why it is so critical to engaged with your endocrinologist and have them be engaged with you. A change should never occur without both of you understanding what is going on, why its going on, and the risk/reward strategy in play.
Many physicians use the TSH normal range of 0.5-5.0. I prefer the revision in 2002(?) of 0.2-2.0. Much tighter with patient focus in mind. Essentially you may "feel" normal at a range outside this because that is normal for you; however if you feel abnormal, then something has changed and all variables must be addressed and mitigated.
My normal is on the extreme low range ~0.2 and this was likely my whole life even though I was never tested until age 30.
I've never seen an endocrinologist. No doctor ever suggested I needed to and I just figured they knew how to treat it and I felt okay. I used to have crippling migraines and depression, but once I went through menopause that went away. It didn't occur to me to be worried about the dose and I'm embarrassed to say I just never delved into it. I only tied the food and thyroid together because of logging my food for so long.
Only other symptom I could maybe tie to it would be anxiety - but who doesn't have anxiety, and I guess heart rate increases could be due to too high levothryoxine, which would certainly feel like anxiety. Maybe I'll see if an endo is a good idea. Not sure I should be worried about it.0 -
30kgin2017 wrote: »Here's a super late comment. Do you know why you have thyroid issues? My hypothyroidism is a result of an auto immune condition. So its actually the auto immune condition that triggers changes in my thyroid function. While generally it will attack it which results in hypothyroidism it can at times cause hyperthyroidism. The auto immune condition can be genetic, which seems to be the case in my family although most of the family are hyper only a few are hypo. So for me even if weight was stable the underlying trigger may still cause issues.
I do not know. I never gave it a lot of thought. I trusted my doctor and maybe I shouldn't have, there were other issues I questioned her on and I don't know why this wasn't one of them. This is the only med I take.
Now my doctor has retired and I have a new PCP, so I thought maybe I should be proactive since I don't know her.
I don't think I have auto-immune issues. It seems like that would show up in other ways.
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cmriverside wrote: »FitPhillygirl wrote: »cmriverside wrote: »cmriverside wrote: »I did a little research, and apparently dosage is related to age and weight. If we go by the recommended guidelines, I should have been lowered ten years ago. Still doesn't explain why the dose went down now as opposed to in say 2010 - which was three years after I lost my 70 pounds. I'm not arguing or upset that she lowered the dose, I think it's probably past time to do it by several years is all - and it kind of irritates me that they wanted to give me anti-anxiety meds as a first line of defense instead of lowering my thyroid meds. Last year my TSH was 0.9. That is really low - I would think they would have lowered the dose last year.
My gripe is with medical professionals. Why do I have to do all the research to find out this stuff? Isn't this your JOB? Seems like a pretty common medical issue - and it has definite guidelines.
Okay. Rant over for now. We'll see my numbers this year...oh, wait. Another gripe WHY do I have to log onto the internet to get my results? Send me my labs! Get off my lawn.
Okay, now I'm really done. Thank you for reading...if you did.
0.9 isn't low - Optimal range for TSH is 0.2-2.0. Even so this is a population range, so you may "feel" sub par and still be within range. This has more to do with what you have been used to.
All hormones are free cycling, so largely dependent on weight (mass). Think of adding a cup of sugar to a glass vs. a pitcher of water. If you lose a significant amount of weight you will need to adjust any hormone supplement accordingly as you don't need as much to function.
Thanks for commenting, CSARdriver.
My concern or question is twofold: 1. Why now, after 6-7 years at the same dosage/weight and activity level, would the dose change? and 2. How carefully will I have to stay within calories now? I know the second part is going to be wait-and-see, I guess. I suppose this thread will be me reporting how it goes. I'm pretty sure I've been getting "assistance" from the levo with my ability to eat way more than is typical.
I’ve been on Synthroid for over 20 years and during that period I was only on the same dose for about 5 years. Your dose is based off of your Thyroid levels. Which is why it’s good to keep getting them checked yearly even if your dose hasn’t changed in a while. It’s good to know the symptoms of hyperthyroidism as well as hypo so you can report them to your doctor right away.
Hang in there. Being dependent on thyroid medicine everyday isn’t easy, but far better than not being on it when it’s so vital for our body system.
