Migraines & Running

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  • goodlife4ever
    goodlife4ever Posts: 14 Member
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    Yep! I didn’t do well with imitrex or another hybrid that was supposed to have less side effects. It made me tired as if I had iron deficiency. Could barely lift my arms without feeling exhausted. My brain haze still remained.
  • GottaBurnEmAll
    GottaBurnEmAll Posts: 7,722 Member
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    if you can run when you have a migraine ... you dont have a migraine.

    Chronic migraine disease has a full spectrum of experience. Only a full-blown migraine prevents activity.

    People who live with daily headaches learn to function when they have a less-than-full-blown migraine.

    There's a difference between people who have migraine disease and people who can down a coke or some coffee, pop some Excedrin, and lie down for a while and be done with what they're experiencing when it happens to them every couple of months.
  • mbaker566
    mbaker566 Posts: 11,233 Member
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    if you can run when you have a migraine ... you dont have a migraine.

    Chronic migraine disease has a full spectrum of experience. Only a full-blown migraine prevents activity.

    People who live with daily headaches learn to function when they have a less-than-full-blown migraine.

    There's a difference between people who have migraine disease and people who can down a coke or some coffee, pop some Excedrin, and lie down for a while and be done with what they're experiencing when it happens to them every couple of months.

    this often what i do. often it helps. i learned it from another migraine sufferer
    but only soda-coffee makes it worse. idk why.
  • GottaBurnEmAll
    GottaBurnEmAll Posts: 7,722 Member
    edited December 2018
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    mbaker566 wrote: »
    if you can run when you have a migraine ... you dont have a migraine.

    Chronic migraine disease has a full spectrum of experience. Only a full-blown migraine prevents activity.

    People who live with daily headaches learn to function when they have a less-than-full-blown migraine.

    There's a difference between people who have migraine disease and people who can down a coke or some coffee, pop some Excedrin, and lie down for a while and be done with what they're experiencing when it happens to them every couple of months.

    this often what i do. often it helps. i learned it from another migraine sufferer
    but only soda-coffee makes it worse. idk why.



    I think there's a disconnect in discussions like these because some of us are on protocols from neurologists that include daily medications and supplements along with rescue meds and injectable preventatives and there are others involved who ... get occasional migraines and only ever use OTC remedies. I sometimes use OTC remedies on my milder days because I can only use my big guns rescue med so many days per week. So I do get that it can be effective. But if OTC is all you ever use, you don't have chronic migraine, you know what I mean?

    Chronic migraine is different than occasional migraine in how it's experienced and handled. That's the only point I'm trying to make.
  • mbaker566
    mbaker566 Posts: 11,233 Member
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    mbaker566 wrote: »
    if you can run when you have a migraine ... you dont have a migraine.

    Chronic migraine disease has a full spectrum of experience. Only a full-blown migraine prevents activity.

    People who live with daily headaches learn to function when they have a less-than-full-blown migraine.

    There's a difference between people who have migraine disease and people who can down a coke or some coffee, pop some Excedrin, and lie down for a while and be done with what they're experiencing when it happens to them every couple of months.

    this often what i do. often it helps. i learned it from another migraine sufferer
    but only soda-coffee makes it worse. idk why.



    I think there's a disconnect in discussions like these because some of us are on protocols from neurologists that include daily medications and supplements along with rescue meds and injectable preventatives and there are others involved who ... get occasional migraines and only ever use OTC remedies. I sometimes use OTC remedies on my milder days because I can only use my big guns rescue med so many days per week. So I do get that it can be effective. But if OTC is all you ever use, you don't have chronic migraine, you know what I mean?

    Chronic migraine is different than occasional migraine in how it's experienced and handled. That's the only point I'm trying to make.

    i do have chronic but the severity is inconvenient most days. i do have rescue meds. there is a spectrum of migraines. there are different types of migraines.
    heck, i didn't even know that's what i had until i told my dr and then tests ensued
  • mph323
    mph323 Posts: 3,565 Member
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    Yep! I didn’t do well with imitrex or another hybrid that was supposed to have less side effects. It made me tired as if I had iron deficiency. Could barely lift my arms without feeling exhausted. My brain haze still remained.

