Does CICO not work for some people or is something else going on here?

lemurcat12

It sounds pretty clearly like a medical problem, as your own posts indicate you know. The only responsible answer anyone can give is "see a doctor."

Things happen (like malabsorption) where food intake does not give rise to calories in, in anywhere near the amounts expected, and one of the issues among many is that other nutrients and hydration and electrolytes can be way off too (the latter being a major concern from chronic diarrhea). This has nothing to do with CICO.

stanmann571

Ease off/taper off on the coconut oil until the squidge stops.

Constipation/Diarrhea, are two sides of the same fat/fiber imbalance coin. Too far in either direction and you end up in one camp or the other. Too much fat or fiber. Locked up... or blowing out. And you don't know until you cross the threshold, where you're at. And it's very much a personal biome issue, the same dose for two different people may cause diametrically opposed results.

Adding in Pre/pro biotics may change/alter the threshold or the symptom.

GottaBurnEmAll

KrazyKrissyy wrote: »

sarahthes wrote: »

Yep, gonna second malabsorption. So despite the surplus it seems like you're taking in, CI is lower than expected.

What do you think is the solution to malabsorption?

You could likely be bringing on the diarrhea with such a high level of coconut oil consumption. I know you need a high fat intake for your seizures. I'd suggest working with your medical team to strike a balance.

Malabsorption is a serious medical issue and just as pressing as treating your seizures.

Spliner1969

KrazyKrissyy wrote: »

PS- the symptoms my doctor found so far were stomach ulcers (endoscopy), impacted stool (scan), bacteria overgrowth in the small intestine (hydrogen breath test), and gastroparesis (emptying test). But she basically said these are all symptoms to something else. Neither her or the other doctors have found out the main cause yet.

My daughter had most if not all of those symptoms. They diagnosed her with H.Pylori infection/overgrowth. Treatment was two different antibiotics, and an proton pump inhibitor (to reduce stomach acid so the antibiotics can do their work). That's likely what they were doing with the hydrogen breath test (testing for CO2 levels I assume). As far as the rest, I'd suggest easing up on the coconut oil before you land yourself in the hospital. She actually didn't take both antibiotics correctly because they were making her sick too, and now she has to go back for treatment again because the symptoms have returned. She's 25 so I can't make her take her medicine lol, I can only nag her. So I nag lol.

Sayanogo

KrazyKrissyy wrote: »

singingflutelady wrote: »

Are you on any meds to speed up your GI system like reglan, domperidone or erythromycin?

I've never heard of those. See, this is why I'm losing hope in the medical field.

You might try having a conversation with your doctor where you emphasize that you need help controlling your symptoms, even if the cause hasn't been determined yet.

"Hey Doc, these digestive issues are making me miserable and I'm losing a lot of weight. What can we do to get this under control while we try to find the cause?"