Yeah, I've been on them 25 years. Weight-stable maintenance for 10. My question was/is - why now did my dose change after 6-7 years at the same dose, same activity level and same everything else?
Last year's numbers were still okay but I was eating a LOT. To me that was the only sign, other than a lot of energy but that was partly all the food, too. I wasn't going to freak out over slightly high levels, and none of the other symptoms were bothersome and could have been attributed to other factors.
Do you have Hashimoto's? Because if you do, that's your answer. Hashimoto's isn't a stable condition. It has fluctuations.1 -
cmriverside wrote: »
I've never seen an endocrinologist. No doctor ever suggested I needed to and I just figured they knew how to treat it and I felt okay. I used to have crippling migraines and depression, but once I went through menopause that went away. It didn't occur to me to be worried about the dose and I'm embarrassed to say I just never delved into it. I only tied the food and thyroid together because of logging my food for so long.
Only other symptom I could maybe tie to it would be anxiety - but who doesn't have anxiety, and I guess heart rate increases could be due to too high levothryoxine, which would certainly feel like anxiety. Maybe I'll see if an endo is a good idea. Not sure I should be worried about it.
Anxiety is definitely tied to hyperthyroidism - and no, many people don't suffer from anxiety - as is tachycardia. It's not good for your heart or health generally to be hyperthyroid, even if the bonus is being able to eat without gaining. It does sound like a reduction in meds is a good idea. And as for the change - your thyroid function changes all the time, especially with things like puberty (what triggered mine initially), pregnancy (what triggered it a second time post partial-thyroidectomy), and perimenopause and menopause (I'm watching you).
Your hormones change as you age, so it's no surprise that your thyroid function is now affected, even if it's been stable for years. Very common.1 -
GottaBurnEmAll wrote: »cmriverside wrote: »FitPhillygirl wrote: »cmriverside wrote: »cmriverside wrote: »I did a little research, and apparently dosage is related to age and weight. If we go by the recommended guidelines, I should have been lowered ten years ago. Still doesn't explain why the dose went down now as opposed to in say 2010 - which was three years after I lost my 70 pounds. I'm not arguing or upset that she lowered the dose, I think it's probably past time to do it by several years is all - and it kind of irritates me that they wanted to give me anti-anxiety meds as a first line of defense instead of lowering my thyroid meds. Last year my TSH was 0.9. That is really low - I would think they would have lowered the dose last year.
My gripe is with medical professionals. Why do I have to do all the research to find out this stuff? Isn't this your JOB? Seems like a pretty common medical issue - and it has definite guidelines.
Okay. Rant over for now. We'll see my numbers this year...oh, wait. Another gripe WHY do I have to log onto the internet to get my results? Send me my labs! Get off my lawn.
Okay, now I'm really done. Thank you for reading...if you did.
0.9 isn't low - Optimal range for TSH is 0.2-2.0. Even so this is a population range, so you may "feel" sub par and still be within range. This has more to do with what you have been used to.
All hormones are free cycling, so largely dependent on weight (mass). Think of adding a cup of sugar to a glass vs. a pitcher of water. If you lose a significant amount of weight you will need to adjust any hormone supplement accordingly as you don't need as much to function.
Thanks for commenting, CSARdriver.
My concern or question is twofold: 1. Why now, after 6-7 years at the same dosage/weight and activity level, would the dose change? and 2. How carefully will I have to stay within calories now? I know the second part is going to be wait-and-see, I guess. I suppose this thread will be me reporting how it goes. I'm pretty sure I've been getting "assistance" from the levo with my ability to eat way more than is typical.
I’ve been on Synthroid for over 20 years and during that period I was only on the same dose for about 5 years. Your dose is based off of your Thyroid levels. Which is why it’s good to keep getting them checked yearly even if your dose hasn’t changed in a while. It’s good to know the symptoms of hyperthyroidism as well as hypo so you can report them to your doctor right away.
Hang in there. Being dependent on thyroid medicine everyday isn’t easy, but far better than not being on it when it’s so vital for our body system.
Yeah, I've been on them 25 years. Weight-stable maintenance for 10. My question was/is - why now did my dose change after 6-7 years at the same dose, same activity level and same everything else?