    I take Imitrex, and you've described the side effects exactly as I experience them, especially the neck and shoulder muscle weakness. Before the migraine drugs were available, though, I was prescribed codeine. If I took it soon enough, I could knock myself out and sleep it off, but I was useless until the drug wore off. If I waited too long I just threw it up. At least I can usually keep the Imitrex down even in the middle of a full-blown episode, and it actually has an impact on the headache itself (combined with caffeine and Motrin), instead of just putting me to sleep until it passes.
  • EmmieEatsEverything
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    GottaBurnEmAll has a very good point when she says it is a spectrum. It’s also rather nasty to minimize someone’s pain because they can function while in pain. You can’t possibly know and understand the OP’s nuances, symptoms, occurrence and severity of their headaches/migraines like they do.

    I know if I stopped what I was doing anytime I had one or many of my normal
    symptoms, I would never do anything.

    P.S. I’m so jealous of people who can just take an OTC and a nap and be fine in a few hours.
  • GottaBurnEmAll
    GottaBurnEmAll Posts: 7,722 Member
    edited December 2018
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    mbaker566 wrote: »
    mbaker566 wrote: »
    if you can run when you have a migraine ... you dont have a migraine.

    Chronic migraine disease has a full spectrum of experience. Only a full-blown migraine prevents activity.

    People who live with daily headaches learn to function when they have a less-than-full-blown migraine.

    There's a difference between people who have migraine disease and people who can down a coke or some coffee, pop some Excedrin, and lie down for a while and be done with what they're experiencing when it happens to them every couple of months.

    this often what i do. often it helps. i learned it from another migraine sufferer
    but only soda-coffee makes it worse. idk why.



    I think there's a disconnect in discussions like these because some of us are on protocols from neurologists that include daily medications and supplements along with rescue meds and injectable preventatives and there are others involved who ... get occasional migraines and only ever use OTC remedies. I sometimes use OTC remedies on my milder days because I can only use my big guns rescue med so many days per week. So I do get that it can be effective. But if OTC is all you ever use, you don't have chronic migraine, you know what I mean?

    Chronic migraine is different than occasional migraine in how it's experienced and handled. That's the only point I'm trying to make.

    i do have chronic but the severity is inconvenient most days. i do have rescue meds. there is a spectrum of migraines. there are different types of migraines.
    heck, i didn't even know that's what i had until i told my dr and then tests ensued

    That's pretty much what I'm saying except to differentiate between chronic and occasional migraine.

    I think people who think you can't function with a migraine probably only experience occasional migraine and don't have chronic migraine disease where they experience the full spectrum of them.

    I had very atypical migraines before I was diagnosed. They prodrome symptoms were seizure-like! So I get what you're saying about different types of headaches. Because after those siezure-like states, I didn't always have pain. I'd get a lot of the peripheral symptoms of migraine, but not the pain. It wasn't until after being referred to a specialist that I finally learned to understand what had been going on.
  • apullum
    apullum Posts: 4,838 Member
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    if you can run when you have a migraine ... you dont have a migraine.

    What a hurtful statement. People live with all types of pain. Whether or not someone really has a migraine is not dependent on the type of physical activity they can do, or what you believe they can do.
  • mbaker566
    mbaker566 Posts: 11,233 Member
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    mbaker566 wrote: »
    mbaker566 wrote: »
    if you can run when you have a migraine ... you dont have a migraine.

    Chronic migraine disease has a full spectrum of experience. Only a full-blown migraine prevents activity.

    People who live with daily headaches learn to function when they have a less-than-full-blown migraine.

    There's a difference between people who have migraine disease and people who can down a coke or some coffee, pop some Excedrin, and lie down for a while and be done with what they're experiencing when it happens to them every couple of months.

    this often what i do. often it helps. i learned it from another migraine sufferer
    but only soda-coffee makes it worse. idk why.



