Cancer Sucks Group, anyone?

Options
AmyBrenn
AmyBrenn Posts: 93 Member
in Motivation and Support
For the past 6 months, I have been living the nightmare that is cancer. My 3 year old son (3 today!) was diagnosed with brain cancer on March 2010 and during this, I have discoverd I am definitely a stress eater. I've put on about 10 pounds. Add that to the 30 pounds I needed to lose to begin with and you have one fat momma!

I blogged about it yesterday. If you're interested, see the link below. There's also a link to our Caring Bridge page that follows our journey.

If anyone's interested in a Cancer Sucks support group, let me know. It's always comforting to hear from others who have been there, done that!

Amy B
Mom to Kaiden, my superhero!
«1

Replies

  • Beebee78
    Beebee78 Posts: 703
    Options
    I just wanted to send you masses of hugs xxx
  • sexylonglegs
    sexylonglegs Posts: 278
    Options
    Oh my gosh...{hugs}. Many prayers!
  • rikasmom
    rikasmom Posts: 2
    Options
    Happy 3rd Birthday, Kaiden!! And may you be blessed with many,many more!!! :flowerforyou:
  • e1ny
    e1ny Posts: 29
    Options
    Wishing you and your family the best. Thanks for sharing your blog. My little boy just turned 4 a few days ago. Sounds like yours is a strong little guy and very inspiring!
  • messyhare
    messyhare Posts: 366 Member
    Options
    I'm so sorry!! Yes, cancer SUCKS!! I've experienced it up close & personal with several family members.

    I'm going to go read your blog now - stay strong for both yourself & your little one!!
  • themommie
    themommie Posts: 4,996 Member
    Options
    just wanted to send you hugs and prayers. It would be hard to think about eating healthy or taking care of yourself when your little one has cancer and you are back and forth to the hospital and dr. Hang in there, you can do this you are a strong mom
  • andjack
    andjack Posts: 1
    Options
    My sisters and I, as well as many of our friends, run for Childhood Cancer. Our friend started an organization called Caleb's Crusade to help fund research, assist families, and eventually build a bereavement ranch, as unfortunately, her son passed in March of 2008. They have a Caring Bridge page for him, his name is Caleb Whan. You can also go to www.calebscrusade.com and get in touch with Moe who may know other moms whose children have had the same cancer as your child. There's also 46 mommas shave for the brave, who may be able to help you. Best wishes to you and yours!
  • chrissyh
    chrissyh Posts: 8,235 Member
    Options
    Absolutely, CANCER SUCKS!

    Amy I cannot imagine how hard it's been for you. BIG HUG!!

    I understand the stress eating - it's been a part of my life my whole life but when I had cancer it was much worse...hey I deserved those creamsicles after chemo, right?! Well they catch up to your hips quickly.
  • BigGail
    BigGail Posts: 465 Member
    Options
    Yep -it sucks big time!

    Love and hugs to you and your precious little boy x Can't imagine what you're going through. :flowerforyou:

    Happy birthday little man, and many more healthy happy ones to follow I hope x
  • svgarcia
    svgarcia Posts: 592 Member
    Options
    I'm so sorry to hear that. hugs to kaiden.
    My dad has been diagnosed right before thanksgiving 2009 for esophageal cancer, stage 3. I've been there taking him to most of his appointments with specialists, chemotheraphy, some of his radiation appt.
    He had an aggressive treatment. 6 wks chemo & 5 days a week for 6 weeks radiation.
    We just had another CTSCAN done earlier this month & DR says it shrank 20%. We will do another one in December as the DR says it usually takes 6 months to see the full effect on the chemo/radiation treatment.

    I will def. keep your family & esp. Kaiden in my prayers. So young =)
    Happy b-day to him and may he be blessed with many more to come.
    aloha--
  • tracyts
    tracyts Posts: 113
    Options
    Big hugs to you and best birthday wishes to your son! There is nothing more inspiring or hard than watching your child or loved one fight a battle for life. Lifting you both up in prayer...
  • msemejuru
    msemejuru Posts: 229
    Options
    You are in my prayers. I will make sure to lift up your son's name in my prayer group tonight. Hang tough!
  • godblessourhome
    godblessourhome Posts: 3,892 Member
    Options
    i agree cancer sucks! big hugs to you.

    my dad died on may 20 from prostate cancer and my hubby's grandpa passed away from acute leukemia. :( childhood cancer is by far the worst though. i am praying for your son.
    dawn
  • Aeriel
    Aeriel Posts: 864 Member
    Options
    I am very sorry to hear about your son's diagnosis. I hope the prognosis is hopeful. I take a fruit juice daily (Gochi) that is supposed to have had really good results at trials at John Hopkins ( I think) with helping with reducing the severity of effects from cancer treatments and even helping fight the cancer by reducing body acidity. I can probably find the data again if you are interested. All it is is fruit juice that is very high in antioxidants. I use it as a preventative because of my families history of cancer.
  • AmyBrenn
    AmyBrenn Posts: 93 Member
    Options
    Thanks for all your replies. I'm always open to any suggestions, so feel free to offer advice, tips, motivation, etc...

    Kaiden's original prognosis was not great. It wasn't horrific, but it wasn't great either. Chances of children with his type of tumor (Grade 4, supratentorial primitive neuroectodermal tumor, sPNET) have about a 40% chance of making it to their 5th birthday; however, I do not believe in those statistics because my son is one of a kind!
  • nopeekiepeekie
    nopeekiepeekie Posts: 338 Member
    Options
    Hi Amy! I've been where you're at (my daughter's birthday is today too, she's 12). She was diagnosed with leukemia in 2008 and went through 2 1/2 years of chemo, bone marrows & spinal taps. She's been playing fast pitch softball for the last two years & just started on the swim team. She was lucky. She didn't get sick from her chemo but once (my fault because I forgot to give her the nausea meds), and she was hospitalized a few times for various fevers and once for pneumonia (right at the end of her treatment.... she almost missed her last day of grade school in June). She lost her hair twice, which is bad enough for any kid, but twice as bad for an almost teenage girl and went from having stick straight thin blonde hair to having curly dark brown hair (though her curls have straightened out more as she lets her hair grow)

    While my daughter was being treated for her cancer, my Dad was diagnosed with terminal prostate cancer (he's in year 2 of his treatments that will last the rest of his life)

    While watching all these children being treated for various cancers I've learned one thing. Children are amazingly resilient.
  • AmyBrenn
    AmyBrenn Posts: 93 Member
    Options
    Children are amazingly resilient.

    Unbelievably so!!!
  • twnzmom
    twnzmom Posts: 182 Member
    Options
    Happy Birthday Big Guy! May you have many more.
  • AmyBrenn
    AmyBrenn Posts: 93 Member
    Options
    Thanks to everyone for their birthday wishes for my son. He had a great day!
  • queenmedusa
    queenmedusa Posts: 247 Member
    Options
    Am glad he had a good birthday - bless his heart. So difficult for you but I know you'll do everything you can for him.

    Completely agree that cancer SUCKS!

Categories