Last year's numbers were still okay but I was eating a LOT. To me that was the only sign, other than a lot of energy but that was partly all the food, too. I wasn't going to freak out over slightly high levels, and none of the other symptoms were bothersome and could have been attributed to other factors.
Do you have Hashimoto's? Because if you do, that's your answer. Hashimoto's isn't a stable condition. It has fluctuations.
Isn't that the auto-immune version? I don't think so, I have no other health issues that might be auto-immune related I don't think.
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Thanks, @ContraryMaryMary. And, yeah my blood pressure and kidney function are both up this year as compared to other years.
So many people talk about anxiety I just thought it was part of the Human Condition, and I'm getting older and I'm more sensitive to a lot of things, such as caffeine, sugar, alcohol. I really really hope this med change helps the blood pressure and the kidney issues. I had been eating so much protein and just so much food in general. That can't be a good thing.
Or maybe there is something else going on.
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cmriverside wrote: »GottaBurnEmAll wrote: »cmriverside wrote: »FitPhillygirl wrote: »cmriverside wrote: »cmriverside wrote: »I did a little research, and apparently dosage is related to age and weight. If we go by the recommended guidelines, I should have been lowered ten years ago. Still doesn't explain why the dose went down now as opposed to in say 2010 - which was three years after I lost my 70 pounds. I'm not arguing or upset that she lowered the dose, I think it's probably past time to do it by several years is all - and it kind of irritates me that they wanted to give me anti-anxiety meds as a first line of defense instead of lowering my thyroid meds. Last year my TSH was 0.9. That is really low - I would think they would have lowered the dose last year.
My gripe is with medical professionals. Why do I have to do all the research to find out this stuff? Isn't this your JOB? Seems like a pretty common medical issue - and it has definite guidelines.
Okay. Rant over for now. We'll see my numbers this year...oh, wait. Another gripe WHY do I have to log onto the internet to get my results? Send me my labs! Get off my lawn.
Okay, now I'm really done. Thank you for reading...if you did.
0.9 isn't low - Optimal range for TSH is 0.2-2.0. Even so this is a population range, so you may "feel" sub par and still be within range. This has more to do with what you have been used to.
All hormones are free cycling, so largely dependent on weight (mass). Think of adding a cup of sugar to a glass vs. a pitcher of water. If you lose a significant amount of weight you will need to adjust any hormone supplement accordingly as you don't need as much to function.
Thanks for commenting, CSARdriver.
My concern or question is twofold: 1. Why now, after 6-7 years at the same dosage/weight and activity level, would the dose change? and 2. How carefully will I have to stay within calories now? I know the second part is going to be wait-and-see, I guess. I suppose this thread will be me reporting how it goes. I'm pretty sure I've been getting "assistance" from the levo with my ability to eat way more than is typical.
I’ve been on Synthroid for over 20 years and during that period I was only on the same dose for about 5 years. Your dose is based off of your Thyroid levels. Which is why it’s good to keep getting them checked yearly even if your dose hasn’t changed in a while. It’s good to know the symptoms of hyperthyroidism as well as hypo so you can report them to your doctor right away.
Hang in there. Being dependent on thyroid medicine everyday isn’t easy, but far better than not being on it when it’s so vital for our body system.
Yeah, I've been on them 25 years. Weight-stable maintenance for 10. My question was/is - why now did my dose change after 6-7 years at the same dose, same activity level and same everything else?
Last year's numbers were still okay but I was eating a LOT. To me that was the only sign, other than a lot of energy but that was partly all the food, too. I wasn't going to freak out over slightly high levels, and none of the other symptoms were bothersome and could have been attributed to other factors.
Do you have Hashimoto's? Because if you do, that's your answer. Hashimoto's isn't a stable condition. It has fluctuations.
Isn't that the auto-immune version? I don't think so, I have no other health issues that might be auto-immune related I don't think.
Yes. You might have it and not know, but I think back in the day it was normal to test for antibodies, so you would have been tested, but I'm not sure. I was tested back in the day when I was diagnosed, but I had been referred by an infertility specialist to an endocrinologist, so perhaps it was different for me.
