I have PCOS would love some support

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  • Amy1527
    Amy1527 Posts: 18
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    Tryett your story is inspirational. Very brave decision to have a hysterectomy I think but your reasons speak for themself! My doctor won't give me Chlomid until I reach a BMI of less than 30 which I feel like is the only thing standing in my way now! So here I am on my weight loss journey with you wonderful people!!
  • cebreisch
    cebreisch Posts: 1,340 Member
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    I've got PCOS and was diagnosed about 11 years ago. I'm almost 48.

    Things that I've found that have helped me include:

    When I have a snack, have something protein first. That'll help keep the cravings in check.
    Drink water.
    Make sure you have quality protein, and lots of it. It's okay to go over on your protein, and if you focus on it, the carbs/fats will take care of themselves.
    Make sure you get enough fiber. I usually have chocolite protein bars (www.healthsmartfoods.com and you can get coupon codes at www.retailmenot.com). They have about 10g protein, and about 10g fiber - about 100 calories, gluten/sugar free.

    They should be able to put you on glucophage or metformin.

    I've had 2 fertility cycles and have 2 beautiful girls. If you have any questions about that process, feel free to send me a message.
  • tryett
    tryett Posts: 530 Member
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    I was fortunate to find a Dr who would prescribe clomid to someone overweight back then. But it was expensive and our insurance did not cover it. But the boys were worth it.
  • fattiekaior
    fattiekaior Posts: 5
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    Hi Hun, I was diagnosed with PCOS on yesterday at age 30! Im on board with you! I sent a request to you
  • ilovefatthatswhyimfat
    ilovefatthatswhyimfat Posts: 10 Member
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    PCOS suffer here too! Feel free to add me ladies. I've been diagnosed for 7 years. I find that we have to eat way less than non pcos sufferes to lose weight which feels unfair!
  • Amy1527
    Amy1527 Posts: 18
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    I'm thinking about going private. The NHS here is a joke sometimes but I do understand it can be dangerous and the success rate is higher with BMI under 30. It's very frustrating when I go for my check up at the gynae right next door to labour ward and pass all the pregnant women outside smoking or who are so overweight you don't know where baby bump starts, that's really cheeses me off! Sorry off on a rant lol x x
  • LKArgh
    LKArgh Posts: 5,179 Member
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    Was diagnosed when I was 18, this is more than 20 years ago. I was lucky in that my dr was also specialising in reproductive endocrinology and insisted that as long as I exercise and monitor my weight I would be fine. I had some cysts at times, never requiring surgery, I had some trouble conceiving one of my kids but nothing terrible, have insulin resistance but it is more of a lab finding so far , not affecting my life. I have tried to not be completely sedentary (with periods of being very active) and have never been overweight so far. Honestly the only noticeable effect of PCOS is increased body hair and some facial hair, but is more a nuisance than a real health issue. My BMI has been all these years in the range of 18 to 21-22, and according to my dr this is important in not having symptoms. I am no expert, but so far he seems to be right.
  • Aimee2001
    Aimee2001 Posts: 1 Member
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    I was just diagnoses with PCOS yesterday at age 31 and got back on my fitness pay for the first time in years today. All of a sudden my massive weight gain (25 lbs in less than a year) and my insulin issues make so much more sense. It's nice to see so many other people with same issues supporting each other.
  • kmash32
    kmash32 Posts: 275 Member
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    Hello,

    I have PCOS and was just diagnosed about a year and a half ago, I am 41 now. I also have no thyroid and a heart condition that means no high intensity exercise.

    I have to say what has worked for me in the past and I need to get back to is that I stick to a net calorie intake of around 1200-1300 calories a day. Exercise is also a key for me. I do find I can eat carbs but it has to be gluten-free (except corn based products) or certain others like kamut (ancient grain). I fine that potato's (though I have had a hard time with giving up fries) and white rice are no good either.

    I have regular periods although they are every 5 instead of 4 weeks. Between the no thyroid and the PCOS I definitely have the facial hair and the leg hair is darker and courser too. Other than that and the fact that I put on all my weight around my stomach I don't have that many symptoms. Something to watch out for and get tested is your thyroid. I have read a lot about the fact that PCOS and hypothyroidism can me connected.

    Feel free to add me.
  • kmash32
    kmash32 Posts: 275 Member
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    Oh there is also several groups on here for PCOS sufferers. Just click on groups and do a search.
  • lrpxo
    lrpxo Posts: 17 Member
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    Hey, Im 21. i had suspected for 2 years i had PCOS, but it wasnt until 3 months ago the doctor went "yeah.... looks like you do" brilliant- so what are you going to do about it? They gave me no advice except - lose weight. apparently losing weight helps manage it, and they arent willing to do anything until i do...
    Guess we'll have to battle through it together!

    Feel free to add me!! x
  • ImSoOTired
    ImSoOTired Posts: 186 Member
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    Irpxo I am still trying to get my doctors to properly diagnose me but I am certain that I have PCOS.