    I think there's a disconnect in discussions like these because some of us are on protocols from neurologists that include daily medications and supplements along with rescue meds and injectable preventatives and there are others involved who ... get occasional migraines and only ever use OTC remedies. I sometimes use OTC remedies on my milder days because I can only use my big guns rescue med so many days per week. So I do get that it can be effective. But if OTC is all you ever use, you don't have chronic migraine, you know what I mean?

    Chronic migraine is different than occasional migraine in how it's experienced and handled. That's the only point I'm trying to make.

    i do have chronic but the severity is inconvenient most days. i do have rescue meds. there is a spectrum of migraines. there are different types of migraines.
    heck, i didn't even know that's what i had until i told my dr and then tests ensued

    That's pretty much what I'm saying except to differentiate between chronic and occasional migraine.

    I think people who think you can't function with a migraine probably only experience occasional migraine and don't have chronic migraine disease where they experience the full spectrum of them.

    I had very atypical migraines before I was diagnosed. They prodrome symptoms were seizure-like! So I get what you're saying about different types of headaches. Because after those siezure-like states, I didn't always have pain. I'd get a lot of the peripheral symptoms of migraine, but not the pain. It wasn't until after being referred to a specialist that I finally learned to understand what had been going on.

    ah, i totally misread your post
  • mfp4kc
    mfp4kc Posts: 29 Member
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    What types of supplements have you all tried?
  • GottaBurnEmAll
    GottaBurnEmAll Posts: 7,722 Member
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    I've tried butterbur, Co-Q 10, riboflavin, and magnesium.

    Of all of those, I'm only still taking riboflavin and magnesium. Mind you, this is in addition to an SSRI, topomax, botox, aimovig compazine, and a rescue med.
  • YvetteK2015
    YvetteK2015 Posts: 653 Member
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    I've tried butterbur, Co-Q 10, riboflavin, and magnesium.

    Of all of those, I'm only still taking riboflavin and magnesium. Mind you, this is in addition to an SSRI, topomax, botox, aimovig compazine, and a rescue med.

    From experience, thorazine works a little harder on nausea and head pain than compazine. Works so well on nausea it was my best friend when I went through chemo.
  • goodlife4ever
    goodlife4ever Posts: 14 Member
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    I tried Magnesium—didn’t do anything for me. The only thing that has noticeably made any difference in severity and duration is calorie restriction used on this app. Maybe TMI, but it has also made my periods lighter. My headaches are hormone related, not sure what that correlation would be.
  • maiomaio71
    maiomaio71 Posts: 231 Member
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    I've suffered from migraines since I was 10. Same as my mother. Recently discovered I had a swollen optic nerve. When I had a lumbar puncture to relieve the pressure, I was migraine-free for 2 months. I'm now about to have surgery to have a shunt put in as the pressure has worsened and I'm starting to lose my sight. My opthalmologist thinks it's related to my migraines so I'm hoping to have fewer after the surgery.
    If I feel one coming on (I do get auras) often I can exercise before it hits, and I believe that when I can do this, the attack doesn't last as long, nor is it so intense. That said, once it hits I'm tucked up in bed for a day or so without any unnecessary movement because that brings on vomiting and more pain.
  • mfp4kc
    mfp4kc Posts: 29 Member
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    For CoQ10, a water and fat-soluble form will absorb better. In general, some research suggests it may support brain health: https://www.ncbi.nlm.nih.gov/pubmed/15728298
  • EliseTK1
    EliseTK1 Posts: 479 Member
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    My body was super angry with me for eating so much on Christmas Eve and Day. Yesterday I got a horrendous migraine, first one like that since starting calorie restricting a few months ago. I'm back at it now. Hope that keeps the pain away!
  • nathalier71
    nathalier71 Posts: 570 Member
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    I don't run when full fledge migraine is happening -I wouldn't be able to! I try to run before it gets to that point -and usually helps to prevent the headache from developing into more.