At any rate, it is the primary cause of hypothyroidism for most people who have it.1 -
GottaBurnEmAll wrote: »cmriverside wrote: »GottaBurnEmAll wrote: »cmriverside wrote: »FitPhillygirl wrote: »cmriverside wrote: »cmriverside wrote: »I did a little research, and apparently dosage is related to age and weight. If we go by the recommended guidelines, I should have been lowered ten years ago. Still doesn't explain why the dose went down now as opposed to in say 2010 - which was three years after I lost my 70 pounds. I'm not arguing or upset that she lowered the dose, I think it's probably past time to do it by several years is all - and it kind of irritates me that they wanted to give me anti-anxiety meds as a first line of defense instead of lowering my thyroid meds. Last year my TSH was 0.9. That is really low - I would think they would have lowered the dose last year.
My gripe is with medical professionals. Why do I have to do all the research to find out this stuff? Isn't this your JOB? Seems like a pretty common medical issue - and it has definite guidelines.
Okay. Rant over for now. We'll see my numbers this year...oh, wait. Another gripe WHY do I have to log onto the internet to get my results? Send me my labs! Get off my lawn.
Okay, now I'm really done. Thank you for reading...if you did.
0.9 isn't low - Optimal range for TSH is 0.2-2.0. Even so this is a population range, so you may "feel" sub par and still be within range. This has more to do with what you have been used to.
All hormones are free cycling, so largely dependent on weight (mass). Think of adding a cup of sugar to a glass vs. a pitcher of water. If you lose a significant amount of weight you will need to adjust any hormone supplement accordingly as you don't need as much to function.
Thanks for commenting, CSARdriver.
My concern or question is twofold: 1. Why now, after 6-7 years at the same dosage/weight and activity level, would the dose change? and 2. How carefully will I have to stay within calories now? I know the second part is going to be wait-and-see, I guess. I suppose this thread will be me reporting how it goes. I'm pretty sure I've been getting "assistance" from the levo with my ability to eat way more than is typical.
I’ve been on Synthroid for over 20 years and during that period I was only on the same dose for about 5 years. Your dose is based off of your Thyroid levels. Which is why it’s good to keep getting them checked yearly even if your dose hasn’t changed in a while. It’s good to know the symptoms of hyperthyroidism as well as hypo so you can report them to your doctor right away.
Hang in there. Being dependent on thyroid medicine everyday isn’t easy, but far better than not being on it when it’s so vital for our body system.
Yeah, I've been on them 25 years. Weight-stable maintenance for 10. My question was/is - why now did my dose change after 6-7 years at the same dose, same activity level and same everything else?
Last year's numbers were still okay but I was eating a LOT. To me that was the only sign, other than a lot of energy but that was partly all the food, too. I wasn't going to freak out over slightly high levels, and none of the other symptoms were bothersome and could have been attributed to other factors.
Do you have Hashimoto's? Because if you do, that's your answer. Hashimoto's isn't a stable condition. It has fluctuations.
Isn't that the auto-immune version? I don't think so, I have no other health issues that might be auto-immune related I don't think.
Yes. You might have it and not know, but I think back in the day it was normal to test for antibodies, so you would have been tested, but I'm not sure. I was tested back in the day when I was diagnosed, but I had been referred by an infertility specialist to an endocrinologist, so perhaps it was different for me.
At any rate, it is the primary cause of hypothyroidism for most people who have it.
I have read that before about Hashi being the primary cause. I just don't have any other chronic health problems. I have no idea if I was tested for it.
Thanks.
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cmriverside wrote: »Late commenting, but another data point:
I've been on levo for around 17 years, last dosage adjustment (upward to 175mcg) around 4 years ago or so, lost 50+ pounds in 2015, maintaining (up and down a bit) since.
I've been hovering around the lower end of my lab's TSH reference range since shortly after the dose adjustment, being tested every 6 months like clockwork. No noticeable effect from the weight loss.
I too maintain on several hundred calories higher than predicted. I've wondered if being at the low end of the reference range is one contributing factor (I don't think it's the whole story). But I feel much more myself at the low end, even just a tiny bit under at some tests, and my doctor's been fine with that as long as there are no negative symptoms
Thanks, yeah something is up. Not sure how deep I want to go into it as long as everything else seems okay. I did have concerns over the high level of calories I ate without gaining.