    I have just about every symptom you can imagine in some way or another. I have lost 45 lbs though and I'm in the 'normal weight range' for my height. I can still stand to lose another few lbs but my symptoms have significantly diminished. I have more doctor's appts coming up so I hope to get some more answers. I successfully conceived my daughter after dropping the first 30 lbs but it did take a lot of time and heartache. I hope to conceive another very soon if I can get my ovaries to behave long enough.

    Feel free to add me.
  • lrpxo
    lrpxo Posts: 17 Member
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    It took me so long for them to take me seriously. so long. even my med school friend was like "yeah you have pcos" its crazy! the lack of support by some people leave you feeling horrific about yourself
  • hopefuln2014
    hopefuln2014 Posts: 1
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    Hi, My name is Laura....I would find another doctor. I was diagnosed with PCOS quite a few years ago and I have been heavy all my life, My doctor put me on Metformin. It's a drug they use for diabetes but also works very well for PCOS. I have been taking this for a long time now and it works. I would start talking to other doctors.
  • MissChyna
    MissChyna Posts: 358 Member
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    I'm in the same boat chica! Added you :)
  • SookiesMoma
    SookiesMoma Posts: 2
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    Hi, I'm new here too. I was diagnosed with PCOC 11 years ago when I was 16 along with recurring endometriosis and I have struggled with my weight for years...mostly because I've not had the right attitude to food if I'm honest. I tried a ketogenic diet in December 2013 and lost 2.2kgs in 2 weeks with it but I didn't stick with it and the weight came back on. I've decided to give it a go again but I'm planning to stick with it for longer this time as I'm having alot of symptoms that I know will be better controlled with weight loss.

    I can't really give you any advice but just wanted to wish you well on your journey x
  • JenniBaby85
    JenniBaby85 Posts: 855 Member
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    I have it too, as well as hypothyroidism. I understand the struggle!
  • bethfartman
    bethfartman Posts: 363 Member
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    Hey dude! I have polycystic ovaries, but not the endocrine disorder PCOS. Regardless, weight loss has helped my condition tons! They diagnosed me w/ PCOS first because I was overweight, but it turned out that I actually have endometriosis.

    First of all, did they do any fasting glucose tests to find out if you were insulin resistant? If not, make sure they do. If it turns out you do have blood sugar issues, try to get them to put you on Metformin ER (extended release.) Some people will say it made them sick, but if you stick with it, it will help you lose weight if you have glucose issues. Beyond stabilizing your blood sugar, Metformin also can also help you to get less cysts, but my doctor cannot explain to me why. When I lost weight and my blood sugar was good again, I got off Metformin since my doctor and independent research couldn't turn up any good info as to why I should stay on it longer, but if you truly have PCOS, it will help long-term. Regardless, that's where you want to start. If you want to stabilize your blood sugar solely through nutrition, that can be done too, just limit simple carbs and excess sugar and make sure you get an hour of exercise in most days of the week.

    Good luck!
  • Mamafood
    Mamafood Posts: 55 Member
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    I have PCOS & hypothyroidism .... Am really very active & get sooooooo fed up with the effort it takes to get weight off I often have months at a time where I don't track

    I conceived scarily quickly with my first :-) but my second was a heartfelt journey & at 41 we agreed to stop trying for no. 3 :-/
  • UsedToBeHusky
    UsedToBeHusky Posts: 15,229 Member
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    Hey dude! I have polycystic ovaries, but not the endocrine disorder PCOS. Regardless, weight loss has helped my condition tons! They diagnosed me w/ PCOS first because I was overweight, but it turned out that I actually have endometriosis.

    First of all, did they do any fasting glucose tests to find out if you were insulin resistant? If not, make sure they do. If it turns out you do have blood sugar issues, try to get them to put you on Metformin ER (extended release.) Some people will say it made them sick, but if you stick with it, it will help you lose weight if you have glucose issues. Beyond stabilizing your blood sugar, Metformin also can also help you to get less cysts, but my doctor cannot explain to me why. When I lost weight and my blood sugar was good again, I got off Metformin since my doctor and independent research couldn't turn up any good info as to why I should stay on it longer, but if you truly have PCOS, it will help long-term. Regardless, that's where you want to start. If you want to stabilize your blood sugar solely through nutrition, that can be done too, just limit simple carbs and excess sugar and make sure you get an hour of exercise in most days of the week.

    Good luck!

    I have both endometriosis and PCOS, and to the best of my knowledge, endo has nothing to do with weight gain, and PCOS has everything to do with it.

    Of course, I have PCOS without ovarian cysts, which you apparently have without PCOS. It's very confusing. I kind of think that PCOS with cysts and PCOS without cysts might actually be two completely different disorders that are so similar that doctors have not realized that they need to be classified as separate diseases.

    Either way, I am not aware of how endo can cause weight gain. Can you explain that for me please?

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