Chronic Laryngitis?

BarbaraHelen2013

Almost two weeks after the excision biopsy and my voice, whilst far from normal is much improved. I have some tone back, albeit with a little hoarseness still, volume is still reduced but I think it may be a couple of months before it reaches ‘recovery’ - whatever that means.

No advice as yet, moving forward, but I’m composing a list of questions for the next ENT consultant, who is more of a specialist in this exact field.

The one thing the original consultant did say was that I shouldn’t drink neat spirits. Not that I ever have…never been a fan of spirits - I’m a red wine woman, which he said was completely fine. I still intend to keep any alcohol to a bare minimum.

I’ll keep this updated as and when I have relevant information.

Again, thank you all so much for indulging me. It has helped more than you know to be able to express the facts and feelings as this has unfolded for me. 💜

BarbaraHelen2013

Resurrecting this thread because I have more to share as a means to settle it in my head.

I saw the new, more specialised, consultant surgeon today, which I thought was going to be more of an ‘information and plan going forward’ consultation, but when he used the endoscope to check my larynx he found that the growth had returned.

So my second Excision Biopsy (Microlaryngoscopy) is scheduled for 23 June, less than two months after the previous one. Unfortunately, my husband is in America on business that week so I’m going to have to rely on one of my daughters to drop me off and pick me up and stay with me for the requisite 24 hours after the General Anaesthetic etc.

Not feeling great as I was quite shocked to discover the problem had returned so fast. In my mind that doesn’t bode well for the future.

middlehaitch

Thank you for coming back and updating us. I was only trying to find this thread yesterday to see if you had updated.

I’m so sorry the growth has returned and further surgery is needed. I hope the biopsy on the regrowth is negative.

I’m am glad your team is on the ball and acting fast.

Gosh it’s hard to type encouraging words, you’ll just have to take a virtual hug from me.

Hugs, h.

kshama2001

Ugh, sorry to hear that

BarbaraHelen2013

So, a bit of deja vu for me and anyone following this thread.

Second Excision Biopsy Microlaryngoscopy yesterday. This one was done by the more specialised ENT surgeon and at a different hospital - purpose built, only 6 years old, state of the art private hospital.

End result, my throat is significantly more painful this time, as I think this surgeon was determined to be a little more aggressive in how much tissue he removed in order to be sure he’d left none of the rogue cells in situ.

His immediate post op thoughts were that he’d seen nothing particularly sinister in the excised tissue but obviously Histology will tell the full story. Results on 7th July.

It was suggested by the theatre staff that I could pursue a refund of the fee charged by the first surgeon, since it merely resulted in a do over, causing further pain and distress. Not sure how I feel about that. I don’t think I’m inclined to follow that up since I’m sure he didn’t leave tissue in place deliberately and did, indeed, choose to refer me to a more specialised surgeon.

Anyway. Day 1 of recovery again. Strictly no use of my voice for 48 hours….something that is much harder than you’d think! I’ve been using Google translate which will do a text to speech function, but it’s a bit iffy - it’ll work for a while then suddenly stop. 🤷‍♀️ Charades can only get you so far!

Amusingly, seems my dog is psychic! My daughter reports that he was behaving oddly yesterday. Very subdued, lying by the door crying under his breath then suddenly leapt up and ran to her in excitement, jumping up and giving her kisses! A second later my text came through on her phone that the procedure was safely over.

Same thing again a couple of hours later - this time the text was the one saying they were allowing me home and could she come and pick me up! Dogs are weird! 💜

Gratuitous picture of my dog incoming!

PAV8888

Definitely deserving of a hug!

BarbaraHelen2013

Round two of Deja Vu..,

Had a third operation yesterday as the growth had once again come back. 😢

Much more aggressive this time, much more painful. Pretty spacy from the painkillers because I’m really not able to eat yet.

Not having a good time at the moment! 🙄

middlehaitch

Oh gosh, I am so sorry to hear that you have had to have yet another surgery. I have hoped that it was a no news was good news situation.
I do wish you the best and hope this is the last surgery.

hugs, h.

Gisel2015

I just came across this threat out of curiosity. I am sorry that you @BarbaraHelen2013 have been going thru such a hard time dealing with serious health issues for a long time.
As I was reading the entirely threat I kept hoping that one of your doctors had tested you for the presence of HPV (human papilloma virus), and what were the results of the pathology reports for surgeries #2 and now #3. I know that you are in the UK and that the medical system operates under different protocols, but if you haven't been tested for this virus, maybe you can ask for it. It is only a blood test. But if positive, the f/up treatment would be different.
I wish you lots of luck and also strength and resilience. Keep us informed when you can because it seems that this group in MFP had followed you for several months giving you lots of support and understanding.
E-hugs. G.