I'm just taking the extra calories as a bonus.
I know that's not reassuring in any way, but maybe this will be, at least a little: I'm a long term survivor of stage III breast cancer. If we get the sniffles, they send us for CAT scans. Because of some other sudden minor weirdness that was atypical for me (chronic paronychia, periorificial dermatitis), the oncology people decided to do a deep dive on why I lost weight faster/more easily than expected, including, yes, CAT scans. Conclusion: Completely healthy - some people just need more calories.
There are quite a few women around here who aren't super large who seem to have before-exercise calorie needs in the 2000s despite being older. It's far from typical, but anecdotally it doesn't seem crazy unusual, either.3 -
cmriverside wrote: »Late commenting, but another data point:
I've been on levo for around 17 years, last dosage adjustment (upward to 175mcg) around 4 years ago or so, lost 50+ pounds in 2015, maintaining (up and down a bit) since.
I've been hovering around the lower end of my lab's TSH reference range since shortly after the dose adjustment, being tested every 6 months like clockwork. No noticeable effect from the weight loss.
I too maintain on several hundred calories higher than predicted. I've wondered if being at the low end of the reference range is one contributing factor (I don't think it's the whole story). But I feel much more myself at the low end, even just a tiny bit under at some tests, and my doctor's been fine with that as long as there are no negative symptoms
Thanks, yeah something is up. Not sure how deep I want to go into it as long as everything else seems okay. I did have concerns over the high level of calories I ate without gaining.
I'm just taking the extra calories as a bonus.
I know that's not reassuring in any way, but maybe this will be, at least a little: I'm a long term survivor of stage III breast cancer. If we get the sniffles, they send us for CAT scans. Because of some other sudden minor weirdness that was atypical for me (chronic paronychia, periorificial dermatitis), the oncology people decided to do a deep dive on why I lost weight faster/more easily than expected, including, yes, CAT scans. Conclusion: Completely healthy - some people just need more calories.
There are quite a few women around here who aren't super large who seem to have before-exercise calorie needs in the 2000s despite being older. It's far from typical, but anecdotally it doesn't seem crazy unusual, either.
Well, I'm glad your checkups went well and that you are still healthy! That must be reassuring. I suppose part of the reason I started this thread is for somewhere to bounce my fears off other people, so thanks for talking.
I know a lot of women can eat quite a bit. I just could never get full, and even at 2300 on average, I could regularly eat a lot more. I mentioned earlier my 60 thousand extra calories over the past four months and that has been the way it's gone for me for nearly two years.
A lot of extra food is also expensive! If I can save money and be the same weight, win/win.
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This thread has been most insightful, my problems seem to be the exact opposite of yours - I seem to be getting more hypo whereas your results indicate you could be closer to the hyper end. Very pleased it has worked in your favour, am also encouraged that thyroid suffers are ale to lose and maintain weight, the fact that I managed a bit and then it stopped has made me take a far more in depth view trying to get some understanding of what is going on.cmriverside wrote: »I had been eating so much protein and just so much food in general. That can't be a good thing.
As you are not gaining weight, I wouldn't have thought the extra food would do harm - just along as the food isn't harming you in other ways like hypertension, cholesterol etc.
Your protein comment caught my attention, in another post you say you don't know if you have Hashimoto's, I believe one of the diet 'protocols' is to eat high protein - you could have been unwittingly helping your thyroid along.
In spite of being on levo for 20 odd years I now know just how little I understand what is going on, so with that in mind my previous comment could be utter rubbish
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stevephi01 wrote: »This thread has been most insightful, my problems seem to be the exact opposite of yours - I seem to be getting more hypo whereas your results indicate you could be closer to the hyper end. Very pleased it has worked in your favour, am also encouraged that thyroid suffers are ale to lose and maintain weight, the fact that I managed a bit and then it stopped has made me take a far more in depth view trying to get some understanding of what is going on.cmriverside wrote: »I had been eating so much protein and just so much food in general. That can't be a good thing.
As you are not gaining weight, I wouldn't have thought the extra food would do harm - just along as the food isn't harming you in other ways like hypertension, cholesterol etc.
