Does CICO not work for some people or is something else going on here?
Replies
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You loose 1-2 pounds PER DAY?? And you eat 24 tablespoons of coconut oil PER DAY?!
Why are you eating this much coconut oil? Who told you to do that? Where are you getting these ideas? Are you actually counting your calories or just guessing from all the coconut oil your eating? Do you have a nutritionist or are you just picking internet fads to go off of?
OR is this a troll post, cause it feels like a troll post...5 -
singingflutelady wrote: »I also have gastroparesis and also look pregnant after I eat. I mostly drink medical meal replacement shakes as I toleratw them better. I also massively retain fluid. I intake less than 800 calories most days (my nausea and lack.of appetite are out of control at the moment) and I haven't lost any weight in 2 weeks (which is a good thing as I don't have any to lose). I don't have constipation issues as I have an ileostomy so it comes out about 20 hours after consumption (normal is 6-8). Constipation, malabsorption and indigestion, gas, pregnant look etc are all gastroparesis symptoms.
All of that sounds like me too though I've only been diagnosed with IBS, haven't gotten around to having the gastroparesis test but I strongly suspect it. I eat fairly little due to lack of appetite and feeling really full after tiny portions, and have chronic constipation, and also retain water a lot, didn't know it was related0 -
WinoGelato wrote: »livingleanlivingclean wrote: »If you have chronic diarrhea, you won't be absorbing much at all.... It all comes out too quickly. You'll also likely be dehydrated...
I'd be going to the Dr, or hospital to work out what's going on..
All of this - not posing yet another question about whether CICO is valid to the MFP community at large.
Seriously - work directly with your doctor or a team of doctor to solve these problems, don't ask random internet strangers to help troubleshoot your complex medical scenario... and don't use a completely individualized medical situation as a platform to misrepresent what CICO is about.
Man CICO has had a rough go of things around here lately!!!!
What do you mean another? Can you please explain? This is a support forum too, no?6 -
The coconut oil can cause diarrhea and gastrointestinal upset. I can’t imagine having 24 tablespoons a day! Wow! Is there a reason you’re consuming that much? I’m surprised you aren’t nauseated all the time.
I feel better when I take tablespoons of coconut oil. Idk how to explain it. My cramps are minimized and less gas.5 -
singingflutelady wrote: »Are you on any meds to speed up your GI system like reglan, domperidone or erythromycin?
I've never heard of those. See, this is why I'm losing hope in the medical field.0 -
KrazyKrissyy wrote: »singingflutelady wrote: »Are you on any meds to speed up your GI system like reglan, domperidone or erythromycin?
I've never heard of those. See, this is why I'm losing hope in the medical field.
Domperidone isn't fda approved so it's difficult to get in the states but Reglan is pretty standard treatment for gastroparesis. I'm Canadian and domperidone is approved here so that's what I take. erythromycin is an antibiotic which has the side effect of causing increased peristalsis speed but it only works for a little while before it stops helping. It was my miracle drug after I got over the hump of the other side effecrs but it only worked for a couple of weeks for me.0 -
@krazykrissyy Here's a new MFP group for people with digestive disorders. https://community.myfitnesspal.com/en/group/126485-the-digestive-disorders-group-the-dd-crew1
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I really hope you are working closely with your doctor and that he/she knows about the coconut oil. It's very foolish to self-medicate an unknown problem. I can't imagine anyone's digestive tract tolerating 24 TB of coconut oil a day.5
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I really hope you are working closely with your doctor and that he/she knows about the coconut oil. It's very foolish to self-medicate an unknown problem. I can't imagine anyone's digestive tract tolerating 24 TB of coconut oil a day.
I agree. While coconut oil does help with digestive issues, too much has the opposite effect; cramping, diarrhea, bloating, etc.0 -
KrazyKrissyy wrote: »WinoGelato wrote: »livingleanlivingclean wrote: »If you have chronic diarrhea, you won't be absorbing much at all.... It all comes out too quickly. You'll also likely be dehydrated...
