Thyroid Struggle is Real

laceygaywilson
laceygaywilson Posts: 330 Member
edited April 2019 in Motivation and Support
Hey y'all!! I have nodules on my thyroid and it has really made my life hard, weight management hard and relationships with everyone hard!! I thought I'd open up a place for us to vent share and maybe help each other get to a better place!! Support is a big help!!! Feel free to share ask questions vent cry whatever!! Open space to share your struggle and just know you are not alone!!!!!
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Replies

  • eutuxia_geo117
    eutuxia_geo117 Posts: 1 Member
    Hey girl.. I also have thyroid and PCOS and I have struggled with my weight since I remember me.. about thyroid, I found out like two months ago and I started the medication.. I feel really motivated and Im certain that this time I'm going to lose my weight! I'm sure you can fight it and find all the motivation you need to not give up! One step at the time and every day you will be closer to your goals! 💪
  • laceygaywilson
    laceygaywilson Posts: 330 Member
    edited April 2019
    rosson wrote: »
    I have a 1 inch nodule on my thyroid. I'm having it removed in a few weeks. My levels are ok but I still don't feel right. I wish it wasn't so hard to lose weight. I get really frustrated sometimes but I'm not giving up.

    Wow!! I am so glad they are taking it out for you!!! I am sure that will help you!!! Stay positive and keep pressing forward!! Sending you strength!!! 💪👊💪👊
  • yirara
    yirara Posts: 9,943 Member
    fh1951 wrote: »
    I was diagnosed with hypothyroidism 25+ years ago. Constant fatigue, depression. I began taking 100 mcg synthroid every morning and it made all the difference. A couple years ago my numbers were too low so my doctor prescribed an extra 50 mcg MWF. If you are on the med it is best to take it on an empty stomach and give it at least an hour to absorb before eating anything. My 2 cents...

    All of this! Get your medication fixed to feel better. Doctors are quick to say you are fine, but they should listen to you, not to some blood tests that can be influenced by pretty much everything. If you hare hypothyroid it won't get better because your thyroid is not able to produce sufficient amounts of the hormone your body needs anymore. Because in most cases it's an autoimmune disorder and your own body slowly attacks the thyroid. It doesn't heal. Hence a proper replacement therapy is needed that is based on how you feel.
  • Bex953172
    Bex953172 Posts: 4,158 Member
    edited April 2019
    I live in the UK so my healthcare is a bit different.
    I have to take levothyroxine everyday for hypo.
    Got diagnosed at 15, now 27.
    Didnt really commit to the lifelong need of tablets.
    But i take them (almost) daily now

    I never realised until i read properly that it affects the metabolism of every organ in your body.

    As a pp said, it says on my box to take them before breakfast and not with caffeine for atleast 30 mins
    Also iron supplements/tablets affect absorption.

    Never heard about nodules though, what are they and how do you get that checked?