Your protein comment caught my attention, in another post you say you don't know if you have Hashimoto's, I believe one of the diet 'protocols' is to eat high protein - you could have been unwittingly helping your thyroid along.
In spite of being on levo for 20 odd years I now know just how little I understand what is going on, so with that in mind my previous comment could be utter rubbish
Yeah, well the protein and extra food also places more stress on my kidneys. I had "outside the range" blood results for creatinine, GFR, and blood pressure - for the first time ever. So, of course Dr. Google has me convinced to eat less protein. I go back for bloods again in a couple weeks, I've cut salt and lowered my protein and calories. We'll see. It's a Rubik's Cube.
I guess it's not as easy to stay in range in everything as I get older. Good thing I'm so much smarter.
heh. 2 -
You definitely need to find out if your hypothyroidism is caused by Hashimoto's. I was diagnosed with Hashi's at age 12 and have been on meds since that time. I'm now 35 and my dosage increased from 25 mcg (I took this same dose from age 12-25) and am now up to 150 mcg with my TSH being 4.5 (it was at 40 last year). I had an 18-month period of time where my dosage went from 50 mcg all the way up to 125 mcg. With Hashi's you can have periods that are more like "remission" and then you can have periods where your thyroid becomes increasingly damaged. I would love to get my TSH down to 1 if possible.
I will be on medication for the rest of my life regardless of weight loss. I have also acquired a second and third autoimmune diagnosis. After you have one, you are more likely to develop more--and that is one of the reasons I feel that all people with thyroid issues should have an antibody test.1 -
I've been waiting for my results, know the Dr has them but no one looked at them yet , or at least commented on the system / released them for me to see - guess an Easter backlog. I have been told the TSH (the only test done) had dropped to .95 which has taken me by surprise as its been 1.3-1.9 for the past 11 years and the earliest I can access, 12 years ago, came in at .35. I felt my best at the time it was so low. I know something isn't right, my result isn't consistent to how I feel.gaelicstorm wrote: »After you have one, you are more likely to develop more--and that is one of the reasons I feel that all people with thyroid issues should have an antibody test.
I've decided I'm going to get a 'full' test from a lab to get a handle on what is fact and discard assumptions, if I have Hashi's then I'll have to learn to live with it properly and be mindful of the potential it may not stop there - but at least I'd have either confirmed or discarded that part as a problem. If I wasn't feeling so awful nearly all of the time I'd have just left it, so maybe in an obtuse way I'm forced into finding out more.0 -
stevephi01 wrote: »I've been waiting for my results, know the Dr has them but no one looked at them yet , or at least commented on the system / released them for me to see - guess an Easter backlog. I have been told the TSH (the only test done) had dropped to .95 which has taken me by surprise as its been 1.3-1.9 for the past 11 years and the earliest I can access, 12 years ago, came in at .35. I felt my best at the time it was so low. I know something isn't right, my result isn't consistent to how I feel.gaelicstorm wrote: »After you have one, you are more likely to develop more--and that is one of the reasons I feel that all people with thyroid issues should have an antibody test.
I've decided I'm going to get a 'full' test from a lab to get a handle on what is fact and discard assumptions, if I have Hashi's then I'll have to learn to live with it properly and be mindful of the potential it may not stop there - but at least I'd have either confirmed or discarded that part as a problem. If I wasn't feeling so awful nearly all of the time I'd have just left it, so maybe in an obtuse way I'm forced into finding out more.
Some people do better at a lower TSH than others -- it doesn't mean that you're hyper, as much as it means that *your* baseline isn't like others.
Really, as long as you're not <.1, it's not a problem to be at the lower end of the range. And it doesn't mean that your metabolism is/isn't anything as a result of the meds.0 -
what @collectingblues said - in working with my PCM and now endo - we have figured that I do better when I keep my TSH at the .5-.8 range; anything over about 1.1 and I start having hypo symptoms - having a doc that listens to you is worth their weight in gold3
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deannalfisher wrote: »what @collectingblues said - in working with my PCM and now endo - we have figured that I do better when I keep my TSH at the .5-.8 range; anything over about 1.1 and I start having hypo symptoms - having a doc that listens to you is worth their weight in gold
Tell me what you mean by "hypo" symptoms.
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