I'd be going to the Dr, or hospital to work out what's going on..
All of this - not posing yet another question about whether CICO is valid to the MFP community at large.
Seriously - work directly with your doctor or a team of doctor to solve these problems, don't ask random internet strangers to help troubleshoot your complex medical scenario... and don't use a completely individualized medical situation as a platform to misrepresent what CICO is about.
Man CICO has had a rough go of things around here lately!!!!
What do you mean another? Can you please explain? This is a support forum too, no?
Here are just a few recent examples:
https://community.myfitnesspal.com/en/discussion/10660811/calorie-in-calorie-out-method-is-outdated/p1
https://community.myfitnesspal.com/en/discussion/10640612/cico-is-overrated-in-my-opinion/p1
https://community.myfitnesspal.com/en/discussion/10660917/mfp-recommended-that-i-read-this-is-the-quality-of-calories-more-important-than-quantity/p1
A thread in support of CICO but the posts show that clearly people don't fully understand what it is.
https://community.myfitnesspal.com/en/discussion/10654872/why-do-people-deny-cico/p1
This can be a support forum, but you posted your question in General Health, Fitness and Diet. You also have pretty unique and extensive medical conditions which would influence your individual situation; and you're getting advice there. So it really doesn't have much to do with whether CICO "works" or not (which it does).
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It sounds pretty clearly like a medical problem, as your own posts indicate you know. The only responsible answer anyone can give is "see a doctor."
Things happen (like malabsorption) where food intake does not give rise to calories in, in anywhere near the amounts expected, and one of the issues among many is that other nutrients and hydration and electrolytes can be way off too (the latter being a major concern from chronic diarrhea). This has nothing to do with CICO.2 -
Ease off/taper off on the coconut oil until the squidge stops.
Constipation/Diarrhea, are two sides of the same fat/fiber imbalance coin. Too far in either direction and you end up in one camp or the other. Too much fat or fiber. Locked up... or blowing out. And you don't know until you cross the threshold, where you're at. And it's very much a personal biome issue, the same dose for two different people may cause diametrically opposed results.
Adding in Pre/pro biotics may change/alter the threshold or the symptom.0 -
KrazyKrissyy wrote: »
You could likely be bringing on the diarrhea with such a high level of coconut oil consumption. I know you need a high fat intake for your seizures. I'd suggest working with your medical team to strike a balance.
Malabsorption is a serious medical issue and just as pressing as treating your seizures.7 -
KrazyKrissyy wrote: »PS- the symptoms my doctor found so far were stomach ulcers (endoscopy), impacted stool (scan), bacteria overgrowth in the small intestine (hydrogen breath test), and gastroparesis (emptying test). But she basically said these are all symptoms to something else. Neither her or the other doctors have found out the main cause yet.
My daughter had most if not all of those symptoms. They diagnosed her with H.Pylori infection/overgrowth. Treatment was two different antibiotics, and an proton pump inhibitor (to reduce stomach acid so the antibiotics can do their work). That's likely what they were doing with the hydrogen breath test (testing for CO2 levels I assume). As far as the rest, I'd suggest easing up on the coconut oil before you land yourself in the hospital. She actually didn't take both antibiotics correctly because they were making her sick too, and now she has to go back for treatment again because the symptoms have returned. She's 25 so I can't make her take her medicine lol, I can only nag her. So I nag lol.8 -
KrazyKrissyy wrote: »singingflutelady wrote: »Are you on any meds to speed up your GI system like reglan, domperidone or erythromycin?
I've never heard of those. See, this is why I'm losing hope in the medical field.
You might try having a conversation with your doctor where you emphasize that you need help controlling your symptoms, even if the cause hasn't been determined yet.
"Hey Doc, these digestive issues are making me miserable and I'm losing a lot of weight. What can we do to get this under control while we try to find the cause?"4
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