  • ginnytez
    ginnytez Posts: 1,404 Member
    They can typically pick up on nodules by examining your neck (they can be felt). If they get large enough, they can be visible. A nodule does not mean cancer! They are very frequently not. You would also start noticing changes in your swallowing and possibly voice.
  • laceygaywilson
    laceygaywilson Posts: 330 Member
    I have three on one thyroid.... depending on witch is swelling and acting up depends on how I feel! I noticed the swelling first...but really symptoms started long before I just didn't know what they were!! Ultrasound showed how many and where and biopsy showed no cancer!!
  • promisesstandin
    promisesstandin Posts: 150 Member
    I take a supplement, Sea Kelp, that I order online from Dr. Berg. Don't know if that will help anyone here,... hope so. Kudos to everyone commenting and working to be healthy! Never give up!
  • MAJdansk
    MAJdansk Posts: 145 Member
    Good to learn that some of you are losing weight despite hypothyroidism. I shot up 10# when my meds were changed. They're being cautious due to a nodule they're watching. With intermittent fasting (16/8) and trying to stay low carb, I'm slowly losing.
    I'm wondering about symptoms you all have. Are dizziness and leg cramps among them? I have hoarsness, but have thought it was from my asthma med.
  • laceygaywilson
    laceygaywilson Posts: 330 Member
    Dizziness is definitely a struggle!! Realized recently that my thyroid causes tension in my neck and shoulders which cause my scalp to hurt!! YOGA HELPS!! Drinking 10-20 glasses of water a day helps too!! Cramps may be potassium related!!! I know at first they upped my meds trying to shrink the nodules...made my eyes hurt and everything worse. Finally I stopped the meds!! Listen to your body!! Move when you are tired and push when it hurts!! I get hoarse from my nodules sometimes even a lisp!!
  • laceygaywilson
    laceygaywilson Posts: 330 Member
    I really have to keep my emotions in check constantly and I get very insecure about my behavior and reactions to upsetting situations! I constantly doubt myself. I don't trust my feelings or emotions at all and I hate PMS!! My head is all over and I want to implode!!!! Anyone else????
  • emmies_123
    emmies_123 Posts: 513 Member
    I have a small goiter in my neck due to thyroid, and my throat is almost always irritated to some degree. Feels as if I'm coming down with a cold/sore throat, but never gets serious enough for meds. Take levothyroxine every morning for the last however many years. I did go up in weight initially, but not terribly bad and I have worked it back off again over the past year.

    Does anyone else ever sometimes feel like their throat closes up/has marble in it when laying down? It doesn't happen often, but every now and again when i'm in bed it feels like I have obstruction in throat and can't breathe regardless of position I lay in.
  • laceygaywilson
    laceygaywilson Posts: 330 Member
    emmies_123 wrote: »
    I have a small goiter in my neck due to thyroid, and my throat is almost always irritated to some degree. Feels as if I'm coming down with a cold/sore throat, but never gets serious enough for meds. Take levothyroxine every morning for the last however many years. I did go up in weight initially, but not terribly bad and I have worked it back off again over the past year.

    Does anyone else ever sometimes feel like their throat closes up/has marble in it when laying down? It doesn't happen often, but every now and again when i'm in bed it feels like I have obstruction in throat and can't breathe regardless of position I lay in.

    Yes!!! All the time!! I have coughing fits randomly!! Want to just hack it up but it's always there!!!
  • laceygaywilson
    laceygaywilson Posts: 330 Member
    Aunt Flo didn't show me down too much this month pushed right through!! YEEEEEEES PROGRESS!!!!
  • ConnieAGinther
    ConnieAGinther Posts: 515 Member
    I have underactive thyroid and even though I am counting all calories and on thyroid meds, I keep gaining weight. I have been on meds for about 2 - 3 years and was certainly losing some weight in the beginning, but now it is a real struggle. I am just ready to cry and give up.
  • mprocyszyn
    mprocyszyn Posts: 56 Member
    I was diagnozed with low thyroid when I was 50 (now 69) and have taken meds ever since. One thing the Dr. told me was take the meds on empty stomach and no other meds or vitamins for an hour or more, food, coffee to wait atleast a half hour. He also told me I must be consistent in taking the meds as they were a type that worked as you took them and missing just one dose would effect the thyroid. But like everyone else here the weight gain started with the thyroid issue and menopause and it would not budge for the last 18 years. Finally in Oct. (2018) I joined MFP and started low carb (about 80 gms or below) portion control and of course logging of food. Even though I have mobility issues (walker) try some form of exercise and finally up to middle of March was able to lose 18 lbs. Couldn't believe that finally something was moving...problem is since then the weight has not moved up or down. I am so frustrated like you ConnieAGint ready to cry....but this time....I will NOT give up...I still keep track of food and have logged each day....it has got to start moving again eventually. Has anyone else experienced this and have noticed also craving sweet stuff very badly this last month. I have given in a few times but like I said I will not give up not this time. How long can a stall in loss last???? Thanks for any help or encouragement. Mary

  • laceygaywilson
    laceygaywilson Posts: 330 Member
    ConnieAGinther wrote: »
    I have underactive thyroid and even though I am counting all calories and on thyroid meds, I keep gaining weight. I have been on meds for about 2 - 3 years and was certainly losing some weight in the beginning, but now it is a real struggle. I am just ready to cry and give up.

    Sent you a friend request!!! Don't give up!! I'm living proof you can beat the thyroid Struggle!!!! Support makes a huge difference!!!
  • laceygaywilson
    laceygaywilson Posts: 330 Member
    mprocyszyn wrote: »
    I was diagnozed with low thyroid when I was 50 (now 69) and have taken meds ever since. One thing the Dr. told me was take the meds on empty stomach and no other meds or vitamins for an hour or more, food, coffee to wait atleast a half hour. He also told me I must be consistent in taking the meds as they were a type that worked as you took them and missing just one dose would effect the thyroid. But like everyone else here the weight gain started with the thyroid issue and menopause and it would not budge for the last 18 years. Finally in Oct. (2018) I joined MFP and started low carb (about 80 gms or below) portion control and of course logging of food. Even though I have mobility issues (walker) try some form of exercise and finally up to middle of March was able to lose 18 lbs. Couldn't believe that finally something was moving...problem is since then the weight has not moved up or down. I am so frustrated like you ConnieAGint ready to cry....but this time....I will NOT give up...I still keep track of food and have logged each day....it has got to start moving again eventually. Has anyone else experienced this and have noticed also craving sweet stuff very badly this last month. I have given in a few times but like I said I will not give up not this time. How long can a stall in loss last???? Thanks for any help or encouragement. Mary

    Hey Mary my last stall was 60 days!! Then I started losing again!!! Remember with thyroid it's more about how you feel than the scale!!! Working out and moving helps us feel better!! Yoga releases toxins and helps thyroid function!!! Caffeine is a killer!! I had to cut it out almost completely!!! I miss it sometimes lol but now decaf is plenty boost most of the time!! Sugar is hard to keep out when we want it daily!! I give myself at least 150 calories of something sweet everyday so I still know I'm alive and I have less binges that way!!! Staying positive is the number one key to success!! Scale is only part of the process!! We hold a lot of water and bloat with our thyroids malfunctioning! So work to feel better! Make your goals about moving more moving faster and moving longer! You will get stronger and that scale will eventually move with you!!!
  • mprocyszyn
    mprocyszyn Posts: 56 Member
    60 days!!!!! That makes me feel better and I am glad that the weight isn't going up just sitting there. With the warmer weather hoping to get out walking more. Lately though its been raining a lot and the temps have not been too much like spring but I will wait it out and continue with what I am doing. Thanks for your thoughts. Mary
  • CorkyLaRue
    CorkyLaRue Posts: 29 Member
    cheryldumais wrote: »
    Been hypothyroid most of my life. It took docs years to diagnose though. I am medicated and still find days when I feel it is low. My body temp runs between 96 and 97 most of the time. I lost 100+ pounds despite my thyroid so just wanted to encourage those still trying that it can be done. I do find my maintenance calories are a bit lower than projected likely because of my thyroid. Hang in there folks and keep believing.

    Thanks for this. I thought I was losing my mind when I take my temp and it is ALWAYS 196-197 degrees (even in the dr. office). My husband teases me and calls me a snake. I am convinced this (low temp) impacts how well my body burns calories overall. Before I was hypothyroid I rocked it - worked out all the time, ate a healthy diet, could drink alcohol, etc., etc. Now.... well, I'm starting over again++++.
  • laceygaywilson
    laceygaywilson Posts: 330 Member
    Hope y'all are feeling strong and confident this mother's day weekend!!! Enjoy a lil rest!! Eat something yummy!! Remember you are a badass!!!
  • laceygaywilson
    laceygaywilson Posts: 330 Member
    Goals can be crushed even with thyroid issues!! I hit my original goal!! 160.6!!! Wow y'all now I see endless possibilities!!! Everything now is BONUS!!!

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